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CEA slowly ticking up but no evidence of disease
Good Morning, I am seeking advice if anyone has anything. I was diagnosed with Rectal cancer in June 2013. I had radiation/chemo/sugery/more chemo and then a small recurrence in my liver. I had surgery to remove that and now I am on maintenance chemo. My CEA continues to tick up although I am on avastin every 3 weeks and…
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ELIXORS
Has anyone been given Elixors (PrugX, Rinubo, Sayunt etc) while receiving chemotherapy?
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Hurricane Florence
Please take a moment to offer prayers, good thoughts or whatever your preference, to those who will be impacted by hurricane Florence. Given its size ( about 200 miles wide) and the probability of widespread prolonged rains over several states causing major flooding, it is nearly impossible to escape its effects if you are…
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Is Ablation considered a surgery that can "cure"
I feel like a lightbulb just went off. When oncologists say only liver surgery has the potential to be a "cure", does that include ablation? I think until this moment, I was thinking of it as just a quicker way to shrink the tumor than chemo, but if it has the potential to mean a longer, healthier life, I think I have to…
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Stage 3 or stage 4??
My doctors have told me that I’m “stage 3/ kinda stage 4”. So far I’ve done six weeks of 5fu and radiatio. I’m scheduled for APR surgery tomorrow. So, today I found out what the “kinda” part of my staging meant. My original scans showed bilateral adenocarcinoma in my inguinal (groin) lymph nodes. When I asked if they are…
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They ask for a lot of stuff for a second opinion appt
They ask for a lot of stuff for a second opinion appt. Not just paperwork, I have to get a DVD of the scans and tissue samples from my surgeries. I was really hoping not to let my oncologist know, but guess not.
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You don't look like you have cancer.
I took a car service home from the pet scan. The driver asked why I was there, told him, and he says, you don't look like you have cancer. I get that a lot. In fact, at my pre-surgery vitals a few days before my liver resection, the admin said that to me when we got to the point where we got to why I was there. What do you…
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cost
How do you pay for your cancer treatments ? The cost is sky high !!
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Are liver mets resectable? Article says it depends on who you ask.
I have seen this issue come up on the board. Hopefully this article is helpful to those facing it. http://canjsurg.ca/wp-content/uploads/2018/07/61-4-251.pdf Assessment of resectability varied significantly between specialties, and resectability was often underestimated by nonhepatobiliary surgeons. Hepatobiliary referral…
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Can't find cancer
An oncologist says I have colin cancer but I do not have a colin and they have done all kinds of tests and all of them were negative. This doctor is a narcissist and will not accept that he may be wrong. They say I have a spot on my lung from this but I had a colapsed lung and it may be scar tissue from that. What do you…
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Information wanted and prayers requested
Hi there This is my first post ,I generally dont post on forums but I don't know where else to turn . I have a doctors appointment tommorow morning so not looking to self diagnose but I'm absolutely terrified. I've been having loose stools and what I thought were alot of symptoms that sounded like IBS .I've been having 3…
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Paranoia
Okay so I guess most, if not all of us, are quite paranoid whenever a single ache, pain, or any irregularity happens in a certain body part and we fear that the cancer has spread there. Recently I sometimes experience shortness of breath which is I know a symptom of a lung met. My last scan was May 31, around 4 months ago,…
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Abita, did you get your results today?
from your pet scan? I am hoping you got good results and if not at least answers and a plan. Thinking of you!
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Maintenance Chemo Pills
MRI shows the liver tumor is gone and the chemo shrunk the cancer in many of the lymph nodes including the aorta lymph node. The doctor wants to do maintenance chemo pills but says they are very, very expensive and insurance does not treat it the same as intravenous chemo. Has anybody had experience with the maintenance…
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End of the road for treatments
Well, we got his latest scan, I believe 10 spots in both lungs have grown (double size at least). The doctor told him to stop taking Lonesurf, it is not working. He might be able to do a clinical trial? We will see.
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Post Surgery Questions
Hey Guys, My Abdominoperineal resection (APR) Surgery is scheduled for next Wednesday the 5th and I'd like to ask some opinions from some of you LAR, APR, colorectal surgery survivors ;) I know everyone has "different experiences and recovery rates but these are just somethings I've been thinking about. 1. How long after…
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Today its TWINZMA's turn
Thinking of you and your hubby, and hoping all is going well. Tru
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Lots of Polyps
Hello, New here and first-time poster. I have not been diagnosed with Cancer at this time. I have had 2 Colonoscopys; today and 30 days ago, with another scheduled in 30 more days. I had approximately 70 polyps, which I realize is a lot. 46 have now been removed, with several going to pathology today. The Doctor removed…
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An idea for making DCA usable for colectral cancer
I have an idea using DCA in the combination of Atovaquone (both orally) for removing opposite effect of hypoxia. Any experience or idea on effectiveness on colon or dose correlation between two agents are welcome More info: https://www.nature.com/articles/ncomms12308 What makes does correlation, crucial: using DCA alone…
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DCA
I "paid" a visit to a naturopath doctor yesterday. He said he went to a conference last weekend. Supposely there were very good results with a clinical trial in Toronto, using DCA. DCA has been talked about before. It's one of those things that a pharmaceutical company won't invest in....no money to be made. DCA has…
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Is Avastin worth the possible side effects?
My oncologist wants me to have that with the Folfox. I was reading the possible side effects and YIKES! Does anyone know if that drug is worth the risks?
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Roswell or sloan kettering for stage 4 RECTAL cancer
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Stivarga
I am trying to find out has anyone had any success on Stivarga and what side affects did you experience. My husband has stage IV Colorectal Cancer and they want him to start on Stivarga. He cancer has spread to his liver, lungs , spleen and lymph nodes. My concern and what I have read is that the Stivarga can cause him to…
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Xeloda Starting Dosage
My husband has just completed eight FOLFOX/Avastin treatments (he had to stop Oxi after 4 sessions) for his stage four recurring colorectal cancer with mets to liver and lungs. His most recent CT scans showed stable disease in abdomen, slight decrease in liver, and slight increase in lungs .... his oncologist has switched…
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Busybody Lately
Had been busy lately doing bracelets, pendants and rosaries to sell in local stores in town. All made of genuine stones such as Amethyst, Citrine, Peridot, Jade, Garnet, Tiger Eye, Black Onyx...it is fun to have something you like to do and make extra money and meet new people after going through hardtimes. Being a cancer…
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CT scan results
So prior to changing my chemo from avastin, irrintecan, and 5-fu to avastin and Xeloda, my oncologist ordered a CT scan. I'm NED! I'm so relieved. I was so scared that the cancer has come back in the short time since April. Now I'm ready to continue the chemo to the finish! K
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Constipation
I wonder has anyone give good recommendation for constipation other than dulcolex or senna, they don’t help me enough. I have horrible lower abdomen cramping last 3 days. I called my oncologist’s office adviced me to take Nexium but it still continue. Thanks Kadir
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Newbie here. A few questions
Hey Everyone, Newbie here. Like most of you, I never thought this would be a forum I would be joining, but ... here I am. I'm sure I will be inundating you guys with all kinds of questions and I'm glad an outlet like this exists for us. Thank you ACS! Personally, I am in good spirits considering, and trying to stay…
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Rising CEA
Hi all! When I was diagnosed was given "possibility" of cure with full treatment. Chemo/radiationX6weeks, surgery (laparascopic assisted APR), and followup chemo Oxaliplatin and 5FU pump for 4 months. Did all that. May CEA 3.8, down from 4.7. Last CEA 4.0. Research shows if CEA doesnt normalize after surgery it is highly…
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POMEGRANATE PUTS CHEMO & RADIATION TO SHAME
https://www.energytherapy.biz/2017/10/26/pomegranate-puts-chemo-radiation-to-shame/