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Colorectal Cancer

Scan results are in...
After finishing my husbands 40th chemo treatment the Dr. gave us the news. After a year and a half on continuous chemo a few nodes (mets) have grown. Good news is not by much. One was a size 5 mm, now 7.5 mm and another was 4.5mm and now 5.5mm. These nodes layed dormant for so long and now there is some activity. The Dr.…
Anyone have folfiri - when did you have treatment break?
Hi all - Would anyone who had or is having folfiri (believe same as folfox cocktail but with irinotecan instead of oxyplatin) + Avastin please let me know when you might have had a break. I will be having my 12th treatment this week, and have been talking about a break. How long did you go before a break, and how long was…
First Scan
My son was diagnosed with 2b colon cancer in Aug 16. After resection he did 12 rounds of FOLFOX and tomorrow has his first CT scan since surgery. Should we expect to get any kind of feedback tomorrow and, if not, how long do you typically have to wait?
Chemo for Life - Just found out
At my treatment Friday everything was going according to plan. I was told I oculd get the "bee sting" anemia shot, so that would help with the fatigue. They are looking at giving me some "vacations" between treatments. Maybe one week off or switching to every three weeks instead of every other week. I asked how long…
Arthritis after chemo
Has anyone experienced arthritis or joint pain after their chemo treaments? I have very stiff and sore shoulder joints after I finished folfiri. It started a month or two after I finished that treatment. I'm on Xeloda now and the joint pain is still there.
Newbie-my story CRC
I posted this as a response to someone newly diagnosed. A member suggested that I post it here. It's a long read. I'm new to this forum but unfortunately not new to rectal cancer. I was diagnosed Stage IV metastatic rectal cancer spread to liver and lungs January 2014. Immediately had a port placed, colostomy surgery April…
Lynch Syndrome
Hello..since I am so new to the site and have so many questions, I'm going to start with this one..Can I get some feedback from anyone who has been diagnosed with Lynch syndrome..basically what has been your path? I tested conclusive with the genetic testing all the way to the final one and then it was inconclusive. But…
Suggestions for APR surgery recovery
My moms surgery is 3 weeks out, any suggestions for before surgery or for recovery?
Update
Caretaker here. Don't post much anymore but I do lurk all the time. Anyways, just got back from my wife's annual check-up or results from her CT scan. All is clear. This makes 4 years NED. We or should I say she has a colonoscopy the end of March to verify nothing is going on.
Cross roads
just got back from my scope, tumor is gonne completlly, just scar left after chemo/rad(rectal cancer t1t2n0 stage), surgeon that is suppose to do surgery sugesting watch and wait approach, will have mri next week to make sure there are no lymph node involvment, than make dessicion, I am 75% for w&w approach, but affraid at…
Bathing while on Folfox
Hi, just had my first Folfox go around this week and am seeing several of the symptoms mentioned here. A little discomfort with the first bite, and a definite sensitvity to cold water and air. A breath of 40 degree air outside set my scalp tingling and even slightly cooled water on my hand set them both to tingling. So, I…
Stage 4 colon cancer: 2 surgeries and 3 bouts 12 round chemos...
My name is Alisa. In Novdmber of 2012 I was diagnosed with stage 3 colon cancer which has been turned in metastatic stage 4 advanced cancer. I've been through chemo rounds twice and am currently on my 3rd bout. I'm having a hard time not letting cancer be my whole life. I have PTSD about sitting on that chair now and…
Metastatic Adenocarcinoma of the Jejunum (Small Intestine)
Finding some stories on these discussion boards that are very encouraging especially since this cancer is rare but have yet to find a match to someone else going through this same cancer. My 58 yr old husband was just diagnosed stage 4 Small Intestine Cancer of the Jejunum at the end of January. There are small metastases…
Hey Trubrit
There are 4 new posts to really old threads. Is it just coincidence or is there some sort of problem with the board? You seem to be our moderator, if you will. Any thoughts? Should we contact the adminstrators or just suggest folks start a new thread? Traci
Advice for after an ilestomy takedown/reversal
Many here are scheduled for an ilestomy reversal/takedown so I thought I’d share my experience. (Had a temporary ilestomy from Oct 09-to Oct10) I was underprepared, but thanks to friends and Father Time, this is what I learned: In the beginning you may experience: Explosive diarrhea Painful constipation Feeling of not…
Getting brain surgery
well I had a rough headache for over a week with unsteady walking. Onc suddenly made me go to the ER after keeping them informed. Well. I have two mets on the Basie of my brain pressing on my ceribelum (I think) and my spinal cord. So Monday I'm having brain surgery for those two. I have eight other small mets but they are…
Movies and Book w/ People Dying of Cancer
This has bugged me for some time. I feel like it's kind of a cop out. An easy way to get sympathy for a character and to make a movie sad. We watched the new one about aliens the other night, Arrival. The main character's daughter dies of 'something' but she's bald when she dies so it's obviously meant to be cancer. I…
Trying to cope with my dad's cancer..
I'm new to this and not sure where to start so I'll give you a background on my situatio. I'm 26 years old and as of March 13, 2017 my family and I have found out that my dad has stage 4 colon cancer and it's spread to his liver. His cancer is very aggressive and we have been told with treatments he will only be with us…
Frequency of scans
How often do people have scans? I had posted awhile ago wondering if I should do xeloda. For a variety of reasons I decided against it. I thought I was told I would have a CT scan every six months initially but then the oncologist said annually. That seems like a long time. I have an appointment at the Mayo Clinic for an…
hair coloring
Hi all, So far, four chemos in, i have managed to keep a good deal of my hair. I'm going to get clip on extensions to try to fill it out. My issue is I am not a natural blond. I'm okay now, but am scared to dye my hair in case it all falls out or does some damage to me. What have all of you not natural blonds who have so…
Switching to Xeloda
After reading about all of you being on Xeloda instead of the three day infusion of 5-FU, I asked my dr why she chose what she chose. She indicated it is so she can have a better watch on patients she is more concerned about since it is an every other week treatment. She offered me to try the xeloda since they were already…
T4n1m0 with emvi
i was diagnosed on 1June 2015. After surgery I has 12 cycles folfox. Coming up to 2 year scan and I am so scared. Does anyone have similar experience?
2 surgeries in one day, anyone???
Hey there, I meet with the surgeon today. We've decided to do the liver abalation ( 2 spots on opposite sides of the liver) and the bowel resection at the same operative setting. I believe the liver surgeon will go first then the bowel surgery done robotically. They anticipate I'll be in the hospital for 4 days post op.…
Possible Rectal Recurrence
My original cancer was Stage lllb rectal - diagnosed in August 2011. Had colectomy with removal of 12" of colon and 20 lymph nodes with 5 positive. Had 6 months FOLFOX regimen. CEA after treatment ran between 0.5-0.8 until March 2015 when it rose to 1.1 - continued to monitor CEA every 3 months but continued to steadily…
Colon to Bone
Has anyone here had their colon cancer metastisize to bone? I am a formerly stage 3 colon cancer patient who has previously had reaccurances in my liver and lung each followed by surgery and chemo. I've had clean CT scans for a year but recently my CEA has gone up from 3.4 to 7.3. My CT scan last week was clear. I have…
Just diaganosed with rectal cancer
Hello, I just received a rectal cancer diaganosis. Just a little freaked out. CT and MRI scheduled for friday. Trying to remain calm.
Diagnosed with colon tumor one month ago - what to expect next
Hi everyone, I'm new to this list - never thought I would be joining it. I'm 51 and the mother of two active boys, aged 8 and 4.5. Just learning now how thankful I should be for having been healthy all my life. One month ago, I went for a routine colonoscopy and was diagnosed with Stage IIIC sigmoid cancer. Two weeks…
CRC Stats
I didn't read this yet, but thought it might be interesting to some on this forum. http://onlinelibrary.wiley.com/doi/10.3322/caac.21395/full
Rectal tumor surgery coming up, and colostomy bag.
Mar 6 will be 2 yrs since my diagnosis of Stage 4 metastatic cancer, with mets to liver and one lung. Yesterday it was decided that I will be having the rectal tumor removed, due to a new pelvic mass, attached to my ovary, that is also attached to the rectal tumor. Surgery will be 1 day after my 2 yr cancerversary. In…
Just an inclusion, which is a fancy word for surgery scar tissue with fluid build up aka a cyst.
So doc says it's just an inclusion which is scar tissue with fluid behind it, a very fancy word for cyst. I have a lot of scar tissue from the surgery. I requested to biopsy for peace of mind anyway since the lump is hard but she said she can't justify when I just had a clean scan and she doesn't see the need for it, she's…

Colorectal Cancer

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