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Head and Neck Cancer

Do You Need A New Normal?
Hello and welcome friends and fellow survivors. Today I am going to post an article made by a lady on the Inspire Network & Communities. Her screen name is Mandymuff and she is a mother and grandmother and lives in Canada. I contacted her and she happily said I can use her posting on CSN, she said "Thank you for asking!…
Video---Marks Story of Recovery---Many of us Can Relate Exactly
Hello, my fellow cancer survivors! I want to share this short 2-minute video with every one of this young man's recovery from cancer. He did not have head and neck cancer. But his story is just as much of a struggle and triumph as any of ours who have experienced the brutal H&N treatment. Mark was diagnosed with Hodgkin…
Carotid Artery Stroke Issue From Radiation Treatment
Hello, Folks-I encountered this discussion on another H&N forum and thought it was important to share here. Please read this lady's account of having a stroke due to muscle stenosis around the carotid artery from radiation treatment 15 years prior. I believe I had heard of this but had forgotten about it. I don't think it…
It's been 10 years for me this month...
I was diagnosed with HPV tonsil cancer 10 yrs. ago this month. I just want to encourage all of you that you can make it. Has it been challenging? Yes, of course with the dry mouth. The fear of dating someone new. Just the fear in general but I want you to know you can make it through. Kick the fear to the curb. I live…
Dry mouth
I'm sure most of you who has/had head and neck cancer suffer from dry mouth due to radiation treatment. I'm no exception and wondering if my dry mouth is as severe as from the norm for most of you. Don't have dry mouth after radiation? Tell us why you think this is. I would think irradiation of the salvary gland would…
Dry Mouth
Someone posted some different dry mouth solutions recently. what were there? I got thru everything else but the dry mouth is driving me crazy!
Dry Mouth
My wife had radiation on her neck and throat . This radiation caused her to have a defective saliva gland and now she had a dry mouth . She is using Salagen and dry mouth gum and special tooth paste .Her dry mouth is still with her .Her dentist says that she will loose her teeth and because of her dry mouth he will not be…
Dry mouth remedies?
Has anyone found a product that helps with the dry mouth? Either OTC or prescription. Jeff wakes up every hour because his mouth is so dry and also to pee from all the water he drinks all day and night. Thanks Sue
Skin problems
Hi, I had radiation treatment on one side for a tumor in my jaw in 2014. I have recently been experiencing burning and discoloration on the radiation side only. My neck actually feels like when I was going thru radiation and appears burned. My skin is losing pigment on that side and getting freckly. The other side of my…
Wishing Everyone A Happy Joyous Blessed Easter
I would like to wish everyone a wonderful Easter as we celebrate life eternal and a Risen Savior Jesus Christ who has conquered death and risen from the grave after three days as he said he would. And because of this, we do not sorrow as others with no hope for we shall be raised also on the day of redemption. Hallelujah!…
How Particle Accelerators Are Used to Cure Cancer - with Simon Jolly
Hello fellow survivors. As a mechanic, I am always interested in what is behind the scenes, and what makes it work. If you are like me or just a person that likes informative videos and seeing amazing things you may be interested in this slightly less than one-hour video presented by Simon Jolly. It is of course about…
I.am a 63yoF who just got diagnosed with Stage 2 Laryngeal squamous cell carcinoma
Hi ~ This is my first time here so a little unsure. I was recently diagnosed with vocal cord cancer & am kind of freaked out. I had endo cervical cancer last year & so far so good on that. Chemo & rad. I am so much more afraid this time. I haven’t started rad yet (no chemo this time) but I already can barely be heard…
The C: Section Chronicles - 6 years later
It's been a while. Yes it has been that long. yesterday I had my final ultra sound scan at the bequest of the ENT. It is hard to believe that 6 and a half years ago a lump was discovered on my neck, which started this adventure (as recorded in the Chronicles which I am going to collate into a full document sometime.)…
Reading A Pathology Report And Questions To Ask Your Health Care Team
I was talking with another CSN'er and a question came up about pathology reports and got me digging for more information and in doing some research I came up with a wonderful page of information from cancer.net about pathology reports probably everything you need to know and the questions you should ask your medical team.…
Questions For Your Doctor After Treatment Has Ended
Hello folks, I came across this short guide and I am attaching it here. It gives you an idea of questions to ask your doctor after your cancer treatment has ended. It can be printed out and there is a lined section at the end for you to take notes. Take care, God Bless-Russ
Questions For Your Doctor After Diagnosis
Hello folks, I came across this short guide and I am attaching it here. It gives you an idea of questions to ask your doctor after you get the diagnosis of cancer. It can be printed out and there is a lined section at the end for you to take notes. Take care, God Bless-Russ
Spring Is Starting-Spring Is Close
Once again here in Southeastern PA spring is and has been getting started. I am sure your part of the country varies from this location as per spring happenings Things are not totally bustin' out yet but after a few really warm days things will really get started. Every spring wherever you are at all things are new and new…
Can you remove lymph nodes in neck area without radical dissection?
I just spoke to a friend at work who's husband has hodgkin cancer. She told me had had lymph nodes removed from his neck and he was in and out of the hospital. I have two lymph nodes that may need to be removed, can they remove them without radical dissection? Is this possible?
Vacmedix-A New Platform to Make Cancer and Viral Vaccines
Hello fellow CSN'ers, hoping you are all having the best day possible. I came across this article in my travels and thought it might interest some here on CSN H&N. it appears to be another group and this one I believe is in Britain, that is developing cancer vaccines and working on making immunotherapy better. You folks…
saliva glands can they be transplanted
I had radiation to the head and neck and it fried 1 part of my saliva gland. All I have is the sticky part and it makes eveything hang in my throat. Although I have a feeding tube I cough alot because of that saliva. I found a doctor that can help me swallow food again by reconstructing my throat and removing my voice box…
New Problem: Radiation Recall?
Hello old friends, and new. The good news is that my husband's recent scans are all NED, five years out from treatment for SCC HPV+ cancer of tongue, mets to neck. Some of you will remember that we've had a few scares (episodes of new tongue dysplasia) handled by laser ablation. Happily, the state of his tongue has been…
Radiation side effects 1 1/2 year after treatment.
Good day all . My treatment 1 1/2 years ago was surgery followed by 33 days of radiation and 3 doses of chemo. Of course had the usual side effects....difficulty eating / lack of saliva / loss of taste etc but after 1 1/2 yrs I felt I had largely recovered maybe back to 80% normal. Now though, a new wrinkle and I was…
Biotene products hard to find
For those of us who suffer from dry mouth from our cancer treatments, rely on saliva substitutes . I have been using the Biotene products for over twelve years. Now I can't find it and if I do, retailers are asking high prices for it. I just ordered a new gel product. Hoping this will work. I use it when I go to bed so my…
Have to get a molar pulled
I am a thirteen-year survivor of nasopharyngeal cancer. Through the years, I have spent thousands on my teeth. I had a molar that had a crown on it. It decided to come loose and fall off. Now I need to have the root pulled out. My dentist has put me on two meds. Pentoxifylline and vitamin E to ward off osteoradionecrosis.…
Radiation cause trismus
Hi all I am a 68 year old lady who had surgery this time last year, my ENT surgeon had to stop though as tumor that they think started on my left tonsil cT4 N1 HPV was big and wrapped around my carotid artery. So then underwent 7 weeks of radiation treatments 70 gy and 7 weeks of chemo Cisplatin. So far my scans have shown…
Tonsil Cancer
I have been diagnosed with Tonsil cancer and I was just wondering if there is anybody else out there that is dealing with the same type as I
Adenocarcinoma in a branchial cleft cyst
Age 57 Male. Recently had branchial cleft cyst removed. Pathologist found minute trace of adenocarcinoma in interior lining. No sign of abnormal cells in lymph nodes, exterior of cyst or the stump of the cyst. Has anyone had or heard of a similar situation?
Trismus (Lockjaw)
Hi everyone I'm new here and have soooo many questions. A little bit about my situation... Had surgery on May 24, 2012 to remove the tumor on my inner cheek, right neck dissection to remove lymph nodes and skin graft from my right thigh. 30 treatments of radiation and 3 treatments of Cisplatin. (Awful stuff.) My question…
Success of radiation only without any surgery after 2-3 years?
Hello, I have cancer (squamous cell carcinoma) of the larynx on my right vocal cord. I’m about to be treated with radiation. Has this worked for anyone on this forum with this type of cancer? In other words, have you been treated with radiation for this cancer and survived for 2-3 years without having any surgeries? Have…
no treatment throat cancer
My mom (80 yrs old) has been diagnosed with throat cancer and she is insisting on not having any treatment. She says she feels fine now and doesnt want radiation or chemo with all the bad side effects. Anyone know what she would or could go through if she left this type of cancer untreated?

Head and Neck Cancer

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