-
Re: New Roll Call Team
Civil Matt and wbcgaruss (Russ), I wish to thank you both, first a Huge Thank you to you Matt for all the years of work you have put into this Roll Call. And a Huge Thank you to you Russ for volunteering to take on such a meaningful task to so many. I for one often look for any updates to the Roll Call to see new members…
-
Mucoepidermoid intermediate
Olá poderia me ajudar? Meu esposo está passando pelo tratamento de mucoepidermoide intermediário e gostaria de ter notícia sobre como é lidar com o tratamento, se existe cura
-
Vagal Nerve Damage from Radiation
Hi folks - it's been a long time. My husband had tonsil cancer over a decade ago and got the full chemo and rad treatment. I was active here for a while, but after a few years, I saw that others could provide any info I could, and it was hard to relive the bad days. Now, I'm learning about something that might be new to…
-
Mucoepidermoid survivor
Hi! Could you help me? My husband is undergoing intermediate mucoepidermid treatment and I would like to have news about how it is to deal with the treatment, if there is a cure
-
Sinus Cancer
I am looking for someone... anyone... who has had sinus cancer. I have completed my radiation treatments and am recooping == need someone to talk to about side effects, longterm issues.... etc. My cancer was Esthesionueroblastoma and it was in my Ethmoid sinus and part of my sinus cavit.
-
CivilMatt starting a new year.
I just wanted to share {again) this post by NKimber
-
Voice Problems
I finished 6 weeks of rads for a tumor that was almost totally confined to one vocal cord. On the last 3 days, the vocal cord got blasted, and my voice has become very weak and almost useless. My wife needs to stand right next to me in order to understand what I say. I am just one week, post treatment. All other effects of…
-
How long after HBOT do you have to get your teeth extracted.
Hello, I have been dealing with head and neck cancer for over 20 years. I have had it come back three time. I first had a simple partial glossectomy...I tested negative. Then 2 years later it came back and I had to have a semi glossectomy, radiation, and chemo. Then 15 years later it came back and I had proton radiation…
-
If You Had A Glossectomy or Laryngectomy Or Both Find Help Here-Glossectomy Girl Website
I am not sure how I happened upon this woman's website but I have looked through it and I believe there are many helpful sections here for those on here who have had a Glossectomy or Laryngectomy Or Both. In fact this website is loaded with information and resources. This woman has had both and she goes on to live a full…
-
Vocal chord cancer
I had radiation for the cancer . It has been 8 weeks since last treatment and I’m still having burning in my throat - sore throat and horrible coughing and gagging (particularly at night). Anyone else have same experience and when do side effects stop!
-
Paresthesia of the tongue
I am new to this site as a result of my search for answers! I had a partial glossectomy on 4/20/16 and am so tired of the "pins and needles" feeling on my tongue. I am wondering if others have had this following surgery and how long it lasts?? It's really not that bad of a feeling but it's CONSTANT! I understand it's the…
-
esophageal cancer
I just found out that I have esophageal cancer. Any one out there willing to talk to me about their experiences? plesase e-mail me at ebjohnson@charter.net. thank you
-
Living without an Epiglottis
I wonder if there's anyone on here that has had cancer of the epiglottis? Mine was successfully removed November 2 ,2011.Lymph nodes removed, but tested NO cancer, so I did not have chemo or radiation, Thank God. The surgery was done by Robot at the James in Columbus, Ohio. I am eating soft foods, and since January has…
-
Jaw replacement surgery
Hello, it's been awhile since I have been on this site. Brief history: 2016 HPV 16 tonsil/ base of tongue. 35 Radiation at highest level allowed, 2 of 3 cisplatin treatments taken. Took almost two years to get into a natural rhythm of daily life. 2021 started having jaw pain. Last two years spent, trying all easy…
-
Wishing Everyone A Blessed And Joyous Christmas 2023 And Great Hope For Tomorrow
Hello and Blessings to all on CSN and especially to our group in the H&N section Christmas time is one of the highlights of the year. It’s a time of gathering with family and friends. Sharing gifts, and creating memories. It’s also a time to bless and encourage each other. So this is especially the time I would like to…
-
SCC of the nasal passage
I had SCC of the septum. Most of the tumor was removed July 2022 and the remaining 5% was killed off by radiation treatment. It was a high dose radiation treatment (5 sessions over 2 weeks). Its been a year but the inside of my nose has not healed. In fact I fear it may have come back. Going to my Doctor Friday and…
-
Tougne ulcer
Hi all. Sorry for starting a new post but when I post this I'm my original topic it doesn't show up as posted. I'm not healing that great from having 12 healthy teeth removed. After 2 weeks the pain got worse. I went to the surgeon Thursday and it's hard for him to see if the gums or whatever are infected because of the…
-
Help regarding tube feeding
Hello all, The peg tube ligation was completed today and shortly before we were discharged from the hospital. Tomorrow I have an appointment with the nutritionist.But I ask you about the products that you used and got good results from.I ask you, should I just continue feeding with ready-made formulas, or can I make…
-
Tongue Cancer - to get tongue reconstruction or not?
Hi Team, I am at 32 yr old Male and was diagnosed with Squamous Cell Carcinoma, Well Differentiated in the tongue. We think we caught it early -- I went to an ENT in September right after it got suspicious, she said everything looked ok. In November decided what the hell let's get a second opinion and biopsy this thing -…
-
Hip replacement
David had chemo this morning and will continue on a Monday schedule. We saw the orthopedic surgeon today. He has spoken with our hematology oncologist and they have decided David needs a hip replacement. So we go on March 7 for a hip replacement at UK and will stay a few days and then David will do intensive therapy at…
-
30gy radiation and 2 cycles of chemo
Dear all, I am part of a clinical trial for 30gy radiation and 2 cycles of chemo cisplatin. Anyone participated such trials? If so how long ago, what was the outcome, acute and long term side effects and how long did the side effects take to clear out. Appreciate if anyone can provide insights. Thanks and god bless!
-
Using Zinc for Return of Taste?
Hi All Again, I forgot to add in my last post of several days ago that at some point near the end of my husband’s base of tongue SCC treatment (ended 10/24/23) that I was searching on this Board about taste returning. Someone mentioned they took Zinc supplements and it helped them. Scientific I don’t know but we asked his…
-
Ann Barshinger Cancer Center Patient Support Groups Night & Proton Machine Tour
It was recently the cancer center near where I live had an evening event combining all the support groups into a get-together evening of survivorship and fellowship. Penn Medicine, Ann B. Barshinger Cancer Institute. Pizza of many varieties was provided with a variety of drinks and people mingled, ate, and drank their…
-
Our Journey and Treatment for Base of Tongue (SCC) Cancer
Hello All, I promised my husband that when he finished his treatment for base of tongue cancer (left side) with 2 left side affected lymph nodes, that I would try to pay it forward to all those that helped us out. To my new friend MarieO, who I found on this board whose husband had a similar journey in 2022, many many…
-
Blood test to detect HPV+ SCC - NavDX
I haven't read a lot of the posts.. however, in the ones that I have read, I haven't seen anything about the NavDX blood test. I just went in for my 9 month post treatment check-up at USC, and my ENT had ordered blood drawn for the NavDX test so that results would be in for my check-up appt. While my initial cancer was in…
-
Lung Biopsy
I was wondering if anyone has had a lung biopsy? If so, can you explain your experience, and how you felt after? My husband had his post treatment PET, his cancer in his throat is NED, but they found a nodule on his upper right lung. His oncologist feels it is most likely inflammation(hoping so), she wanted to have him…
-
looking for in person groups
I was diagnosed with stage 4 head neck cancer and have gone through radiation and chemotherapy, 2nd pet scan good, just looking and asking if there is any in person support groups I can join. I live in the Albany, Troy, Schenectady area in New York. Thank you for your time, Peace
-
Fluoride Trays
Just found out yesterday that my Medical Insurance Company has approved 80% of my fluoride tray cost. I was initially told that insurance would not pay for them and my dental insurance did deny them but I tried again and it worked. My dentist had recommended these to be used twice daily to protect my teeth. He said he has…
-
Tingling and numbness (still) 2 years after surgery
Hello, I was diagnosed with small squimish cell carcinoma on the left side of my tongue. I had surgery to remove it and a graft was taken from my wrist to reconstruct my tongue. My question would be, if you had the graft taken from your wrist did you still have some tingling/numbness in your hand or arm or did it go away…
-
BelongIA - New App to Consider
Hello All. I somehow stumbled upon and downloaded a new app called BelongAI. It has to do strictly with cancer and is based on artificial intelligence answers to any cancer related question you might have. I tested it by asking a number of questions related to my diagnosis and the answers it gave, which came back in real…