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Adenocarcinoma Ethmoid Questions
Hi All! My doctor strongly suggested I have this cancer but won't know for sure until full pathology report is delivered & MRI is done next week. Any survivors here that can describe what to expect if the doctor's suspicion is realized? (I had a nasal polyp, got CT-scan which showed nothing, but Dr. found tumor upon…
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Cetuximab
I dug and dug through papers I had received and hid away and found the name of the clinical trial drug that was presented by my team. I signed the paperwork to participate but am able to change my mind. It is called Cetuximab. Has anyone had any experiences with this drug?
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Mayo came through again
Surgery was last Friday. Two hours turned into 7. They removed the titanium link from my jaw. looks like a bicycle chain. What a feeling of relief to have it gone after almost 3 years or toting it around and being uncomfortable. Guess there were 3pieces of fibula used back then. Near hinge and middle of chin had fused. One…
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Relatively off-topic; interesting article
Researchers at Stanford University say they have found a new way to stop the spread of cancer. http://engineering.stanford.edu/news/stanford-researchers-create-evolved-protein-may-stop-cancer-spreading
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Post Treatment Blues
i finally finished my treatment. I'm almost three weeks post treatment and am experiencing some depression and anxiety. During treatment, my focus was so much on things like eating, staying hydrated, pain control, coping with radiation and chemo. I was in and out of the hospital for treatment. The entire treatment took…
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Bunnymom Update Finished Treatment in Recovery
I haven't posted for months. I finally finished treatment almost three weeks ago. I'm in recovery now. My treatment was five days inpatient, nine days home for seven rounds so treatment actually lasted about 14 weeks. One time per day radiation (35 rounds) with 5 FU and Hydrea. I was very focused on the treatment during…
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Starting radiation Overweight
Has anyone else started radiation being overweight? I am significantly overweight, about 100 lbs. I know the doctors say this is not the time to "diet", but it would not hurt me to lose a few pounds. I had surgeries 7/8, 8/11 and start radiation on 10/6. I have eaten and drank ok so far throughout recovery. I have not lost…
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Dr, Oz and Coconut Oil
I thought this was very interesting, Doctor Oz talking about the good in Coconut Oil http://www.coconutresearchcenter.org/dr-oz-talks-about-coconut-oil.htm Coconut Research Center http://www.coconutresearchcenter.org/ Tim Hondo
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Newly diagnosed
WEll I got the news that nobody wants to hear...it was confirmed that I have squamous cell cancer in tonsils after a biopsy results came back. Doctor said it was stage iV which is very overwhelming to hear. I feel like I have read way too much on the internet, but I am very glad I stumbled upon this site. The support…
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Simulation and Cannibis
My simulaton was today and I survived. My daughter drove me (she is 9 months pregnant) and gave me a lorazepam just prior to and also held my hand. The mask was surprisingly comforting. It did feel warm like a facial and I didn't mind it at all. As soon as they put it over my face she immediately pulled on it in the nose…
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HBO & eyesight
Had 30 HBO dives so that I could have some teeth removed. It’s done and over with now. Having a bad effect on my eyesight and been told that it should return in time. Had the last dive 9 weeks ago. My distance vision sucks to say the least and I avoid night driving. Any insight on how long it may take to get my eyesight…
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BunnyMom Update Finished Treatment.
I haven't posted for months. I finally finished treatment almost three weeks ago. I'm in recovery now. My treatment was five days inpatient, nine days home for seven rounds so treatment actually lasted about 14 weeks. One time per day radiation (35 rounds) with 5 FU and Hydrea. I was very focused on the treatment during…
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Thyroid meds needed 3 years after radiation?
Has anyone who had squamous cell cancer of the upper esophageus (near trachea) and had 6 weeks of radiation end up having to take thyroid medication? Most doctors I asked disregarded a connection between radiation and eventual thyroid trouble but my common sense just won't let it go. Has any one here had this problem? Am I…
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New Diagnosis 7/8/14 and Thank You to All
I was diagnosed on 7/8/14 with oral cancer. My method of coping was to tune out a lot of the information the doctors gave me, I just went and did everything they told me. I like and trust my doctors, I was just very angry with my diagnosis and thought it would just go away if I ignored it. I don't have all the factual…
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Side effects
I was diagnosed with stage 4 tonsil that had spread to lymph nodes on the right side of my neck. I had 7weeks of Chemo/radiation and have been NED for the last year. so far my taste buds have not returned, neck spasms even after 3 months of physical therapy with shoulder pain for some reason and since this all happened…
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So, Peg and I finalized our divorce today...
She fed me well while I was down and out for several weeks but she really started to become a pain at the end. Insisting that I change her dress every day and having to clean around her all the time was becoming a chore. I told her weeks ago that I didn't need her to feed me anymore and I could feed myself, and I frankly…
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"Phantom" Pain (paraesthesia) in tongue flap - LOL - FRANKENFLAP!!
Am I the only one who experiences this phenomenon in the tongue flap? I've had it ever since surgery. It isn't usually 'terrible' pain. More tingles, and the sensation that the flap is moving, when it isn't. My flap has no innervation, it's "insensible" - so this is strictly a 'brain' thing, the same phenomenon as phantom…
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Bell Ringer
Hubby rang the bell yesterday! We are home now. He asked me to ask you all how long it will be before he starts to feel a little better? He did 9 rounds of chemo and 33 rx. Hope you all have a great weekend.
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Post treatment PET scan
I just had my post pet, my Dr. Called and told me it was clean NED. Now I get to have the PEG removed next week. my treatment was for SCC BOT, involving 2 lymph nodes. I had 35 rads and 3 Cisplatin chemo. thanks to all for the well wishes and prayers. Mike
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mucositis - worried and fed up
Hi there,, Its been 7 weeks since my treatment. I am suffering from mucositis. My tongue seems swollen at back, have seen white dots come and go. My mouth is sore. It seems most foods are stinging my mouth so its difficult to find foods to eat. I still have my peg and drs have given me another 3 weeks to see if Im eating…
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Bad week
Can't remember if I posted that my mom doesn't have to have part of lung removed. They think they can remove the inch and half benign tumor with a laser through broncial tube. That was great news and an answer to prayer. The rest of the week was pretty emotional. I guess I took a few steps backward thinking about Jim's…
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Another needle biopsy tomorrow LOL
This is the lump that's adhered to my trachea. The lump that was a clip. Then it wasn't a clip. Then it was biopsied and 'acellular'. Then that was inconclusive. Then it adhered down to my trachea. Then it grew. This is a poem. I'm in a silly mood today. This is the third lump/biopsy since April. I'm done being morose…
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Finished treatment almost 3 weeks - follow ups
I had stage 3 squamous cell carcinoma base of tongue metastasized to lymph, 40 rads, 1/2 way through, cancer 90% gone according to pet scan. Unfortunately, the side effects hit worse than ever a week after treatment and my son brought home a cold last week and now stomach bug. I've maintained weight, stay hydrated. I'm…
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PEG Issue
Hello all, I hope everyone doing as well as they can be. I was wondering how long this PEG tube should hurt? Well not really hurt but be aggrevating. It has some leakage around it yet, is that normal? I had it put in on the 9th of this month and saw the Doc that put it in on Tuesday of this week. I thought it was too tight…
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unable to swallow
one year after 36 rads and 5 chemos i went in for a radical neck disection and have not been able to sawllow sence is there anyone that has had that problem? Thanks Mike
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*Artificial Saliva Product Review*
Hi Gang I've done quite a comprehensive review of several artificial saliva products - tried and tested them over the last few months. I've sent it to my cancer nurses at the hospital, and it's going to the support group I'm in. Would you like me to post it here? It wouldn't be advertising of course... just someone that's…
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Lump below chin
I just about 8 months post treatment of NPC (stage 3). I have done 35 X of radiation and 7X of chemo (Cisplastin). My CT scan was 3 months ago and my ENT doctor said it was no problem. Recently, I found a small lump (I guess < 1cm) below my chin. Before the treatment, there were 2 lumps at my neck but all gone after the…
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Cannot breath lying down and radiation is to begin
Hi all, My simulation is Wednesday but you know 3 days is too long to wait for my questions. I'm hoping someone here has experienced this first hand and can lend some support. I am absolutely terriefied that my radiation treatments will have to be postponed because when I lay down on my back I cannot breath through my…
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Life after cancer
This may be the time i am hitting the brick wall although treatment may be over, i just feel i cannot put the cancer to the back of your mind and park it there. It still overwhelms my thoughts and interferes with my day-to-day living. However, i have managed to reach to a point that i have made peace with god. If he deems…
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Throat Cyst Removal Recovery Question
Hi so I had surgery where my ENT removed a cyst at the base of my tounge. He told me I should feel no pain but 5 days later every time I swallow I feel stabbing knife sharp pain where the cyst used to be. I'm a little concerned because he said it's not cancer and I'm concerned because he sent it in for pathology test…