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Prayer Request
Today my husband Jim is having his Petscan. I ask that you please shoot up a quick prayer that the surgeon is willing to do a staged liver resection now. 30 mets, I know it's a long shot but after 8 months of chemo it's hard not to have just a slight bit o hope for good news! We will get the results next week and I will…
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SGPT/SGOT levels while on chemo--dilemma
How high were your levels while on chemo? Mine rose a bit after my 2nd, my onc labels it an insignificant elevation, saying its a natural occurrence when one is on chemo. For the record, I did 7 cycles of chemo last year, 2 cycles of xeloda and avastin, had a lung recurrence and have now finished my 3rd round despite my…
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My husband will start taking Lonsurf.
Folfori is not working anymore and since they removed his port Lonsurf is next in line. He will start Monday. Anyone have experience with this treatment? Also, Dr. upped his bloodthinner due to all the bloodclots but he is still swollen. Sure hope something gives, he sure needs it!
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Elevated CA72-4 tumor marker
About a month ago, my wife had a panel of serum tumor markers tested in Europe. The reason why she did it is to serve as a "negative" control for her mother (who is currently a 3-year cancer survivor). However, we unexpectedly found that my wife's CA72-4 level was elevated to 24 and to 16U/ml (analysis done in different…
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Dr.Ryke Geerd Hamer
Another interesting theory of cancer. cause: https://www.beatcancer.org/blog-posts/dr-ryke-geerd-hamer-creator-of-the-german-new-medicine
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Is it really necessary to flush your port every month?
Now this is an interesting question, and you will get many of different anwsers from oncologists and nurses who deal with ports everyday. While the medical device companies have set requirements like every 30 or 90 days to keep the port functioning and free from infection, there are many in the medical field familiar with…
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Colon cancer and Liver transplantation
Hi everyone, I have satge 4 colon cancer and recently had colon tumor removal surgery due to obstruction in colon And still trying to recovery. I wonder has anyone had liver transplantation with primary colon cancer. My oncologist at MD Anderson told me liver transplantation will not work form because my primary tumor is…
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CEA slowly ticking up but no evidence of disease
Good Morning, I am seeking advice if anyone has anything. I was diagnosed with Rectal cancer in June 2013. I had radiation/chemo/sugery/more chemo and then a small recurrence in my liver. I had surgery to remove that and now I am on maintenance chemo. My CEA continues to tick up although I am on avastin every 3 weeks and…
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ELIXORS
Has anyone been given Elixors (PrugX, Rinubo, Sayunt etc) while receiving chemotherapy?
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Hurricane Florence
Please take a moment to offer prayers, good thoughts or whatever your preference, to those who will be impacted by hurricane Florence. Given its size ( about 200 miles wide) and the probability of widespread prolonged rains over several states causing major flooding, it is nearly impossible to escape its effects if you are…
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Is Ablation considered a surgery that can "cure"
I feel like a lightbulb just went off. When oncologists say only liver surgery has the potential to be a "cure", does that include ablation? I think until this moment, I was thinking of it as just a quicker way to shrink the tumor than chemo, but if it has the potential to mean a longer, healthier life, I think I have to…
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Stage 3 or stage 4??
My doctors have told me that I’m “stage 3/ kinda stage 4”. So far I’ve done six weeks of 5fu and radiatio. I’m scheduled for APR surgery tomorrow. So, today I found out what the “kinda” part of my staging meant. My original scans showed bilateral adenocarcinoma in my inguinal (groin) lymph nodes. When I asked if they are…
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They ask for a lot of stuff for a second opinion appt
They ask for a lot of stuff for a second opinion appt. Not just paperwork, I have to get a DVD of the scans and tissue samples from my surgeries. I was really hoping not to let my oncologist know, but guess not.
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You don't look like you have cancer.
I took a car service home from the pet scan. The driver asked why I was there, told him, and he says, you don't look like you have cancer. I get that a lot. In fact, at my pre-surgery vitals a few days before my liver resection, the admin said that to me when we got to the point where we got to why I was there. What do you…
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cost
How do you pay for your cancer treatments ? The cost is sky high !!
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Are liver mets resectable? Article says it depends on who you ask.
I have seen this issue come up on the board. Hopefully this article is helpful to those facing it. http://canjsurg.ca/wp-content/uploads/2018/07/61-4-251.pdf Assessment of resectability varied significantly between specialties, and resectability was often underestimated by nonhepatobiliary surgeons. Hepatobiliary referral…
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Can't find cancer
An oncologist says I have colin cancer but I do not have a colin and they have done all kinds of tests and all of them were negative. This doctor is a narcissist and will not accept that he may be wrong. They say I have a spot on my lung from this but I had a colapsed lung and it may be scar tissue from that. What do you…
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Information wanted and prayers requested
Hi there This is my first post ,I generally dont post on forums but I don't know where else to turn . I have a doctors appointment tommorow morning so not looking to self diagnose but I'm absolutely terrified. I've been having loose stools and what I thought were alot of symptoms that sounded like IBS .I've been having 3…
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Paranoia
Okay so I guess most, if not all of us, are quite paranoid whenever a single ache, pain, or any irregularity happens in a certain body part and we fear that the cancer has spread there. Recently I sometimes experience shortness of breath which is I know a symptom of a lung met. My last scan was May 31, around 4 months ago,…
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Abita, did you get your results today?
from your pet scan? I am hoping you got good results and if not at least answers and a plan. Thinking of you!
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Maintenance Chemo Pills
MRI shows the liver tumor is gone and the chemo shrunk the cancer in many of the lymph nodes including the aorta lymph node. The doctor wants to do maintenance chemo pills but says they are very, very expensive and insurance does not treat it the same as intravenous chemo. Has anybody had experience with the maintenance…
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End of the road for treatments
Well, we got his latest scan, I believe 10 spots in both lungs have grown (double size at least). The doctor told him to stop taking Lonesurf, it is not working. He might be able to do a clinical trial? We will see.
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Post Surgery Questions
Hey Guys, My Abdominoperineal resection (APR) Surgery is scheduled for next Wednesday the 5th and I'd like to ask some opinions from some of you LAR, APR, colorectal surgery survivors ;) I know everyone has "different experiences and recovery rates but these are just somethings I've been thinking about. 1. How long after…
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Today its TWINZMA's turn
Thinking of you and your hubby, and hoping all is going well. Tru
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Lots of Polyps
Hello, New here and first-time poster. I have not been diagnosed with Cancer at this time. I have had 2 Colonoscopys; today and 30 days ago, with another scheduled in 30 more days. I had approximately 70 polyps, which I realize is a lot. 46 have now been removed, with several going to pathology today. The Doctor removed…
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An idea for making DCA usable for colectral cancer
I have an idea using DCA in the combination of Atovaquone (both orally) for removing opposite effect of hypoxia. Any experience or idea on effectiveness on colon or dose correlation between two agents are welcome More info: https://www.nature.com/articles/ncomms12308 What makes does correlation, crucial: using DCA alone…
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DCA
I "paid" a visit to a naturopath doctor yesterday. He said he went to a conference last weekend. Supposely there were very good results with a clinical trial in Toronto, using DCA. DCA has been talked about before. It's one of those things that a pharmaceutical company won't invest in....no money to be made. DCA has…
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Is Avastin worth the possible side effects?
My oncologist wants me to have that with the Folfox. I was reading the possible side effects and YIKES! Does anyone know if that drug is worth the risks?
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Roswell or sloan kettering for stage 4 RECTAL cancer
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Stivarga
I am trying to find out has anyone had any success on Stivarga and what side affects did you experience. My husband has stage IV Colorectal Cancer and they want him to start on Stivarga. He cancer has spread to his liver, lungs , spleen and lymph nodes. My concern and what I have read is that the Stivarga can cause him to…