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Head and Neck Cancer

Reoccurring Head neck squamous cell carcinoma
They found my husbands cancer at the base of my tounge. I had 3 (all day long) treatments of cisplatin over a 3 month period plus 6000 gray's of proton (5 days a week) for 7 weeks, cancer was gone. Approximately 3 months later cancer was found in right neck lymph nodes. Had surgery to remove, 12 weeks later it was found…
Pain after Surgery for Tongue Cancer
Hello, I have been diagnosed with tongue cancer three times. The first time was a stage 4 and I chose to have chemo and radiation rather than lose 3/4 of my tongue. That was in 2008. I wonder if I made a mistake. However, it is too late to have regrets. In the summer of 2011 I was diagnosed again with cancer under my…
I am NED
I am NED No Evidence of Disease Both the radiation and ENT teams were very happy with the PET Scan results. The new radiation "fellow" was very surprised that I still have my own teeth too. Apparently the majority of Head & Neck Cancer patients have to get a lot of teeth pulled before starting treatment. They scoped down…
Navdx and insurance issues
I have United Health care as my primary insurance and they covered my first 3 Navdx tests with no questions, but the last one I had done in August they have denied. Apparently they have changed their stance on coverage for the test. Navdx is appealing the denial but has anyone else had issues with insurance coverage? Or…
TORS/Radiation/Chemo
Hello All I am here seeking insight related to my husband's recent diagnosis and treatment plan. In August 2023, he was diagnosed with HPV+SCC left tonsil and 1 lymph node. He underwent TORS last week. Surgery was successful as far as that goes, primary tumor removed and everything had at least 3mm of clear margins…
Would like to donate GI food.
My brother passed away from thyroid cancer. I have about 9 cases of GI food, I would like to donate. Nestle diabetisource AC -250 ml, expires June 1 2024
5 year anniversary
Just wanted to post an update on my health. September 20th was 5 years since I finished my treatment for HPV 16 tonsil cancer. I was stage 1 on the revised staging system. Was considered stage 4 the year b4 my treatment. The staging was changed for HPV 16 cases only. Anyway, I have not been on the site much since they…
Throat cancer survivors
I could use some positive help to reduce stress regarding a recurrence.
NavDX Test-Can Be Misleading-Readings Can Be Opposite Condition-Giving False Hope Or Doom
Hello folks, I came across this on another forum of a fella who was getting Good NavDX Test readings and in fact, excellent NavDX Test readings but suddenly a recurrence showed up in his life again. I am reposting it here for informational purposes and discussion. vpf143 says on Oct 3, 2023 • 3:22 PM NAVDX - can be…
Head & Neck (cancer in tonsil's) Stage 4A, 12 years ago & now another Cancer
Has anyone experienced another type of cancer after beating their first Head & Neck cancer? Hubby had cancer of tonsil's and cancer free for 12 years. Now he has an aggressive fast growing type of T Cell Lymphoma.
Radiation causing food to taste rancid.
Hubby is having radiation to both sides of his neck. He just completed treatment 19 of 25. When he first puts food in his mouth, he can taste it and then as he chews it, he says, "It taste rancid or like a dirty wet gym sock" He does not have any mouth sores, just a very inflamed throat with a little white on it.…
Head and neck cancers...
Are hypoechoic lesions usually cancerous?
50, Tonsil cancer, severe panic disorder
The state I live in helped me to find a job I could work at and, in their assessment of me, they declared me "most significantly disabled", which is the top (bottom?) of their scale. I have multiple diagnoses, therapists, meds. Just making clear this is not a self-diagnosis. After five years of being increasingly…
My son has MPNST, need info please
My 14 year old son has recently been diagnosed with MPNST. Neurofriboma runs in my family on my side. I have it as well, but I have never had a malignant tumor that large. His is located in his neck and upper chest area, about 4.5". It is pushing his trachea to the side slightly and has completely encased some major…
Osteoradionecrosis
I am starting radiation treatments this week, 35 total plus chemo. I am concerned about what I read about bone death due to RT, called Osteoradionecrosis. A friend of mine just developed this after five (5) years after her last RT session. Does anyone know the statistics on having this reaction after RT?
tongue cancer
hi. I am new to this . I was diagnosed with tongue cancer in early August. 2023. I had surgery to remove a lesion of my tongue Sept. 14th. I am still, after almost three weeks, having a lot of pain on my tongue, especially when I eat (I lost weight and need to gain weight) I cannot toleratel meds so for now I just can take…
Head and neck cancer-food
My father who is 70 years old has been suffering from head and neck cancer , we have done the laser ablation for right buccal mucossa and cancer has metasized to lymph nodes as well. right now it been 2 weeks since laser abalation, he doesn't feel like eating anything which and felling nausea everytime he sees the food,…
cisplatin
it is it true that you cannot get cisplatin if you are over 70yrs old
excessive mucous production in throat following radiation
Last year my 82 year old husband underwent 6 weeks radiotheraphy twice daily for squamaous cell cancer of the epiglottis this proved unsuccessfull and in Jan this year had lazer treatment to remove the tumour, ever since the radiation he has suffered with excessive thick mucous whwich seems to be getting worse Dr's just…
lower dose chemo for the elderly
Was just reading about lower dose for the elderly some say it has no effect on outcome and others say it does have a negative effect on outcome . Idont want to do anything to affect the outcome.
Unfortunately RADIATION TREATMENT Causes Short And Long Term Side Effects
Here is a communication and study I have come across from a Doctor, Dr. Itzhak Brook MD about radiation's short and long term side effects. There is a link that takes you to a Pdf. He has covered the subject of radiation effects very well and it is good information for our H&N group very interesting and well-covered.…
Surgery, radiotherapy and a marathon
It’s been one year and three months since my last radiotherapy treatment, and yesterday I ran my first marathon. PART 1 Hi, my name is Simon. I’m 47 and was diagnosed with pT2N1 ORL cancer. I received the news on the 28th of February 2022. It was a sunny day. I was on my way to the bookstore with one of my daughters to buy…
Well meaning relatives
Just spent a week with a relative who proceeded to tell me, that there was no cure for my cancer .This was such a depressing conversation and I am struggling to shake it. She took away my hope and I told her so. She says she is just being real.
tonsil cancer question, diagnosis and symptoms
I am sure you are all asked this many, many times, so I apologize if this is redundant. I have not been diagnosed, but currently taking all steps to figure out what is causing my tonsil pain. I had dysplasia on the roof of my mouth before, so not sure what is going on with my tonsil, but I have very localized pain (on my…
Boron Neutron Capture Therapy (BNCT) (Informational)
This is from the National Cancer Institute in a small description. I am posting this as information because at this point it is not widely available. I understand the most activity on this is in Japan. It seems there is strong renewed interest given the technology improvements. There are quite a few being built around the…
8 weeks post treatment “backsliding”
My husband is 8 weeks post treatment. Standard protocol for treatment, chemo and radiation. No feeding tube(but definitely should have). The last week of treatment and the following two weeks his palliative care doctor put him on morphine for the severe pain. He only used the morphine about 10 days. He was eating some…
8 month post surgery problems.
Hello everyone, I am 56m have a history of tobacco abuse for at least 40 years. Last year September I was diagnosed with stage 4 squamous cell carcinoma in the oral cavity. The doctors told me the lymph nodes have been affected and I need to get rid of my lower jaw and have a bone transplant from my leg to the site. I had…
BLOOD PRESSURE INSTABILITY FROM RADIATION THERAPY FOR HEAD AND NECK CANCER
This covers baroreflex receptor and other problems related to radiation. this is an answer and information from Dr. Itzhak Brook MD. This is a question posed to Dr. Brook and his answer to it. The Question: Dr. Brook, thank you for sharing your article. I survived Stage IV throat cancer that started in my tonsil in 2014. I…
Please help my sister - Tonsil cancer and Covid
Hello all, My sister is 63 years of age and has been diagnosed with tonsil cancer more than 3 years ago. 1after radiation treatments, she can't eat any more and has to use the feeding tube since and the cancer is still with her. She recently got covid and getting weaker and weaker...All the nurses and emergency Dr sent her…
!st Chemo Down
Had !st chemo treatment on Wed and it has been ruff. Joint pain , pain in my feet and my heart was doing flip flops yesterday but it stopped. I didnt think it was going to be so painful

Head and Neck Cancer

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