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Mutations vs no mutations
So while I have been dealing with rectal cancer since May 2016, I have never understood the whole mutation thing. I know that sounds crazy but I just never focused on it. My oncologist told me that my tumor that was removed from my lung was rectal cancer but not the mutated kind. And that was all he said. To be honest, i…
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Spouse Diagnosed - 31
Hello everyone, My husband has recently been diagnosed with colorectal cancer at the age of 31. It's been a huge shock, not just for him, but for myself as well. 3 weeks ago, we took him the ER due to vomiting, severe constipation, and pain in his abdomen. He had been having on and off symptoms of IBS since December 2018.…
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Birthday celebration
This forum is a wonderful place. A place of information, advice, sorrow and joy. If anyone is interested in sharing their birthdate with me, I will try my best to post a celebration thread. When I was diagnosed, and all seemed dark, I wondered if I would reach my next birthday; so I decided to celebrate my birthday every…
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Keytruda
Is anyone on this ? And what is your expericnce? My husband has peritoneal carcinomatosis and is not doing well - they want to try Keytruda - he is MSI H and tumor burden is 28.
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Sleepless Nights
Husband diagnosed with rectal cancer 8.1.18 after colonoscopy which he had due to bleeding in his rectum. Treatment was radiation and chemo. Surgery 1.17.19; removed rectum, has temporary ileostomy. After surgery doctor stated they were able to get all of the cancer and it did not go into his other organs or seminal…
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Newly diagnosed and unable to cope
I preface by say that I also have panic and anxiety disorder and PTSD, so its nearly impossible for me to control my thoughts and emotions. I have been in complete turmoil since the shocking diagnoses. My level of stress as caused my BP to be at stroke levels. I dont know how to calm down when my entire life has been…
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Accuracy of CT scans in Right Colon Cancer
Here's a scary one: CT scans were inaccurate in almost half of the scans examined: https://www.ncbi.nlm.nih.gov/pubmed/30870227 Of 150 CT scans reviewed, CT failed to identify primary cancer in 19.3%. Overall accuracy of CT to identify unfavorable pathologic features was 63% with sensitivity, specificity, positive…
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Liver Resection Pain
Hey guys. First I will say I am grateful to be healing. Of course I want the fast track approach but that ain't happening no matter what I do, lol. I wanted to throw this out there and see if any of you dealt with it. I am able to move and adjust in bed much better with the soreness. The big kicker for me is these random…
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Travel Tips
My friend is taking my daughter and I to Arizona next month. I haven't crossed the border since my diagnosis so I have some possibly stupid questions. What's the best way to get my prescription meds across? Just take them in their bottles and only the amount I'll need? And they should be in a carry on, right? Will they…
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3rd month of 6 mo. life expect
First time on the boards so please excuse me if my post is too long-winded. if I am a 57 year old female who was diagnosed in Oct. 2018 with stage 4 colorectal cancer with metastasis in the lungs. Three doctors said my tumors were very extensive and I was not a candidate for an operation or chemo (I have some exterior…
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Colostomy vs Ileostomy
Surgery last summer left me with a colostomy. With Lynch, I’m strongly looking at the possibility of an ileostomy later this year. Can someone help me understand the practical realities between the two, from supplies needed to lifestyle changes, etc? I already understand the surgical and anatomical differences, but I’m…
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Hubby got an APR
We are here at MD Anderson Hospital. Hubby has his APR last week and he is still recovering. The colon surgeon is confident all remaining cancer was removeD. This was left from what the first surgeon missed. She said they tested the tissues and most of it was dead from all of the chemo and radiation. Richard had A foot of…
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Alkaline Phosphatase
For anyone who has had a liver resection, how long did it take for your liver enzymes to return to normal? I had 20% of my liver removed back in July and my liver enzymes still haven’t returned to normal, especially the levels of alkaline phosphatase. Since surgery, they haven’t been under 300 and a couple times it’s been…
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Neuropathy question
Hello Friends, I am off chemo(Oxaliplati) for about 2 months and still have numbness under my feet and hands. I am currently not taking chemo. I appreciate if anyone had same experience and share with me. Is it normal to have numbness after 2 months or takes longer to get rid of. Thanks for responses. Thanks Kadir
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Metastatic colon cancer
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Radiation Questions
According to the doctors I have internal adhesions (scarring) from having radiation a couple of times. So they don't want to radiate me again unless it's for palliative reasons. I have a huge scar that has developed over the last almost five years since my initial surgery when I had to have a drain after due to an abcess…
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Colonoscopy prep
Here's an interesting new article about colonocopy prep (abstract only): https://www.ncbi.nlm.nih.gov/pubmed/30844973 I have been cheating on the prep (eating yogurt and drinking coffee with cream) on my most recent colonoscopies, and the reports say my prep was "excellent." Thank goodness my next one is in three years. I…
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Xeloda, what should I expect?
They came in today, shipped right to my door with free samples of Imodium and warnings not to touch the pills with my hands. What should I expect when I start both this and radiation this Wednesday?
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CEA Question
What is normal for a CEA level? I understood it was 3 and under. My doctor just called to say that mine is now down to 5.4 and that 5 and under are normal. I just Googled it and can't seem to find the answer. Can someone please tell me if I'm wrong? I'd love to be only .4 away from normal! Thanks! Jan
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Sometimes ya gotta be the squeaky wheel
I am getting a scan on the 21st. I see online, they schedule an appt for results on the 1st. So I called and said, YOU EXPECT ME TO WAIT 11 DAYS FOR MY RESULTS!?! So, results are now on the 27th. Not much better, but better. This is the same secretary who would schedule my appts and not actually put in system, so I would…
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Off topic share. Alash - Tuvan Throat Singers
Last night, my husband and I went to see Alash - Tuvan Throat singers. WOW! WOW! WOW! We live in a tiny rural deset town, and this was so totally unexpected and absolutely fantastic. Just saying, if you ever see that they are performing in your area, go. As I post this, I am remembering Pepe, a former member who passed…
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Dark Colored Maple Syrup?!?
Okay, this one is just for fun, but hey, you never know: https://www.spandidos-publications.com/ol/17/3/2713 It has been previously reported that dark‑colored maple syrup exerts an inhibitory effect on colorectal cancer (CRC) proliferation and invasion. In the present study, the underlying mechanism of CRC cell growth…
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My Husband My World - by YROSS
"My Husband My World is falling apart, I can't breathe..we had so many plans and yesterday we were told CEA is 3010, after Scan Mayo tells us the cancer is growing along with new spots, mostly in liver and left lung...he had emergency surgery in oct/2017 has only had 6 weeks off of chemo, last line of therapy is ironatican…
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Why Is The Pain Worse At Night??
I thought each day would bring less pain with the liver and colon resection but I find some days just bring a new twinge in a different place. I'm walking and moving thru the day as well as resting. It seems severe pain will set in as soon as I try to get into bed. I hate taking the Oxi but a few nights have left me in…
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Scan results - Good news!
I have now had a follow up CT Scan. I am about 3 years from the time that I started chemo and a little over that from my surgery. I just got an email from my doctor that it was all clear and there is no sign of metastices in the chest or abdomen. I of course worried myself about it before I had it, just like I worried…
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Good news to share
I had scans this week, MRI and CT, and my results are good. I am now two years and two months out from my last surgery with NED. I'm a stage 4 colon cancer survivor with metastsis to two lymph nodes, liver and both lungs. I'm just now starting to feel hopeful. I wish the best for all of you and would like you to also know…
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CBD products/ Medical MJ
is there any one on here that takes/took CBD oils/products/ medical mj as a complimentary treatment? while i don't believe (at the moment any way) medical mj/CBD products can cure cancer I do believe that is is a important complimentary treatment that is just starting to be studied . It seems that it is the CBD products…
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Severe back pain while on chemo....
I am curreny on Folfiri plus Avastin. I developed severe upper back pain that occurs in different areas including a shoulder and both collar bones. MRI didn t show anything. Going to a chiropractor and massage. They feel muscle spasms and some areas of muscles are very hard according to a massage person . Iboprofen,…
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Choices about treatment
Hi, I'm new here. My mom was diagnosed with stage 3b rectal cancer about a week ago. She's been in the hospital for three weeks now as they did tests and a colostomy. They're recommending aggressive chemo and radiation (chemo continuously by pump and radiaion 5 days/week for 6 weeks) to shrink the tumor. After that they…
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Decision Made-All Guns On Board
I couldn't get comfortable this morning so I am up with a heating pad. Thought I would update. I went back to MUSC Wednesday. They took out all of the staples and I met with both of my doctors. The colon doctor said he took out 19 lymph nodes and all were negative and that his margins were good as well. He still wants me…