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About steristrip on port-a-cath
Like most of us having chemo treatment has to have port-a-cath. I had mine on April 13 then the infusion the next day. It was painful!! The nurse poke the needle in a wrong place cause me bled, so another nurse took over the procedure. Thank God!! After 46 hours of carrying the pump in a fanny pack around the house I…
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Raised bumps on Port stitch line
Hello all - For those who have had a port for their chemo - has anyone had pimple-like bumps form on the stitch line. I had one form (told probably embedded stitch), now another has popped up further along stitch line. Now I have two bumps. Sometimes they look more red - and if they are stitches, why do they not grow out.…
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Back in the fight, sigh - surgery update
I was three months away from saying "I've been NED for 3 years". Instead I get to say I've got another recurrence. S--t. I've been working on losing weight since the beginning of the year before my surgeon repaired my peristomal hernia. I recently had an obstruction, spent 5 days in hospital with a nasty NG tube. After…
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Is there any suffered on hernia while on treatment
One after another, and I am only on my second treatment tomorrow!! I have this lower back pain on my right side since yesterday after did some light cleaning in one room. Then my abdomen started to hurt me, then constant burping!! I am still in pain right now. Just waiting to doctor clinic's office hour. I have to see my…
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Cancer Treatment Center of America
Has anyone had experience with CTCA in Newnan Ga? I am going there Sunday for three days for second opinion.
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What food to eat while on chemo therapy
I wonder if there's any limitations on what food to eat while on chemo therapy. Some says avoid red meat, eat vegetables rich in protein since our body needs energy while we're under treatment. Anyone's opinions and advices are appreciated....
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No Adjuvant Chemo
My 17 year old niece , got operated for Stage 4B colon cancer last month. She is not taking adjuvanct chemo as advised by doctors as they are not guaranteeing anything even after chemo. Surgery went well , she is quite active now. I want to know if there are similar cases with no adjuvant chemo? Thank you
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Today we meet with the new oncologist *update*
my husband's old oncologist was just awful. He called us names, I was nervous wife because I cried once when he had a PET scan show a recurrence, and he was a moron because he opted to not do chemo first time around. Right now he has highly elevated liver enzymes that jumped from normal in a month ( alp 352, bilirubin 3.7,…
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"Invisible" tumor causing pleural effusion
Hi everyone, I am new to this forum. I am the caregiver to my dear 64 year old mom who has stage IV colorectal cancer. In July 2016 she suffered pleural effusion. Adenocarcinoma cells were found in the fluid but there was no visible tumor in her lungs even under PET scan. She then underwent pleurodesis and then 6 rounds of…
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I really need some help
so my husband is 7 years from his diagnosis, stage 3 they did resection of the colon, three years later his CEA creeped up, there were spots on his liver but they were too small to light up on pet scan, then a year later they did, he had resection of his liver in 2014. Flash to now his CEA started creeping up in January…
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Chronic Diarrhea-so tired on dealing with this 4 years after treatments
In 2013, I had radiation, rectalectomy, ileostomy, take down of the ileostemy 2 months later, and chemo. They tell me I'm well now but the side effects are nearly unbearable. The diarrhea is unpredictable and so embarrasing. Last night, I went to the movies with my husband and our two teenage children. Upon arriving, I had…
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Released From Onc Care
Guys, Happy to say I had my post 5year appointment with my Onc today. CEA is 0.8 and all scans are clear. So I went from stage 3b signet cell colon cancer to NED, oficially. My Onc shook my hand, gave me a big hug and said I am officially "cured", it was weird but I said I am not 100% comfortable with that, but I like NED.…
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Vectibix Rash
Just started on Vectibix last week. Acne rash started yesterday. I called my oncology Doctor today and he called in a prescription for Doxcyline, but only gave me enough for 7 days with no refills. I have read past discussions that other people has taken this and it has helped, however, what I gather from the posts is that…
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Erbitux / Vectibix 0% effective??
Recent information indicates that for approximately 43% of us with metastatic colon cancer, all the EGFR inhibitor drugs such as Vectibix (panitumumab) and Erbitux (cetuximab) have ZERO effectiveness. The 43% are those that have colorectal tumors with KRAS mutations. This information was first detailed in the August 1,…
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LAR vs Excision
Hi folks - I had posted something on LAR surgery a few days ago...continuing to assess things. T2N0M0 clinically tagged. Assessing LAR or Transanal excision. Seems to come down to going with a less invasive surgery with better post op quality of life, but with the unknowns on lymph involvement vs LAR with possible LARS,…
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mesenteric mass
Hello All, My sister recently had her Rectal tumor removed with a hysterectomy. At that time, we were told that they removed the tumor and all lymphnodes that were tested were not affected. Now, 2 months later, she had her follow up CT scan and the report says they see mesenteric mass. Any ideas of what that means?
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Bad Day- Hating How Cancer Affects So Many Things
So Monday morning I got up and had a burst blood vessel in my eye. Looks creepy but no big deal. Patients were asking what I'd done and I told them and laughed about it. I've never had one before and didn't know how long until it goes away. This morning it's even more of an area with almost half of my eye a dark red…
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GI issues with Chemo (specifically Irenotecan)
Hi everyone, I haven't posted in a long while, honestly I have just been overwhelmed. My hubby (stage4 colon with mets to liver and now lungs, dx April 2016) was doing chemo with Avastin every two weeks from April 2016 until approx Aug 2016.. they gave him about a 3 week break and then moved him to chemo with Irenotecan…
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Starting Xeloda with Avastin today..
I have taken my Xeloda and will be heading out to get the Avastin shortly. Wish me Luck
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Juicing, Bitter Apricot, and Infrared sauna
Any help or success stories are welcome! Since being diagnosed Stage 4 in November, I've basically been drinking various juice, Carrot, all the Naked juices at the grocery story, etc... Has anyone had success, ( reduction of tumors, lowered CEA etc..) with juice? My CEA since starting chemo was 1600 and is now 200, so I am…
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Colon Cancer Rising In Millenials
http://www.cbsnews.com/news/colorectal-cancer-rates-rising-in-gen-x-millennials/ Being reported in various places from ACS study
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Surgery with diabetes
My moms colostomy surgery was booked for next Tuesday but her diabetes has been out of wack a1c of 10 and running blood sugars of 250. Her dr said she would never heal preperly with her sugars like that he wants postpone for 3/4 weeks. Her pet scan came back clear for any lymph node or matastis is waiting that long could it
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Ascites with Mets to Liver,Lungs,Pleura,Peritoneum & Omentum
My husband was just (2 months ago) diagnosed with Stage 4 Adenocarcinoma colon cancer with mets to his liver, lungs, pleura, peritoneum, and omentum. It had been misdiagnosed as diverticulitus and untreated for many months. His oncologist told us in Feb when the true diagnosis was made that it is inoperable -- he said that…
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HELP - Permanent Colostomy Need Info
Hi...I have posted before in regards to my Dad and his diagnosis of rectal cancer. He finished his 6 wks of radiation and chemo and just met with the surgeon today. The surgeon told him that because the tumor was so low in the rectum he would have to take the whole thing out, leaving my dad with a permanent colostomy. My…
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Can stage III colorectal cancer spread to the bones in two months?
Sadly my mum passed away from colorectal cancer. My mum was an independent 87 year old, she was diagnosed with stage III (cT3cN1M0) superior colorectal cancer in October. It was an invasive adenocarcinoma, with an enlargement of the rectum wall. They did all the tests (including PET scan in December) and said there was no…
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Treatment for secondary tumour without doing a biopsy?
Has anybody here ever had treatment (surgery/chemo/radiation) for a secondary tumour without first having a biopsy? I'm concerned that mhy partner's doctor's are making an assumption about his tumour without checking to see what it actually is. We've encountered unpardonable delays, miscommunication and outright…
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Starting Xeloda Tomorrow
So after the Panitumumab/Vectibix failure and feeling much better than I have in ages my onc has decided to try Xeloda. I take it twice a day for two weeks at half dose and if that goes okay she'll up the dose. It's oral and I'm really happy about that because my boss is getting impatient with the time I take off for…
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folfiri + avastin - break after treatment #14
Hello everyone - I will be having a one treatment break after my 14th folfiri + avastin. For those who have been on folfiri, did you have a treatment break and for how long. I really feel that I need this - having basically every 12 days (after 5Fu bottle comes off) does not give me much time to recoup my system - go back…
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Anyone dealing with Butt pain?
Since my Surgery 1 1/2 years ago I have had a pain in my butt. I have been controlling it with Ibuprofen. After my recurrence was discovered my pain increased from a 2 to 3 or 4 at times. My Colorectal surgeon prescribed Norco. I don't really want to take them. He also proposaled a "Sacral Nerve Block", which I'm not sure…
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Neupogen Shots and fever
Hi all - For anyone who has had neupogen (or other) shots fot WBC, did you ever find that it elevated your temperature? I have had an elevated fever and chills twice, and was wondering if it might be more associated to the WBC shots than the chemo - or maybe both. If it gets above 100.3, my Onco insists that I go to the ER…