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pete43lost_at_sea has passed
Just read the sad news that Pete has passed away. For those of you who remember him, you'll know that he was a tough guy, who followed cures all over the world. For those who do not remember him, you will see his posts popping up when folks ressurect old threads. He was quite the guy. Always sad when we lose one of our…
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Update
Especially for those recently dx, I was so happy to hear that others were doing well over time. I never thought I would get here but almost 11 years ago I was dx stage 4 with liver and lung mets. I was praying that I could see my sons 8th grade graduation in two years.... then I got there... then praying for my daughters…
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Heartwarming story with sad ending
How I hate this disease. It takes from the old and the young and all ages in-between. I just read this article, and then I clicked on the link to the blog. I didn't read all the blog, but I will get back to it. Just thought I would share. http://www.bbc.com/news/magazine-40290563 Tru
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Back to Reality
Hi all, We just returned from 6 weeks in Costa Rica. This was our 3rd trip and it really has become my happy place. It is a bit like Peter Pan running away to Never Never Land. There is no cancer there. No tests, blood work, scans, waiting for results and the fear that never seems to go away. Come October I will have…
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Colectomy and nutrition
I had about 25% of my colon removed along with the tumor--initially they thought they would take out 60%, and I was wondering if this has any effect on the way I absorb nutrition. The doctors said it would not, but I am learning that what they say is not always fully informed. Does anyone have experience with nutritional…
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Thin Stools
I am a 17 year old male, turning 18 next month. I have always held my stools as a child, I don't really know why, just have. This has led to serious constipatition that I have never really done anything about until about a month ago now when I had blood in my stool after I passed a very large stool. My Doctor also says…
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Free Hollister ostomy supplies
I have 22 boxes ( 5 to a box) of Hollister New Image #14708 Pre cut 1-1/2 wafers. I will ship these to anyone who has to pay for their supplies, just can't stand to throw them out with the trash. I now use a smaller size, probably hsve extra bags also, wife is getting ready to move into our new house and is in the process…
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Happy Fathers Day!
Hey! Happy Fathers Day to all the dads out there.
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When do you start counting?
I know, this is going to sound like a really stupid question, but when do you start counting how long you have survived? Do you start when you first had your symptoms, when you were Dx'd, when you had your last treatment, when you get a NED? Seems silly, but I don't know when I should "Start the clock" so to speak. What do…
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Sun Sensitive on Xeloda?
My husband and I went out today to our town's festival today. It required walking a total of about 3 blocks to go around it. Halfway through I was weak and feeling like crap. Last time I saw my onc she reminded me that I'll be sun sensitive from the Xeloda. Its a beautiful day. What exactly does sun sensitive mean? I've…
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Cognitive changes due to chemotherapy
*Deep sigh* I can no longer ignore what is going on. While I am physically healthy and strong, I am suffering from distinct cognitive changes resulting, no doubt, from chemotherapy. While I suffered terribly from 'chemo brain' during treatment and several months afterwards, I have noticed a slight improvement, but, the…
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40 year old with stage Iv
May 16,2017 I was diagnosed. I completed my second cycle today. The side effects have been minimal and tolerable even chasing 3 teenagers. Some cold sensitivity. I was wondering if there is any correlation to side effects and its effectiveness.
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Anemia after a year of treatment
Hi my partner has been diagnosed of stage 2a colon cancer last Sept 2015. After hving oral chemo(Xelodda) last year 2016. Her ct scan and CEA shows no sign of cancer. But this last April 2017 her CBC result shows low hemoglobin level 111, after a month we have it checked again and still it is low 108 together with…
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Healing - PamRav
Thinking about you Pam and hoping you are healing and home or heading home soon. Tru
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Probably a Stupid Question About Xeloda...
I just saw my onc yesterday but hadn't thought about this so I can't ask her. I got my new supply of Xeloda yesterday. They give it to me in a bunch of blister packs. I just sat and filled up some empty medicine bottle with the Xeloda tablets to make it easier to grab them when I need them and because I keep a basket on…
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Helping husband come to terms with colostomy
Hi there, My husband just had his surgery for stage 2 rectal cancer and due to it's low location he now has a permanent colostomy. After having the teaching from the colostomy team I feel that it will be something that will be fairly easy to adjust to.....easy for me to say, I know! To those of you who have experienced…
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94 yr old Cancer
Hi all, new to board; my 94 year old mom I just got Dr with colon cancer
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Colostomy
My mom is going in tomorrow for an apr colostomy. Her oncologist said she wouldn't need any treatment after, im no dr but would chemo be a good idea to follow up? Also she was re diagnosed march 8 but because of our of control blood sugar she couldn't have surgery until now. Shes panicked it has spread, pet scan 7 weeks…
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Survival Rates confusing
Why do websites say the survival rates for 3b are worse than 3c? Wouldn't you expect it to be the other way around?
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questions about cachexia and introducing myself
Hello....my husband was diagnosed 2 mths ago with colon cancer metastasized to his liver, lungs, lymph nodes, and bone. He is 52 and we have a 14 yr old daughter. I filled out my profile with all that we've been through so far. My question is about cachexia. I just read about it a couple of days ago and am thinking my…
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Atrial Flutter
Went to my Oncologist for my follow up on my Xeloda and Avastin and ended up in ER. I told him my pulse seemed high, he confirmed it, couldn't reach my Cardiologist so I went across the street. They messed with me for a while and the ER Doctor said it wasn't A-Fib but Atrial Flutter. My Cardiologist was at hospital…
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What Kind of Painkillers Do You Take?
I have other issues besides the cancer and I'm starting to have them really affect my quality of life. They were there before the cancer but with the subsequent blood clot and stroke and being paralyzed after I haven't been as active as I was before everything. Well, now I am and my issues are cropping up again. I have…
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CEA Levels
I'm looking for some comparisons - my father's CEA level is 18. I'm wondering if this is considered a really high CEA. Can't access our Dr. right now, and I am really curious. He just finished is 8th 5FU treatment for colon cancer. Had surgery in October. I'd appreciate any input or comparisons. Thanks.
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Feeling poorly!
i got sick, sick last night. Was sick all night. Am sick this morning. You know how it goes. Everything has to be Cancer. My head is going crazy, thinking where it has spread this time. I went to see a Nurse Practitioner, and she pronounced me healthy as a fox. In other words, she does not know what is going on. I'm just…
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Purging Things
Well, I still haven't found a job yet after getting fired for missing time wdue to cancer. So after two weeks of feeling sorry for myself I've decided to get rid of things that are of no use to me now in the aftermath of cancer and treatments. Has any one else done this? It's not as hard emotionally as I thought it would…
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few small scattered lung nodules on ct. Help!
im a 28 year old female recently diagnosed with stage 3 upper/middle rectal cancer. On staging ct everything came back normal but a nodule on my lungs 4mm and 2 other ones 3mm. Doctor said that it was probably nothing a lot of things in the air give us them, and to follow up in 6 months with cT. I completed chemo and…
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Low platlets
my platlets and wbc count are in the boots, chemo is till go, this weekend after infusion of 5 fu is disconected will give myself injection x3, of Grastofil to boost bone marrow production and all those low counts. kidney function is good , nettle tea took care of that. Another problem are high Liver functions, any…
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Interesting article on drug holidays/mutations
https://consultqd.clevelandclinic.org/2017/05/new-strategy-cancer-treatments/ Thought this was interesting. Using drug holidays and second line treatments to "outsmart" tumors when they mutate to become chemo resistant to first line treatment.
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Side effect??
I don't know if there's something to do with the neulasta injection but I feel so sick an hour after the shot. The nurse took the pump off the port after 46 hours of drips. Then a shot for white blood cells followed. I am so dizzy!! No appetite for anything, just want to sleep. Have you had any side effects on yours? If…
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Cannabis, thoughts?
So I get angry when I get the posts on Facebook about any sort of supposed 'cure' for cancer. To my knowledge, none of them work. Cannabis is one of the ones I see quite often on Facebook. The post usually claims that it cures cancer. If I bother to respond I say that it helps with side effects but it doesn't cure or kill…