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Once again seeking encouragement
Diagnosed in May 2017. 28 chemo/radiation treatments Summer 2017. Rectal removal and permanent colostomy surgery October 2017. Mets to liver, multiplying. Folfiri Spring 2018. Interrupted by broken hip early July of this year. Got some lab work done at my PCP and he sent me to the ER today to check for a blood clot. No…
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Short Bowel Syndrome
Does anyone else have this? They told me I'd have it now after the last sugery. I got a booklet that gave a bit of an outline and suggested things like eating more salt. Actually putting salt in orange juice or gatorade. Canned soups- full of sodium- are also supposed to be good for me. And processed meats, one of the…
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Infusaport placement
Well I have had 2 ports placed on the Right side and both have gotten infected after about 6 weeks, I am dut to have a third port inserted but this time on left side. Has anyone had any bad effects from the port on the left side? My inner nervous Nelly dreads the thought of it so close to my heart. Any info/thoughts…
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Not sure if this a setback or not *update with good news!*
my husband has been having severe gas pain after eating and Saturday it reallly got bad. I thought it was pancreatitis but his blood test was good. He had a ct scan in the Er here and they said he had bile duct leak, his surgeon at Sloan said he didn’t think so, however he never said what he thought it is. So we…
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Gum mastic health benefit.
Another natural plant benefits. The resin of Pistacia lentiscus (L.) var. chia (Duham), an evergreen shrub belonging to the family Anacardiaceae and uniquely cultivated in southern Chios, is known as mastic. It has been used for more than 2500 years in traditional Greek medicine for treating several diseases such as…
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Interesting article on heart problems with 5FU or capecitabine
I was one of the "lucky" people to have had heart issues on capecitabine. Before this occurred, I had no idea it could happen and I had no heart issues whatsover. This new article discusses, in-depth, heart problems related to chemo and may be of interest to anyone who has had such issues, or those on chemo so they can be…
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unexplained weight loss prior to diagnosis?
Hi everyone... Have any of you experienced unexpected weight loss prior to diagnosis? I was diagnosed with Stage III colon cancer waaaayy back in 2002! I have steadily lost weight over the last four months for a total of 22 pounds. Of course I am concerned about a possible met or recurrence. I would love you hear from you.…
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TCM, Immunotherapy, Exercise, O For 3 For Me - Radiation and Chemo Time
Have not logged in or posted in awhile. The title is pretty much the situation. Lymph nodes have been relatively stable/growing slowly this whole time. But in two months between scans the cancer is going crazy. Lungs had substantial increase in number and size. There are other suspect locations, including the liver. And…
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Update for "Terrified"
I received the MRI report today and "there are no suspicious lesions". I am SO RELIEVED. Thank you all for being there for me. It was so helpful to come here and share my fears. Bless you all. I am now 5 years NED Love to all Kelley
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11 YEAR ANNIVERSARY
Tomorrow's a busy day for me so I'll leave this here now, 11 years have past since I wrecked my wife's birthday fun with a diagnosis neither of us really saw coming. Tomorrow I'll put her ashes in the columbarium at the cemetery, toast her birthday with some of the kids, and move on with my life. I'm four years NED from…
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Wine and initial CRC risk
Raise your glasses (at least there is something we can be happy about): https://www.ncbi.nlm.nih.gov/pubmed/30247171 Neither light to moderate (<2 drinks/day; SRR=0.93, 95% CI: 0.80-1.08, I=69.2%) nor heavy (≥2 drinks/day; SRR=1.00, 95% CI: 0.86-1.16, I=39.9%) consumption of wine was associated statistically with CRC risk.…
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A Lot of Tears, Stress and a False Alarm
Hi all, Well, the tests all began on September 28th. I had my CEA blood work. It came back stable. I had a scope with my surgeon, it came back clear. Then I had the CT scan and it came back with suspicious findings in an area near my last recurrence. My Oncologist was immediately convinced it was an early recurrence and I…
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Less strength
Have any of you with recurrences felt defeated? I didn't enjoy the first go at chemo, but I felt like I would do it and then be okay. I had my first round for recurrence and just feel so defeated this time. If it weren't for the energy of my kitten, I think I might be sad a lot.
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weight loss big time
Good Morning, I'm new here. My husband has stage iii T4 N2 M0 rectal cancer. Diagnosed in June. He started chemo in August. He's getting ready for his third treatment on Friday. He's on Xeloda /Capecitabine. Over the last year, he had lost weight (probably about 20sh pounds). Since he's started chemo he has lost about…
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Questions on behalf of my mother
My mother has stage 4 which has spread to the liver. She did 4 or 5 treatments with Folfiri but the tumors have grown/multiplied and they have switched her over to Folfox and Avastin. She is experiencing first bite syndrome and she can't hold anything cold - her fingers pain her when she does. I understand that these are…
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Folfox vs. Folfiri
I have completed 6 cycles of FolFox and have neuropathy in fingers that I am afraid may be permanent, I am hoping to switch to FolFiri--is there any diffference in their efficacy? I went for seond opinion at Mayo and the rather cold hearted oncologist told me he steers away from Oxiliplatin , says it is what the "older"…
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Fistulas & surgery, a little graphic
Once again I've ended up with an uncommon side effect that few people seem to get. How did I get so lucky? So, for the past year, since the sepsis, I've never really felt right. Nausea to varying degrees every single day. Weak, no stamina, just feeling miserable. I was beating myself up mentally for it. Thinking maybe I'd…
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Feeling defeated scared desperate and looking for opinions pls
Hi again , So I have Been having weird symptoms that could be a number of things Its mainly being bloated and having dirrehea , Its not every day but over the last month I dont seem to be able to go more Than 3-4 days of having normal stools and then I'm normally getting either liquid dirrehea, looser stools and/ or poop…
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Terrified
Hello all~ In 2013, I had a colon resection for a cancerous tumor and had 9 lymph nodes removed. One of those was infected so I did 6 months of Xeloda. Tried Oxaliplatin but had a bad reaction after the first infusion so just stayed with the Xeloda pills. Since then, Ive had ct with contrast, blood tests and colonoscopies…
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severe diarhea
My husband, who has stage 4 colon cancer with met to the liver, is currently in the hospital for severe diarhea due to Xeloda. Anyone else have something like this? Any suggestions? He is coming home in two days with IVs and will have to delay his last two chemo sessions (3 weeks each).
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Abrub follow-up
New growth, but essentially status quo I’m just back from Sloan Kettering and my latest MRI and dr’s appt. While the MRI has shown some definite tumor growth (we don’t have the full report yet with exact measurements) my surgeon is not overly concerned. We do have to watch it, but he believes it to be confined by scar…
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Lung mets, wehat about the other lung?
So I have four mets in my left lung but nothing in my right lung. Does anyone know the odds of having it transfer to the other lung at some point? Or does it usually just stay in one? Thanks! I'm leaving it to those who are far bettr at research than I am. Jan
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Dropping by to say hello
Hi everyone, year six cancer free. Sadly with the permanent problems life moves in up and downs but all in all, hey I'm still here and I've learned to manage. 48-1/2 and still ticking. Wishing everyone NED. Love from Helen
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Proton therapy
Wondering if anyone familiar or having had this therapy would explain the criteria for having this treatment--specifically for lung mets? And if the thrapy worked? Thanks so much!!
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Follow up time
hi everyone i hope everyone is doing great this group and people here are real inspiration i joined this group when i was severly depressed as my Father had a tumor in colon which was removed in 2017 since then i have been in touch this time he is supposed to get his annual colonoscopy in October i request eveyone to pray…
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More articles
The CRC breakup? http://www.mdpi.com/1422-0067/19/9/2577/htm Colon cancer (CC) and rectal cancer (RC) are synonymously called colorectal cancer (CRC). Based on our experience in basic and clinical research as well as routine work in the field, the term CRC should be abandoned. . . we conclude that CC is not the same as RC.…
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10 Days Post Op
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Avastin and pancreatitis?
i found some vague findings pointing to it, that's what my husband seems to have right now. They originally thought intestinal infection but his lipase and amylase numbers doubled in 12 hours. Staying in the hospital tonight, IV antibiotics,
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Nutrients deficiency question.
Hi, I have some question to people with similar problems. Did your oncologyst check your nutrient deficiency during routine blood test. To our big surprice oncologyst in John Hopkins (Maryland, Baltimore) where my sister get her treatment don't chek it. She was lack of vitamin D, less than 13 ng/ml and they never checked…
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whuch hospital
Hi. I have Stage 4 RECTAL cancer. My oncologist basically said we will keep you comfortable and stay on chemo. Nothing can be done with lung nodules. I have narrowed it down to Roswell in Buffalo, Sloan Kettering or MD Anderson for my 2nd opinion. Anybody recomment one over the other for rectal mets to lungs?