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Swiss Cheese Trachea?
Happy Monday, Folks! Hubby started his IMRT today in Houston. 1 down, 32 to go. He met with the oncologist who explained the risks and brought something up I was curious about. If the trachea has been comsumed by cancer to the extent that a hole will be left when the cancer is killed, where does that leave us? Does the…
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Chemo/Rad complete but Platlets numbers dive
All of you have been so helpful, so I am asking for anyone's feed back on low platlet count. My chemo/rad stopped 2 1/2 weeks ago. Between last Tuesday and yesterday my numbers went from 170 to 112. They doctor was surprised so ran them again and they went down 5 more points in less than 1 hour. I was told this was do to…
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Johnnybegood Is Free
In the wee hours of the morning, an unexpected storm raged through and as it moved on, took the storm raging within my child's body. Hers was not an easy death, but she is free now. There is so much to say to each of you, but words will not come now. For the moment, just know that we love you. Love, Karen(Wolfen)
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5th one!
Clean PET/CT that is! A year and a half cancer free now! It took 3 separate treatments but it worked. Never give up. Best wishes to all my brothers and sisters on this board. Keep fighting! AB
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Hole in Upper Palate / Up-date
Well I go to see my ENT tomorrow so she can check the hole in my upper palate again. Last time she check it, it was the size of a pencil now it is the size of a penny, I am not sure what she will say or want to do, that is what I am afraid of. Oh well just another day in the life of a H&N cancer patient with the gift of…
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Comic Relief
I have been completely dependent on a G tube for about six months now, and I will live with it until this journey is over. I wound up with a G tube because my jaw won't open enough to get a JPEG in, and will barely permit me to be anesthetized. As some of you know, my G tube has been quite an adventure. First, in the…
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pain in throat after inserting the feeding tube.
Hi All, My father 53yrs on his last week(3 days left) of radiation of 7 weeks.day before yesterday we put the feeding tube.From yesterday he is saying he is feeling pain in his throat.when swallowing the saliva(though he had pain before he is telling he is feeling more pain).Does it because of tube or anything else,i am…
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Off of the fan!
Long day but good results. MRI at 11, Doctor at 1. Doctor likes what he saw. Tumor is still shrinking. He showed me the comparison of previous scan and todays. Another doctor at 4. The chunck that came out of my upper gum area looks like shrinkage. The area is 'communicating' with the sinus area. I don't know weather to…
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Tracheotomy Tales
I have updated my profile with my own 'tracheotomy tale' - I'll bet we all have a tale to tell about our trachies, be they temporary or more longstanding. When end you think of everything we have got ourselves through, we are a bunch of heroes when you think about it! Give ourselves a pat on the back :) )
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Help concerning the swallowing muscles
Can anyone out there share their experiences with learning to swallow again? I am 4 mos post treatments and my swallowing works ok sometimes and other times the muscles feel like they go into spasms or sort of like a paralyzed state when I try to swallow. When I get up in the mornings, I have to re-train myself to swallow…
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Hondoo
Hondoo, you say you can eat anything even a beefburger after it goes through the nutrimixer. What enjoyment do you get out of it, because you can't taste it. I can't taste the ensure drinks I cant even 'burp' so not even a secondhand taste. When you talk about your diet and eat anything I feel like your enjoying the taste…
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Very scary moment!
My 17 year old son has a swollen lymph node on the back of his neck. I immediately got him to the doctor to have it looked at....I don't mess around with bumps, lumps and other things anymore!! He felt positive that it was "just a swollen lymph node" but wanted to try to determine WHY it was swollen. The doctor said "let's…
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Carcinoma Perifora fossa T3N2M0 of my father
Hi All, After reading these discussions found this site very helpful during this drastic situation. My father 53yrs getting treated with carcinoma periforafossa T3N2M0 doctor suggested for ChemoRadiotherapy.Completed 2 chemo cycle 27 sitting of radiation.Now we are struggling with the bad side effects of Radiation.But He…
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Hearing Loss...
So, I've done 23 rads and 2 cisplatin chemos and have the usual side effects...but I told the doctors a few days after the second chemo that I was having definite hearing problems, especially in my right ear and am losing constant tones that pitch in the ear and then disappear. They said they will defintely not go the…
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Update On My Daughter, Johnnybegood
Cannot remember when I last posted. My girl is still in the fight, but just barely after enduring 6 very hard years. Twice in the last week, she has defied a 24 hour prognosis. I know in my heart that there will not be another rally, as she simply has nothing left in reserve. I have been here in Kentucky for over a month &…
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Swallowing worsen after 12 yrs
Hi I am a cancer survivor after 12 yrs. I had nashrygeal cancer I. 2002, had radiation, chemo and neck surgery. Had feeding tube during my treatment and had it remove few months after. the side affect from all this treatment was dry mouth but i managed to have food by mouth. Only food I can eat was anything with sauce. I…
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Out of the box ideas for Trismus
Hello everyone Brand new to this forum (not brand new the NPC), diagnosed 2008, and 2012, same spot same everything, came back 3.5 years after first treatment with chemo and rads. Took me a good 2 years to recover from the first treatment with minor issues. Second treatment has not been so kind. Everything above the…
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Prayers Requested
I am posting today requestiing prayers for my husband. I read this board daily and only post occasionally. My husband successfully fought mandibular sarcoma two and a half years ago, undergoing radiation, partial neck dissection, mandibulectomy, and fibula free flap surgeries. He goes in every three months for scans and…
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Skiff ~ Home at Last...
Now to stay here..., LOL Well, I really appreciate all of the thoughts, concerns and prayers.., along with a few visits and phone calls... I got to come home Friday, with strings attached..., well actually a tube a and a pump. I am on nutrients, antibiotics through a PICC line (catheter inside my left arm).. No food or…
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need your help-MD Anderson Cancer Center decline my appointment application
Just now i knew the center refused my application of appointment because my current CT scanning and biopsy do not support I have the NPC. However, my biopsy is not good because my swollen node is small and the doc can not get the correct swollen tissue. In addition, my local doctor has small experience on NPC and i am…
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PET Scan
Insurance denied PET Scan for next week, MRI is still on. I guess that makes for less scanxiety, Not! Nurse did say MRI would show any problems in head (Matt, John, behave yourselves!)
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Checking In
Friends, it has been awhile and have just been really busy with work and the kids being summer and all. It's been fifteen months since finished treatment and just had my quarterly visit to MDA Houston. All clear and the doc said no need to see me again till Jan! Very please with progress and everything looks great! Still a…
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Hi all! Prayer Request
Hi all: Got back from Chatt/Nash. on Wed. Was not uneventful trip however! My best friend and I were going to Nash. in her van as we were supposed to bring some furniture back for another friend's daughter who's moving back home for awhile to go to school. Well, when I got to her house on Monday morning since the van had…
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Yet another lesion
I've only just got through all my treatment, really, it finished mid-March. Then there was the lump in my neck. That came back "acellular". This morning, I've found another damn lesion on the non-cancer side of my tongue. It looks exactly like how the tumour looked before the **** hit the fan last autumn. It feels the same…
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Saliva Glands Slow to Heal
Hello everyone, It's been a few months since I've been onboard. First of all I just want to say that you all are AMAZING ! The sincere love and concern that is expressed is so welcomed and appreciated! Thanks for being you! My husband just finished his second PET scan after treatment on July 1st, and his scan is clear!…
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Update my biopsy on NPC
Thanks all of you for your pray. Today I got the biopsy result. The doc found most of blood cells, not lymph cell or cancer cells. Doc told me my lymph node is small and is difficult to get the tissue cells by needle. Doc took 5 times using needle. Doc suggest me follow up in one month if the node is getting bigger. I do…
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who can recommend an experienced nasopharyngeal carcinoma doctor in MD Anderson Cancer Center
One month ago i found a swollen painless lymph nude on left neck while my left forehead was infected by Shingles virus. I took anti-virus medicine one week and then virus was gone. But the neck lymph nude is still there. In my family, my uncle was dead from nasopharyngeal carcinoma and his first symptom was swollen neck…
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tongue cancer
Hello,I just went to see a ears,nose, throat last friday, and give me some details of what will happen to me soon, my big big fear, right now it's that surgery, did someone went through it already?
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Skiffin and Shelley Escape...
Still on the IV feedings, but on a 18 hour cycle... So I have six hours to escape and play for a few minutes.... Guess what I did..., LOL; Shelley and I got to get the Hewes out for a little while on a local lake today.. I sure do miss having a cold beer, LOL...even water for that matter..., soon I hope. Thanks for the…
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My CT Scanning is good
This morning i saw my doctor and the CT scanning is well. Nasopharyngeal part is good and no cancer indicator. I am doing the biopsy and next tuesday i will get the results. In addition, i have submitted the appointment to MD Anderson Cancer Center for further confirmation. thanks for all your bless.