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to all semi's ...........
we are quite a family and we help each other no matter what. and give advise and support to each other. that is why we are now the number 1 forum on this site. i found this site 2 years ago may 24 2004 the day i was dx with stage 2 colon cancer. you have all been here with advise and support. and i want to thank you all…
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really worried about my dad
I am new here and I really need some advice or someone to tell me this is all normal. My dad was dx with stage II rectal. He had chemo and radiation before surgery, then had surgery with a colostomy, now 3 weeks after surgery he started chemo again. I have never seen him so depressed and exhausted. He never eats which has…
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checking in
hi all, just a few words to let all my new friends know how im doing. 10 more radiation treatments left and all i have to say is oooooch!!!!! i now love skirts. my tumor is softening which they say is a good sign. chemo is going well but i cant wait to get rid of this fanny pack. thanks for the support, i love you all.…
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Side Effects from chemoradiation?
First, Thank you to all who replied to my first message. I can't tell all of you enough how much it means to me to be able to share the ups and downs of going through this. It sounds strange but there are ups to all of this. My relationships with my family and friends have gotten stronger. I recently ordered a book "Cancer…
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Has anyone else had this happen.
Went to-day to see my radiation oncologist. After some discussion (I've had diarrhea and naussea) he decided to give me a 2 week "vacation" from treatrment. I have completed 20 combination Chemo 5FU/radiation. The plan is for me to have 28 treatments.
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CEA levels up, but still NED?
Hi guys. I have a question that I hope you can answer. I have been through all of this a couple times, but this is the first time that I have had an increase in my CEA, it's at 7.5, but there is nothing showing on a CT or PET scan. My Dr. is just watching blood tests closely and says he doesn't expect to see any tumor…
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Hi everyone!
Hi all! My good friend, suzannchili, tells me I missed quite a wild weekend in Austin! I do hope to meet you party animals in Nova Scotia.....:-) I am a 36 year old mommy, diagnosed with stage 2 colon cancer last summer. I had the resection in July, started chemo in September - just after my son's 1st b-day! - and I just…
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ColonPalooza3
WOW! I didn't know "what" I was missing and how much I needed "it" until I met some of you, The SemiColons, this weekend at the ColonPalooza events. What a warm, welcoming, tough, bright, inspirational, fun-loving, hug like you mean it gang! (I could go on!) Five and a half years ago when first diagnosed with Stage 3 CC I…
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Colon Palooza # 4
Hello Friends, First Andy & I would like to take this time to thank Kerry & Merriman, Kay , Suzann & the folks from The CSN Jose, Greta & Dana for making Palooza 3 a wonderful time. I'll have a photo shoot on the board in a few days. At the closing party Miss Kay passed the Colon Torch to me to be lit in Halifax at Palooza…
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approaching CAT scan
Hello everyone, My dad's next CAT scan is approaching (next Thursday) and I become so anxious and scared around this time before the scan. It's the worst feeling and I don't know how to control these feelings. I am a very high anxiety person to begin with. I try not to think of the worst, but so far, it seems like these…
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Themesong
"I will Survive" was tossed out at CP 3 as a possible themesong for the semi-Colons..anybody have any other titles..? Bud
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CP 3 - and an update
Hi. I had the honor of participating in CP3, but for only 2 days. I have to tell all of you how incredible it was to finallly meet some semicolons!!! Such a wonderful, supportive, loving, caring, amazing group. I am proud to be a semicolon. :) I told everyone at the CP3. I got scanned for my radiation that will start this…
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Results from Scan and RFA results today
Hi guys, Recep: Dad was Stage 3 with 11 out of 19 lympnodes in March 2004 a year later he got two small liver mets. His scan from Feb. 2 came back with no mets except they are concerned about the lesion in the liver was 1.8 x1.6 cm last April and now it's 3.4 x 2.1 cm, we just hope it's cause of the liver ablation. We are…
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colonpallooza update
I called the group this morning and I talked to Kerry, Kay, Lisa P., Ross - (Kanga) and his wife Jen, and Jana. I felt like I knew them all. It was very emotional for me. Everyone had an accent. It sounds they are having a great time. Maybe someday I will meet everyone. Maureen
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CP 3 update
this was a lolapalooza!..it came and went, and most of the semi-colons and careivers are winging their way home. Everything was wrapped up at Kay Norton's-(Mary Tyler norton) I'm still trying to digest it all..this is a one-of-a-kind event. A lot of laughs and a few tears, and a warm feeling that won't go away soon; a…
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The CSN Guy
I would like to thank all the CSN staff for their efforts in making the Colon Palooza a success. Of special mention is the constant presence of Jose at all the events throughout the 4 days. His caring and empathy is apparent to all; he is an asset to your organization, Bud
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chemoradiation scans and results
Hi Everyone! Need your help. How often do you get scan for treatments for chemo-radiation? Is it at the end of your entire cycle, two weeks etc? Also has the chemo-radiation been successful in shrinking tumors etc? My husband has to make a decision which is difficult for him because he has two different opinions.…
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Complications from radiation?
Hello all. My mom was recently diagnosed with colorectal cancer, has completed surgery, and has now moved on to radiation. However, her first meeting with the oncologist scared her profoundly. He said that the radiation could possibly permenantly damage her bladder and her small intestines, and basically leave her an…
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Is this normal?
Hello Dear Family, It's Mary from WI again writing to say "hi" and that I hope you all are having a safe, restful, and wonderful weekend, too! ;) And this maybe for just the "women" in the group but... I talked with my mom today and the last time she was at the doctor they took a urine sample and there was blood in it. So,…
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Nettie
I replied earlier to this post, but in answer to one of the questions, Nettie had two children, around 8-10 I think. Her funeral will be on Monday. Franny
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xeloda oxaliplatin
Hi everyone! Will be starting this week on a Xeloda Oxaliplatin treatment. Anyone done this one? Can you tell me what your weekly regimen was and how well it worked? Would appreciate any feedback. Thanks and much love to all of you, Don.
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stage III stages ???
I just read a post of one of our fellow semi-colons saying that her /his oncologist kindly refer to her as a stage 3.5. That reminded me that I had a nurse that once told me that I was almost a stage 3 (Doctor told me stage IV) (everything was removed on surgery)that also reminded me that I once read that there where…
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post liver resection treatment advice
My mom has been battling colon cancer since 2000, she went 4 1/2 years with no problems when it popped up in a single lymph node in early 2005. she finished her last round of chemo in October 0f 2005. Her scan in January of 2006 was all clear. When she had her next scan in march, it revealed a 3cm spot on her liver. she…
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Thanks for all the good advice and encouragement
I am still feeling ok, although I walked to my daughters house, it was a little chilly and my lips felt like the were drawing, I can't explain it and my right hand and right eye bother me, anyone else have this. Not a hurt just a funny feeling. It has gone away since I came inside. I will definitely try the mouthwash, I…
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Possible Erbirash cure
It's now been two weeks and a day since I had my last Erbitux infusion. The rash is still there, but I saw my PCP today and she thinks it is healing and will soon be gone. Then she came up with a theory that the rash is fungal in nature and maybe an anti-fungal medication would help. She suggested Lotrimin. So, on the way…
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chemo for a second time ,while in remission????
Hi ! I have seen 2 post of people that are put back into chemo even though they are NED ( after 6 months and in remission)...can someone tell me a little more about it ? I have been in remission since august and the Dr. never mentioned about going back to chemo...
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depression
Hi everyone, Hope you are all doing well. This week has been somewhat difficult for both my dad and me. This is his off week of chemo, but has been depressed. Today, he said that he is tired. I'm wondering if the depression is making him tired or if it could be the chemo. Doesn't the chemo make you tired the week of…
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Ileostomy Reversal next week
Hi, I scheduled my reversal surgery today..Wow...its been 9 months since I've used my back door...tee hee. I'm hoping I don't have much problems getting things back to normal. Any suggestions on what to eat or how to make thing easier. I plan on focusing mainly on liquid diet and soft foods for a little bit. Avoiding…
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newest treatment plan
Hi again. I have been reading the posts, but haven't written much.. sorry. I met with my onc last Friday. He said we need to take it all one step at a time. Part of me likes that expression, part of me is terrified by it. I met with radiation onc today. I will start radiation next Wed. I can't wait. My tumor in my lung in…
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In the middle of treatment
Hello.. Just signed on to CSN and wanted to introduce myself. I was diagnosed with rectal cancer on March 13, 2006. Currently I am on day 18 of radiation and Xeloda (sp?). Sometime in June I will have surgery. The surgeon is giving me about a 50/50 for reconnection. At first I was terrified, but now I realize "what's a…