-
Hearing Loss...
So, I've done 23 rads and 2 cisplatin chemos and have the usual side effects...but I told the doctors a few days after the second chemo that I was having definite hearing problems, especially in my right ear and am losing constant tones that pitch in the ear and then disappear. They said they will defintely not go the…
-
Update On My Daughter, Johnnybegood
Cannot remember when I last posted. My girl is still in the fight, but just barely after enduring 6 very hard years. Twice in the last week, she has defied a 24 hour prognosis. I know in my heart that there will not be another rally, as she simply has nothing left in reserve. I have been here in Kentucky for over a month &…
-
Swallowing worsen after 12 yrs
Hi I am a cancer survivor after 12 yrs. I had nashrygeal cancer I. 2002, had radiation, chemo and neck surgery. Had feeding tube during my treatment and had it remove few months after. the side affect from all this treatment was dry mouth but i managed to have food by mouth. Only food I can eat was anything with sauce. I…
-
Out of the box ideas for Trismus
Hello everyone Brand new to this forum (not brand new the NPC), diagnosed 2008, and 2012, same spot same everything, came back 3.5 years after first treatment with chemo and rads. Took me a good 2 years to recover from the first treatment with minor issues. Second treatment has not been so kind. Everything above the…
-
Prayers Requested
I am posting today requestiing prayers for my husband. I read this board daily and only post occasionally. My husband successfully fought mandibular sarcoma two and a half years ago, undergoing radiation, partial neck dissection, mandibulectomy, and fibula free flap surgeries. He goes in every three months for scans and…
-
Skiff ~ Home at Last...
Now to stay here..., LOL Well, I really appreciate all of the thoughts, concerns and prayers.., along with a few visits and phone calls... I got to come home Friday, with strings attached..., well actually a tube a and a pump. I am on nutrients, antibiotics through a PICC line (catheter inside my left arm).. No food or…
-
need your help-MD Anderson Cancer Center decline my appointment application
Just now i knew the center refused my application of appointment because my current CT scanning and biopsy do not support I have the NPC. However, my biopsy is not good because my swollen node is small and the doc can not get the correct swollen tissue. In addition, my local doctor has small experience on NPC and i am…
-
PET Scan
Insurance denied PET Scan for next week, MRI is still on. I guess that makes for less scanxiety, Not! Nurse did say MRI would show any problems in head (Matt, John, behave yourselves!)
-
Checking In
Friends, it has been awhile and have just been really busy with work and the kids being summer and all. It's been fifteen months since finished treatment and just had my quarterly visit to MDA Houston. All clear and the doc said no need to see me again till Jan! Very please with progress and everything looks great! Still a…
-
Hi all! Prayer Request
Hi all: Got back from Chatt/Nash. on Wed. Was not uneventful trip however! My best friend and I were going to Nash. in her van as we were supposed to bring some furniture back for another friend's daughter who's moving back home for awhile to go to school. Well, when I got to her house on Monday morning since the van had…
-
Yet another lesion
I've only just got through all my treatment, really, it finished mid-March. Then there was the lump in my neck. That came back "acellular". This morning, I've found another damn lesion on the non-cancer side of my tongue. It looks exactly like how the tumour looked before the **** hit the fan last autumn. It feels the same…
-
Saliva Glands Slow to Heal
Hello everyone, It's been a few months since I've been onboard. First of all I just want to say that you all are AMAZING ! The sincere love and concern that is expressed is so welcomed and appreciated! Thanks for being you! My husband just finished his second PET scan after treatment on July 1st, and his scan is clear!…
-
Update my biopsy on NPC
Thanks all of you for your pray. Today I got the biopsy result. The doc found most of blood cells, not lymph cell or cancer cells. Doc told me my lymph node is small and is difficult to get the tissue cells by needle. Doc took 5 times using needle. Doc suggest me follow up in one month if the node is getting bigger. I do…
-
who can recommend an experienced nasopharyngeal carcinoma doctor in MD Anderson Cancer Center
One month ago i found a swollen painless lymph nude on left neck while my left forehead was infected by Shingles virus. I took anti-virus medicine one week and then virus was gone. But the neck lymph nude is still there. In my family, my uncle was dead from nasopharyngeal carcinoma and his first symptom was swollen neck…
-
tongue cancer
Hello,I just went to see a ears,nose, throat last friday, and give me some details of what will happen to me soon, my big big fear, right now it's that surgery, did someone went through it already?
-
Skiffin and Shelley Escape...
Still on the IV feedings, but on a 18 hour cycle... So I have six hours to escape and play for a few minutes.... Guess what I did..., LOL; Shelley and I got to get the Hewes out for a little while on a local lake today.. I sure do miss having a cold beer, LOL...even water for that matter..., soon I hope. Thanks for the…
-
My CT Scanning is good
This morning i saw my doctor and the CT scanning is well. Nasopharyngeal part is good and no cancer indicator. I am doing the biopsy and next tuesday i will get the results. In addition, i have submitted the appointment to MD Anderson Cancer Center for further confirmation. thanks for all your bless.
-
Do I need HBO for an apicoectomy?
Hi, I'm 48 and when I was 28 had thyroid cancer. It actually was diagnosed when I was 19 (5lbs bilateral). Extracted and came back when I was 28 because an internist took me off thyroid for 6 months. Was given i131 and beam radiation in October 1994: Treatment site total dose Oropharynx, bilateral necks, R/L lateral 6840…
-
Another step forward
Went to both my radiation and surgery doctors last week for a check up.Both are happy with the way things are healing.Both grabbed pulled and all the good stuf to see how my thounge was doing.Radiation doctor was glad and surprized how well the swelling has gone in my tounge.Have been able to eat alot better and speak…
-
IMRT starts Thursday
Hey everyone! Hubby had his PET Thursday and the doctor said: "...PET/CT scan demonstrated considerable decrease in the size and activity of the FDG-avid disease surrounding the upper trachea and the associated active lower neck and mediastinal lymphadenopathy. In addition, the ground-glass opacities within the right lung…
-
Chef Daddy Mike Up-date
I heard from Mike he is sleeping in his car that sucks when you live in Portland Oregon. He is trying to find work but finds he no longer has the strength he once did to work very long. He said he never dreamed that at his age he would be in this predicament in life. Please continue to keep him in your prayers. Tim Hondo
-
Acid Reflex and GURD
I had Both GURD, [ascid reflex] as well as a Hiatal Hernia before I had the Larnyx SSC. Even think it helped the SSC get worse. Now I have been told that when you have a Laryngectomy you often get Acid reflex. Well if you had it before it get's worse. Mine has been so bad at times,[everyday] that if I burp I tase acid. If…
-
I'm officially depressed...
I thought I'll write here today instead of keeping my sad thoughts to myself... Monday I have a 1 hours MRI for brain and neck! Wednesday I have the so called "mapping" or "simulation" session. And as already told u on the 28 I start. well..to be honest.. I'm depressed, I lost my energy, my humor, my interest in people…
-
Surgery Cancelled
Hi, 2 wks ago, I was diagnosed with hypopharynx cancer, stage 2. I was scheduled for a partial pharyngectomy today. Yesterday, the surgeons nurse called and left a message on my phone saying that they cancelled my surgery because my tumor (lesion) is too close to my carotid artery. I am shocked and upset because they want…
-
Ups and Downs
I got better quite quickly after my surgery, but radiotherapy nearly killed me. But I improved quite a bit. the last few weeks my lymphedema has come back with a vengeance. The worst is inside my mouth. I am doing my drainage massage religiously and I saw the lymphedema nurse again. It has buggered up my swallowing again.…
-
Kindly requesting advice
Hi there everyone My name is Martin and I'm 35. I am from England originally but I now live and work in the States with my American wife. I only found this message board last night and first please let me say what an inspiration you all are, not just to sufferers but to anyone. I would greatly welcome any advice you could…
-
Late Onset Swallowing Disorder from Radiation to Throat
My dear husband (aged 70) was diagnosed with thyroid cancer 9 years ago. Over the next 2 years, had 3 surgeries (kept recurring), then chemo, then external radiation. He had to have a feeding tube put in after external radiation for 6 months because of the burns to his throat. Also had 2 radioactive iodine treatments along…
-
Good pathology results after surgery
Yah! Even though I feel like dodo, I have good results. The lymph nodes that they removed were free from cancer. The tongue tumor is a T1, which means they get to watch me for 5 years to see if I stay cancer-free... I just have to heal now and learn to eat and talk again. I'm in pain still but that should go away as I…
-
treatments postponed till August 4.. i think im ready :)
Hello guys, yesterday I had my first appointment with the radio oncologist. the mapping and simulation meeting in next Wednesday. and the first session is July 28. I'm gona be having 28 sessions of "MIRT" I'm not sure if I spelled it right, its the localized radio. the area treated will be my sinus area. That is around my…
-
Squamous Cell Throat Cancer & the Elderly
Hi Folks, I'm new to this forum because my 80 year old Mom aka Best Friend was just diagnosed with SCC. She had a sore on her tongue and she had her PC look at it and he dismissed as a cankor sore. Well, it festered and she kept dismissing, because she does what most of us do ... trust the doctors and keep thinking it will…