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Mojo and "Hope"
As I have gotten older, things I thouht were written in stone crumbled to dust. I say that in a good way. I am spiritual, but not religous even tho' I was raised in a holy rolling Nazarene church with a preacher who stomped his feet and scared God into you. By the time I was a teenager, I was convinced I was doomed to hell…
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Butyric acid.
Multiple studies have shown butyric acid’s potential ability to fight cancer, especially cancer in the colon. It’s actually shown an ability to “modify nuclear architecture” and induce the death of colon cancer cells. This is likely a huge reason why increased fiber intake has been linked with less colon cancer since…
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The Energizer Bunny
He will never cease to amaze me this Energizer Bunny I am married to! Thursday he had the second round on the Thermospheres and here today his is up and about and driving me batty. He won't stop! I keep reminding him don't bend, don't lift, don't climb the stairs! I finally have him sitting in the recliner and what is he…
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I have rectal cancer
Hello my name is Christy. Because it may effect how my treatment goes forth and what advice people can give me I would like to disclose that I am male to female transgender. I'm also forty-two years old. I felt sick in early January as well as tired and having some rather gross bathroom problems. I went to my family doctor…
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What do you do with those people?
Who are your friends and I mean most of them are very close friends. Those people who call you or text when it is convenient for them because they are concerned that I believe and need updates on your health? They expected to be filled in promptly and if you do not return their contact in a timely manner launch a further…
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the cancer has humbled me
When I was in my early twenties I went through a deep depression. I stopped working and I slept all day and did nothing. My family and eventually the therapists I got sent to all told me I was lazy and needed to get a job. I got some minimum wage jobs that paid next to nothing. I ended up living in motel rooms and sleeping…
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PET scans are boring
forty-five minutes watching TV in a room trying not to think about the radioactive gunk they injected me with followed by thirty minutes laying inside a machine. I damn near fell asleep in that thing Oh well that's enough complaining. Christy
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Hot beverage suggestions
Anyone have suggestions for hot/warm beverages? I can't tolerate coffee and I'm so sick of tea I'd rather not have any for the next couple decades. I'm just finding that each treatment I can't even have room temp beverages for 8-9 days. I'm just about at the point I'd rather not drink and just go to urgent care to get IV…
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oh well
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Good News, possibly bad news
Well, this post was lost by the site outage. I got my results. The good news is my liver is NED. The possibly bad news is that a lung nodule that has been on every scan at .4 mm I received since I was diagnosed was .8 mm on this recent scan. Now, my oncologist consulted with a few radiologists, one of whom is a lung…
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I spoke with the chemo doctor
I spoke with the chemo doctor yesterday and they came up with a treatment plan. I still have to meet the sugreon today and the radiologist next week but the plan is pretty much set up. Either the last week of February or the first week of March I will start a low dose chemo treatment in pill form. They say the purpose of…
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Surgery #5 tomorrow
Clear liquids and the joy of bowel prep today, in anticipation of my surgery at Memorial Sloan Kettering tomorrow. Hopefully, all will be straightforward, and I'll be home in a week. Doing my best to keep busy today! Hoping that this recurrence is the last one, and he can close me up for good! (I begged for a zipper, but…
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Any News About Mojo?
I've been thinking about her so much and thought her surgery was set for either Feb 6th or the 10th - I just saw she had signed Harley's guestbook, so I must have my dates wrong, because that would be impossible. Then again considering Mojo and her tenacity, maybe not so much! Any news would be appreciated, I would love to…
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Peter Peter Pumpkin Eater
I thought for a moment that Peter had been completely wiped off the forum, but alas, I see that he joined in October, so his initial posts have not been lost in cyber space. Obvioulsy, with his good news, we may see less and less of him. Its a hard forum at the best of times, and when you're doing well, its nice to put the…
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Zinc Sulfate for loss of taste
I am taking Xeloda as chemotherapy. Prior to diagnosis I started losing my sense of taste. For a while after surgery I got my sense of taste back and then when I started chemo I lost it again. The dietician I spoke with thought that Zinc Sulflate would help solve the problem, but it might take up to a month. Cancer can…
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Fear Keeps Tapping My Shoulder
OKay..I did not sleep much last night. Dreams and thoughts overwhelmed me. I grew up with three brothers..two older, one younger but meaner, lol. I learned quickly how to fight strong and not flinch to show fear. I climbed to the highest tree branch and jumped in the pond not knowing how to swim...I wasn't going to miss…
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More articles
Does Green Tea help 5FU work better? (abstract only) https://www.ncbi.nlm.nih.gov/pubmed/30741544 Here, we report that EGCG [a chemical in green tea] reinforces the sensitivity of colon cancer cells to 5-FU, and the IC50 values of 5-FU is decreased from 40±4.2 μM to 5±0.36 μM in one human colon carcinoma cell line-HCT-116,…
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Introduction and help
Hi all, I have been lurking on the forum for the last two years, when my dad (57) was diagnosed with colorectal cancer, stage four. He´s been Folfox and Avastin and then Folfiri and Avastin, but the last scan showed it is not working anymore. He has lung meets, which are stable, and liver mets - around 12, the biggest…
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neck pain
I've been diagnosed with rectal cancer recently. I've also had neck pain for about three weeks. It's in the right side of my neck and it's a dull ache. When I was still working I thought it was from having to have my head in one position a lot but now I've been out of work for a week and it's still there. I'm going to tell…
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Hi Everyone, bleeding from rectum, abdominal pressure left side
Hi Everyone, Been living in heart gripping fear for quite a while now. For two weeks in June, I started bleeding bright red blood in the toilet right after the stool came out. No blood in the stool. The blood seemed to have come out right after the stool dropped in the toilet. So there was a long streak of bright red blood…
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Julie Yip-Williams book is out
It got published. It is about a woman who had been fighting stage 4 cancer. Amazon has it. Mine arrived today. Butt.,
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A reason to skip the Valentine's Day candy?
Recent article (abstract only) about dietary insulin load (high blood sugar/carbs) and recurrence in stage III: https://www.ncbi.nlm.nih.gov/pubmed/30726946 Evidence suggests that diets inducing postprandial hyperinsulinemia may be associated with increased cancer-related mortality. The goal of this study was to assess the…
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Losing my Avatar
After this update I'm not able to see my avatar on any posts if going back. I've tried to reload it but it seems to keep disappearing. Is anyone else having this problem? Kim
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Butt is home sick............
I decided to create a separate thread because i didn’t want to hijack the previous thread and some people expressed the concern and I also received some private messages. As usual typing from my phone.... No paragraphs. Sorry for typos. I am very home sick. I miss my immediate family. I moved to the US years ago and my…
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Yup non surgical....
Well as much as I hate to admiit it his oncologist and colorectal surgeon was right.....Ugh, So off to a radiologist oncologist to see if they can do the y90 spheres or tace. I don't see tace working, all those tumors his liver would be swiss cheese.... I am going back to packing, we are leaving for Mexico in the morning.…
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Checking in
Hi all! I haven't been very active lately and for that I am truly sorry. Know there are days that I do just a quick scan to make sure everyone is okay. I have been in a bit of a funk, stress has been getting the better part of me I suppose. But today I woke feeling more like myself. I even went to the little hole in the…
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Cleaning out!
So I cracked the whip today and made my husband work with me to clean out our walk in closet. What a job! There were things shoved to the back that we had not seen in 15 years! However, i have mixed emotions. On the one hand, it feels wonderful to purge away so much stuff! On the other hand, it feels awful to let some…
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Lynch, a hysterectomy, and ovaries
I was diagnosed with Lynch after being diagnosed with Stage iv colon cancer last summer. I’m finally about to be done with chemo, so attention will soon turn to managing the Lynch. I’ve decided on a total colectomy and a hysterectomy. I’m MLH1 and will turn 34 this summer. What I don’t yet know is whether to remove my…
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Update on husband
Richard finished up the 6 weeks of radiation/chemo treatments about 6 weeks ago. Last week we flew to MD Anderson for all the scans and appointment. Turns out the tumor is the same size as before the last treatments. We thought that was a little strange. So it looks like another surgery to remove the tumor. This is a…
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Chemo sucks
It sucks in so many ways. Yesterday I was to have my 4th treatment and my WBC was 1.8 so I have to wait a week. It sucks because on the one hand, I'm happy to have a break. On the other hand, it makes my 12 treatments even longer. I've developed sores in the worse places... ugh. My fatigue is overwhelming some days.…