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Do all taste buds come back ?
Hi there, Wondering if anybody had all their taste buds come back. I'm hoping it does, I seem to be able to taste most things, some have even changed slightly because it's not 100%. I still have a sore mouth, maybe thrush or mucositis, unsure, being treated for the latter with a medicine not on the market yet, not a big…
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Got through the claustrophobia of the mask
My husband is terribly claustrophobic and, even with 2 1/2 Atavan in him, was unable to allow the techs to clip the mask in place the afternoon of the "dry run". We spent the week-end worried that he'd do the same thing on Monday and keep postponing the radiation treatment. If he didn't start radiation, the chemo doctor…
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Hi!
Hi everyone! My name is Burkhard <Content removed by CSN Support Team at request of author>. I am a 36 years old German living and working in Belgium (in drug discovery research for Janssen Pharmaceutica). I have had a partial glossectomy (4 months ago) followed by radiotherapy of the mouth and neck (ended 7 weeks ago)…
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torolopsis globrata infection of tongue..????Help
I have this fungal infection on my tongue which they say is because of the chemo and radiation treatments I have had.I was in stage 4, and it spread to lymph nodes, but it started in base of tongue.I had surgery after the chemo and radiation and none of my tongue was removed....:) but I was super sick from the surgery.They…
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Thinking about you Shell!!
Good luck today.....think you'll pretty much nap through chemo. First day of rads can be a bit of a heart thumper, but once you get a few days under your belt, things will relax. Drink....drink....drink today and tomorrow.....flush that stuff out of your system. p
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Silvadene Cream
Hi All, We got the Silvadene cream and he put it on his radiation burns last night. He is almost incapatacitated from the pain now. It made the burns hurt a lot worse. Did anyone else have this happen?
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METASTATIC... LIVER LUNGS AND BONE
IVE JOINED THIS FOR MY FATHER NOW 60. HE WAS DIAGNOSED ON NOV 1ST 2013, WITH SQUAMOUS CELL CARCENOMA. I HAD WORKED IN ONCOLOGY AND HEMATOLOGY SINCE 2009 AND HAD LEFT THE PRACTICE FOR NEUROLOGY IN 2012. I CONTACTED MY DOCTOR THAT I HAD WORKED FOR AND WAS ABLE TO LET ME COME IN AND TALK TO HIM LITERALLY RIGHT AFTER WE GOT…
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Sable1 returns after completion of treatment
Dear All: My last thread was in March prior to the start of my combined radiaition and chemo for tonsilar cancer. I would like to personaly thank this forum site! My journey, as well as everyone here, was rough! But...your where all right...I survived. I am 4 months post treatment and am still dealing with taste bud issues…
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Still no appetite after 8 weeks, getting worried
I'm getting a bit worried about having no appetite still after 8 weeks since treatment. I am missing food so much though. But it doesn't matter what the food is, my appetite wont stir. I am eating extremely tiny amounts of food, maybe 2 or 3 mouthfuls and I do bottles through my peg, but I need to eat more, losing weight…
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Side effects of Radiation- Mucoepidermoid Carinoma of Salivary gland
Hello Everyone, My father has been diagnosed with Mucoepidermoid carcinoma - Low grade w . He has undergone surgery to remove the cancer cells and has undergone Neck dissection as a palliative measure. He is currently undergoing radiation . I am not sure if it coincides with what others have had with the same/similar…
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erbitux
Well people here I sit in the chemo room getting my weekly fix of erbitux this is the 5 week of treatments, I will see the Dr. When the dripping of fluids quit. So far only side effects is a lite rash in my hair. I'll update after I see Dr.
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HBOT YES OR NO?
Hi Everyone, I am new to the site, I tried to find out if anything was posted about HBOT but couldn't. Have any of you tried HBOT? My husband is 5 month post radiation, he has a severe burn in the back of his mouth, and they are now wanting us to try HBOT .....I have googled and now I would like some real opionions please.…
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Throat cancer..? Any help please
I've been sick over a month (sore throat,fever 99.9-100, sores on tongue but only for a few days And now swollen lymph nodes behind right ear like in that bone? and super tired and body aches) 3 drs and still don't know anything.. I have a ENT apot for Friday but was still worried and wanted to ask here. My tonsils are not…
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Another operation, 14 November, but a good one this time!
Have just been to clinic. On 14 November, Mr P. is going to: 1. Remove this lump on my trachea, "to put both our minds at rest". 2. Stitch together the two front ends of my "tongue" - which are straying apart. 3. Debulk the width of the "tongue". This should give me better function and comfort, and it will be very nice not…
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bylateral neck dissection
Hello everyone,well just got out of the hospital for a bylateral neck dissection and have not seen my doctor or talked to him but only once since sfter surgery If i can remember which memory is vague the last thing i remember was that he had gotten all that was there and all lympnodes were clear he removed the old mass and…
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Anyone heard from Skiffin - John
Haven't heard from John in awhile. Last I heard he was moving forward, all be it slowly. I miss his humor and fish stories. Debbie
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Clinical trials
Hello everyone, At Don's suggestion, I am reposting a reply I wrote yesterday. My reply was brief but I am more than happy to go into more depth if requested. I have attached a link to the trial below. It's been quite some time since I've piped in. I visit the site often and am still inspired by everyone who posts. After…
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long acting pain meds
Hey everyone, Have a question for anyone using meds. like MS contin (extend release 12 hr). I've been on a very low dose for quite awhile now, using vicodin for break through pain. Are there any weird side effects other's have had using these ? I put a message into my primary today. I'm recently having bizarre episodes of…
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Scar Tissue and Radiation
Hi.. does anyone know how radiation affects scar tissue? I haven't had a chance to speak with my Radiologist/Oncologist about this. I do know they are now planning to radiate both sides of my neck. On the right side it is the lowest part of my neck, and my whole right shoulder up to my neck and down to my elbow is 3rd…
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Gum
Good Morning.... I am sure that I have read in these posts somewhere suggestions for saliva producing chewing gum??
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Cetuximab What Would You Do?
I had my surgery to remove my tumor, lymph nodes and titanium jaw replacement on 8/11. I was scheduled to start radiation treatment on 9/8/14. When I went to have the mask made my radiologist observed that my planned dental extractions did not happen during surgery and needed to get done. Had it done and postponed…
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STRICTLY LADIES ONLY
Sorry for bringing up something personal, but I have just thought some ladies might not know about it. Many women, including myself, their periods can stop when they're undergoing radio, and all these other horrible cancer treatments. Mine stopped for 4 months, then they've come back, a bit differently, but are gradually…
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New, but I've been through this before
Hello, ve been reasing sing this forum for the past two weeks and thought it was time to Introduce myself. Four years ago, my father in law passed away fron oral cancer. He had a tumor the size of his fist in his jaw and for months thought he was dealing with TMJ. Less than a head after diagnosis, 12 hour surgery to remove…
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Peg and i are a fightin' again..
Hi all. haven't been on for a while now, been busy with my greenhouse.. but it seems Miss Peg just can't behave herself..she seems to like the color Red! I wonder if anyone else had leakage after 3 weeks of getting her put in. I am using a gauze sponge under it. I am still eating and drinking on my own yet. I was told by a…
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tracheotomy
Hi All, Thank you all for all your support in this hard journey till now. I have come across another hard point now.My father today had tracheotomy as he had problem in breathing.Last month oncologist has told that the primary tumor has already gone from Pyriformfossa,But there are swollen inside the neck near voice box…
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Ringing in my ear
I wanted to first say thanks to everyone on this site. It is very comforting knowing that I can ask questions and get support from such an encouraging group that has experienced much of what i am going through or about to go through. I appreciate it very much!! I started my treatment two weeks ago and half 4 and 1/2 weeks…
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texas oncology
does anyone on the CSN go to the texas oncology in mesquite texas off of galloway and I30? i see a lot of people there, just wondering if any of our family go there?
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scared
Im scared my husband is finished all treatments 35 rads 3 cysplaitin... .he was diagnosed with stage 4a scc hpv 16. ... was misdiagnosed for a year found it by having surgery to remove what they were certain was a cyst... Dr apologized after told me he was so sorry He had made a mistake..We will know by end of december…
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Head and neck cancer tinnitus
Has anyone who has been treated for head and neck cancer with radiation have tinnitus (ringing in the ears) becasue of your treatments. If so, did it go away after treatment.
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Gravy Tongue
Good morning! My husband is almost 8 months post Radiation.....he has 95% taste back and is tolerating everything - even hot/spicy items. He has regained all of his saliva on the sides of his tongue, and we thought some on the main part. But a few days ago he started saying that he felt like he had a thick gravy on the…