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Head and Neck Cancer

Radiation causing food to taste rancid.
Hubby is having radiation to both sides of his neck. He just completed treatment 19 of 25. When he first puts food in his mouth, he can taste it and then as he chews it, he says, "It taste rancid or like a dirty wet gym sock" He does not have any mouth sores, just a very inflamed throat with a little white on it.…
Head and neck cancers...
Are hypoechoic lesions usually cancerous?
50, Tonsil cancer, severe panic disorder
The state I live in helped me to find a job I could work at and, in their assessment of me, they declared me "most significantly disabled", which is the top (bottom?) of their scale. I have multiple diagnoses, therapists, meds. Just making clear this is not a self-diagnosis. After five years of being increasingly…
My son has MPNST, need info please
My 14 year old son has recently been diagnosed with MPNST. Neurofriboma runs in my family on my side. I have it as well, but I have never had a malignant tumor that large. His is located in his neck and upper chest area, about 4.5". It is pushing his trachea to the side slightly and has completely encased some major…
Osteoradionecrosis
I am starting radiation treatments this week, 35 total plus chemo. I am concerned about what I read about bone death due to RT, called Osteoradionecrosis. A friend of mine just developed this after five (5) years after her last RT session. Does anyone know the statistics on having this reaction after RT?
tongue cancer
hi. I am new to this . I was diagnosed with tongue cancer in early August. 2023. I had surgery to remove a lesion of my tongue Sept. 14th. I am still, after almost three weeks, having a lot of pain on my tongue, especially when I eat (I lost weight and need to gain weight) I cannot toleratel meds so for now I just can take…
Head and neck cancer-food
My father who is 70 years old has been suffering from head and neck cancer , we have done the laser ablation for right buccal mucossa and cancer has metasized to lymph nodes as well. right now it been 2 weeks since laser abalation, he doesn't feel like eating anything which and felling nausea everytime he sees the food,…
cisplatin
it is it true that you cannot get cisplatin if you are over 70yrs old
excessive mucous production in throat following radiation
Last year my 82 year old husband underwent 6 weeks radiotheraphy twice daily for squamaous cell cancer of the epiglottis this proved unsuccessfull and in Jan this year had lazer treatment to remove the tumour, ever since the radiation he has suffered with excessive thick mucous whwich seems to be getting worse Dr's just…
lower dose chemo for the elderly
Was just reading about lower dose for the elderly some say it has no effect on outcome and others say it does have a negative effect on outcome . Idont want to do anything to affect the outcome.
Unfortunately RADIATION TREATMENT Causes Short And Long Term Side Effects
Here is a communication and study I have come across from a Doctor, Dr. Itzhak Brook MD about radiation's short and long term side effects. There is a link that takes you to a Pdf. He has covered the subject of radiation effects very well and it is good information for our H&N group very interesting and well-covered.…
Surgery, radiotherapy and a marathon
It’s been one year and three months since my last radiotherapy treatment, and yesterday I ran my first marathon. PART 1 Hi, my name is Simon. I’m 47 and was diagnosed with pT2N1 ORL cancer. I received the news on the 28th of February 2022. It was a sunny day. I was on my way to the bookstore with one of my daughters to buy…
Well meaning relatives
Just spent a week with a relative who proceeded to tell me, that there was no cure for my cancer .This was such a depressing conversation and I am struggling to shake it. She took away my hope and I told her so. She says she is just being real.
tonsil cancer question, diagnosis and symptoms
I am sure you are all asked this many, many times, so I apologize if this is redundant. I have not been diagnosed, but currently taking all steps to figure out what is causing my tonsil pain. I had dysplasia on the roof of my mouth before, so not sure what is going on with my tonsil, but I have very localized pain (on my…
Boron Neutron Capture Therapy (BNCT) (Informational)
This is from the National Cancer Institute in a small description. I am posting this as information because at this point it is not widely available. I understand the most activity on this is in Japan. It seems there is strong renewed interest given the technology improvements. There are quite a few being built around the…
8 weeks post treatment “backsliding”
My husband is 8 weeks post treatment. Standard protocol for treatment, chemo and radiation. No feeding tube(but definitely should have). The last week of treatment and the following two weeks his palliative care doctor put him on morphine for the severe pain. He only used the morphine about 10 days. He was eating some…
8 month post surgery problems.
Hello everyone, I am 56m have a history of tobacco abuse for at least 40 years. Last year September I was diagnosed with stage 4 squamous cell carcinoma in the oral cavity. The doctors told me the lymph nodes have been affected and I need to get rid of my lower jaw and have a bone transplant from my leg to the site. I had…
BLOOD PRESSURE INSTABILITY FROM RADIATION THERAPY FOR HEAD AND NECK CANCER
This covers baroreflex receptor and other problems related to radiation. this is an answer and information from Dr. Itzhak Brook MD. This is a question posed to Dr. Brook and his answer to it. The Question: Dr. Brook, thank you for sharing your article. I survived Stage IV throat cancer that started in my tonsil in 2014. I…
Please help my sister - Tonsil cancer and Covid
Hello all, My sister is 63 years of age and has been diagnosed with tonsil cancer more than 3 years ago. 1after radiation treatments, she can't eat any more and has to use the feeding tube since and the cancer is still with her. She recently got covid and getting weaker and weaker...All the nurses and emergency Dr sent her…
!st Chemo Down
Had !st chemo treatment on Wed and it has been ruff. Joint pain , pain in my feet and my heart was doing flip flops yesterday but it stopped. I didnt think it was going to be so painful
Recommendations for Pain Meds (non-narcotic)
Hello - I've found all your posts very helpful, and this is my first time posting. I have base of tonsil HPV+ SCC. I've had two surgeries, and I'm currently close to half-way through 35 radiation treatments (mix of proton and IMRT). No surprise, swallowing is starting to really hurt. I started Lyrica last week, but I don't…
Deleted - accidental duplicate
Deleted - accidental duplicate
Backsliding
Backsliding. I'm 60 days post treatment. I was doing good a couple weeks ago, or so I thought. Getting a little body weight exercises and yoga done, walking the dogs... This past week, and especially today, the exhaustion, and the loss of balance, it feels like it did after a week of treatment. I know some of the…
Parotid Cancer survivor - regaining nerve function?
What experience have others had when it seems like the facial and neck nerves are beginning to function again after 47 years? Read my bio for the background.
Sharing Summer Pictures With Everyone
Summer is winding down quickly and we will be heading into fall soon. I took some pictures over the summer and would like to share some of God's Great Blessings and creations with others. I apologize if there is some repetition. I am sure many of you have wonderful pictures yourself so feel free to add on to this posting…
Drivingdaisy (Lisa) A Dear Member And Friend Of Our H&N Group Has Passed
It is with great sorrow that I bring this news to the Head & Neck group. Not being able to contact her for a while a couple of the members were trying to find out about her and make contact. After getting some new possible contact information I made a phone call and left a message and soon received a text containing news I…
Recurrence / double radiation
So it’s been a LONG time since I posted, but as a search for the NAVdx on Google brought me back and I thought I would update my story. BTW I am a huge proponent of the NAVdx and trust it more than a PET or CT scan for HPV cancer. I was originally diagnosed in October 2020 with tonsil cancer with one lymph node involved,…
Photodynamic Laser Treatment for Osteoradionecrosis?
Please members make note of this, it may be helpful someday to you. Although not the frontline treatment on this a fellow CSN'er, Mavish, recently posted this as an add-on and update into another posting. I think this subject and this option is important enough to share as a posting to the group and the public at large.…
Devastated and confused
I'm a 62 yr old female and was recently diagnosed with tongue cancer. I will be having a total glossectomy Sept 5, followed by radiation. My drs have said it's likely I will have a trach and feeding tube the rest of my life. I'm devastated because at this point in our lives my husband and I thought we would be selecting an…

Head and Neck Cancer

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