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Seeing my onc tomorrow and whining about it, that's all
I'm all sensitive and down this week. I havent had chemo since March and I see my onc tomorrow and will probably start again on Friday. The rest of the time I'm good but the week I have to go in just really brings me down. I think most or all of us are like this so at least I'm in good company. I think the rest of the time…
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Folfiri every 3 weeks, instead of every 2 weeks
I am changing my chemo schedule to every 3 weeks in hopes of having reduced side effects. My oncologist said it is about as effective at killing the cancer when it is given at 3 weeks intervals as 2 weeks. The negative effects on our bodies is cumulative, such as the damage to our overall health and especially damage to…
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A bit graphic but need some advice
Okay, so I've had the ostomy for over 4 years. So nothing comes out rectally except some mucous which is normal. I'm having a problem that I've had before and I still don't know what to do. The mucous has bult up in my rectum for the entire 7 plus weeks since the surgery. I had it when I went in but I assume they cleaned…
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need positive thoughts after 15 years
Hi everyone, I am 15 years out from my stage 3 rectal cancer diagnosis. I have had 15 inpatient hospitalizations and am now getting ready for my 16 th. I have a hole in my cecum and need to have surgery on 11/12. I am not looking forward to more surgery yet thankful that I have remained cancer free. My youngest son was 14…
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Peter_S
Did you go to see the surgeon today? If so how did it go? Kim
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Worried I have colon cancer!
testing
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A Quick Tip To Help With Pain If You Have A Spine/Back Met (Worse At Night)
In my continuing effort to find every less common version of my cancer - from genetic mutations to metastsis patterns that are "weird," I decided to try out a tumor in my lower back that went into my spine (And yes the location of where in the spine it decided to show up is a rarer spot.) Kidding aside, this tumor came out…
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Anti-cancer effect of cannabis
Here is an article that discusses the potential anti-cancer effect of cannabis: https://www.liebertpub.com/doi/full/10.1089/can.2018.0010 C. sativa compounds interact synergistically for cytotoxic activity against colon cancer cells and induce cell cycle arrest, apoptotic cell death, and distinct gene expression. F3, F7,…
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Naked
Last scan showed no available know evidence of disease. Thanks new here for the new Ned phrase. haha i have been Ned now for 2 1/2 years. I am very blessed.
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My Sigmoid Colon and Choosing The Right Surgeon
Hi Folks, Hope all is well with everyone here and that fighting the good fight continues. I had a CT scan which showed that the middle of my sigmoid colon has gotten very narrow and this more than the cancerous tumor is what's causing the constipation and making it so difficult when I actually do try and get something to…
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Still doing well after nine years.
It has been awhile since I have posted here but I do like to drop by now and then to share my experience and hope with others. I was one of those people who didn’t have a colonoscopy when I turned 50 and didn’t until May, 2009 when I was 68 and only did it when I detected considerable amounts of blood in stools. I did the…
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HEMORRHOIDS
Does having colorectal cancer means you also have hemorrhoids?
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Coping With The Pain of Neuropathy
When I first was diagnosed with type 2 diabetes I pretty much shrugged it off and figured I would just east more salads, that was over a decade ago and I was an idiot. As time marched on and diabetic neropathy started in both my feet I became less of an idiot and began to take my situation more seriously. My heart goes…
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Another question on CEA
For those of you for whom CEA is considered a rather accurate predictor of reccurance, how long did it take from it starting to increase until things showed on a scan? Butt.
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Second opinion catch-22
So I started chemo as soon as I could after my surgery, and didn't want to lose time. I figured I could always get a second opinion down the road. I want one now (I have confidence in my doctors but would still like another opinion.) However, MDA and MSK won't do a consult while I am on treatment. Have any of you run into…
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Oxaliplatin/Xeloda (XELOX) Experiences
Hey Guys, About to start mop up chemo on Monday. Would like to hear your personal experiences with this protocol Oxaliplatin/Xeloda (XELOX). And also some suggestions/recommendations that may help while on this. Thanks!
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I am sure this happens a lot
Hello! I have a child with different medical needs so I am well versed in how medical message boards work, and I hate to be that person who doesn't have a diagnosis and is panicked, yet here I am! I am going in for a colonoscopy and an endoscopy next week. I am absolutely frightened. I can't even think straight. I know the…
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Another newbie
Hey folks, I was recently diagnosed with Stage 4 colon cancer. I am 54 years old and just had my first chemo treatment. I have a good doctor, a great support system, but I am paralyzed with fear. I can't put one foot in front of the other. Can anyone help me with coping mechanisms? Thank you!!
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MUCUS IN MY STOOL
Hi. I was diagnosed colon cancer last september 2016. I had colon resection but no colostomy. Doctor said my colon cancer is stage 3C and i needed to have chemo. But the news itself of having cancer terrified a lot in me much more hearing that i needed to have chemotherapy to eradicate cancer cells that has not been seen…
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Recently diagnosed
Hi folks, I'm Peter and I've been recently diagnosed with colon cancer. I'm still waiting for the pathology results from the lab to find out what stage. The Doc who did my colonoscopy told me that there was a growth too large to remove and he was confident it was cancer. A well informed hunch that he confirmed by telephone…
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Update on Husband
ive been lurking some here and there, but got a puppy to help take our minds off cancer and boy has she helped! last Time I posted I believe it was an updated on the new cancer found back in late summer after a scare in scans. Since then Rich completed 6 more cycles of chemo, making it a totle of 20 since last year when…
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New blood tests for colon cancer detection
WThere is a new blood test that has been developed by a SF Bay Area Company DiaCarta, Inc. (www.diacarta.com) called ‘ColoScape’ that has undergone a pilot study in Naples Italy and it looks very promising for the detection of early cancer. The company is planning a USA based clinical trial very soon.
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Hollister Brand
I was informed they stopped manufacturing. Is it correct? I use that brand for my ostomy supplies. Do you still get hollister brands these days? If not, what brand are you using? Any suggestions?
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My dogs are barking!
So I'm looking at 3 more treatment cycles of Avastin infusion and Xeloda pills. My side effects has increased over time. I have severe fatigue during the 2 weeks of pills and extreme nausea the second week. But my feet are terrible! I can hardly walk. They feel like they are burning up but they are not cracking and I keep…
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vectibix when rash start
Hi Everyone! My DH started a new medication Vectibix this week. The doctor said that developing a rash on face neck and upper body right away is good sign that the medication ( antibody) is working... He does not have any rash! Next infusion is in 10 days. Any thoughts/ experiences. Searching for hope. He is 53 years old…
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Chemotherapy forever - stabilizer??
Has anyone's oncologist ever said that they will probably be on chemo forever - part of daily existence to keep the cancer at bay. Is that possible - is cancer a manageable disease? Kind of like they treat diabetes, etc... Any thoughts??
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What is remission?
I just read an article about a guy who says he's in remission from leukemia. What does that mean? Is it the same as NED? Or can they tell that the cancer has slowed down and is not advancing? I don't see how anyone can be in remission. So often it's just a matter of they haven't found it yet. Like NED, no evidence of…
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Lonsurf
Hello everyone, just came home from the oncologist, and my wife’s CEA and CA-19 have gone up. The doctor feels the chemo’s are not longer working and is now putting her on Lonsurf. Just wondering if anyone has any advise as to what to expect. Any suggestions would be greatly appreciated. Kevin
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CEA 283ng/dL with two small lesions on PET scan
Hi all, I posted here 18 months ago when my CEA was still just 10ng/ml so I thought I would do an update to let you know what has been going on..... Time frame: 18mnths. Tests: Mammogram, Fecal occult blood test, PAP smears, Multiple pathology tests including chromagranin A and 5HIAA urine, Abdo CT with contrast, nuclear…
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Searching for treatment options
Has anyone been to one of The Cancer Centers of America for treatment? Desperate to find somewhere that doesn't think I am a hopeless case--even though I only have 2 tiny mets in Right lung I have been pretty much told to measure for a casket. Primaryl tumor in cecum/ascending colon and Omentum were removed in March,…