Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

skin burns
does anybody have any good advice for dealing with radiation skin burns-my husband is 3+ weeks into radiotherapy and has developed some sore patches of skin-they have suggested aqueous cream but has anybody found anything else that was useful-also does it get better when treatment stops? thanks kelly
New to CSN - Stage 4 Colon Cancer
Hello, my name is Scott. Over the past several days, I have been trying to research information about upcoming chemo treatments and side effects relating to the Avastin/Irinotecan/Xeloda regiment. The research journey has taken me everywhere and eventually to the CSN discussion board where I have found solace in the…
adderall for fatigue
Hi, I was wondering if any of your drs have prescribed adderall for fatigue, off label. There was a study by the mayo clinic from 2010 which showed in made a difference for people with stage 3 or 4 disease. Here is the link: http://www.mayoclinic.org/news2010-rst/5830.html
Hello all
just wanted to say hello to all of you guys .i haven't been on here for a long time but today I was thinking about toilet all .
Lynch Syndrome?
I'm looking for other cancer patients that have been diagnosed with HNPCC (Lynch Syndrome).
Neulasta
Hi All, Has anyone had vomiting & extreme fatigue side effects with Neulasta? My husband was doing great with his chemo (no real side effects) until he got the Neulasta shot last week. 48 hours after the shot he was vomiting all day and is extremely fatigued. I know it will pass but just want to know if others have…
Chin tremor during chemo session
My brother-in-law was diagnosed with stage 4 colon cancer in early Jan. 2017, had surgery done on 1/12 in color, lymph nodes and liver areas. He started chemo 2/10, 5-FU, Oxalip, leucoverin, gransitone and decadron was administered. During the session, his chin started uncontrollably shaking (jerking, tremor), doctor…
It has been awhile
Hi all. It has been awhile since I stopped in. Life has a way of getting in the way. I think I told you all last fall we spent a month in Costa Rica followed by a week in Panama. We came back to our daughter moving home. She has been living in England for 12 years. Unfortunately she is divorcing and came back to the states…
Chemo & Arthritis
Has anyone had arthritis worsen with chemo treatments? My onc says no but I tend to disagree with him. My arthritis has been so bad that about a month ago I had a stabbing pain across my lower back fell over and couldnt get up. The paramedics came to my rescue. Went to the oncologist and he doesn't think it's cancer…
Appendix Cancer
I was diagnosed with stage 3A mixed adenoneuroendocrine carcinoma that presents with signet cell morphology in December, 2016. I underwent a right hemicolectomy in January 2017, and am now going through 12 rounds of FOLFOX. I haven't been able to find out anything about this particular cancer, and it seems to just be…
Hello I'm still here
Just stopping in to say I'm still here,,stage 4 colon , overy, lymph in 2004. Have not been on the discussion board for quite a long time,,but I'm still kicking for better or worse lol.
5 years NED
Very good news from Stanford late yesterday. scan and blood work were all clear. This makes it 5+ years since the last recurrence and grants me admission to a smaller club, (but thankfully growing larger...), of longer term “survivors”. I now enter a different phase of study and monitoring. ( I don't know who's happier, me…
Feeling tired and exhausted
Hi in December 2006 I was diagnosed with having a tumor in my tear duct and my doctor ordered a CT and PET scan which revealed I also had a very large tumor in my colon but i had no symptoms so I was operated the first week of January 2007 on my tear duct and in the first week of February I had surgery to remove the tumor…
sudden good mood after treatment - Anyone else?
So today I am suddenly back to happy cheery me. The chemo has left my system. Does anyone else have that drastic a mood response? I wish I could find something to help me while the chemo is still in my body. But today I am full of joy and sunshine. The world looks wonderful again and I can fight this off and win it…
Liver resection ct scan results
Hi everyone my husband had his liver resected in 2014 and he is still showing fluid at the resection margin. His tumor marker has fluctuated from 2.4 to now 6.2 last year it went down from 5.8 to 4.2. I understand he is still high and above the normal here. His pet scan was clear last year the only increased uptake was at…
Why not liver surgery?
Hi all, Hubby was just diagnosed stage IV colon with cancer in the liver, lungs and lymph nodes. He had major surgery to remove the large tumor on the colon. He just had his surgical staples removed laft Friday, and has been cleared to talk to the Onc on Jan 17, 17 about starting chemo. I have been reading several posts…
another anniversary
Another year has passed. Dxed stage 3c into 6 nodes . My tumour was removed on the 22nd of Jan 1998. So ends year 19 of survival start year 20 still cancer free. Good luctk and best wishes to all for a healthy future . Ron.
First scan after liver resection
I have my first scan tomorrow after a successful liver resection. My last 3 scans weren't good so that's why I had the surgery. I'm just nervous and have some anxiety. I know this a part of my life for the foreseeable future. i know you guys know what I'm going thorough so thanks for letting me vent. Good luck to everyone…
New to Group. Stage IV looking for support
Good morning. I have been searching for over a week to find a group where there were other Stage IV colon cancer patients. I was diagnosed at age 34 with Stage 2B in my colon. Had that lovely surgery we all hated followed by FOLFOX for 12 treatments. The likilihood of it coming back was less than 15%. Well back in July…
My first appt with the Onc
I had my first appt with my Onc today to discuss my chemo treatment plan, and I'd like some feedback on the plan since this is so new to me. He wants me to be 8 weeks out from surgery (only 4 1/2 weeks out right now) because one of the meds could stop my surgery healing. I have googled all the meds he told me about, and…
Stivarga
My husband has been battling colon cancer since Jan 2004. Had surgery and 6 months of chemo. All was well until Jan 2011 when spots in pleural lining showed up plus mediastinal lymph node involvement. Biopsy confirmed metastatic adenocarcinoma. Has been on weekly treatments since Jan 2011 advancing from one to the next as…
5 Years NED - January 31, 2017
The day is here! I cannot believe I am 5 years NED. I was Dx'ed with stage 3B signet cell colon cancer. I had the colon surgery and 6 months oxi and 5FU. I feel like I am walking off of the ground! Thank you to all forum group for all your posts, info, help and just listening. My hope is that I can inspire others now. I am…
newly diagnosed rectal cancer
Just got diagnosed, 55, never been sick in my life, active, no familly hx, anyway to cut story short, had colonoscopy, rectal mass, abot 5cm(I am your north neighbourh) or 2.2 inches, did some blood work. All this happen in last 10 days. CT was donne and showed no spread, awaiting for MRI. Was told and did some research,…
PLEASE READ - Jeff's mom's post -
Please let me welcome Jeff's Mom to the forum and please share your survivor stories and help for her. Thank you!
Husband just dx with Stage IV with liver mestases
Hi, On May 22 my husband had a CT for what his doc thought was diverticulitis. Long story short - perforated colon with spots on liver. He was admitted to hospital, biopsied and was told he has Stage IV colon cancer with over 11 spots on his liver scattered throughout. We are devastated. He hadn't even missed more than a…
More chemo or surgery for Stage IV colon cancer???
My husband was diagnosed with colon cancer in May 2014 and underwent surgery to remove the baseball size mass and 6 inches of colon on both sides of the tumor. They also removed 11 lymph nodes and got negative readings which meant the cancer was gone. We dod CT scans every 6 months for follow up and on the last one they…
New diagnosis. Support / advice needed
Hello, I "was" a 60 year old healthy woman until I was diagnosed with stage IV rectal cancer 12/28/2106. Saw the oncologist on 1/4/17 and had my first chemo on 1/11/17. I sat in that chemo chair feeling like I was just hit by a mack truck, my life has been turned upside down and inside out. The chemo went fine with no…
Strange New Allergies?
I went and had my bloodwork done today because my results appointment from ny CT scan is on Tuesday. I made a comment about not having a rash today and the nurse asked me what I was allergic to. I said I had no idea, I just get odd allergic reactions from time to time that seem to last a few weeks and then go away. She…
What would you do if you wanted to move to another area?
My husband and I are thinking about moving. I've brought this up before but now I'm wondering how a person would go about finding out how the care and financial coverage is in other areas. I think we have to stay in Canada because of the helath care coverage but there are differences between provinces for things like…
Mother just diagnosed Stage 3 rectal cancer
My Mom was jsut diagnosed with stage 3 rectal cancer. I am so new to this, we are getting ready to start treatments of 6 weeks of Chemo and radiaiton, then surgery to remove the tumor. I am really don't know what to expect with treatment and what questions to ask about dosage and drug type. We have an MRI scheduled with…

Colorectal Cancer

Discussion List

Discussion Boards