Peter Peter Pumpkin Eater
I thought for a moment that Peter had been completely wiped off the forum, but alas, I see that he joined in October, so his initial posts have not been lost in cyber space.
Obvioulsy, with his good news, we may see less and less of him. Its a hard forum at the best of times, and when you're doing well, its nice to put the forum behind you.
Still, I hope he pops in now and again. He has a unique sense of humour and a great ability to entertain and support with his writing skills.
Tru
Comments
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Is hanging around the forum good or bad?
I often ask myself if hanging around the forum is good or bad? If I were a stage 1 like Peter, I think I would sign off unless my condition worsened. Personally, I think hanging around is good for me. It helps me to see what other people are thinking, to occassionally pick up tips and perspectives that are helpful, and hopefully, on rare occassions, to offer help to others. So whether Peter is still here or has moved on, I wish him the best.
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Well, I’ve never reallySandiaBuddy said:Is hanging around the forum good or bad?
I often ask myself if hanging around the forum is good or bad? If I were a stage 1 like Peter, I think I would sign off unless my condition worsened. Personally, I think hanging around is good for me. It helps me to see what other people are thinking, to occassionally pick up tips and perspectives that are helpful, and hopefully, on rare occassions, to offer help to others. So whether Peter is still here or has moved on, I wish him the best.
Well, I’ve never really received a warm response how I have from a few, but not many. that may deter some as it would have me had I not been asking about my love!I would say, please do continue t leave Info. You give so much helpful InfO. Please Know just how much this forum is needed. As soon as Richard was diagnosed I found this forum and it guided his life I. So many ways. Richard , the one diagnosed with stage 4, has no clue or interest about this forum, but he loves the help we’ve received. Richard knows I have a forum I talk to help. A place to ask random questions. Please all of you that contribute don’t let it end. Our family appreciates and needs all of your insight! Thank you
j always have typos because I am always working and taking care of my hubby...sorry I am not a 70’s baby and just white outted stuff! No white out on the phone!
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This place is damn handy when
This place is damn handy when you need it, for many reasons, but it can be frustrating and painful too, so I get people stepping back or moving on past a regular presence. The first thing most folks are looking for is hope, and a place to express their fears and concerns. I've noted that certain cancer blogs have little activity, even allowing for frequency of occurance, like "brain cancer" or pancreatic cancer", and I assume it's because hope is much harder to find with some cancers. We have a wide spectrum of results here. I told myself early on that if I had an ultimately good set of results, I'd stick around to share that, but while we cheer each others milestones and good reports, sometimes it feels like repeating the same story is my celebrating in the face of other's misery. I know it isn't usually taken that way, but it's easy enough for me to have survivor guilt just on my wife's story alone. The information brought here is great, and I read every bit of studies and technical info. that shows up. I know in my heart that soon the breakthroughs are coming that will render this stuff into chronic conditions, and all who come here will have real hope and certainty, but until then it hurts to read of disease progression and what it's doing to people who's stories I know, who's pain and fears were mine too, at certain times. Staying connected is a meanful thing for me, but it does have it's price to pay, reading of brave, regular folks in pain, filled with fear that I can do little about, other then say, "Hey, I made it to this point, implying that they can too, when it's all so "up in the air" as to who catches a break and who just keeps fighting..............................................Dave
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when I first joined
The forum was really hot and moving fast with many, many members. There were posts filled with great info, some contentious posts, with strong willed charachters butting heads. Members getting banned and worse still members passing away by the week.
The forum has slowed down, and so have the deaths, or at least the deaths we are notified about.
Many, many members found it very hard to stay with the forum when their friends were passing away. I wish they would come back, with all of their wisdom and knowledge.
And of course, many who are NED WANT to leave the forum, as Butt said, leave it all behind like a bad dream. And there are some of us who WANT to stay and it is good both ways.
I have several Facebook friends who are NED and no longer post to the forum. It warms my heart to see them posting on FB about their wonderful lives.
Still, I like it when our NED friends pop back and hit off a 'I'm loving life' post
Tru
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CrashTrubrit said:when I first joined
The forum was really hot and moving fast with many, many members. There were posts filled with great info, some contentious posts, with strong willed charachters butting heads. Members getting banned and worse still members passing away by the week.
The forum has slowed down, and so have the deaths, or at least the deaths we are notified about.
Many, many members found it very hard to stay with the forum when their friends were passing away. I wish they would come back, with all of their wisdom and knowledge.
And of course, many who are NED WANT to leave the forum, as Butt said, leave it all behind like a bad dream. And there are some of us who WANT to stay and it is good both ways.
I have several Facebook friends who are NED and no longer post to the forum. It warms my heart to see them posting on FB about their wonderful lives.
Still, I like it when our NED friends pop back and hit off a 'I'm loving life' post
Tru
It seems like the computer crash has also hurt forum participation. I thought CSN would give a little more explanation, but none has been forthcoming. I am sure it is frustrating to recent members (Peter included) to lose the posts they have worked on so hard. I have been trying to post a little more to fill the vacuum. Hopefully things will return to "normal" soon.
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LOL Funny subject line Tru!
As for me, I find great hope in stories such as yours, Dave, Dan, and Sandia. I haven't tried all the supplements that Sandia has and hope to add more to my health regime.
I have found alot of helpful information on this site and have tried to help others regardingthe treatments I've recieved and outcomes.
Life gets busy and totally understand when people don't post for awhile or when they stop altogether.
I look forward to the day when I can say I'm also NED!
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Guiltbeaumontdave said:This place is damn handy when
This place is damn handy when you need it, for many reasons, but it can be frustrating and painful too, so I get people stepping back or moving on past a regular presence. The first thing most folks are looking for is hope, and a place to express their fears and concerns. I've noted that certain cancer blogs have little activity, even allowing for frequency of occurance, like "brain cancer" or pancreatic cancer", and I assume it's because hope is much harder to find with some cancers. We have a wide spectrum of results here. I told myself early on that if I had an ultimately good set of results, I'd stick around to share that, but while we cheer each others milestones and good reports, sometimes it feels like repeating the same story is my celebrating in the face of other's misery. I know it isn't usually taken that way, but it's easy enough for me to have survivor guilt just on my wife's story alone. The information brought here is great, and I read every bit of studies and technical info. that shows up. I know in my heart that soon the breakthroughs are coming that will render this stuff into chronic conditions, and all who come here will have real hope and certainty, but until then it hurts to read of disease progression and what it's doing to people who's stories I know, who's pain and fears were mine too, at certain times. Staying connected is a meanful thing for me, but it does have it's price to pay, reading of brave, regular folks in pain, filled with fear that I can do little about, other then say, "Hey, I made it to this point, implying that they can too, when it's all so "up in the air" as to who catches a break and who just keeps fighting..............................................Dave
Dave, I find the stories of survival inspirational. Please keep posting them, it gives hope to those who are facing challenges. In truth, the setbacks people post are heartbreaking, but they are also a reminder of the mortality all of us face so concretely. Having a community that understands is invaluable to me.
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I am sure he will come back
and check in every now and then.i know when my husband was better I took a long break. It’s hard sometimes to see what could happen. I check in often to make sure everyone is ok so many of you I really care about. Right now I am in new puppy hell with addition of Abby a now 9 week old golden retriever to our family. It sure distracts you! Lol
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Just Hanging AroundSandiaBuddy said:Is hanging around the forum good or bad?
I often ask myself if hanging around the forum is good or bad? If I were a stage 1 like Peter, I think I would sign off unless my condition worsened. Personally, I think hanging around is good for me. It helps me to see what other people are thinking, to occassionally pick up tips and perspectives that are helpful, and hopefully, on rare occassions, to offer help to others. So whether Peter is still here or has moved on, I wish him the best.
I'm just hanging around just to see if I'm able to help others. Sure there are times I've left the board, at one time for 1 1/2 years, only checking in ocassionally. It was a time my husband was diagnosed with kidney cancer and just months before that my 52 year old brother was diagnosed with terminal cancer. This board just seemed too much for me so leaving was best as my heart was elsewhere. But after my brother died and my husband recovered my mind kept coming back here to see if there was someone else that might need my experience or just a kind word. So I'm still here - just hanging around
.Kim
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Happy and sad
Always happy to read your posts. Sad to hear about your beloved doggie friend, Harley. Like humans, we know a the time will come, but knowing doesn't take away the hurt and the days of hoping they will come around the corner.
Internal neuropathy sounds awful. This winter weather is playing havoc with my external Neuro, and I'm hoping weather doesn't effect yours. I am intrigued.
At one appointment, my Rad Onc wanted to do yet another rectal exam, and when he told me to 'gown up', I actually shouted 'No!'. I didn't realize that I had shouted - the look of shock on his face was a treat thuogh - anyway, after a chat he wrote on my records 'Exam fatigue' and I bet that is what you are expereincing 'Doctor appointment fatigue'. We just want a break.
Anyway, happy to see your post.
Tru
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Sorry to hear about Harley
Peter,
My heart aches for you, I know how devastating it is to lose a beloved companion, but I know he was cared for and loved by the two of you. We lost our two older cats this year to kidney failure and we dread the day that we lose our dog, Lucy.
I'm glad to hear that you are generally doing well healthwise and I hope your internal neuropathy isn't causing serious problems and they can find a way around the problem. I understand wanting to take a break from doctors. As one of the nurses told me that I will most likely be "sick and tired of being sick and tired". Guess what, she was right. I am more fortunate than many on this board because I have been NED for a couple of years now, but the after effects of treatment have definitely taken their toll. I am also getting "scares". I have lumps in my thyroid that are most likely benign (they have been biopsied and that was something I hope no one here has to experience) but are yet another thing that needs to be checked on periodically.
Also happy to see your post,
Ellen
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Sweet HarleyPeter_S said:Had a Wife, Divorced Her, Married The Brother....
Tru that's how I remember that tale ...
Frankly I'm shocked to find out that I still haven't been banned from from this place. After all is was my long winded posts that broke this site in the first place. Although I usually make it a rule to avoid any club that would have me as a member - I'll always be a member here, because it's here that I found the support and the strength to fight cancer.My beloved Harley died on January 31 and it's been a devastating loss, the avatar of me 70 pounds ago and Harley should dispel the ridiculous notion that owners look like their dogs. For although there is no denying that I am pure eye candy - it's easy to see Harley was the more handsome one, he was so dapper and debonair. So hearts have been heavy around here and like Hoke says in Driving Miss Daisy "we're doing the best we can" I made an online memorial to him in case anyone would like to stop by here's the link:Health wise, the good news is I've been keeping the weight off, despite what my surgeon told me - the not so good news is that the internal neuropathy we had feared may cause a problem, is causing a problem. I took a much needed break from seeing doctors but I'll need to make an appointment this week and get myself checked out. All of you are never far from my thoughts and my hope is always that everyone is well - Peter
So very sorry to hear of your loss. Our furry friends are such an intricate part of our lives. They return the love given them 100 fold. They know when we need an extra amount of love and support. I have had a number of these extended family members, both canine and feline, and each continues to hold a special place in my heart for all they gave to my life.
The tribute you posted is grand and lets those of us who never had a chance to met him, know the Harley you love.
May the tears you shed for him be replaced with a measure of happiness as you remember his time with you.
Hugs,
Marie who loves kitties ( and doggies too)
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Ellen You're a Real Peach...ellend said:Sorry to hear about Harley
Peter,
My heart aches for you, I know how devastating it is to lose a beloved companion, but I know he was cared for and loved by the two of you. We lost our two older cats this year to kidney failure and we dread the day that we lose our dog, Lucy.
I'm glad to hear that you are generally doing well healthwise and I hope your internal neuropathy isn't causing serious problems and they can find a way around the problem. I understand wanting to take a break from doctors. As one of the nurses told me that I will most likely be "sick and tired of being sick and tired". Guess what, she was right. I am more fortunate than many on this board because I have been NED for a couple of years now, but the after effects of treatment have definitely taken their toll. I am also getting "scares". I have lumps in my thyroid that are most likely benign (they have been biopsied and that was something I hope no one here has to experience) but are yet another thing that needs to be checked on periodically.
Also happy to see your post,
Ellen
Thank you so much, I don't know why but for some reason I thought I would handle it better but I find myself broken and mourning him terribly, I believe that when you love deeply your brain doesn't care if the loss is human, canine or feline you just move through the day and wait out the nights until that pain isn't as raw or sharp. I'm sorry to hear of the loss of your cats, and am glad to know that Lucy is still with you - and I know that feeling of dread I truely do but I would say that the aftermath is unavoidable and it's the price - the price we pay for all we get in return, I hope you'll give her a giant hug aand kiss for me.
I would tell you not to worry about the bumps so, don't worry about the bumps just do as the Dr says and keep an eye on them - without even saying a word it sounds like an awful torture you had to endure but as long as these things keep you NED I'm thankful and happy for you - Peter
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Sobbing And Glad...Trubrit said:Happy and sad
Always happy to read your posts. Sad to hear about your beloved doggie friend, Harley. Like humans, we know a the time will come, but knowing doesn't take away the hurt and the days of hoping they will come around the corner.
Internal neuropathy sounds awful. This winter weather is playing havoc with my external Neuro, and I'm hoping weather doesn't effect yours. I am intrigued.
At one appointment, my Rad Onc wanted to do yet another rectal exam, and when he told me to 'gown up', I actually shouted 'No!'. I didn't realize that I had shouted - the look of shock on his face was a treat thuogh - anyway, after a chat he wrote on my records 'Exam fatigue' and I bet that is what you are expereincing 'Doctor appointment fatigue'. We just want a break.
Anyway, happy to see your post.
Tru
Thank you for the kind words about Harley, for thinking of me and for starting this thread. It's a lovely gesture Tru, but you should know enough about me by now that I would have been happier with cash. Your right about loss and grief our hearts don't know or care if we're grieving for humans or doggies, they just know they're broken and if you ask me at the end of the day all that matters is the love and the loss of that love, that shattered the heart to begin with - whew now that was a long sentance.
I was as surprised as you by "internal neuropathy" because my only experiance with it, as you know with my feet, especially the right one. In fact it wasn't until I joined here and met Rob that I actually had the chance to get to know someone else whose case was as severe as mine, there's a lot to be said for that misery loves company notion, it always helps to know you're not alone. Anyway the surgeon explained all the nerves throughout the entire body can be effected. It's the nerves that keep the colon moving in the wave like fashion that they do, neuropathy would stop that process and not to mention hurt like a ****** ***** sheesh even with cancer you can't talk like a sailor.
I think they'll start me off with a colonoscopy so I already have a martini glass in the freezer, all ready for my Suprep and if you like I'll chill one up for you too. Thanks again you're a sweet kid, regardless of what they say. Peter
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Marie You're One Kool Kitty kat...Lovekitties said:Sweet Harley
So very sorry to hear of your loss. Our furry friends are such an intricate part of our lives. They return the love given them 100 fold. They know when we need an extra amount of love and support. I have had a number of these extended family members, both canine and feline, and each continues to hold a special place in my heart for all they gave to my life.
The tribute you posted is grand and lets those of us who never had a chance to met him, know the Harley you love.
May the tears you shed for him be replaced with a measure of happiness as you remember his time with you.
Hugs,
Marie who loves kitties ( and doggies too)
Thank you so much for the kind words and for taking the time to read Harley's memorial, it was one the most profound relationships of my life. He was an angel in a doggie suit he just didn't think I knew. All our beloved pets are and the ocean of grief we feel at their passing is a small admission fee for all we get in return. Like you I have a long list - too long, but they live in our hearts and I suppose that's how it should be.
Edward Albee wrote a beautiful poem "Samantha" about this very thing do you know it? If not or if you would like to read it again here's a link, and thanks again Marie, very much. Peter
http://aftertherainbowsend.com/post/17274511546/samantha-by-edward-albee
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Had a Wife, Divorced Her, Married The Brother....
Tru that's how I remember that tale ...
Frankly I'm shocked to find out that I still haven't been banned from from this place. After all is was my long winded posts that broke this site in the first place. Although I usually make it a rule to avoid any club that would have me as a member - I'll always be a member here, because it's here that I found the support and the strength to fight cancer.My beloved Harley died on January 31 and it's been a devastating loss, the avatar of me 70 pounds ago and Harley should dispel the ridiculous notion that owners look like their dogs. For although there is no denying that I am pure eye candy - it's easy to see Harley was the more handsome one, he was so dapper and debonair. So hearts have been heavy around here and like Hoke says in Driving Miss Daisy "we're doing the best we can" I made an online memorial to him in case anyone would like to stop by here's the link:Health wise, the good news is I've been keeping the weight off, despite what my surgeon told me - the not so good news is that the internal neuropathy we had feared may cause a problem, is causing a problem. I took a much needed break from seeing doctors but I'll need to make an appointment this week and get myself checked out. All of you are never far from my thoughts and my hope is always that everyone is well - Peter
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Peter
I am so sorry about Harley, you think you will do better than you actually do. Trust me I know, I thought I would be ok my Max died in June. Wrong, I cry all the time, in pet stores, in the house, I can’t even say his name. He is the fourth dog have lost, each one of them takes a piece of you when they go. Right now we are in puppy hell with our now 10 week old golden retriever Abby. I apparently like chaos since we got a boy lab mix in September. It’s crazy i Know!
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So sorry for Harley’s passing
So sorry for Harley’s passing, Peter. Losing a pet can be very hard. Harley was lucky to have you and Sean as parents.
im glad to see you posting again and hope they can help you with the internal neuropathy. I’ve never heard of that before but it doesn’t sound like much fun.
Your online memorial is beautiful!
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