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Head and Neck Cancer

Shocking result
After radiotherapy, unfortunately, the examination showed a significant increase in the size of the tumor (3.4 cm). Since February, when the tumor appeared, it was 1.9 cm in size. After chemotherapy, it became 1.1 cm in size. After that, I underwent 33 radiation sessions, and I was surprised by the increase in size. I was…
tonsil cancer
I am a 54 year old woman newly diagnosed with tonsil cancer. My brother, who is 49, was diagnosed 2 1/2 years ago with the same cancer. He successfully underwent radiation and has been cancer free. The doctors are baffled. We are not, and have never been, smokers. We will soon be working with a geneticist to explore this…
ROLL CALL 2012 - CLOSED. NEW THREAD STARTED
In year 2011, we had 89 folks who registered or checked back in. You now will have the opportunity to report/enroll for calendar year 2012. Please give a brief update of your status. If enrolling for the first time, please list your state, date diagnosed, type of cancer, treatment and your status. Adamson 091654, state…
NEGU (Never Ever Give Up) Works For Rats Too
I saw this in another group and had to share it with all of you. Giving Up Is Not An Option When You Have A Group Like Us♥️ During a study at Harvard in 1957, Dr. Curt Richter placed rats in a pool of water to test how long they could tread water. On average they'd give up, sink, and drown after 15 minutes. But right…
Rebuilding Teeth
Hi folks - I've been off this list for a while, as my husband's cancer journey was over 10 years ago, and I had to deal with some PTSD afterward, which made me not want to even think of cancer. However, since cancer is the gift that keeps on giving, I'm looking for advice again. His teeth, which made it through treatment,…
Looking for Guidance
I am 80 and was newly diagnosed with HPV related throat cancer. Based on the biopsy and the PET scan results, my oncologist wants to start me on chemo and radiation. I really do not know what to expect. I live alone in my home with my 17 year old dog. I have heard things about chemo and am concerned about navigating this.…
NavDx Ups and Downs
Prior to TORS radical tonsillectomy and leftside lymphoid romoval (24) (noids were clear) my navdx results was 77. The surgery was a success and after 3 weeks the results showed undectable. 2 months got a result of 24, and after a retest 3 weeks later it went down to 12. The Unversity of Michigan surgeon is likely to order…
Concerns and Seeking Guidance on My Father's Post-Treatment Complications
I'm writing to express my deep concerns and to seek guidance regarding my father's prolonged and complex battle with squamous cell carcinoma. Here's a chronological account of his treatment journey: 1. **Initial Discovery**: Squamous cell carcinoma was detected on his right vocal cord. The tumor was successfully excised…
Does the Black Salve work ? Ask Scambusters nose !
Friends lovers and doubters, I have been quietly documenting my experience with the Black Salve and now can openly claim to have put my nose where my mouth is, and used the stuff and YES it does work and work very well indeed. I treated a lesion on my nose and one on my forehead, both suspected BCC or SCC. I have had many…
Round 2 for me
Hello all, on Dec. the 12th I was to be cured as that is my 5 year aniversary post treatment for SCC. After routine blood work my TSH had been rising since earlier in the year. After seeing the rise and time it was taking to get my reading down I decided to see a specialist at the cancer hospital where I was treated in the…
Reoccurring Head neck squamous cell carcinoma
They found my husbands cancer at the base of my tounge. I had 3 (all day long) treatments of cisplatin over a 3 month period plus 6000 gray's of proton (5 days a week) for 7 weeks, cancer was gone. Approximately 3 months later cancer was found in right neck lymph nodes. Had surgery to remove, 12 weeks later it was found…
Ivermectin
Hi I'm in Northern Ireland and trying to find dosage for Ivermectin and Fenbendazole. Can anyone please point me in the right direction?
Pain after Surgery for Tongue Cancer
Hello, I have been diagnosed with tongue cancer three times. The first time was a stage 4 and I chose to have chemo and radiation rather than lose 3/4 of my tongue. That was in 2008. I wonder if I made a mistake. However, it is too late to have regrets. In the summer of 2011 I was diagnosed again with cancer under my…
I am NED
I am NED No Evidence of Disease Both the radiation and ENT teams were very happy with the PET Scan results. The new radiation "fellow" was very surprised that I still have my own teeth too. Apparently the majority of Head & Neck Cancer patients have to get a lot of teeth pulled before starting treatment. They scoped down…
Navdx and insurance issues
I have United Health care as my primary insurance and they covered my first 3 Navdx tests with no questions, but the last one I had done in August they have denied. Apparently they have changed their stance on coverage for the test. Navdx is appealing the denial but has anyone else had issues with insurance coverage? Or…
TORS/Radiation/Chemo
Hello All I am here seeking insight related to my husband's recent diagnosis and treatment plan. In August 2023, he was diagnosed with HPV+SCC left tonsil and 1 lymph node. He underwent TORS last week. Surgery was successful as far as that goes, primary tumor removed and everything had at least 3mm of clear margins…
Would like to donate GI food.
My brother passed away from thyroid cancer. I have about 9 cases of GI food, I would like to donate. Nestle diabetisource AC -250 ml, expires June 1 2024
5 year anniversary
Just wanted to post an update on my health. September 20th was 5 years since I finished my treatment for HPV 16 tonsil cancer. I was stage 1 on the revised staging system. Was considered stage 4 the year b4 my treatment. The staging was changed for HPV 16 cases only. Anyway, I have not been on the site much since they…
Throat cancer survivors
I could use some positive help to reduce stress regarding a recurrence.
NavDX Test-Can Be Misleading-Readings Can Be Opposite Condition-Giving False Hope Or Doom
Hello folks, I came across this on another forum of a fella who was getting Good NavDX Test readings and in fact, excellent NavDX Test readings but suddenly a recurrence showed up in his life again. I am reposting it here for informational purposes and discussion. vpf143 says on Oct 3, 2023 • 3:22 PM NAVDX - can be…
Head & Neck (cancer in tonsil's) Stage 4A, 12 years ago & now another Cancer
Has anyone experienced another type of cancer after beating their first Head & Neck cancer? Hubby had cancer of tonsil's and cancer free for 12 years. Now he has an aggressive fast growing type of T Cell Lymphoma.
Radiation causing food to taste rancid.
Hubby is having radiation to both sides of his neck. He just completed treatment 19 of 25. When he first puts food in his mouth, he can taste it and then as he chews it, he says, "It taste rancid or like a dirty wet gym sock" He does not have any mouth sores, just a very inflamed throat with a little white on it.…
Head and neck cancers...
Are hypoechoic lesions usually cancerous?
50, Tonsil cancer, severe panic disorder
The state I live in helped me to find a job I could work at and, in their assessment of me, they declared me "most significantly disabled", which is the top (bottom?) of their scale. I have multiple diagnoses, therapists, meds. Just making clear this is not a self-diagnosis. After five years of being increasingly…
My son has MPNST, need info please
My 14 year old son has recently been diagnosed with MPNST. Neurofriboma runs in my family on my side. I have it as well, but I have never had a malignant tumor that large. His is located in his neck and upper chest area, about 4.5". It is pushing his trachea to the side slightly and has completely encased some major…
Osteoradionecrosis
I am starting radiation treatments this week, 35 total plus chemo. I am concerned about what I read about bone death due to RT, called Osteoradionecrosis. A friend of mine just developed this after five (5) years after her last RT session. Does anyone know the statistics on having this reaction after RT?
tongue cancer
hi. I am new to this . I was diagnosed with tongue cancer in early August. 2023. I had surgery to remove a lesion of my tongue Sept. 14th. I am still, after almost three weeks, having a lot of pain on my tongue, especially when I eat (I lost weight and need to gain weight) I cannot toleratel meds so for now I just can take…
Head and neck cancer-food
My father who is 70 years old has been suffering from head and neck cancer , we have done the laser ablation for right buccal mucossa and cancer has metasized to lymph nodes as well. right now it been 2 weeks since laser abalation, he doesn't feel like eating anything which and felling nausea everytime he sees the food,…
cisplatin
it is it true that you cannot get cisplatin if you are over 70yrs old
excessive mucous production in throat following radiation
Last year my 82 year old husband underwent 6 weeks radiotheraphy twice daily for squamaous cell cancer of the epiglottis this proved unsuccessfull and in Jan this year had lazer treatment to remove the tumour, ever since the radiation he has suffered with excessive thick mucous whwich seems to be getting worse Dr's just…

Head and Neck Cancer

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