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Head and Neck Cancer

Unfortunately RADIATION TREATMENT Causes Short And Long Term Side Effects
Here is a communication and study I have come across from a Doctor, Dr. Itzhak Brook MD about radiation's short and long term side effects. There is a link that takes you to a Pdf. He has covered the subject of radiation effects very well and it is good information for our H&N group very interesting and well-covered.…
Surgery, radiotherapy and a marathon
It’s been one year and three months since my last radiotherapy treatment, and yesterday I ran my first marathon. PART 1 Hi, my name is Simon. I’m 47 and was diagnosed with pT2N1 ORL cancer. I received the news on the 28th of February 2022. It was a sunny day. I was on my way to the bookstore with one of my daughters to buy…
Well meaning relatives
Just spent a week with a relative who proceeded to tell me, that there was no cure for my cancer .This was such a depressing conversation and I am struggling to shake it. She took away my hope and I told her so. She says she is just being real.
tonsil cancer question, diagnosis and symptoms
I am sure you are all asked this many, many times, so I apologize if this is redundant. I have not been diagnosed, but currently taking all steps to figure out what is causing my tonsil pain. I had dysplasia on the roof of my mouth before, so not sure what is going on with my tonsil, but I have very localized pain (on my…
Boron Neutron Capture Therapy (BNCT) (Informational)
This is from the National Cancer Institute in a small description. I am posting this as information because at this point it is not widely available. I understand the most activity on this is in Japan. It seems there is strong renewed interest given the technology improvements. There are quite a few being built around the…
8 weeks post treatment “backsliding”
My husband is 8 weeks post treatment. Standard protocol for treatment, chemo and radiation. No feeding tube(but definitely should have). The last week of treatment and the following two weeks his palliative care doctor put him on morphine for the severe pain. He only used the morphine about 10 days. He was eating some…
8 month post surgery problems.
Hello everyone, I am 56m have a history of tobacco abuse for at least 40 years. Last year September I was diagnosed with stage 4 squamous cell carcinoma in the oral cavity. The doctors told me the lymph nodes have been affected and I need to get rid of my lower jaw and have a bone transplant from my leg to the site. I had…
BLOOD PRESSURE INSTABILITY FROM RADIATION THERAPY FOR HEAD AND NECK CANCER
This covers baroreflex receptor and other problems related to radiation. this is an answer and information from Dr. Itzhak Brook MD. This is a question posed to Dr. Brook and his answer to it. The Question: Dr. Brook, thank you for sharing your article. I survived Stage IV throat cancer that started in my tonsil in 2014. I…
Please help my sister - Tonsil cancer and Covid
Hello all, My sister is 63 years of age and has been diagnosed with tonsil cancer more than 3 years ago. 1after radiation treatments, she can't eat any more and has to use the feeding tube since and the cancer is still with her. She recently got covid and getting weaker and weaker...All the nurses and emergency Dr sent her…
!st Chemo Down
Had !st chemo treatment on Wed and it has been ruff. Joint pain , pain in my feet and my heart was doing flip flops yesterday but it stopped. I didnt think it was going to be so painful
Recommendations for Pain Meds (non-narcotic)
Hello - I've found all your posts very helpful, and this is my first time posting. I have base of tonsil HPV+ SCC. I've had two surgeries, and I'm currently close to half-way through 35 radiation treatments (mix of proton and IMRT). No surprise, swallowing is starting to really hurt. I started Lyrica last week, but I don't…
Deleted - accidental duplicate
Deleted - accidental duplicate
Backsliding
Backsliding. I'm 60 days post treatment. I was doing good a couple weeks ago, or so I thought. Getting a little body weight exercises and yoga done, walking the dogs... This past week, and especially today, the exhaustion, and the loss of balance, it feels like it did after a week of treatment. I know some of the…
Parotid Cancer survivor - regaining nerve function?
What experience have others had when it seems like the facial and neck nerves are beginning to function again after 47 years? Read my bio for the background.
Sharing Summer Pictures With Everyone
Summer is winding down quickly and we will be heading into fall soon. I took some pictures over the summer and would like to share some of God's Great Blessings and creations with others. I apologize if there is some repetition. I am sure many of you have wonderful pictures yourself so feel free to add on to this posting…
Drivingdaisy (Lisa) A Dear Member And Friend Of Our H&N Group Has Passed
It is with great sorrow that I bring this news to the Head & Neck group. Not being able to contact her for a while a couple of the members were trying to find out about her and make contact. After getting some new possible contact information I made a phone call and left a message and soon received a text containing news I…
Recurrence / double radiation
So it’s been a LONG time since I posted, but as a search for the NAVdx on Google brought me back and I thought I would update my story. BTW I am a huge proponent of the NAVdx and trust it more than a PET or CT scan for HPV cancer. I was originally diagnosed in October 2020 with tonsil cancer with one lymph node involved,…
Photodynamic Laser Treatment for Osteoradionecrosis?
Please members make note of this, it may be helpful someday to you. Although not the frontline treatment on this a fellow CSN'er, Mavish, recently posted this as an add-on and update into another posting. I think this subject and this option is important enough to share as a posting to the group and the public at large.…
Devastated and confused
I'm a 62 yr old female and was recently diagnosed with tongue cancer. I will be having a total glossectomy Sept 5, followed by radiation. My drs have said it's likely I will have a trach and feeding tube the rest of my life. I'm devastated because at this point in our lives my husband and I thought we would be selecting an…
Update: Husband’s NavDx Test Result Pre-Treatment
Hi Again, I posted a few weeks ago we went down to NW-Chicago for a second opinion on my husband’s Stage I base of tongue (left side 1.2 cm on PET 7/19) and 2 involved left lymph nodes so all on left. HPV+ 16 from biopsy. The only reason we made the 2 hr one way drive down was to find out more about their Proton radiation…
start treatment
Getting ready to start radiation and chemo . Got fitted for the mask yesterday. My how things have changed since 2014. Back then they did not cover your face but left eyes ,nose and mouth out. I am worried I will have a panic attack. My neice says that is what Zanex is for. I will talk to the Dr.about it. I thought I read…
Dysphasia after TORS and Neck Dissection
It’s been a month after TORS and neck dissection and I have a sore jaw, mucus, feels like there is a string in my throat constantly, food gets stuck in throat, etc. Anyone else have these symptoms? Does it get better or is this my new norm? I haven’t started radiation yet and can’t eat a hot dog. My jaw gets too sore and…
Burn Relief?
Hello, my father has completed 19 of 33 rad treatments. He started getting some burns earlier this week that have progressively gotten worse. The doctor prescribed a burn cream but, unfortunately, that made things worse likely due to a sulfa allergy. He was prescribed another cream to try and will be doing some Domeboro…
Radiation damage to bones of jaw
Hi all, I was diagnosed and treated for right tonsil SCC p16 positive in 2016. Now my jaw bones started dying which is called osteonecrosis. As a result my two teeth became loose and my bone and whole cheek get infected. Now I am on antibiotics, and also precribed with Vitamin E, pentoxiphyline, clondronate and…
TORS and Neck Dissection without any Radiation and/or Chemo
T2N1M0 - still waiting on pathology but my surgeon told me one of the reasons he was recommending TORS and neck dissection versus chemo and radiation was there may be a chance if just completing this with the surgery. I have been scouring this discussion board and haven’t seen anyone that has done this tratent alone.…
Mskcc 30gy then 40gy
Anyone gone through the lower dose radiation at MSKCC? 30gy first over both sides of neck + 40gy to tumors. So the tumors still get 70gy, but the side effects on other side is greatly reduced as they say. Anyone gone through this along with chemo? If so, what’s the success rate?
Tumor size differs between MRI, CT and PET
My p16 scc tonsil tumor shows in different sizes in different scans. CT showed its 3.7cm. PET showed its 3cm and the recent MRI shows it’s 2.7cm. Anyone experienced this? Which one of these is more accurate?
Standard therapy vs de-escalated therapy vs Clinical trial
Friends, I have been recently diagnosed with SCC tonsil (right) with p16 positive. There are multiple enlarged lymph nodes on the same side with largest being 3.7cm seems to be a conglomerate of 2 nodes. Recent CT also showed enlargement in left tonsil and few lymph nodes on left as well. They lit up in Pet too, but my…
Our Journey to NW in Chicago on Tuesday
Here's what we found out Tuesday at Northwestern in Chicago. Saw all 3 tumor board drs: Surgical, Hem/Onc and Rad Onc last. Very impressed by all 3. No surgery in hubbie's future per both our local hospital in Milwaukee and there. Told us even though it's small (1.4 cm) base of tongue with 2 lymph nodes on same side, the…

Head and Neck Cancer

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