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polyps after remission
Here's the scoop - I'm a 7 1/2 year stage IV rectal sigmoid survivor (yeah!). I've been in remission for over 7 years (double yeah!). Had my check up in Jan - CT, chest Xray and bloodwork - and everything's clean. Had my c-scope yesterday and they found a polyp. Noone seems to be overly concerned although they are…
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Quillan's Immunopower
I just spend several hours reading Quillan's book then scouring his page. I've read some encourging things about his supplements and how they help curb the side effects of chemo. I'm a bit disappointed however after visiting his site that he is pushing the Immunopower products. They are pretty pricey and there is no list…
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Calling all alternative eating guru's....
OK, I need to eat more fruits and veggies, cut back on proteins, drink more water, take my supplements and eat my fiber and flaxseed. So tell me, how do you get out of the house? Graphic here: Between the flatuence and frequent ( make that almost non-stop) bathroom trips, I am afraid to go out. ( might be just as well for…
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depressed
Hi all. Been doing the chemo thing for 2 years now. Doctors appointments, scans, etc. seems never ending. I've reached a point where every new pain or odd feeling sets me off. Is it common to feel despair or panic? I guess the years have taken a toll, wish I could get my positive outlook back, just seems bleak now. Anyone…
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Have I missed the palooza
Can someonetell me if I missed the palooza? I would like to attend but I can't find the info on the message board anymore and I think it might be over. I would be so sad, I wanted to meet you all. AND I LIVE NEAR AUSTIN!!!! Please let me know. Cindybob
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chemo day one
hi all, just started my chemo treatment today. fanny pack i get to wear for the next 4 to 6 weeks.havent had any nausea yet only 8 hours into it. i am getting bad stomach cramps with gas. is this a side effect or just maybe food choices of the day? wish me luck and thanks for all the support, cherri
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Painful Jaw and uplifting post
My friend Mark has had one treatment with IV drugs Oxy. and Avastin and is on his fourth day of Xeloda. On the second day he was already having jaw problems - severe pain opening mouth. I've read about this annoying side effect but am surprised it came on so soon. He has about six more months of treatment. Has anyone…
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Sugarbaker Protocol
Hi, I am new to this site! My husband has colorectal cancer, and has so far had his large intestine removed. We are now awaiting more surgery, in Canada they are calling it the "Sugarbaker Protocol" It is where they remove seeds from your abdomin and then do hot chemo flushes for 5 days following. Has anyone had this…
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I'm OK-just sad
Hi everyone... thanks for all the concern! I was discharged yesterday. They didn't cut any lung because ALL the lymph nodes they biopsied contained cancer. From the bottom to the top. Most lymph nodes appeared normal, but contained microscopic cancer inside. The surgeon felt that any surgery would only give me risk and not…
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Mary from WI
Dear Family, As I sit here and tear up from emotion... Words cannot describe how greatful and thankful I am for each and every one of you! Thank you all again SO MUCH for answering some of my questions/concerns. I look forward to knowing that I have this 2nd family to turn to in time of need. What an absolutely amazing…
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bloodwork has us stumped!!!
hello to everyone, Questions, Questions, Questions, hey who knows, maybe someday we will be as smart as all of you and be the ones answering peoples questions! When Mike went for chemo in March (one week on 3 off, 5fu) they said his blood level (alkaline phosphatase) was higher than it should be. They said that 2 things…
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SLOAN KETTERING
Does anyone have feedback on their experiences with Sloan? My brothers wife has Stg IV w/ liver mets & is facing a huge surgery. They are seeing a very impressive surgeon at Sloan but the switch from Jay Moghnan Center for chemo (& a NY Presb. Oncologist) has been "rough". ANyone experienced this? Is it ok to talk about…
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Ozone/oxygen therapy.
Just putting this out there. Anyone have thoughts, experiences with this? It's not legal in the states but is used freely in many countries in Europe and Mexico. It has had reportedly excellent results with Aids patients.
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ultrasound results
hi all; well unfortunately from the looks of my ultrasound i will have to have a permanent colostomy.im a little blue today but at least the sun is shining .im sure i will soon have tons of questions. take care. cherri
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CYMBALTA
CYMBALTA.. In my earlier post "My Dr. Appt." I mention that my new Dr. told me of a antidepressant that works for depression and are finding that it helps with neuropathy. I am not on it yet but the plan is to switch me to it . Anyways platelets are up and I will be receiving my 9th treatment tomorrow (yuck). I am so…
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Colloidal Minerals?
Hi, hope everyone is doing well. I was thinking of buying some colloidal mineral supplements to take with my antioxidants. The research seems pretty conflicted in terms of whether they are good or downright dangerous! Anyone have any experience / info about these? Thanks :)
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Erbirash-B-Gone
No Erbitux = no Erbirash, right? Tomorrow is my last chemotherapy infusion for a while. I'll have an eight week break and then have to start chemotherapy again in June (although I have heard about a new drug called Panitumumab that acts the same way as Erbitux but does not cause a rash that is as intense). So, does anyone…
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personal pages...for Jose,Debralla, Betsy
Betsy...here's the link for my page; http://www.acscsn.org/webpages/view?object_id=csn:rel:wallace435266688011077107602 As for others...click on "personal web pages" located to the left here in the menu. This will bring you onto a search page, then enter the members "pen name", ie for me "kangatoo", then hit search. The…
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Cancer Iliterate?
Hello Family, It's Mary from WI; and I've taken a little break from the site here for a bit. I truely hope you all are safe and well. I say a prayer for you all everynight and always! ;) In a nutshell, my first visit with my mom to the Chemo Clinic I balled all the way there, during, and back. Her husband and one of the…
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new treatment
Hi all Have just learnt that i will be starting a new treatment next week. Weekly dose of Erbitux and irinotecan. So i'll be bald with a rash. yuk! Had a hard time this w/end coming to terms with the fact that lung mets have increased activity. I know that the aim is to stay positive and up tp now, i have been able to do…
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Progression - Other Treatments
Hi everyone, my dads tumor in his lung progressed thats why his lungs filled with fluid and also the one in his abdomon progressed. He has tried, Oxplictan, Avistan and 5FU and that helped shrink and then keep it stable. Them he switched to Xeloda which did nothing because they grew on that. Anyone out there that had there…
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Xeloda
Hi everyone! i'm new to this site, diagnosed with colon cancer 28 months ago. Surgery and chemo since then. I've been taking the infused 5FU-Leuk and was wondering if anyone can compare the infused treatment with the oral Xeloda. Convenience and the ability to stay on a treatment schedule are my primary motivations with…
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Was away - now back
I haven't posted for a while. I was travelling for 3 weeks, and only just back. I've just been reading through 3 weeks worth of messages -- makes me feel very close to you all, and to value so much this group. It has been a funny time period for me. Almost exactly one year ago, my recurrance was diagnosed. (These…
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quick question
Hello everyone, Just a quick question about tumor characteristics. Does anyone know the difference between the differentiations of cancer cells? My dad's onc told us that his cells are poorly differentiated which means that the cancer is aggressive. However, when I read through my dad's pathology report, it said that the…
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Fluid in Lungs Anyone?
Hi, my dad has stage 4 with mets to lungs is now on Xeloda and he was experiencing discomfort for a few weeks in his back and just found out he has fluid in one of his lungs. Did anyone out there ever have fluid in their lungs? Im curious why something like this would happen. Thank you and best wishes to you all. Mindy
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My Dr. Appt.
Hello all. Just wanted to fill you in on my first Dr. Appt at Brooks . I am so excited and feel like I am in better hands . My new Dr. (Dr. handsome) oops I mean Dr Jones is great . He looked right at me with a were going to take care of you here look the whole time .In fact my Appt lasted 2 hours . He talked about all of…
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kanga to the rescue..revisited
If y'all missed that post go back a page...I been away working and just replied...going for a record number of posts there! (in yah dreams kanga!)
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kanga to tha rescue
I thought it prudent to waste a line or two here....maybe a teensy bit of humour will cheer you up guys n gals. Jen asked me today if I should go buy some pajamas(jammies we call em) to sleep in. I said "why?" She said that it was not ettiquette to walk around in another country in me birthday suit at all hours of tha…
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oxaliplatin reaction
Hi all, Two weeks ago I received my 7th treatment of Folfox. All was going well for about a hour until I started to have an adverse reaction to the oxaliplatin. I broke out in hives, turned completely red, and I thought my head would explode. The nurses stopped treatment and gave me Benadryl and I was eventually able to…
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One down - 11 to Go
Hope you all don't mind if I use this forum to get my experiences written down. It seems like a catharsis of sorts. I am a stage III, had surgery, and put on the FOLFOX-6 regimen. By the time last Monday rolled around I confess to being VERY nervous. Once I was "hooked" up via port and the Oxy and Leucovorin were on their…