-
My dogs are barking!
So I'm looking at 3 more treatment cycles of Avastin infusion and Xeloda pills. My side effects has increased over time. I have severe fatigue during the 2 weeks of pills and extreme nausea the second week. But my feet are terrible! I can hardly walk. They feel like they are burning up but they are not cracking and I keep…
-
vectibix when rash start
Hi Everyone! My DH started a new medication Vectibix this week. The doctor said that developing a rash on face neck and upper body right away is good sign that the medication ( antibody) is working... He does not have any rash! Next infusion is in 10 days. Any thoughts/ experiences. Searching for hope. He is 53 years old…
-
Chemotherapy forever - stabilizer??
Has anyone's oncologist ever said that they will probably be on chemo forever - part of daily existence to keep the cancer at bay. Is that possible - is cancer a manageable disease? Kind of like they treat diabetes, etc... Any thoughts??
-
What is remission?
I just read an article about a guy who says he's in remission from leukemia. What does that mean? Is it the same as NED? Or can they tell that the cancer has slowed down and is not advancing? I don't see how anyone can be in remission. So often it's just a matter of they haven't found it yet. Like NED, no evidence of…
-
Lonsurf
Hello everyone, just came home from the oncologist, and my wife’s CEA and CA-19 have gone up. The doctor feels the chemo’s are not longer working and is now putting her on Lonsurf. Just wondering if anyone has any advise as to what to expect. Any suggestions would be greatly appreciated. Kevin
-
CEA 283ng/dL with two small lesions on PET scan
Hi all, I posted here 18 months ago when my CEA was still just 10ng/ml so I thought I would do an update to let you know what has been going on..... Time frame: 18mnths. Tests: Mammogram, Fecal occult blood test, PAP smears, Multiple pathology tests including chromagranin A and 5HIAA urine, Abdo CT with contrast, nuclear…
-
Searching for treatment options
Has anyone been to one of The Cancer Centers of America for treatment? Desperate to find somewhere that doesn't think I am a hopeless case--even though I only have 2 tiny mets in Right lung I have been pretty much told to measure for a casket. Primaryl tumor in cecum/ascending colon and Omentum were removed in March,…
-
Just found out I dodged a bullet
I went for my after surgery appointment today. It turns out they did find cancer in my small intestine. They removed it and took out 8 lymph nodes of which 0 had cancer. We had no idea it was there and, if I hadn't had the fistulas and the surgery we'd have probably never known until it was too late. I feel like I won the…
-
Signet Ring Cell Adenocarcinoma of Rectum
A family member was diagnosed with this type of cancer in May 2017 by a vascualar surgeon #1 who told her she had between 1-3 years to live. At the time a different vascular surgeon #2, in concert with her GP and 1st Oncologist, began treating and testing her for an abdominal aneurism, heart disease and high cholesterol,…
-
Aspirin
Just came across this and thought if might be of interest: https://www.cardiff.ac.uk/news/view/1299256-could-aspirin-paly-role-in-treatment-of-cancer
-
Back pain
If anyone here get lower back pains right before infusion let me know. I have cancer in my bones, lungs and liver. I have been using ibuprofen, heat pads, hot baths, Icy hot but it’s causing me lots of discomfort. I also smoke marijuana to help, but I’m feeling it today. thanks.
-
Cold sensitivity
I had my third treatment of FOLFOX yesterday for stage IV colon cancer. The cold sensitivity wasn't too bad the first two times but this time it's much worse. Even room temperature liquids are causing a reaction. I'm order not to make my fingers and toes react, I have to be wrapped up like a mummy almost. Does anyone have…
-
Inquiry
Hi. This is my first time posting on any discussion board. My father is suffering from colon cancer stage 4 ( it has effected the liver). i want to know that after first chemotherapy can they determine through tests whether the chemotherapy worked or not. if yes then through what test ( blood test, biopsy etc). secondly,…
-
Boswellia (Frankincense)
This is a supplement I had not heard of until I visited a spine specialist and she mentioned it is effective for joint pain as well as having anti-cancer properties. My colonoscopy doctor was adamant that other than a baby aspirin, I not take NSAIDs, which makes dealing with back and joint pain even more difficult. I have…
-
They've reconsidered
Considering that my tumor has tripled in volume in 6 months, my dr conferred with other specialists, and the decision was made to move my next scan up to 4 months (January) instead of 6, with the understanding that surgery would likely follow. It's time to get this nasty out. It's been 2 years since my last surgery, and…
-
Cancer Runs, just a nice story
I just wanted to share this because it made me cry with happiness. My friend's daughter has been taking riding lessons on my horse for a couple of months. She's 11 years old and is a little sweetheart. The other day at school they did the Terry Fox Run. Terry Fox was a Canadian hero who lost a leg to cancer at a young age,…
-
Facing Y90 treatments, Emotional difficulties are challenging
Hello everyone! I haven't posted here in months, it seemed to be a bit too much reality for me at my last visit. So now I'm preparing to have the Y90 treatment to my liver for 3 lesions, approximately 8 cm each I believe. It's taken a lot for me to decide to do this but after a recent PET scan it seems to be the only…
-
incision site leaking in rectum
Hey There !! i had stage 3 rectal cancer , done radiation ,chemo, had surgery . the incision area in rectum did not heal fully due to what i was told soft tissue from radiation and now scar tissue so area will not close completly doctor had me do 3 Barium enema test over a period of year to see if it would heal on its own…
-
Stage IIA, T3, N0, M0 rectal cancer - new diagnosis
Hello, I found out 21 days ago that I have a nickle sized cancerous tumor in my rectum. I'm 56. Stage IIA, T3, N0, M0. I start chemo and radiation treaments on Monday. I feel like Sunday, September 9th will be my last normal day of life. Once the chemo (Xeloda) and radiation kick in I am afraid of hair loss, and diarrhea,…
-
No Mo Chemo...For Now
Yesterday was a wierd day. I had formally been told that I might have to take the maintenance chemo indefinitely but my oncologist decided that since I was NED and all my numbers looked good, he didn't want to risk kidney damage that can be caused by the Cyramza. So, whoop whoop, I'm done for now. Unfortunately because I…
-
All clear
Hurray, husband is still NED almost 7 years after Surgery for stage 4 CRC. Today we had the appointment with his doc to talk about CT and ultraqsound results and everything is clear. What great news! Big hugs to all of you from Cologne, Germanys Petra
-
Mixed reviews!?!?!?
Wow not exactly how I wish a doctor would describe my husbands mets. But it was the exact words the surgeon we saw used! I left in tears despite going in knowing that he would be told not surgical. Surprisigly she didn't rule it out yet, and wants to present his case to a different tumor board where the top liver surgeon…
-
Interesting
This interesting new article (abstract only) finds no survival advantage for chemo over no chemo for stage 3: https://www.ncbi.nlm.nih.gov/pubmed/30253025 After adjustment for the competing risk of non-colorectal cancer death, there was no significant difference in recurrence between the 204 patients who received…
-
Results not favourable
Sceduled appointements with my Onc and Rad Onc, and my results were not favourable. Back to the big city next week for scans. I find it interesting that, no matter how many times you play games in your head, imagining what your reaction will be if the Doctor has bad news, that nothing, absolutely nothing, prepares you for…
-
Rife Machine
I know you are supposed to be able to make your own rife machine but I saw a site that claims they can convert your laptop into a rife machine for 100 dollars. It sounds fishy to me but I was wondering what the rest of you think about it. They have the paddles and software that supposedly changes the frequencies. Eric }:.)
-
CT scan does not look good
I had colon tumor removal surgery 2 months ago. Because of surgery had no CT scan for total of 3-4 months. I had CT scan couple days ago after 2 chemos after surgery. Unfortunately tumors near to bile ducts on left and right lobe have grown. More seriously left lobe tm from 2.2 to 3.1cm With bile duct dilation. I was told…
-
rectal cancer
I had my rectum removed. I had stage 3. I was reattached no bag; I am having alot of pain were iI was reattached bowel movements are very inconsisten. I go 2 or 3 days and sometimes twice daily. any ideas.
-
Once again seeking encouragement
Diagnosed in May 2017. 28 chemo/radiation treatments Summer 2017. Rectal removal and permanent colostomy surgery October 2017. Mets to liver, multiplying. Folfiri Spring 2018. Interrupted by broken hip early July of this year. Got some lab work done at my PCP and he sent me to the ER today to check for a blood clot. No…
-
Short Bowel Syndrome
Does anyone else have this? They told me I'd have it now after the last sugery. I got a booklet that gave a bit of an outline and suggested things like eating more salt. Actually putting salt in orange juice or gatorade. Canned soups- full of sodium- are also supposed to be good for me. And processed meats, one of the…
-
Infusaport placement
Well I have had 2 ports placed on the Right side and both have gotten infected after about 6 weeks, I am dut to have a third port inserted but this time on left side. Has anyone had any bad effects from the port on the left side? My inner nervous Nelly dreads the thought of it so close to my heart. Any info/thoughts…