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New
Hi, I'm Mary. I'm new here. I'm 54 and in January was finally diagnosed with colon cancer after playing games with a pulmonologist who found nodules on my lungs. It took three weeks for him to send me to another doctor. Finally I went to Virginia Cancer Specialists and they helped out. I've been diagnosed stage iv. A real…
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Radioembolization/Selective Internal Radiation Therapy (SIRT) Anyone??
Has anyone here had experience with radioembolization /SIRT for liver metastasis?? I am not a candidate for liver resection, abalation is offered But I am reading about the above anyone have it done?? How did it work for you? Thaks, P
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Pardon my french but son a gun, the lump that the doctors said wasn't there
is now a larger distinctive lump. No one could feel it and I've had quite a few scans since I first thought I felt it and nothing has been showing up. I had an appt in December and no one felt it. I don't understand why I'm feeling it and they are not. I'm at a point where I just can't worry anymore but I'm making another…
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my rude inlaws
It has been five long hard years since I had my first operation, I was born with Gardner's Disease and had stage 4 colon cancer in 2010. Every time my in-laws get a bug up their **** my wife and I get nasty emails or Facebook messages. I have been told I should die a slow painful death from cancer, quit fighting and my…
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Colon
Why does colon cancer seem to manifest itself in the liver and lungs sometimes? Are they particularly related somehow? Mine first showed in lungs, then liver, finally CT revealed colon. Just curious> Mary
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Dr. Habr-Gama protocol?
Any one here has experience with watch and wait protocol? Thx!
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Abdominal Pain
Hi everyone, For those of you who remember me, I read this message board every day but haven't posted anything for various reasons. I had so many problems with chemo, and radiation. I suffered with terrible abdominal pains that still come and go. But on the brighter side, I finished radiation in June, had my ileostomy…
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Thanks to all...
As a new member to your "club" I wanted to thank each and everyone of you that have posted here. I've spent a good deal of time reading through various posts finding answers to my many questions as well as educating myself regarding CRC. Your posts have been so valuable to me, your stories an inspiration. I was diagnosed…
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5 Year NED Colonoscopy
Hi All, I had my 5-year NED on 1/31/17 but had the colonoscopy a few weeks later (insurance reasons). I am very happy to report all is well - colon was clear, clean and beautiful. My history: I was Dx'ed in 2012 with stage 3b signet cell colon cancer. Sugery and chemo (5fu and oxi). I am a cancer survivor. My favorite…
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I am Lisa
My (much) younger sister was just diagnosed with stage 4 colorectal. Two spots about 2.5 cm on liver and 4 very small lung spots less than .5 cm each on CT, waiting on pet results. Oncologist Has announced plan to "hit it hard with most aggressive chemo" folfurinox. My sister is 41 and the only parent of her 9 year old…
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Newly Diagnosed Rectal Cancer - Looking for Support
I was diagnosed with rectal cancer 3 days ago. I had been having intermittent rectal bleeding since 10/2016 and I have a history of chronic constipation. Thought for sure it was just bad hemorrhoids, diverticulosis, or a rectocele, but I guess I couldn't be that lucky. I think the worst part right now is not knowing…
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So mad and having emotional issues right now.
Does anybody else ever feel this way? I got the bad news about my one met doubling in size over a three months span and is now about an inch across. Or was when they did the CT scan in December so it's probably bigger now. It really scared the crap out of me. I've been in a funk ever since. The very next day my boss…
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Beware - old posts brought forward by SPAMMERS
Seems we have two that have invaded the board. Enough have been flagged, but since it is the weekend they may not be deleted until next week.
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Reading too much
I think I am starting to read a little too much. Anyway, has anybody heard of this stuff or actually used it. Don't think it is available here in the US. Don't know enough about this stuff to know if is crapola or not. Dendritic cell vaccine. Allegedly they harvest blood cells, process them in a laboratory to produce…
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skin burns
does anybody have any good advice for dealing with radiation skin burns-my husband is 3+ weeks into radiotherapy and has developed some sore patches of skin-they have suggested aqueous cream but has anybody found anything else that was useful-also does it get better when treatment stops? thanks kelly
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New to CSN - Stage 4 Colon Cancer
Hello, my name is Scott. Over the past several days, I have been trying to research information about upcoming chemo treatments and side effects relating to the Avastin/Irinotecan/Xeloda regiment. The research journey has taken me everywhere and eventually to the CSN discussion board where I have found solace in the…
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adderall for fatigue
Hi, I was wondering if any of your drs have prescribed adderall for fatigue, off label. There was a study by the mayo clinic from 2010 which showed in made a difference for people with stage 3 or 4 disease. Here is the link: http://www.mayoclinic.org/news2010-rst/5830.html
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Hello all
just wanted to say hello to all of you guys .i haven't been on here for a long time but today I was thinking about toilet all .
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Lynch Syndrome?
I'm looking for other cancer patients that have been diagnosed with HNPCC (Lynch Syndrome).
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Neulasta
Hi All, Has anyone had vomiting & extreme fatigue side effects with Neulasta? My husband was doing great with his chemo (no real side effects) until he got the Neulasta shot last week. 48 hours after the shot he was vomiting all day and is extremely fatigued. I know it will pass but just want to know if others have…
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Chin tremor during chemo session
My brother-in-law was diagnosed with stage 4 colon cancer in early Jan. 2017, had surgery done on 1/12 in color, lymph nodes and liver areas. He started chemo 2/10, 5-FU, Oxalip, leucoverin, gransitone and decadron was administered. During the session, his chin started uncontrollably shaking (jerking, tremor), doctor…
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It has been awhile
Hi all. It has been awhile since I stopped in. Life has a way of getting in the way. I think I told you all last fall we spent a month in Costa Rica followed by a week in Panama. We came back to our daughter moving home. She has been living in England for 12 years. Unfortunately she is divorcing and came back to the states…
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Chemo & Arthritis
Has anyone had arthritis worsen with chemo treatments? My onc says no but I tend to disagree with him. My arthritis has been so bad that about a month ago I had a stabbing pain across my lower back fell over and couldnt get up. The paramedics came to my rescue. Went to the oncologist and he doesn't think it's cancer…
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Appendix Cancer
I was diagnosed with stage 3A mixed adenoneuroendocrine carcinoma that presents with signet cell morphology in December, 2016. I underwent a right hemicolectomy in January 2017, and am now going through 12 rounds of FOLFOX. I haven't been able to find out anything about this particular cancer, and it seems to just be…
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Hello I'm still here
Just stopping in to say I'm still here,,stage 4 colon , overy, lymph in 2004. Have not been on the discussion board for quite a long time,,but I'm still kicking for better or worse lol.
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5 years NED
Very good news from Stanford late yesterday. scan and blood work were all clear. This makes it 5+ years since the last recurrence and grants me admission to a smaller club, (but thankfully growing larger...), of longer term “survivors”. I now enter a different phase of study and monitoring. ( I don't know who's happier, me…
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Feeling tired and exhausted
Hi in December 2006 I was diagnosed with having a tumor in my tear duct and my doctor ordered a CT and PET scan which revealed I also had a very large tumor in my colon but i had no symptoms so I was operated the first week of January 2007 on my tear duct and in the first week of February I had surgery to remove the tumor…
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sudden good mood after treatment - Anyone else?
So today I am suddenly back to happy cheery me. The chemo has left my system. Does anyone else have that drastic a mood response? I wish I could find something to help me while the chemo is still in my body. But today I am full of joy and sunshine. The world looks wonderful again and I can fight this off and win it…
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Liver resection ct scan results
Hi everyone my husband had his liver resected in 2014 and he is still showing fluid at the resection margin. His tumor marker has fluctuated from 2.4 to now 6.2 last year it went down from 5.8 to 4.2. I understand he is still high and above the normal here. His pet scan was clear last year the only increased uptake was at…
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Why not liver surgery?
Hi all, Hubby was just diagnosed stage IV colon with cancer in the liver, lungs and lymph nodes. He had major surgery to remove the large tumor on the colon. He just had his surgical staples removed laft Friday, and has been cleared to talk to the Onc on Jan 17, 17 about starting chemo. I have been reading several posts…