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Head and Neck Cancer

Our Journey and Treatment for Base of Tongue (SCC) Cancer
Hello All, I promised my husband that when he finished his treatment for base of tongue cancer (left side) with 2 left side affected lymph nodes, that I would try to pay it forward to all those that helped us out. To my new friend MarieO, who I found on this board whose husband had a similar journey in 2022, many many…
Blood test to detect HPV+ SCC - NavDX
I haven't read a lot of the posts.. however, in the ones that I have read, I haven't seen anything about the NavDX blood test. I just went in for my 9 month post treatment check-up at USC, and my ENT had ordered blood drawn for the NavDX test so that results would be in for my check-up appt. While my initial cancer was in…
Lung Biopsy
I was wondering if anyone has had a lung biopsy? If so, can you explain your experience, and how you felt after? My husband had his post treatment PET, his cancer in his throat is NED, but they found a nodule on his upper right lung. His oncologist feels it is most likely inflammation(hoping so), she wanted to have him…
looking for in person groups
I was diagnosed with stage 4 head neck cancer and have gone through radiation and chemotherapy, 2nd pet scan good, just looking and asking if there is any in person support groups I can join. I live in the Albany, Troy, Schenectady area in New York. Thank you for your time, Peace
Fluoride Trays
Just found out yesterday that my Medical Insurance Company has approved 80% of my fluoride tray cost. I was initially told that insurance would not pay for them and my dental insurance did deny them but I tried again and it worked. My dentist had recommended these to be used twice daily to protect my teeth. He said he has…
Tingling and numbness (still) 2 years after surgery
Hello, I was diagnosed with small squimish cell carcinoma on the left side of my tongue. I had surgery to remove it and a graft was taken from my wrist to reconstruct my tongue. My question would be, if you had the graft taken from your wrist did you still have some tingling/numbness in your hand or arm or did it go away…
BelongIA - New App to Consider
Hello All. I somehow stumbled upon and downloaded a new app called BelongAI. It has to do strictly with cancer and is based on artificial intelligence answers to any cancer related question you might have. I tested it by asking a number of questions related to my diagnosis and the answers it gave, which came back in real…
Losing voice
Hi, My husband is six years out from treatment for throat cancer. For the past few months, he has been losing his voice toward the end of the day. He is in sales so he talks all day. Is/has anyone else experienced this?
Pain management
My husband had stage 4 scc lower right jaw bone. They removed that side of his jaw, replaced the bone with left leg fibula-free flap. 10/19/2022 cancer came back in cheek prior to radiation 35 radiation therapy- 7 weeks chemo - finished up first week of April has had 2 pet scans since - NED post treatment has been rough -…
Post-Op Partial Glossectomy - Please Help
Hello All - I had a partial glossectomy yesterday for the left side of my tongue. It resembles a “cookie bite” out of my tongue but goes down to the floor of my mouth. My throat and tongue are so swollen I can’t speak, it’s incredibly painful. The outside of my throat is huge from the breathing tube. Has anyone else had…
The hardest thing is making decisions
Between short periods this year, I am put to the test of making fateful decisions for my father. After total laryngectomy, the disease recurred under the left jaw. And after chemotherapy TPF protocol. After 33 sessions of radiotherapy. Now, 4 months after the end of radiotherapy, there is a narrowing of the pharynx and…
Skin care around the PEG
Any tips on care of the skin around a peg? The dressing got wet with drainage and in no time the skin around the peg became quite reddened and raw. I have been cleaning with a baby wipe and drying the area then applying aquaphor ointment.
Wishing A Happy And Blessed Thanksgiving To Everyone
For each new morning with its light, For rest and shelter of the night, For health and food, for love and friends, For everything Thy goodness sends. ~Ralph Waldo Emerson Wishing Everyone A Happy Thanksgiving 2023 Hello everyone on the CSN H&N discussion board. Wishing everyone a Happy Thanksgiving. Inviting everyone to…
Head & Neck Radiation Recovery
I had 30 radiation treatments for a tumor in my neck, which ended 6 weeks ago. Since that time, my hearing has gotten worse and I had to have a tube inserted to drain that ear. Also, I still have ulcers in my mouth, which come and go. One doctors told me I would be fine by now - another tells me it is a rebound effect. Has…
Reoccurrence of tongue surgery after surgery
Hi, I have had a total of 6 tongue surgeries. The first one was a glossectomy with a skin graft. The lesions that were removed were all severe dysplasia, but the 6th surgery was cancer. The Dr is going to keep a close eye on me, like he’s been doing. My question is: Have any of you had reoccurring tongue cancer after…
Anyone had experience with post op treatment for Laser surgery for vocal cord cancer
I had laser surgery for vocal cord cancer three ago. I am doing well and the doctor feels the cancer has been eradicated. I was teated in Boston by a doctor who is using a new kind of laser that goes after the blood supply. All that aside, I am wondering what kind of post op instructions others have been given for laser…
Larangectomy
Hi there im a newbie on here previous left larynx vocal chord cancer treated with radiotherapy and laser surgery diagnosed 2017 finshed treatment 2018 Was doing ok now five years later back on right side also they will see if lymph nodes are affected during surgery will remove and also right vocal cord paralysed since last…
Shocking result
After radiotherapy, unfortunately, the examination showed a significant increase in the size of the tumor (3.4 cm). Since February, when the tumor appeared, it was 1.9 cm in size. After chemotherapy, it became 1.1 cm in size. After that, I underwent 33 radiation sessions, and I was surprised by the increase in size. I was…
tonsil cancer
I am a 54 year old woman newly diagnosed with tonsil cancer. My brother, who is 49, was diagnosed 2 1/2 years ago with the same cancer. He successfully underwent radiation and has been cancer free. The doctors are baffled. We are not, and have never been, smokers. We will soon be working with a geneticist to explore this…
ROLL CALL 2012 - CLOSED. NEW THREAD STARTED
In year 2011, we had 89 folks who registered or checked back in. You now will have the opportunity to report/enroll for calendar year 2012. Please give a brief update of your status. If enrolling for the first time, please list your state, date diagnosed, type of cancer, treatment and your status. Adamson 091654, state…
NEGU (Never Ever Give Up) Works For Rats Too
I saw this in another group and had to share it with all of you. Giving Up Is Not An Option When You Have A Group Like Us♥️ During a study at Harvard in 1957, Dr. Curt Richter placed rats in a pool of water to test how long they could tread water. On average they'd give up, sink, and drown after 15 minutes. But right…
Rebuilding Teeth
Hi folks - I've been off this list for a while, as my husband's cancer journey was over 10 years ago, and I had to deal with some PTSD afterward, which made me not want to even think of cancer. However, since cancer is the gift that keeps on giving, I'm looking for advice again. His teeth, which made it through treatment,…
Looking for Guidance
I am 80 and was newly diagnosed with HPV related throat cancer. Based on the biopsy and the PET scan results, my oncologist wants to start me on chemo and radiation. I really do not know what to expect. I live alone in my home with my 17 year old dog. I have heard things about chemo and am concerned about navigating this.…
NavDx Ups and Downs
Prior to TORS radical tonsillectomy and leftside lymphoid romoval (24) (noids were clear) my navdx results was 77. The surgery was a success and after 3 weeks the results showed undectable. 2 months got a result of 24, and after a retest 3 weeks later it went down to 12. The Unversity of Michigan surgeon is likely to order…
Concerns and Seeking Guidance on My Father's Post-Treatment Complications
I'm writing to express my deep concerns and to seek guidance regarding my father's prolonged and complex battle with squamous cell carcinoma. Here's a chronological account of his treatment journey: 1. **Initial Discovery**: Squamous cell carcinoma was detected on his right vocal cord. The tumor was successfully excised…
Does the Black Salve work ? Ask Scambusters nose !
Friends lovers and doubters, I have been quietly documenting my experience with the Black Salve and now can openly claim to have put my nose where my mouth is, and used the stuff and YES it does work and work very well indeed. I treated a lesion on my nose and one on my forehead, both suspected BCC or SCC. I have had many…
Round 2 for me
Hello all, on Dec. the 12th I was to be cured as that is my 5 year aniversary post treatment for SCC. After routine blood work my TSH had been rising since earlier in the year. After seeing the rise and time it was taking to get my reading down I decided to see a specialist at the cancer hospital where I was treated in the…
Reoccurring Head neck squamous cell carcinoma
They found my husbands cancer at the base of my tounge. I had 3 (all day long) treatments of cisplatin over a 3 month period plus 6000 gray's of proton (5 days a week) for 7 weeks, cancer was gone. Approximately 3 months later cancer was found in right neck lymph nodes. Had surgery to remove, 12 weeks later it was found…
Ivermectin
Hi I'm in Northern Ireland and trying to find dosage for Ivermectin and Fenbendazole. Can anyone please point me in the right direction?
Pain after Surgery for Tongue Cancer
Hello, I have been diagnosed with tongue cancer three times. The first time was a stage 4 and I chose to have chemo and radiation rather than lose 3/4 of my tongue. That was in 2008. I wonder if I made a mistake. However, it is too late to have regrets. In the summer of 2011 I was diagnosed again with cancer under my…

Head and Neck Cancer

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