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Paresthesia of the tongue
I am new to this site as a result of my search for answers! I had a partial glossectomy on 4/20/16 and am so tired of the "pins and needles" feeling on my tongue. I am wondering if others have had this following surgery and how long it lasts?? It's really not that bad of a feeling but it's CONSTANT! I understand it's the…
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esophageal cancer
I just found out that I have esophageal cancer. Any one out there willing to talk to me about their experiences? plesase e-mail me at ebjohnson@charter.net. thank you
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Living without an Epiglottis
I wonder if there's anyone on here that has had cancer of the epiglottis? Mine was successfully removed November 2 ,2011.Lymph nodes removed, but tested NO cancer, so I did not have chemo or radiation, Thank God. The surgery was done by Robot at the James in Columbus, Ohio. I am eating soft foods, and since January has…
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Jaw replacement surgery
Hello, it's been awhile since I have been on this site. Brief history: 2016 HPV 16 tonsil/ base of tongue. 35 Radiation at highest level allowed, 2 of 3 cisplatin treatments taken. Took almost two years to get into a natural rhythm of daily life. 2021 started having jaw pain. Last two years spent, trying all easy…
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Wishing Everyone A Blessed And Joyous Christmas 2023 And Great Hope For Tomorrow
Hello and Blessings to all on CSN and especially to our group in the H&N section Christmas time is one of the highlights of the year. It’s a time of gathering with family and friends. Sharing gifts, and creating memories. It’s also a time to bless and encourage each other. So this is especially the time I would like to…
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SCC of the nasal passage
I had SCC of the septum. Most of the tumor was removed July 2022 and the remaining 5% was killed off by radiation treatment. It was a high dose radiation treatment (5 sessions over 2 weeks). Its been a year but the inside of my nose has not healed. In fact I fear it may have come back. Going to my Doctor Friday and…
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Tougne ulcer
Hi all. Sorry for starting a new post but when I post this I'm my original topic it doesn't show up as posted. I'm not healing that great from having 12 healthy teeth removed. After 2 weeks the pain got worse. I went to the surgeon Thursday and it's hard for him to see if the gums or whatever are infected because of the…
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Help regarding tube feeding
Hello all, The peg tube ligation was completed today and shortly before we were discharged from the hospital. Tomorrow I have an appointment with the nutritionist.But I ask you about the products that you used and got good results from.I ask you, should I just continue feeding with ready-made formulas, or can I make…
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Tongue Cancer - to get tongue reconstruction or not?
Hi Team, I am at 32 yr old Male and was diagnosed with Squamous Cell Carcinoma, Well Differentiated in the tongue. We think we caught it early -- I went to an ENT in September right after it got suspicious, she said everything looked ok. In November decided what the hell let's get a second opinion and biopsy this thing -…
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Hip replacement
David had chemo this morning and will continue on a Monday schedule. We saw the orthopedic surgeon today. He has spoken with our hematology oncologist and they have decided David needs a hip replacement. So we go on March 7 for a hip replacement at UK and will stay a few days and then David will do intensive therapy at…
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30gy radiation and 2 cycles of chemo
Dear all, I am part of a clinical trial for 30gy radiation and 2 cycles of chemo cisplatin. Anyone participated such trials? If so how long ago, what was the outcome, acute and long term side effects and how long did the side effects take to clear out. Appreciate if anyone can provide insights. Thanks and god bless!
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Using Zinc for Return of Taste?
Hi All Again, I forgot to add in my last post of several days ago that at some point near the end of my husband’s base of tongue SCC treatment (ended 10/24/23) that I was searching on this Board about taste returning. Someone mentioned they took Zinc supplements and it helped them. Scientific I don’t know but we asked his…
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Ann Barshinger Cancer Center Patient Support Groups Night & Proton Machine Tour
It was recently the cancer center near where I live had an evening event combining all the support groups into a get-together evening of survivorship and fellowship. Penn Medicine, Ann B. Barshinger Cancer Institute. Pizza of many varieties was provided with a variety of drinks and people mingled, ate, and drank their…
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Our Journey and Treatment for Base of Tongue (SCC) Cancer
Hello All, I promised my husband that when he finished his treatment for base of tongue cancer (left side) with 2 left side affected lymph nodes, that I would try to pay it forward to all those that helped us out. To my new friend MarieO, who I found on this board whose husband had a similar journey in 2022, many many…
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Blood test to detect HPV+ SCC - NavDX
I haven't read a lot of the posts.. however, in the ones that I have read, I haven't seen anything about the NavDX blood test. I just went in for my 9 month post treatment check-up at USC, and my ENT had ordered blood drawn for the NavDX test so that results would be in for my check-up appt. While my initial cancer was in…
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Lung Biopsy
I was wondering if anyone has had a lung biopsy? If so, can you explain your experience, and how you felt after? My husband had his post treatment PET, his cancer in his throat is NED, but they found a nodule on his upper right lung. His oncologist feels it is most likely inflammation(hoping so), she wanted to have him…
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looking for in person groups
I was diagnosed with stage 4 head neck cancer and have gone through radiation and chemotherapy, 2nd pet scan good, just looking and asking if there is any in person support groups I can join. I live in the Albany, Troy, Schenectady area in New York. Thank you for your time, Peace
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Fluoride Trays
Just found out yesterday that my Medical Insurance Company has approved 80% of my fluoride tray cost. I was initially told that insurance would not pay for them and my dental insurance did deny them but I tried again and it worked. My dentist had recommended these to be used twice daily to protect my teeth. He said he has…
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Tingling and numbness (still) 2 years after surgery
Hello, I was diagnosed with small squimish cell carcinoma on the left side of my tongue. I had surgery to remove it and a graft was taken from my wrist to reconstruct my tongue. My question would be, if you had the graft taken from your wrist did you still have some tingling/numbness in your hand or arm or did it go away…
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BelongIA - New App to Consider
Hello All. I somehow stumbled upon and downloaded a new app called BelongAI. It has to do strictly with cancer and is based on artificial intelligence answers to any cancer related question you might have. I tested it by asking a number of questions related to my diagnosis and the answers it gave, which came back in real…
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Losing voice
Hi, My husband is six years out from treatment for throat cancer. For the past few months, he has been losing his voice toward the end of the day. He is in sales so he talks all day. Is/has anyone else experienced this?
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Pain management
My husband had stage 4 scc lower right jaw bone. They removed that side of his jaw, replaced the bone with left leg fibula-free flap. 10/19/2022 cancer came back in cheek prior to radiation 35 radiation therapy- 7 weeks chemo - finished up first week of April has had 2 pet scans since - NED post treatment has been rough -…
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Post-Op Partial Glossectomy - Please Help
Hello All - I had a partial glossectomy yesterday for the left side of my tongue. It resembles a “cookie bite” out of my tongue but goes down to the floor of my mouth. My throat and tongue are so swollen I can’t speak, it’s incredibly painful. The outside of my throat is huge from the breathing tube. Has anyone else had…
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The hardest thing is making decisions
Between short periods this year, I am put to the test of making fateful decisions for my father. After total laryngectomy, the disease recurred under the left jaw. And after chemotherapy TPF protocol. After 33 sessions of radiotherapy. Now, 4 months after the end of radiotherapy, there is a narrowing of the pharynx and…
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Skin care around the PEG
Any tips on care of the skin around a peg? The dressing got wet with drainage and in no time the skin around the peg became quite reddened and raw. I have been cleaning with a baby wipe and drying the area then applying aquaphor ointment.
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Wishing A Happy And Blessed Thanksgiving To Everyone
For each new morning with its light, For rest and shelter of the night, For health and food, for love and friends, For everything Thy goodness sends. ~Ralph Waldo Emerson Wishing Everyone A Happy Thanksgiving 2023 Hello everyone on the CSN H&N discussion board. Wishing everyone a Happy Thanksgiving. Inviting everyone to…
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Head & Neck Radiation Recovery
I had 30 radiation treatments for a tumor in my neck, which ended 6 weeks ago. Since that time, my hearing has gotten worse and I had to have a tube inserted to drain that ear. Also, I still have ulcers in my mouth, which come and go. One doctors told me I would be fine by now - another tells me it is a rebound effect. Has…
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Reoccurrence of tongue surgery after surgery
Hi, I have had a total of 6 tongue surgeries. The first one was a glossectomy with a skin graft. The lesions that were removed were all severe dysplasia, but the 6th surgery was cancer. The Dr is going to keep a close eye on me, like he’s been doing. My question is: Have any of you had reoccurring tongue cancer after…
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Anyone had experience with post op treatment for Laser surgery for vocal cord cancer
I had laser surgery for vocal cord cancer three ago. I am doing well and the doctor feels the cancer has been eradicated. I was teated in Boston by a doctor who is using a new kind of laser that goes after the blood supply. All that aside, I am wondering what kind of post op instructions others have been given for laser…
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Larangectomy
Hi there im a newbie on here previous left larynx vocal chord cancer treated with radiotherapy and laser surgery diagnosed 2017 finshed treatment 2018 Was doing ok now five years later back on right side also they will see if lymph nodes are affected during surgery will remove and also right vocal cord paralysed since last…