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Husband's Treatments Start Monday Morning
Hi everyone, I wanted to pop in with an update from my previous "Extremely Scared - Husband Diagnosed with Throat Cancer" posting. The biopsy confirmed the tumor is p16 positive and the PET scan showed that it is localized with only a few lymph nodes right next to the tumor affected. His diagnosis is Stage 1, T1, N2b, M0.…
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Tight neck after neck dissection followed by chemo and radiation..
I had my 2nd neck dissection in March 2023 followed by chemo and radiation. I have considerable tightness in my neck after completing PT. Hoping someone else has some tips to help relief the discomfort. Thanks in advance
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Hard lump on lower jaw
Hello I am new here, not diagnosed with anything but I discovered a hard lump on the corner of my lower jaw on my right - it feels like bone and can’t be moved at all it feels like attached to the bone and it’s easiest to feel when I lift my head up, you can’t see it visibly and feels an odd shape i saw a doctor who looked…
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Nasopharyngeal cancer
Hey folks, I was searching for forums and support groups as I got diagnosed recently with nasopharyngeal cancer (squamous cell carcinomA). They say it's advanced local and I'm not entire sure what that means in terms of prognosis but it has spread to both sides of the lymph nodes on my neck. No distance metastasis. Will be…
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Cancer on voicebox
I'm 54 years old my first diagnosis of cancer was in February 2023,I went through 35 treatments of radiation. Had a PET Scan done in December 2023,it showed uptake to lymph node 2A..In January 2024 I found I also had cancer on the surface of voice box as well.Doctor says my only option is total voice box removal and the…
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Peg tube post radiation
My husband completed radiation in April 2023 for SCC stage 3 of the mouth. He is still using a feeding tube. 10 months later) He will not eat anything because of texture, dryness and taste. Anyone else have a feeding tube this long?
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Head and Neck Cancer Dr Wiggins-Video-University of Utah School of Medicine
This is a very good video of Dr. Wiggins presenting on head and neck structure, treatment, staging, and many other aspects of treating head and neck cancer with a Q&A at the end. I think you will like it I know I did and it gives you a doctor's perspective of head and neck treatment. Head and Neck Cancer Dr Wiggins Dr.…
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Joining the mucus discussion!
Hello we're new. My husband had HPV tonsil cancer and completed his 7 week radiation over 2 years ago. His biggest struggle(apart from not swallowing) is the copious amounts of mucus. I was interested in everyone's suggestion regarding the baking soda/ salt rinse which we just started after reading the posts. Also curious…
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Head and Neck Cancer: What to Expect During the First Year
Here is an interesting informative video you may want to look at. It is in a webinar format. The Head and Neck and Cancer Alliance in conjunction with the American Head and Neck Society hosted the "Head and Neck Cancer: What to Expect During the First Year” webinar scheduled during Oral, Head and Neck Cancer Awareness Week…
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Information
Good morning my husband He has throat cancer. is a photographer, we have photos of birds, animals from the zoo, sunsets and waterfalls, do you know of any organization that helps us with the sale to collect funds and be able to cover expenses thank you
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Recent PET/NavDX
Anyone here have trouble with thyroid after their radiation/chemo? My husband has been feeling a lump when swallowing and the front of his neck is getting bigger, a few weeks ago the ENT said it is probably scar tissue from treatment. It is starting to affect his breathing especially when sleeping. Just learned his most…
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Cancer Survivorship-Video & Information
Hello everyone, I hope you are all doing as well as possible. I came across this video and information and thought it would be good to share it, and I hope it helps you in some way. Cancer Survivorship – An Introduction Long-Term Side Effects of Cancer Treatment Cancer Survivorship Practical and Trusted Information to…
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After TORS, de-intensified trial of 3 weeks rad
Hi all. Massive thanks to you who have shared your experience and helpful tips about getting through your ordeals. You have shown me what patience and strength is. I'm here for support, but also want to be a resource for anyone going through something similar, as I seem to be a kinda niche patient with this early-stage ssc…
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Mucoepidermoid Carcinoma
Hi there! I am new to this site and beginning my battle with Mucoepidermoid Carcinoma (of the minor salivary glands in my throat). It is very rare and I am hoping to find others who are in the same situation, either past or present. I started chemo last week and seeing where that takes me! I am a 31 year old female and…
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New Member
Hi there. Have been lurking for a few days and deciding to register as a new member. I was recently (August 2023) diagnosed with tonsil cancer. Became aware of a problem in late July when I noticed what I assumed were swollen glands in the area under my right jaw. Was able to make things happen pretty quickly thanks to my…
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52 year old Male, Diagnosed 11/23/2022 with HPV+ p16 p40 cancer
I’m in the club no-one wants to be in as a newly diagnosed cancer patient. I’m a former smoker who quit daily 1/2 pack a day habit 19 years ago but still smoked socially up until diagnosis about 4-5 packs a year. Otherwise healthy and on no medications. My details are a mildly painful mass in my left neck just under…
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Neuropathy of the hands after treatment
Hello all. I start treatment ( chemo and radiation)for throat cancer next week and I have some questions. I play guitar and a few other stringed instruments. The doctor said I may lose the ability to play due to neuropathy. He also said I will probably lose my hearing. Is this common? Has anyone had that happen? How long…
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Extremely Scared - Husband Diagnosed with Throat Cancer
My husband was just diagnosed with squamous cell carcinoma in his throat at the base of his tongue. His ENT sent him for a CT with contrast this morning and the results are a spot 1.5cm in the largest section, no additional areas involved such as bone or muscles around and one lymph node on the same side. No midline…
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Best cancer center?
Hi everyone: My husband was diagnosed with early stage hpv + throat cancer about a year ago. His treatment (surgery and radiation) was successful at first, but about a month ago we were told his cancer had come back, both at the original spot and in several lymph nodes. We realized we had to go for the best care possible…
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Chemo smell 4 years later
Everything brings out a chemo smell for me. My last chemo (heated intraperitoneal chemo aka hot chemo bath in abdomen) was July 15, 2020. What can I do?
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Re: New Roll Call Team
Civil Matt and wbcgaruss (Russ), I wish to thank you both, first a Huge Thank you to you Matt for all the years of work you have put into this Roll Call. And a Huge Thank you to you Russ for volunteering to take on such a meaningful task to so many. I for one often look for any updates to the Roll Call to see new members…
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Mucoepidermoid intermediate
Olá poderia me ajudar? Meu esposo está passando pelo tratamento de mucoepidermoide intermediário e gostaria de ter notícia sobre como é lidar com o tratamento, se existe cura
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Vagal Nerve Damage from Radiation
Hi folks - it's been a long time. My husband had tonsil cancer over a decade ago and got the full chemo and rad treatment. I was active here for a while, but after a few years, I saw that others could provide any info I could, and it was hard to relive the bad days. Now, I'm learning about something that might be new to…
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Mucoepidermoid survivor
Hi! Could you help me? My husband is undergoing intermediate mucoepidermid treatment and I would like to have news about how it is to deal with the treatment, if there is a cure
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Sinus Cancer
I am looking for someone... anyone... who has had sinus cancer. I have completed my radiation treatments and am recooping == need someone to talk to about side effects, longterm issues.... etc. My cancer was Esthesionueroblastoma and it was in my Ethmoid sinus and part of my sinus cavit.
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CivilMatt starting a new year.
I just wanted to share {again) this post by NKimber
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Voice Problems
I finished 6 weeks of rads for a tumor that was almost totally confined to one vocal cord. On the last 3 days, the vocal cord got blasted, and my voice has become very weak and almost useless. My wife needs to stand right next to me in order to understand what I say. I am just one week, post treatment. All other effects of…
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How long after HBOT do you have to get your teeth extracted.
Hello, I have been dealing with head and neck cancer for over 20 years. I have had it come back three time. I first had a simple partial glossectomy...I tested negative. Then 2 years later it came back and I had to have a semi glossectomy, radiation, and chemo. Then 15 years later it came back and I had proton radiation…
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If You Had A Glossectomy or Laryngectomy Or Both Find Help Here-Glossectomy Girl Website
I am not sure how I happened upon this woman's website but I have looked through it and I believe there are many helpful sections here for those on here who have had a Glossectomy or Laryngectomy Or Both. In fact this website is loaded with information and resources. This woman has had both and she goes on to live a full…
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Vocal chord cancer
I had radiation for the cancer . It has been 8 weeks since last treatment and I’m still having burning in my throat - sore throat and horrible coughing and gagging (particularly at night). Anyone else have same experience and when do side effects stop!