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The Aussies have Landed
Hi Everyone, Ross and Jen (Kangatoo) are now in Austin, Texas preparing for the Colon Palooza 3 next week. Photos will start coming your way soon. Take care everyone and we'll see lots of you next week. Kerry
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Very sick from chemo...
My friend Mark made it through his first two weeks of his trial (Xeloda, Avastin, Oxy.). First two days he seemed normal then huge naseua (sp), some diarrhea, headaches, eye aches, jaw pain. That subsided then he spent most of the two weeks in bed - very low energy. He did get out and drive to do some errands but that…
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For Ross
Well Ross...how do you like Texas? You'll have to learn to speak redneck now.
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for Kay(kanort)
Hiya sweetie....strewth gal...talk about kiss n run. Was it my b/o, my poorly look, my clothing...huh..huh? We only had a short time at the airport....oh so short time...and we never got the chance to thank you my dear! Yes....I do know you had to go with your mum home...so I am only kiddin sweetie. I had to "topic" you…
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for Ross
I'm behind schedule..still a thousand miles to go, and promises to keep..but then I'm old , and have to stop at all the wayside rests..had to reply with a new post, can't reply to posts for some reason Jose.. Bud
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NED (pretty much)
Hi y'all! (Said in spirit of Austin festivities!) I just got back from getting my PET Scan results. I am pretty much NED!!! The edge of my liver where they lopped off a third of it showed some "uptake", but they think this is just because the liver is re-growing like it should and being highly metabolic. I'm not too…
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Good Palooza Wishes and Good NED News
Hi all - Wish I could be joining you in Austin. I know you will all have a great time and I so look forward to the pics. Ross and Jen, I hope you have a good visit in the "States". I completed a second round of testing at NIH this past Wed-Fri. They have booted me back to my oncologist because they can find no evidence of…
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Cancer Treatment Centers
Hi again. I am moving onto a new more aggressive phase of my treatment to stop progression. Not really happy with my current doctors or program. I've checked out a local Cancer Treatment Centers of America hospital. Everything they say sounds like what I'm looking for. Just wondering if anyone in the group has had any…
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Irinotecan(CPT11)/Erbitux Chemo
My mother is a Stage IV with meds in her liver and lungs and just recently got her chemo switced from CPT11/5FU/Avastin combo to CPT11/Erbitux. Has anyone had this combo and how effective was it for you? how were or any side effects from this combo?.......Thank you to anyone to takes their time to respond to my question.…
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worried about avastin
Hi everyone, I've posted a question about avastin in the past, and I'm still concerned about my dad being on it. He just completed his 4th cycle of chemo with 3 cycles of avastin. So far, I believe that the avastin has increased my dad's blood pressure. He now takes 2 extra blood pressure meds because of the avastin. It…
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Poll - Who Had Ovaries Removed?
Hello Ladies, I was wondering if you could help me out, by sharing whether or not you had your ovaries removed after your colon cancer diagnosis. I had rectal cancer and received the standard radiation for that. I am very likely in permanent menopause at age 34. Before my rectal surgery last year, I decided to keep my…
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results
well today i finally had my colonoscopy which my first surgeon did not request since he could see the tumor. thankfully there are no other growths. i am sleeping sounder tonight!! 2 week on chemo only a slight bit nauseated and so far no hair loss.radiation is suppose to burn me pretty bad because the tumor is so far down…
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Info for fighting HMOs in California
Hey, just got this information if anyone needs to complain about their HMO. Called, and they were VERY helpful...even gave me HIPPA info! HMO Help Center 1-888-466-2219 www.hmohelp.ca.gov Hope you don't have to use it, but good info to keep, all fellow Californians. Hugs, Kathi
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Insurance under HIPAA
Hi Guys: I have a question for anyone who may have experience with insurance under HIPAA, preferably in CA, but other info are welcome too. I am a month away from exhausting my COBRA coverage from a previous employer, so I am researching my insurance options for the future. After reading through all the HIPAA rules on…
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up, up and away!!
This is my last post for about 2 weeks, that is unless I can beg, borrow or steal "mine hosts" puta. I think Kerry will let me use hers but you guys know how women are...they have an incredible pet aversion to males using their personal property(I know 'cos Jen was a woman last time I looked...lol!) "belt , thump, ouch!…
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Sacramento: I kicked in, quoted numbers!!!
WOW, was my day at the state capitol great!!!! I am tired, but very excited. First, the building itself is awesome, I'd never been there in all my 45 years of living in California. Second, we all WERE THERE when the CRC bill was read in committee!!! All of us (about 50) wore black T-Shirts with "Colorectal cancer is…
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Kelly/Steve
Hi there, Kelly posted a couple weeks ago that Steve had his testing done. Was wondering if you got the results?
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Resection J-pouches that dont work
First of all, Thank God my mom is still cancer free! Q; Is there a colon surgeon anyone would reccomend to fix lower bowl "death"? My mom is currently under care at UAB in Birmingham Alabama. My mom had a j-pouch made almost a year ago and still has to have enemas to evacuate. She had her original resection more than 3…
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Resection scheduled...
Hi everyone, thank you for sending me good thoughts this morning about my appointment. My husand and I went to OHSU and my liver resection is scheduled for May 17th, 2006. I am thrilled with this news, just to have a chance at this surgery answers one of my prayers. Both of us have faith in this doctor, he came very highly…
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Travel question
Now that I'm starting my eight week Erbitux break and the semester is almost over, I'm taking a little trip in May/June. I decided to take some of my beloved multivitamins, fiber supplements, and fish oil with me. Well, to save precious packing space and weight, I took the pills out of the bottles and put them in ziplock…
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To Dear, Dear Kanga (Ross)
Ross, I can imagine, or at least think I can for I too as well as old Mr. "No Type" am so very grateful to everyone on this board who really listened to me and shared my joy and pain throughout the last three years. Better than anybody else could. And yes, even helped play a role in my Bert still being here today because,…
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colon sneaking up on breast
I've been watching for some time now, the total number of posts on this board. ( I know, I need to get a life) But, we are very close to the number of breast cancer posts. I'm not sure if that is good or not, but thought it was worth mentioning. Barb
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no news of Wanda(Shandle)
Hi all..............I thought you might like to know that I tried to call Wanda this morning(about 4.00pm Pheonix Ariz. time) Wanda and Harold were not home so I left a message saying she was in our thoughts. The last time I spoke to her she had very bad pain in her leg and was unable to get around. At that time she was…
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Questions about 1 year colonoscopy
I'm scheduled to have my colonoscopy tomorrow. This will be the first one I've had since my surgery & chemo(Stage III with 1 lymph node). I'm very apprehensive but I know that it will most likely show no cancer and no tumor. What I'm really saying is I'm curious of the odds of the cancer returning to my colon. Would y'all…
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CT scan
Hello everybody!!! I have been on CPT-11, 5-FU, and avastin for recurrent CC (signet ring cell). I have two small tumors in my pelvis (non life threat). I have been on this chemo since late January. Today I received my CT results and the scan showed no change in the size of the tumors. But the good news is my blood tests…
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going awol
Hiya all. Yup, I know I keep talkin about our trip to Austin but there are things I need to say before we leave in about 48 hours. I have been coming here for just over 2 years and in that time am so gratefull to have found you all. So many survivors/friends that are too numorous to name and I try very hard to remember all…
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Are these possible symptoms ? Please advice !
Hello everybody, I'm having rectal bleeding since last one yr. and noticing black stools in last 1 or 2 months. Don't have any cramp or pain except very rare burning during bowel movement. I'm a 28 yr old woman..quite confused with all the info. on the net. Does my symptoms match with anybody here ? Any advice is more than…
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BACK FROM VACATION
Hi All! Back from a spring break getaway with wife and kids. For those who are new here, I am a 7 plus year survivor of stage 3 rectal cancer. Disease free since April 1999 and considered cured. Still think about cancer every day, but am living a beautiful life, and one that I worked hard to keep (chemoradiation, surgery,…
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elevated calcium level
I had my 3 month check up with routine bloodwork yesterday. Doc called a little while ago and said that my calcium level was up. We decided to follow up with a parathyroid hormone level to start. Anyone out there have any experience with elevated calcium levels?
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Surgeon appointment today..
Good morning everyone..I am wishing all of you a great Tuesday. Please send me good thoughts as I am leaving shortly for OHSU to meet with Dr. Billingsley about liver resection. My pet scan showed that there are 2 tumors in my right lobe now which my oncologist feels can be resected. I will post the outcome later..Bless…