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Throat & Neck Cancer - HPV 16+
New post to share my story. Age 59 year old male, very overweight. I was diagnosed with throat and neck cancer hpv16+ Fall 2022. Started in my right tonsil and spread to my lymph nodes on right side of my neck. Doctors provided two choices for treatment they said about equal outcomes. First choice was radiation and chemo…
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One Day Jaw Reconstruction Procedure & Dental Prosthetics Site W/ Video
Roswell Park Comprehensive Cancer Center is a cancer research and treatment center located in Buffalo, New York. Founded by surgeon Roswell Park in 1898, the center was the first in the United States to specifically focus on cancer research. Link-- One thing that is unique in Head and Neck cancer and a very unwanted…
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Update - Possible NED - Thoughts?
Hey all, It’s been some time but wanted to provide an update and get some perspective! My mother (61) completed chemotherapy (cisplatin) and radiation (70Gy) on 14 February. She had one full dose of chemo and then a 3/4th dose because she was pretty ill (hospitalized with peg tube placed) in later weeks of treatment. Three…
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Cancer Forced Me to Learn to Be Sick-Overview From A Cancer Patient
I am posting this because when we read some of these other people's stories we can say yes I know what you are going through or I know what you went through because I faced similar circumstances. The cancer may be different or in a different but many times the treatment is the same. The day we were told, "It is cancer".…
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Osteoradionecrosis of the Jaw and Medication Related Osteonecrosis of the jaw
Here is a video I came across and it shows the 2 ways we can have jaw problems. And there is an alternative treatment to HBOT which is good to have but no guarantee it will give you the healing you need. They are now utilizing pentroxiflline and tocopherol. This video in on the medical technical side so my understanding of…
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Thought it was behind me
Stage 3 tongue cancer (spread to one examined/removed lymph node). Tumor removal, neck dissection and radiation. First, for anyone reading this who is currently going thru treatment I want to give you encouragement...you will make it thru! It is NOT easy, but it will end. That being said, I need advice as I'm…
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Jeannie Hopper-An Inspiration To Us All
Here is a story for us to use as inspiration and remember we can do this no matter the challenge. It is a story of a lady that faced stage 4 tongue cancer. She had a great care team but there is a lot involved in her treatment and recovery as would be expected. Here she shares her story to help and inspire others from her…
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P16 s cell throat cancer
7 radiations in , water tastes like acid any suggestions , what to drink . Can still swallow
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Head and Neck Cancer Patients Share Their Stories
Here is a short video from a fellow who was diagnosed, he says with throat cancer, tumor base of tongue, with lymph node involvement. They told him his new job for the next year is to fight throat cancer. Take Care, God Bless-Russ https://www.youtube.com/watch?v=qWYqirykEzM
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Newly Diagnosed Cancer Patients: Questions To Ask Your Health Care Team
BY Rosemary Catallo Patients and their families often come into The Learning Center, where I work as a librarian, to seek information. After interacting with people for many years -- and from reviewing the large amount of information we have access to here --I've come to understand what information newly diagnosed patients…
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Is post radiation heartburn common?
I’m 19 months post radiation for base of tongue cancer. Radiation killed the cancer as well as some taste buds and saliva glands. Because of dry mouth and that damn “velcro” at the back of my tongue I still have trouble eating most real food that seems to turn into sawdust and doesn’t want to go down. So I’m still living…
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Feeling came back!!!
[Left tonsil & lymph; HPV. Modified radical neck dissection (11/20), Cisplatin Chemo x7 and 33 radiation for 57 rads (1/21 - 2/21] Something weird happened to me last night ... I was scratching that chronic itch under my left jaw and I FELT IT!!!!! Here we are some 2.5 years post surgery and I finally have feeling back in…
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Galleri Blood Test--Blood Test For 50 Types Of Cancer Could Speed Up Diagnosis
In my search for information on the NavDX blood test for cancer, I also came across another Blood test to detect cancers as well. It is very similar I think to the NavDX test. I think these tests are clear examples of medical advances in the field of cancer testing. I think from what I am reading I am not sure if it is…
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Should You Wear A Medical ID Bracelet? Yes It Could Save Your Life And Avoid Problems
Hello, everyone, I hope you all are having the best day possible. I was recently at our local H&N support group and the meeting was over and I was talking to one of the nurse navigators and we covered a couple of things about my condition overall and I told her I should consider a medical ID bracelet maybe and she agreed…
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HPV+ tonsil cancer
I was diagnosed with HPV+ tonsil cancer, which also involved two lymph nodes, in October. I finished chemo (Cisplatin) and radiation treatments in January. I had Pet scan in April which showed NED. Having cancer made me feel so alone, and isolated from everyone else around me. I came here to find other people who have been…
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Palliative Care Explained And Compared Along With Hospice-Things To Consider
This subject is not always easy to consider or talk about and many of us may never use it or Hospice for that matter. But it is good to have knowledge of options available should a major serious illness present itself in your life or a loved one. Also, the ability to have the knowledge and be able to have the most basic…
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5 down, 5 to go
I had my 5-year follow-up on Monday and I am as unremarkable as ever. Quite boring, actually. Nothing to report other than I will now visit once a year for he next 5 years. Ongoing side effects are pretty much limited to a little dry mouth/throat, and some neuropathy in the hands and feet. Both of which are easily…
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Most common side effects of Erbitux and Radiation Therapy - NEWLY Diagnosed -
Hello I have recently been diagnosed with squamous cell cancer of base of tongue HPV positive stage 4 b. I'll be seeing my oncologist for the 2nd time on Monday. He has told me he'll treat me with Erbitux and 30 sessions of radiation therapy (6 continuous weeks, Mon thru Fri). I read about side effects of erbitux and…
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‘Just never give up’: message from a cancer survivor "(NEGU) Never Ever Give Up"
Hello, everyone. The following video shows the reason we always say on here-------- "(NEGU) Never Ever Give Up" I would like to share with you a short video of an amazing story of this woman who conquered cancer and beating the odds even though she was given only a 5 percent chance of living 5 years. This is why she says…
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ROLL CALL 2022 - First Posting January 1, 2022
CivilMatt note to members: Now that I have 2 weeks+ under my belt in dealing with the bringing together the New Roll Call and the new CSN format. I would have to say, “the appearance of the Roll Call after uploading for the members, caught me off guard.” The format I saw on my document, at home was worlds apart from what I…
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Memorial Day May 29, 2023 We Honor and Remember our Fallen
Monday the 29th is Memorial Day, a day set aside to honor our country's servicemen and women who died in service to our country and who gave their all. These are the ones who gave their lives for their country-their last full measure. They deserve no less than the highest honor and respect. Participate in the National…
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Tonsil cancer w with lymph node involvement
Hi all, I would like to introduce myself and say HI to everybody. I am 41, male from European country called Poland. I was diagnosed recently with left tonsil cancer with lymph node involvement. Today I was told that my treatment will be radically and will take 7 weeks of radiation and 2 chemos. My cancer is HPV related…
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Anyone have head/neck radiation on HALF only?
My husband's doc may be recommending radiation on only one side of his head/neck. He has had a neck dissection, tonsillectomy and parotidectomy on one side, and now radiation is being recommended on that side only. I hope that means half the bad side effects. Comments, anyone??
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Breathing Issues For Head & Neck Patients-Be Aware-Help-Informational-My Story
Breathing Issues Head & Neck Patients Help & Solution Informational-My Story Since I have had radiation twice around the H&N area and a lymph node operation left side which has resulted in some muscle and tissue loss to remove all the cancer it also affects the area around all the functions of the H&N area. And we all know…
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Happy Mothers Day Celebration And Blessings to Everyone
I would like to wish everyone a Wonderful and Blessed Mother's Day. Enjoy this day and celebrate mothers everywhere because we all have one, everybody does. Go visit, send cards, or phone Mom and tell her how much she means to you and how much you love her. And for those of us whose mom has passed on, bask in the memories…
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Nosebleed
My dad finished treatment about 5 years ago. NED since then. But he had a nosebleed yesterday which got me worried as I know it's usually a flag for recurrence (or something people get during treatments). Anyone here experiences nosebleeds? I contacted his ENT oncologist and he said a one time thing is ok but if it…
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Swollen lymph node
2 weeks post treatment, HPV BOT and lymph node. 35 Rads and 6 cisplatin weekly. Rough ride, but my support and prayers got me thru. My lymph node still looks little bit swollen. Was wondering if this is normal or should have it gone down completely after treatment. Just took the HPV blood test. Which is giving me anxiety.…
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Razors and Shaving
There were some older posts on the topic of Razors and Shaving, but anyone have recent experience? Electric razors really never worked for my skin type; but if you've found a product that helped you along this journey please let me know. I can't seem to get past 5 days of growth without it driving me crazy... I start Rad…
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23 yr old f- Swollen submandibular lymph nodes for months
I am a 23 year old female with no know medical issues. About 10 months ago (around Sept 2019) , I had swelling of my submandibular lymph nodes. It was a little swollen on both sides, but the right side had one in particular that was hard and round like a marble. I wasn't sick, so I was worried and went to get checked out…
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Tongue Biopsy? - side of tongue near back
Hi! My dentist found a pea sized bump on the side of my tongue close to the very back. How painful is the biopsy? Will local anesthetics be enough or should I be put under? How long does the biopsy last? I don’t have issues with numbing injections when I get fillings but it might be a different ballgame when talking about…