-
Cetuximab What Would You Do?
I had my surgery to remove my tumor, lymph nodes and titanium jaw replacement on 8/11. I was scheduled to start radiation treatment on 9/8/14. When I went to have the mask made my radiologist observed that my planned dental extractions did not happen during surgery and needed to get done. Had it done and postponed…
-
STRICTLY LADIES ONLY
Sorry for bringing up something personal, but I have just thought some ladies might not know about it. Many women, including myself, their periods can stop when they're undergoing radio, and all these other horrible cancer treatments. Mine stopped for 4 months, then they've come back, a bit differently, but are gradually…
-
New, but I've been through this before
Hello, ve been reasing sing this forum for the past two weeks and thought it was time to Introduce myself. Four years ago, my father in law passed away fron oral cancer. He had a tumor the size of his fist in his jaw and for months thought he was dealing with TMJ. Less than a head after diagnosis, 12 hour surgery to remove…
-
Peg and i are a fightin' again..
Hi all. haven't been on for a while now, been busy with my greenhouse.. but it seems Miss Peg just can't behave herself..she seems to like the color Red! I wonder if anyone else had leakage after 3 weeks of getting her put in. I am using a gauze sponge under it. I am still eating and drinking on my own yet. I was told by a…
-
tracheotomy
Hi All, Thank you all for all your support in this hard journey till now. I have come across another hard point now.My father today had tracheotomy as he had problem in breathing.Last month oncologist has told that the primary tumor has already gone from Pyriformfossa,But there are swollen inside the neck near voice box…
-
Ringing in my ear
I wanted to first say thanks to everyone on this site. It is very comforting knowing that I can ask questions and get support from such an encouraging group that has experienced much of what i am going through or about to go through. I appreciate it very much!! I started my treatment two weeks ago and half 4 and 1/2 weeks…
-
texas oncology
does anyone on the CSN go to the texas oncology in mesquite texas off of galloway and I30? i see a lot of people there, just wondering if any of our family go there?
-
scared
Im scared my husband is finished all treatments 35 rads 3 cysplaitin... .he was diagnosed with stage 4a scc hpv 16. ... was misdiagnosed for a year found it by having surgery to remove what they were certain was a cyst... Dr apologized after told me he was so sorry He had made a mistake..We will know by end of december…
-
Head and neck cancer tinnitus
Has anyone who has been treated for head and neck cancer with radiation have tinnitus (ringing in the ears) becasue of your treatments. If so, did it go away after treatment.
-
Gravy Tongue
Good morning! My husband is almost 8 months post Radiation.....he has 95% taste back and is tolerating everything - even hot/spicy items. He has regained all of his saliva on the sides of his tongue, and we thought some on the main part. But a few days ago he started saying that he felt like he had a thick gravy on the…
-
Adenocarcinoma Ethmoid Questions
Hi All! My doctor strongly suggested I have this cancer but won't know for sure until full pathology report is delivered & MRI is done next week. Any survivors here that can describe what to expect if the doctor's suspicion is realized? (I had a nasal polyp, got CT-scan which showed nothing, but Dr. found tumor upon…
-
Cetuximab
I dug and dug through papers I had received and hid away and found the name of the clinical trial drug that was presented by my team. I signed the paperwork to participate but am able to change my mind. It is called Cetuximab. Has anyone had any experiences with this drug?
-
Mayo came through again
Surgery was last Friday. Two hours turned into 7. They removed the titanium link from my jaw. looks like a bicycle chain. What a feeling of relief to have it gone after almost 3 years or toting it around and being uncomfortable. Guess there were 3pieces of fibula used back then. Near hinge and middle of chin had fused. One…
-
Relatively off-topic; interesting article
Researchers at Stanford University say they have found a new way to stop the spread of cancer. http://engineering.stanford.edu/news/stanford-researchers-create-evolved-protein-may-stop-cancer-spreading
-
Post Treatment Blues
i finally finished my treatment. I'm almost three weeks post treatment and am experiencing some depression and anxiety. During treatment, my focus was so much on things like eating, staying hydrated, pain control, coping with radiation and chemo. I was in and out of the hospital for treatment. The entire treatment took…
-
Bunnymom Update Finished Treatment in Recovery
I haven't posted for months. I finally finished treatment almost three weeks ago. I'm in recovery now. My treatment was five days inpatient, nine days home for seven rounds so treatment actually lasted about 14 weeks. One time per day radiation (35 rounds) with 5 FU and Hydrea. I was very focused on the treatment during…
-
Starting radiation Overweight
Has anyone else started radiation being overweight? I am significantly overweight, about 100 lbs. I know the doctors say this is not the time to "diet", but it would not hurt me to lose a few pounds. I had surgeries 7/8, 8/11 and start radiation on 10/6. I have eaten and drank ok so far throughout recovery. I have not lost…
-
Dr, Oz and Coconut Oil
I thought this was very interesting, Doctor Oz talking about the good in Coconut Oil http://www.coconutresearchcenter.org/dr-oz-talks-about-coconut-oil.htm Coconut Research Center http://www.coconutresearchcenter.org/ Tim Hondo
-
Newly diagnosed
WEll I got the news that nobody wants to hear...it was confirmed that I have squamous cell cancer in tonsils after a biopsy results came back. Doctor said it was stage iV which is very overwhelming to hear. I feel like I have read way too much on the internet, but I am very glad I stumbled upon this site. The support…
-
Simulation and Cannibis
My simulaton was today and I survived. My daughter drove me (she is 9 months pregnant) and gave me a lorazepam just prior to and also held my hand. The mask was surprisingly comforting. It did feel warm like a facial and I didn't mind it at all. As soon as they put it over my face she immediately pulled on it in the nose…
-
HBO & eyesight
Had 30 HBO dives so that I could have some teeth removed. It’s done and over with now. Having a bad effect on my eyesight and been told that it should return in time. Had the last dive 9 weeks ago. My distance vision sucks to say the least and I avoid night driving. Any insight on how long it may take to get my eyesight…
-
BunnyMom Update Finished Treatment.
I haven't posted for months. I finally finished treatment almost three weeks ago. I'm in recovery now. My treatment was five days inpatient, nine days home for seven rounds so treatment actually lasted about 14 weeks. One time per day radiation (35 rounds) with 5 FU and Hydrea. I was very focused on the treatment during…
-
Thyroid meds needed 3 years after radiation?
Has anyone who had squamous cell cancer of the upper esophageus (near trachea) and had 6 weeks of radiation end up having to take thyroid medication? Most doctors I asked disregarded a connection between radiation and eventual thyroid trouble but my common sense just won't let it go. Has any one here had this problem? Am I…
-
New Diagnosis 7/8/14 and Thank You to All
I was diagnosed on 7/8/14 with oral cancer. My method of coping was to tune out a lot of the information the doctors gave me, I just went and did everything they told me. I like and trust my doctors, I was just very angry with my diagnosis and thought it would just go away if I ignored it. I don't have all the factual…
-
Side effects
I was diagnosed with stage 4 tonsil that had spread to lymph nodes on the right side of my neck. I had 7weeks of Chemo/radiation and have been NED for the last year. so far my taste buds have not returned, neck spasms even after 3 months of physical therapy with shoulder pain for some reason and since this all happened…
-
So, Peg and I finalized our divorce today...
She fed me well while I was down and out for several weeks but she really started to become a pain at the end. Insisting that I change her dress every day and having to clean around her all the time was becoming a chore. I told her weeks ago that I didn't need her to feed me anymore and I could feed myself, and I frankly…
-
"Phantom" Pain (paraesthesia) in tongue flap - LOL - FRANKENFLAP!!
Am I the only one who experiences this phenomenon in the tongue flap? I've had it ever since surgery. It isn't usually 'terrible' pain. More tingles, and the sensation that the flap is moving, when it isn't. My flap has no innervation, it's "insensible" - so this is strictly a 'brain' thing, the same phenomenon as phantom…
-
Bell Ringer
Hubby rang the bell yesterday! We are home now. He asked me to ask you all how long it will be before he starts to feel a little better? He did 9 rounds of chemo and 33 rx. Hope you all have a great weekend.
-
Post treatment PET scan
I just had my post pet, my Dr. Called and told me it was clean NED. Now I get to have the PEG removed next week. my treatment was for SCC BOT, involving 2 lymph nodes. I had 35 rads and 3 Cisplatin chemo. thanks to all for the well wishes and prayers. Mike
-
mucositis - worried and fed up
Hi there,, Its been 7 weeks since my treatment. I am suffering from mucositis. My tongue seems swollen at back, have seen white dots come and go. My mouth is sore. It seems most foods are stinging my mouth so its difficult to find foods to eat. I still have my peg and drs have given me another 3 weeks to see if Im eating…