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just diagnosed with stage 3c colon cancer
my nephew had surgery in dec of 2005 where they removed half of his small intestine. his surgeon said they got all the cancer ,but he was started on chemotherapy also. his blood levels drop so he is only able to get the chemo every 3 weeks , he went last week for a ct scanand the doctor told him that the cancer was still…
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Frustrated
Hello everyone, I am feeling somwhat frustrated tonight. I took my dad to his chemo appt. today. He had to see his onc. for a follow-up visit beforehand. I mentioned a couple of supplements that I would like my dad to take and even brought some literature with me to give them more info. on the supplements. One was Maitake…
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Some exciting news for all of us
OK, PROBABLY you ALL know about this but me...always the last to know... Our Sisters in Arms (sorry, guys) who are looking at genital warts (which can turn to cervical cancer) are going to have a vaccine soon to be "marketed that will give protection against the strains of papillomaviruses responsible for most cervical…
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Thank You Howard!
Thank you for giving me the web site. I am really struggling with my decision. Do you remember the TNM staging of yours? Mine was T3,no,mx. My lesion was in my Transverse (sp)colon. The surgeon also did not see any mets to the liver. Correct me if I'm wrong, but I think the cure rate is 90% with just surgery, and it only…
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SUPPORT DURING OR AFTER LIVER SURGERY??
HELLO TO ALL, I suppose this could be completely subjective but I wanted feedback from those who have been there. My sister in law is scheduled for major liver resection May 9th & a pump will be implanted. She will recover in the hospital about 1 week & a month at home. They have 2 girls, 11 & 13, and my brother has been a…
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Best Wishes
Just wanted to wish everyone a Happy Easter, Wonderful Passover and Beautiful Spring !!! Sending prayers and love to all my semicolon friends. Love, Barb
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Slightly Enlarged Spleen.....
Hi Everyone, Well I was in to see my family Dr this week and my ultrasound shows I have a slightly enlarged spleen. So needless to say this has freaked me out, more so now since I've been home and doing some research. Brief History: stage 3,10 nodes positive surgery March 20,2002 She ( my Dr ) has a call into my oncology…
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Nutrition
Just wondering how many of you out there have changed your diets since your diagnosis. I have heard mixed opinions re: cutting sugar and red meat out of your diet after a diagnosis of colon cancer. I know of some people who feel that they achieved NED with not only chemo, but diet changes as well. I have also heard of a…
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This is a message for 2bhealed
I would really be interested in knowing what treatment you decided to go with. I really don't want the chemo, if it's not necessary, but I'm like you I would like to do something.
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Camptosar
Hi everyone. I've been taking 5FU leucovorin for a couple of years now and my doctor wants to start adding camptosar. I'd like to hear from people who took it what the side effects and results are like. Thanks and God bless!! Don.
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Camptosar or Oxy?
Has anyone had experience with both camptosar and oxilipatin? My doctor wants to start a new regimen and he suggested these two. Trying to decide which is better, they both sound so yummy! Just looking for feedback and how it went, results, side effects, etc. The doctors can advise all they want but I'd rather hear from…
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reoccurence pelvic region
Hi everyone, My husband Stage 4, Colon resection 10/03, Liver resection 6/04 had reoccurence in the left pelvic region. His tumor can be resected and his surgeon has recommended going in now to remove the mass. He had chemo before and now is off. The surgeon explained to us that during the operation he may have radiation…
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Laugh for the day
This one's from Reader's Digest: A marine biologist was telling his friends about some of his most recent research findings. "Some whales can communicate at a distance of 300 miles" he said. "What the he** would one whale say to another 300 miles away?" asked his sarcastic friend. "I'm not absolutely sure," the expert…
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CT Scan today
Hi everyone! Going for my regular CT scan today. Wish me luck, Don
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Thanks to everyone
Hi. I was away for a few days. My in-laws are in town taking care of me... and we have been hanging out. FYI: I am back to my superwoman strength. I didn't take any pain pills today except Aleeve - and then I went out to dinner with my hubbie! I am feeling much more normal! I will still take a pain pill to sleep. Just…
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of topic but...
As we are coming to meet many of you in Austin next week I thought those not able to come would like to see the following. Here is a link to an australian song. It is sung by Bruce Woodley who was one of the group, "The Seekers". You may remember they were a very well known Aussie group years ago. This song kinda brings a…
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Steroids
Is administration of steroids a given when on chemo? I'm trying hard to feed my friend a pristine diet and aside from the poisons of the chemo, Mark is given steroids as well. What is the general reason for the steriods (I know, I need to ask the doctor but he is pretty much absent since the clinical trial has begun). Has…
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THOUGHT FOR THE DAY
I read this today and couldn't help thinking about all the "characters" here... Character cannot be developed in ease and quiet. Only through experience of trial and suffering can the soul be strengthened, ambition inspired, and success achieved. Helen Keller Cheers! - Sponge
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polyps after remission
Here's the scoop - I'm a 7 1/2 year stage IV rectal sigmoid survivor (yeah!). I've been in remission for over 7 years (double yeah!). Had my check up in Jan - CT, chest Xray and bloodwork - and everything's clean. Had my c-scope yesterday and they found a polyp. Noone seems to be overly concerned although they are…
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Quillan's Immunopower
I just spend several hours reading Quillan's book then scouring his page. I've read some encourging things about his supplements and how they help curb the side effects of chemo. I'm a bit disappointed however after visiting his site that he is pushing the Immunopower products. They are pretty pricey and there is no list…
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Calling all alternative eating guru's....
OK, I need to eat more fruits and veggies, cut back on proteins, drink more water, take my supplements and eat my fiber and flaxseed. So tell me, how do you get out of the house? Graphic here: Between the flatuence and frequent ( make that almost non-stop) bathroom trips, I am afraid to go out. ( might be just as well for…
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depressed
Hi all. Been doing the chemo thing for 2 years now. Doctors appointments, scans, etc. seems never ending. I've reached a point where every new pain or odd feeling sets me off. Is it common to feel despair or panic? I guess the years have taken a toll, wish I could get my positive outlook back, just seems bleak now. Anyone…
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Have I missed the palooza
Can someonetell me if I missed the palooza? I would like to attend but I can't find the info on the message board anymore and I think it might be over. I would be so sad, I wanted to meet you all. AND I LIVE NEAR AUSTIN!!!! Please let me know. Cindybob
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chemo day one
hi all, just started my chemo treatment today. fanny pack i get to wear for the next 4 to 6 weeks.havent had any nausea yet only 8 hours into it. i am getting bad stomach cramps with gas. is this a side effect or just maybe food choices of the day? wish me luck and thanks for all the support, cherri
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Painful Jaw and uplifting post
My friend Mark has had one treatment with IV drugs Oxy. and Avastin and is on his fourth day of Xeloda. On the second day he was already having jaw problems - severe pain opening mouth. I've read about this annoying side effect but am surprised it came on so soon. He has about six more months of treatment. Has anyone…
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Sugarbaker Protocol
Hi, I am new to this site! My husband has colorectal cancer, and has so far had his large intestine removed. We are now awaiting more surgery, in Canada they are calling it the "Sugarbaker Protocol" It is where they remove seeds from your abdomin and then do hot chemo flushes for 5 days following. Has anyone had this…
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I'm OK-just sad
Hi everyone... thanks for all the concern! I was discharged yesterday. They didn't cut any lung because ALL the lymph nodes they biopsied contained cancer. From the bottom to the top. Most lymph nodes appeared normal, but contained microscopic cancer inside. The surgeon felt that any surgery would only give me risk and not…
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Mary from WI
Dear Family, As I sit here and tear up from emotion... Words cannot describe how greatful and thankful I am for each and every one of you! Thank you all again SO MUCH for answering some of my questions/concerns. I look forward to knowing that I have this 2nd family to turn to in time of need. What an absolutely amazing…
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bloodwork has us stumped!!!
hello to everyone, Questions, Questions, Questions, hey who knows, maybe someday we will be as smart as all of you and be the ones answering peoples questions! When Mike went for chemo in March (one week on 3 off, 5fu) they said his blood level (alkaline phosphatase) was higher than it should be. They said that 2 things…
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SLOAN KETTERING
Does anyone have feedback on their experiences with Sloan? My brothers wife has Stg IV w/ liver mets & is facing a huge surgery. They are seeing a very impressive surgeon at Sloan but the switch from Jay Moghnan Center for chemo (& a NY Presb. Oncologist) has been "rough". ANyone experienced this? Is it ok to talk about…