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Support
I was diagnosed with tongue cancer about 5 months ago. I have been through surgery to remove the tumor and 28 lymph nodes 4 coming back with cancer. Been through chemo and radiation treatments. I'm 5 weeks in recovery from treatments and still having some difficulty I had to have a feeding tube placed during treatments my…
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VAERS: Are mRNA Adverse Event Reports Accurate? Dr. Jessica Rose w/ Dr. Kelly Victory – Ask Dr. Drew
Here is an interesting discussion on the VAER's Vaccine Adverse Event Reporting System (VAERS). A little over an hour, well worth the watch I guarantee you will get something out of it. These people have a good discussion on it and other situations surrounding the VAER's system, covid, and vaccines. I believe they are all…
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I have just found you folks!
My name is Thomas, and I had a complete Laryngectomy a yr and a half ago Now retired singer/ songwriter. I still play alot of Guitar, its been my life since I was very little. Since the operation I have watched friends and family just simply go away. It's been heartbreaking. So today I found you folks and I am hoping and…
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Suggestions on eating
Can anyone help me with some tolerable food choices that worked for you? My husband is on day 13 of 33 radiation and 3 of 7 for chemo. His taste buds are pretty much gone or make food taste horrible to the point of gagging. He is drinking High Calorie Ensure, and scrambled eggs are kinda okay. However, he really would like…
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The New Normal
I hate that phrase, I don't need a NEW normal, I'd like my old normal back, please and thank you! What's caused this blip? My oesophagus (I cant spell) is now really small, as in REALLY small, as it took my over 5 minutes to get a 12.5 mm barium tablet down. Its around 1 cm.. I'm back on the roundabout, barium swallows,…
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Laryngectomy
I am about to undergo surgery for a full laryngectomy and am interested in connecting with others who have had this surgery and cancer of the larynx. Gracias!
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Wishing Everyone A Happy And Joyous Independence Day 2023
As we celebrate the 4th of July Independence Day. I wish you all a wonderful day filled with cookouts, family and friends, fireworks displays and the pure joy of unfettered freedom. May we remember the price paid for by our founding fathers to establish this nation. May we also consider the price paid by many Americans to…
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Cancer Survivorship Care Plans with Lynda Kwon Beaupin, MD-Video
Informational video on survivorship plans and thoughts for your survivorship moving forward. Take Care, God Bless-Russ
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Rang Out - Ding-Ding!
DING-DING, DING-DING, DING-DING 🔔 Senior Chief (Ret), Departing 🫡 Finished 35 Rads (60 Gray [Gy]) today. Finished 7 chemo's (carboplatin) last week Wednesday. Tomorrow starts my recovery period. So I'm thinking come this weekend I start enduring 'The Suck' 😕 Problem is, Saturday we are attending a 'Celebration of Life' for…
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Throat & Neck Cancer - HPV 16+
New post to share my story. Age 59 year old male, very overweight. I was diagnosed with throat and neck cancer hpv16+ Fall 2022. Started in my right tonsil and spread to my lymph nodes on right side of my neck. Doctors provided two choices for treatment they said about equal outcomes. First choice was radiation and chemo…
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One Day Jaw Reconstruction Procedure & Dental Prosthetics Site W/ Video
Roswell Park Comprehensive Cancer Center is a cancer research and treatment center located in Buffalo, New York. Founded by surgeon Roswell Park in 1898, the center was the first in the United States to specifically focus on cancer research. Link-- One thing that is unique in Head and Neck cancer and a very unwanted…
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Update - Possible NED - Thoughts?
Hey all, It’s been some time but wanted to provide an update and get some perspective! My mother (61) completed chemotherapy (cisplatin) and radiation (70Gy) on 14 February. She had one full dose of chemo and then a 3/4th dose because she was pretty ill (hospitalized with peg tube placed) in later weeks of treatment. Three…
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Cancer Forced Me to Learn to Be Sick-Overview From A Cancer Patient
I am posting this because when we read some of these other people's stories we can say yes I know what you are going through or I know what you went through because I faced similar circumstances. The cancer may be different or in a different but many times the treatment is the same. The day we were told, "It is cancer".…
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Osteoradionecrosis of the Jaw and Medication Related Osteonecrosis of the jaw
Here is a video I came across and it shows the 2 ways we can have jaw problems. And there is an alternative treatment to HBOT which is good to have but no guarantee it will give you the healing you need. They are now utilizing pentroxiflline and tocopherol. This video in on the medical technical side so my understanding of…
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Thought it was behind me
Stage 3 tongue cancer (spread to one examined/removed lymph node). Tumor removal, neck dissection and radiation. First, for anyone reading this who is currently going thru treatment I want to give you encouragement...you will make it thru! It is NOT easy, but it will end. That being said, I need advice as I'm…
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Jeannie Hopper-An Inspiration To Us All
Here is a story for us to use as inspiration and remember we can do this no matter the challenge. It is a story of a lady that faced stage 4 tongue cancer. She had a great care team but there is a lot involved in her treatment and recovery as would be expected. Here she shares her story to help and inspire others from her…
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P16 s cell throat cancer
7 radiations in , water tastes like acid any suggestions , what to drink . Can still swallow
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Head and Neck Cancer Patients Share Their Stories
Here is a short video from a fellow who was diagnosed, he says with throat cancer, tumor base of tongue, with lymph node involvement. They told him his new job for the next year is to fight throat cancer. Take Care, God Bless-Russ https://www.youtube.com/watch?v=qWYqirykEzM
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Newly Diagnosed Cancer Patients: Questions To Ask Your Health Care Team
BY Rosemary Catallo Patients and their families often come into The Learning Center, where I work as a librarian, to seek information. After interacting with people for many years -- and from reviewing the large amount of information we have access to here --I've come to understand what information newly diagnosed patients…
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Is post radiation heartburn common?
I’m 19 months post radiation for base of tongue cancer. Radiation killed the cancer as well as some taste buds and saliva glands. Because of dry mouth and that damn “velcro” at the back of my tongue I still have trouble eating most real food that seems to turn into sawdust and doesn’t want to go down. So I’m still living…
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Feeling came back!!!
[Left tonsil & lymph; HPV. Modified radical neck dissection (11/20), Cisplatin Chemo x7 and 33 radiation for 57 rads (1/21 - 2/21] Something weird happened to me last night ... I was scratching that chronic itch under my left jaw and I FELT IT!!!!! Here we are some 2.5 years post surgery and I finally have feeling back in…
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Galleri Blood Test--Blood Test For 50 Types Of Cancer Could Speed Up Diagnosis
In my search for information on the NavDX blood test for cancer, I also came across another Blood test to detect cancers as well. It is very similar I think to the NavDX test. I think these tests are clear examples of medical advances in the field of cancer testing. I think from what I am reading I am not sure if it is…
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Should You Wear A Medical ID Bracelet? Yes It Could Save Your Life And Avoid Problems
Hello, everyone, I hope you all are having the best day possible. I was recently at our local H&N support group and the meeting was over and I was talking to one of the nurse navigators and we covered a couple of things about my condition overall and I told her I should consider a medical ID bracelet maybe and she agreed…
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HPV+ tonsil cancer
I was diagnosed with HPV+ tonsil cancer, which also involved two lymph nodes, in October. I finished chemo (Cisplatin) and radiation treatments in January. I had Pet scan in April which showed NED. Having cancer made me feel so alone, and isolated from everyone else around me. I came here to find other people who have been…
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Palliative Care Explained And Compared Along With Hospice-Things To Consider
This subject is not always easy to consider or talk about and many of us may never use it or Hospice for that matter. But it is good to have knowledge of options available should a major serious illness present itself in your life or a loved one. Also, the ability to have the knowledge and be able to have the most basic…
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5 down, 5 to go
I had my 5-year follow-up on Monday and I am as unremarkable as ever. Quite boring, actually. Nothing to report other than I will now visit once a year for he next 5 years. Ongoing side effects are pretty much limited to a little dry mouth/throat, and some neuropathy in the hands and feet. Both of which are easily…
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Most common side effects of Erbitux and Radiation Therapy - NEWLY Diagnosed -
Hello I have recently been diagnosed with squamous cell cancer of base of tongue HPV positive stage 4 b. I'll be seeing my oncologist for the 2nd time on Monday. He has told me he'll treat me with Erbitux and 30 sessions of radiation therapy (6 continuous weeks, Mon thru Fri). I read about side effects of erbitux and…
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‘Just never give up’: message from a cancer survivor "(NEGU) Never Ever Give Up"
Hello, everyone. The following video shows the reason we always say on here-------- "(NEGU) Never Ever Give Up" I would like to share with you a short video of an amazing story of this woman who conquered cancer and beating the odds even though she was given only a 5 percent chance of living 5 years. This is why she says…
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ROLL CALL 2022 - First Posting January 1, 2022
CivilMatt note to members: Now that I have 2 weeks+ under my belt in dealing with the bringing together the New Roll Call and the new CSN format. I would have to say, “the appearance of the Roll Call after uploading for the members, caught me off guard.” The format I saw on my document, at home was worlds apart from what I…
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Memorial Day May 29, 2023 We Honor and Remember our Fallen
Monday the 29th is Memorial Day, a day set aside to honor our country's servicemen and women who died in service to our country and who gave their all. These are the ones who gave their lives for their country-their last full measure. They deserve no less than the highest honor and respect. Participate in the National…