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Standard therapy vs de-escalated therapy vs Clinical trial
Friends, I have been recently diagnosed with SCC tonsil (right) with p16 positive. There are multiple enlarged lymph nodes on the same side with largest being 3.7cm seems to be a conglomerate of 2 nodes. Recent CT also showed enlargement in left tonsil and few lymph nodes on left as well. They lit up in Pet too, but my…
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Our Journey to NW in Chicago on Tuesday
Here's what we found out Tuesday at Northwestern in Chicago. Saw all 3 tumor board drs: Surgical, Hem/Onc and Rad Onc last. Very impressed by all 3. No surgery in hubbie's future per both our local hospital in Milwaukee and there. Told us even though it's small (1.4 cm) base of tongue with 2 lymph nodes on same side, the…
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TEP
Hi, my name is Roger. I have had 2 battles with throat cancer, The first in 2014 and I had 35 radiation and 2 chemo treatments. The cancer returned last year and I had a total laryngectomy on Nov.22,2022.Things have went very well but I get frustrated communicating. I use an electrolarynx and a small white board primarily.…
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Recurrence or new incidence
I was 8 years out from treatment and was considered cured from bot cancer when another tumor was found in my neck 2 years ago. I have been on Keytruda for 2 years. The tumor has not grown but has also not gone away. I have lymph node involvement. Everything is what they call stable. It looks like I will get radiation and…
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Radiation and Chemotherapy Mucositis
Dr. Anurag Singh is a Professor of Oncology and Director of Radiation Research, the Department of Radiation Medicine at Roswell Park Comprehensive Cancer Center. His areas of expertise are breast cancer, head and neck cancer, lung cancer, ... Anurag Singh, MD, has one important message. When you see one of his patients…
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City of Hope Scientists Develop Targeted Chemotherapy
For those that like to know what is being developed in the future for cancer treatment. The City of Hope-developed investigational small molecule selectively disrupts DNA replication and repair in cancer cells, leaving healthy cells unaffected, a new study reports. Take Care, May God Bless & Watch Over You Russ
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Tinnitus
hello, any advice on dealing with Tinnitus? I dont think its radiation related. Had it for years but seems to be worse now. both ears. I dont drink alcohol anymore (heard reducing that might help). Can be quite annoying at times. thanks!
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VMAT vs. Proton Radiation for BOT Cancer
Hi All, Starting this journey with my husband and I've been doing a ton of researching on this board for us/him. He was diagnosed with Stage I c2TN1MO HPV+ 16. Primary is about 1.2 cm at the base of his tongue. 2 affected lymph nodes on the same (left) side. He had a lymph node swell that he noticed end of April. Saw his…
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pathology report positive for HPV and cancer but NavDx negative for both
Hello, new to this board but have found it very helpful in trying to stay positive. Long post--my apologies! I was diagnosed in April of this year with HPV-16 stage 2 throat cancer -removed a mass during a tonsillectomy and pathology report came back as positive for HPV and stage 2 at 2.4 cm. Throat radiation of 7 weeks is…
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Fasting and Cancer.. check it out
I have gotten a few questions about a link I posted that covered research showing fasting 24 hrs prior to and after chemo with platinum-based chemos (i.e. Cisplatin, etc.) has some positive effects. Here is another link to an interesting take on fasting and cancer... turns out, this is a two-part series on YouTube that I…
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6-Month Post Scan and 1 Year Anniversary Update
Almost a year ago I felt something odd on the side of my neck and went to the doctor. That eventually resulted in a diagnosis of stage 3 base of tongue SCC with a fairly large tumor. Through much research on this forum and other sights I proceeded with no neck dissections, no tumor surgery, no pain meds, no feeding tube…
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Healios question- amount of water
Hello, I just received an order of healios and it says to take 1 scoop of it with 25ml to 100ml of water. To those that drink Healios, how much water do you use? The bottle has 25ml, 50, 75, 100 and even 125. Will 25ml of water benefit me more with 1 scoop than if I diluted it with 100ml? I am probably overthinking it as I…
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Got COVID and Did Not Feel Sick? Here's Why
Here is a video for your consideration. It is a bit technical for me but you may find the information in it interesting. Got COVID and Did Not Feel Sick? Here's Why. Dr.Been---Researchers from the University of California San Francisco (UCSF) have revealed a potential HLA gene (HLA B15:01) that helps create polyfunctional…
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Off Topic
When did this start happening? "Your comment will appear after it is approved." Is someone censoring the boards now?
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Cramping from head to toe
I had BOT 4 years ago and side affects still persist. What I notice lately is my whole body getting cramps..arms, legs, feet, chest and head. My oncologist didn't seem to worried. My Primary care doctor had me try magnesium, electrolyte drinks, potassium, eat 5 bananas a week. etc. When I get the most cramping is in bed…
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Suggestions please
need suggestions to put on weight 13 EGD procedures and esophagus is still about the size of a drinking straw i drink 10-16 bottles of Ensure per day mixed with milk,chocolate syrup,bananas,,instant breakfast and peanut butter work for me is about 3-5 hours per day and then I’m exhausted I honestly don’t want to purée food…
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PET Scan
Just a quick update. My condition has been generally stable and I am doing pretty good. I have leftover issues from treatment as we all do like dry mouth, neuropathy, diminished swallowing, some stiffness from radiation, and some of what happens with me like a rough morning getting started and a day every now and then just…
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A Cancer Story-Short Video-A Heart Warmer And A Heart Breaker
Please take a look at this you won't be sorry. FOX5 Surprise Squad - Waitress with Dying Husband Gets $12,000 Tip! Most people would move mountains and part the sea for the people they love, the ones closest to them. For waitress and mother of four Jessica, that person is her husband, Robert, who was seriously ill with…
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HPV throat cancer - website for treatment and recovery. "My Throat Cancer Story - 2015"
Hello Everyone, I just finished my HPV throat cancer treatment 8 months ago and recently created a website that discusses all the things that I did to help with treatment and recovery. "My Throat Cancer Story - 2015". DryMouthThroat.com I will be adding more to this website over the next few months. Robert
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Cancer Survivors Inspire
This short video is not of H&N cancer survivors but cancer survivors just the same and I believe our journeys are very similar with similar modes of treatments and the same physical and emotional load and challenges involved in cancer treatment and survival. I hope you get some inspiration from this and a connection and…
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Treatment for Oropharyngeal Cancer: Investigating Ways to Do Less Harm
Please check out this article. More information for us. From The National Cancer Institute. Take Care, God Bless-Russ UPDATE (February 28, 2022): This story has been updated to reflect new information, including new data from two clinical trials.
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Support
I was diagnosed with tongue cancer about 5 months ago. I have been through surgery to remove the tumor and 28 lymph nodes 4 coming back with cancer. Been through chemo and radiation treatments. I'm 5 weeks in recovery from treatments and still having some difficulty I had to have a feeding tube placed during treatments my…
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VAERS: Are mRNA Adverse Event Reports Accurate? Dr. Jessica Rose w/ Dr. Kelly Victory – Ask Dr. Drew
Here is an interesting discussion on the VAER's Vaccine Adverse Event Reporting System (VAERS). A little over an hour, well worth the watch I guarantee you will get something out of it. These people have a good discussion on it and other situations surrounding the VAER's system, covid, and vaccines. I believe they are all…
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I have just found you folks!
My name is Thomas, and I had a complete Laryngectomy a yr and a half ago Now retired singer/ songwriter. I still play alot of Guitar, its been my life since I was very little. Since the operation I have watched friends and family just simply go away. It's been heartbreaking. So today I found you folks and I am hoping and…
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Suggestions on eating
Can anyone help me with some tolerable food choices that worked for you? My husband is on day 13 of 33 radiation and 3 of 7 for chemo. His taste buds are pretty much gone or make food taste horrible to the point of gagging. He is drinking High Calorie Ensure, and scrambled eggs are kinda okay. However, he really would like…
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The New Normal
I hate that phrase, I don't need a NEW normal, I'd like my old normal back, please and thank you! What's caused this blip? My oesophagus (I cant spell) is now really small, as in REALLY small, as it took my over 5 minutes to get a 12.5 mm barium tablet down. Its around 1 cm.. I'm back on the roundabout, barium swallows,…
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Laryngectomy
I am about to undergo surgery for a full laryngectomy and am interested in connecting with others who have had this surgery and cancer of the larynx. Gracias!
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Wishing Everyone A Happy And Joyous Independence Day 2023
As we celebrate the 4th of July Independence Day. I wish you all a wonderful day filled with cookouts, family and friends, fireworks displays and the pure joy of unfettered freedom. May we remember the price paid for by our founding fathers to establish this nation. May we also consider the price paid by many Americans to…
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Cancer Survivorship Care Plans with Lynda Kwon Beaupin, MD-Video
Informational video on survivorship plans and thoughts for your survivorship moving forward. Take Care, God Bless-Russ
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Rang Out - Ding-Ding!
DING-DING, DING-DING, DING-DING 🔔 Senior Chief (Ret), Departing 🫡 Finished 35 Rads (60 Gray [Gy]) today. Finished 7 chemo's (carboplatin) last week Wednesday. Tomorrow starts my recovery period. So I'm thinking come this weekend I start enduring 'The Suck' 😕 Problem is, Saturday we are attending a 'Celebration of Life' for…