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NED??? Confused....
Apr 05 emergency surgery for blockage, dx Stage III cancer, 2/27 lymph nodes positive. Large colon removed and immediately reconnected. 6 mos. chemo completed in Nov 05, April 06 all tests clear and CEA 3.3, bowel movements pretty normal (depending on what I eat). Since finishing chemo, have been mildly troubled with the…
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Message for Jana
I just got on reading the posts and didn't want my reply to you getting lost. You will remain in my thoughts and prayers and I truly admire you and the fight that you have in you.. Bless us..Hugs to you, Audrey
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chemo rad questions
hi all, i will be starting chemo and radiation tommorow. i know everyone is different but can anyone give me a little info on what to expect. how bad is the nausea? can you still work? i have heard that the last week of radation is painful. in what way? any info will be appreciated. thanks again all, cherri
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illiostomy reversal
Hello all, Mike is scheduled to have his illiostomy reversed at the beginning of July, as he will have had his last round of chemo (Ya hoo) in May. He has had the illiostomy since Oct. 05. We have heard good and bad on what to expect from the drs. Can anyone help us out a bit? Should we expect it to take awhile for his…
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Cottage dreams
I wanted to let people know of a program we are currently involved in. Unfortunatly it is only in Ontario (not sure how many people are from Ontario), however it is run by the Canadian Cancer Society. People donate their cottages to families who have been affected by cancer, for one week (any time of year). You have to…
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Thank you
Thanks to everyone for your words of support, its good to know there is somewhere to go for help and advice; its not always easy to talk to the family is it because you don't want them to be upset or to see that you are scared.
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what a bad week!!!
sorry guys but i need somewhere to cry. IM sure my family and friends are getting tired. anywats went to get my port installed on 3/30 and just got out of the hospital yesterday.puntured my lung during surgery,which is apparently a 1 in a million chance. lucky me. anyways while installing chest tube lacerated surface of…
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re; Jana and Wanda
Hi dear friends. I have lots of news here. Firstly.....Jana. Jen and I are so very sad that your surgery was not able to go ahead.We know that right now you are devestated but we want to send you all our luv gal. We know that you have that fighting spirit and we hope that we can show you some loving in 14 days. We REALLY…
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I have some questions....
I am 29 years old and was just diagnosed with stage III colon cancer. I had surgery and they removed 12 lymph nodes, 8 of which tested positive. I am starting chemo at Vanderbilt very shortly. I will be getting oxiliplatin, lecovorian, and 5FU (Spelling?) for four treatments, then I will take 6 weeks of radiation while on…
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Some facts as I prepare for Sacramento
I am honored to be representing ACS by going to Sacramento (California state capitol) to talk about a bill pending for providing for under- and un-insured people to get colorectal screenings done. WOW...got my packet today and was I surprised!!! -If this cancer is caught BEFORE is spreads, the 5-year survival rate is 90%.…
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Indians and Colorectal?
Hey all, I've been reading about how native americans have a higher risk for colorectal cancer. Was wondering if anyone out here is native?
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Quick! Avastin/Xelox vs Avastin/Folfax or Folfiri
I wish I had asked this earlier since I am sitting in the doctors office right now with my friend as we await the results of the last CT. Seeing that we are in the chemo ward, I imagine the doctor wants to start him ASAP. He's alread signed papers for the trial of Xeloda/Avastin/Oxy. but at the last minute he threw another…
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suggestion
Hiya all....I hate to take up line room here but I think most would agree that it is extremely valuable to us all for members here to make use of the "personal web pages". Many of us who have been coming to CSN for quite some time have seen a large influx of newly diagnosed people(actually less people here would be…
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In The News......
I thought some of you might be interested in this.....Susan. Colorectal Cancer Can Be Treated With Irinotecan, Oxaliplatin and Raltitrexed NewsRx.com March 30, 2006 Colorectal cancer could be treated with irinotecan [Camptosar (C)], oxaliplatin (O) and raltitrexed [Tomudex (T)] (COT). According to recent research from…
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Cancer and Depression
Aside from diet I have a stong suspicion that extreme sadness can destroy the immune system and bring on disease. Mark was very depressed for many years. His diet was good - no meat, garbage, coffee. He's never smoked, doesn't drink. What do ya'll think about this? I think it is as important as diet and excercise in the…
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Anniversary
My mom reminded me lastnight that it is my one year anniversary from finishing chemotherapy. I was dx One year, six months and two days ago. It's amazing to look back over the year and see how much I have progressed and changed. I have many of you wonderful souls to thank for much of the progress as I was an absolute mess…
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Andrea, Jana..
Where are you...? Nanuk
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VACATION:-)
My hubby and I head down to St John's, Virgin Islands for 2 weeks tomorrow. I am so looking forward to this. We went last year, but i was fighting an anal fissure (amazing how difficult that little tear can make your life) and effects from chemo. This year I only have the effects from chemo to deal with. Yippee! My…
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Surviving !
Hi, I'm a first time participant. Have seen messages from people with recent Stage II dx and just want to let you know that my dx in 1999 was Stage III. Subsequently,3 metasteses, 3 courses of chemo and one of radiotherapy later and I'm still here fighting back. The message is, don't ever give up, there is life after…
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Thank You! Thank You!
Thank you for the warm welcome! I will try to answer some of the questions that you ask. I am going to see the oncologist on the 14th (Good Friday) and I hope it's just that. Anyway as far as the staging goes, the surgeon said it was a B and I think he must be talking about the Dukes, because the nodes were clear and no…
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any attorneys in the house ?
No, no, I'm not looking for advice. Just a question. What would setting precedent mean to your career, if anything? Do you get published or something? Just trying to understand the drive behind my attorneys' actions. ( good actions ) Thanks for any input. Have a great day. Barb
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Physically Exhausted, Help!
Hi everyone, hope all are doing well. I have a quick question. To those of you that where on Xeloda, where you physically exhausted. My dad is on 3500mg a day and he says if he even makes a sandwich he gets so exhausted. Of course he thinks it is the cancer kicking in. I tell him its the Xeloda. Also, since he started the…
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Reply to Kathi
Not at all Kathi...please let them know straight out that this disease, just like other cancers, does not discriminate, especially not based on age. Most people here, including my Bert, need never, ever have had this disease if proper screening (the gold standard colonoscopies) had been performed. Come on folks, we all…
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Had colon cancer surgery on 3/16/06
I just had surgery on 3/16 and I would like to talk to other people about it. It was not in any of 18 nodes. Therefore I think its a stage II my surgeon said a B whatever that means, but I go to the Dr. on the 14th to find out what treatment I need.
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MACROBIOTICS
Hello all you semi-colons, I feel compelled to respond to the macrobiotics are scary post. I have such a complete opposite paradigm than most of you since I never walked the chemo line. I have remained cancer free having not done any chemo and only used alternative therapies that focused on diet. As most of you know I…
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colorectal cancer stuff
A dear friend sent me a packet of wonderful items for colon cancer. There are blue pins, bracelets, key chains, magnetic bows, beautiful pamphlets, etc. Just go to www. choosehope.com Best Wishes from a semi-colon
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Scaring myself to death
I wrote to a Kushi counseler after I read her amazing testmonials helping people with cancer, etc. - http://www.minadobic.org/testimonials.php#4 She sent me a very disturbing answer. This is the eve of my friend Mark's surgery and reading this really made me nervous. I would like all your thoughts on this. The decision to…
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To Musiclover
unable to reply to your post, so thought I'd try it this way.. Subject: Re: Anyone have/had mets to lungs? Message: You have to have confidence in your doctor, and continue to explore all avenues of treatment..watch out for the people who lurk and take advantage of your tendency to look for a magic bullet. Look for the…
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Yeee haaaaaw
Hello all Just wanted to say that we are now in San Antonio Texas . We arrived here yesterday . I have my first Texas appt. tomorrow at Brooks army medical (yikes) Iam so nervous .As some of you already know I had to skip a treatment because my platelets were to low . Sure hope that they have come back up .I also found out…
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all semi colons just wondering...
hi all, hope all is well with everyone fighting this beast. i was just wondering are we all classified disabled for the rest of our life or does that change if we are in remission or "cured". any and all feedback is always welcome from my semi-colon family thanks all the best bruce