Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Been through it with no problems, feel free to ask questions..
Diagnosed with a cancerous tumor on my sphincter muscle back in 2010. My surgeon stated he was going for a cure, and told me he was going to give me five weeks of both radiation and chemo and I worked the entire five weeks. I took one nausea pill 30 minutes before I took my chemo pill and had no problems at home or work. I…
pain mgmt after surgery
I was recently in the hospital to remove two tumors that caused a blockage in my small intestine. They gave me the patient administered drugs (dialudid) after surgery, but after two days I stopped using them because I didn't like the way they made me feel--groggy and out of it. My doctor put me on IV Tylenol and…
New Name?
does anyone know why they changed the name of this site? I was drawn by the name Cancer Survivors.....it gave me inspiration.
Cimetidine
Can someone confirm my recollection. Cimetidine, 800 mg per day for one week before and two weeks after surgery? Having a liver resection this coming Friday for a recurrence. NED no more :( Andrea
A new member with Stage III
Second session of FOLFOX yesterday, with sensitive glands again. My chest and shoulder are in pain too. Didn't get a good sleep last night.
New CRC therapies? Anti-PDL1 immunotherapy or CAR-T cell therapies?
Newbie here. My friend was just diagnosed with Stage IV CRC, spread to abdomen, lymph nodes, liver, couple of spots on the lungs and one spot on the bone. Adenocarcinoma NRAS Q61R mutation. Female, age 47. We are trying to learn about novel therapies to treat this. Does anyone have experience with: 1. Anti-PDL1…
biopsy results after surgery????
Hi there, My 47yr old husband was diagnosed with stage 2 rectal cancer in December and has been through chemo and radiation and just had surgery which resulted in permanent colostomy due to the location of the tumor. He will have more chemo to go too. He had a biopsy prior to treatment that allowed them to stage his…
A.M. Bloody Phlegm and Nose Bleeds - avastin and folfiri
Hi all - Has anyone noticed that they experience more morning phlegm possibly associated to the chemo. I have avastin prior to chemo, and have had nose bleeding since about 5th treatment, and also bloody phlegm in a.m. Have never had problem with phlegm and just wondering if it is associated to the chemo, and also if nose…
I think I just dodged a bullet
I have just come home from a colonoscopy. I was not particularly happy when my GI told me at my last scope that I did not need another for three years. I thought that was too long but she insisted that i did not need one at two years. Unfortunately the cost of private health insurance in Australia has gone thru the roof…
A message from the grave
I heard from NANA this morning. Who is Nana, I hear some of you asking. She is a member here on CSN. I say is, because she lives through her words, though Cancer took her life from this earth. I had the privilage of meeting Nana once. Diagnosed Stage III. NED five years. Cancer returns with a vengence. She told me on our…
Radio Active Bead Therapy on
Microwave Ablation and Radioactive beads for liver tumors
I was diagnosed with stage IV colon cancer the end of February 2016. At the time I was told my only option for treatment was chemotherapy. I had 8 rounds of Oxaliplatin, Leucovorin, Avastin, and 5FU. July 2016 I went on maintainence chemo of Avastin every 3 weeks and Xeloda for 14 days then 7 off. Yesterday I recieved…
Liver Enzymes - Anecdotal thoughts
The question re controlling/lowering Liver Enzymes has been coming up frequently lately. My Integrative Med specialist at Sloan Kettering was concerned. She put me on Milk Thistle twice a day (started at 150 mg (1 capsule) twice a day; after a week, increased to 300 mg twice a day.) Saw limited improvement, but she upped…
Elevated Liver Enzymes and nervous
Hi fellow board members...I wanted to get some advice if I could. My mom just finished her 6th chemo treatment today! WooHoo! Now we can start the count DOWN until she is done in June! She has been handling the chemo pretty well...she gets all the normal side effects that she was told she would get, but has claimed it to…
About steristrip on port-a-cath
Like most of us having chemo treatment has to have port-a-cath. I had mine on April 13 then the infusion the next day. It was painful!! The nurse poke the needle in a wrong place cause me bled, so another nurse took over the procedure. Thank God!! After 46 hours of carrying the pump in a fanny pack around the house I…
Raised bumps on Port stitch line
Hello all - For those who have had a port for their chemo - has anyone had pimple-like bumps form on the stitch line. I had one form (told probably embedded stitch), now another has popped up further along stitch line. Now I have two bumps. Sometimes they look more red - and if they are stitches, why do they not grow out.…
Back in the fight, sigh - surgery update
I was three months away from saying "I've been NED for 3 years". Instead I get to say I've got another recurrence. S--t. I've been working on losing weight since the beginning of the year before my surgeon repaired my peristomal hernia. I recently had an obstruction, spent 5 days in hospital with a nasty NG tube. After…
Is there any suffered on hernia while on treatment
One after another, and I am only on my second treatment tomorrow!! I have this lower back pain on my right side since yesterday after did some light cleaning in one room. Then my abdomen started to hurt me, then constant burping!! I am still in pain right now. Just waiting to doctor clinic's office hour. I have to see my…
Cancer Treatment Center of America
Has anyone had experience with CTCA in Newnan Ga? I am going there Sunday for three days for second opinion.
What food to eat while on chemo therapy
I wonder if there's any limitations on what food to eat while on chemo therapy. Some says avoid red meat, eat vegetables rich in protein since our body needs energy while we're under treatment. Anyone's opinions and advices are appreciated....
No Adjuvant Chemo
My 17 year old niece , got operated for Stage 4B colon cancer last month. She is not taking adjuvanct chemo as advised by doctors as they are not guaranteeing anything even after chemo. Surgery went well , she is quite active now. I want to know if there are similar cases with no adjuvant chemo? Thank you
Today we meet with the new oncologist *update*
my husband's old oncologist was just awful. He called us names, I was nervous wife because I cried once when he had a PET scan show a recurrence, and he was a moron because he opted to not do chemo first time around. Right now he has highly elevated liver enzymes that jumped from normal in a month ( alp 352, bilirubin 3.7,…
"Invisible" tumor causing pleural effusion
Hi everyone, I am new to this forum. I am the caregiver to my dear 64 year old mom who has stage IV colorectal cancer. In July 2016 she suffered pleural effusion. Adenocarcinoma cells were found in the fluid but there was no visible tumor in her lungs even under PET scan. She then underwent pleurodesis and then 6 rounds of…
I really need some help
so my husband is 7 years from his diagnosis, stage 3 they did resection of the colon, three years later his CEA creeped up, there were spots on his liver but they were too small to light up on pet scan, then a year later they did, he had resection of his liver in 2014. Flash to now his CEA started creeping up in January…
Chronic Diarrhea-so tired on dealing with this 4 years after treatments
In 2013, I had radiation, rectalectomy, ileostomy, take down of the ileostemy 2 months later, and chemo. They tell me I'm well now but the side effects are nearly unbearable. The diarrhea is unpredictable and so embarrasing. Last night, I went to the movies with my husband and our two teenage children. Upon arriving, I had…
Released From Onc Care
Guys, Happy to say I had my post 5year appointment with my Onc today. CEA is 0.8 and all scans are clear. So I went from stage 3b signet cell colon cancer to NED, oficially. My Onc shook my hand, gave me a big hug and said I am officially "cured", it was weird but I said I am not 100% comfortable with that, but I like NED.…
Vectibix Rash
Just started on Vectibix last week. Acne rash started yesterday. I called my oncology Doctor today and he called in a prescription for Doxcyline, but only gave me enough for 7 days with no refills. I have read past discussions that other people has taken this and it has helped, however, what I gather from the posts is that…
Erbitux / Vectibix 0% effective??
Recent information indicates that for approximately 43% of us with metastatic colon cancer, all the EGFR inhibitor drugs such as Vectibix (panitumumab) and Erbitux (cetuximab) have ZERO effectiveness. The 43% are those that have colorectal tumors with KRAS mutations. This information was first detailed in the August 1,…
LAR vs Excision
Hi folks - I had posted something on LAR surgery a few days ago...continuing to assess things. T2N0M0 clinically tagged. Assessing LAR or Transanal excision. Seems to come down to going with a less invasive surgery with better post op quality of life, but with the unknowns on lymph involvement vs LAR with possible LARS,…
mesenteric mass
Hello All, My sister recently had her Rectal tumor removed with a hysterectomy. At that time, we were told that they removed the tumor and all lymphnodes that were tested were not affected. Now, 2 months later, she had her follow up CT scan and the report says they see mesenteric mass. Any ideas of what that means?

Colorectal Cancer

Discussion List

Discussion Boards