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Colorectal Cancer

Yup non surgical....
Well as much as I hate to admiit it his oncologist and colorectal surgeon was right.....Ugh, So off to a radiologist oncologist to see if they can do the y90 spheres or tace. I don't see tace working, all those tumors his liver would be swiss cheese.... I am going back to packing, we are leaving for Mexico in the morning.…
Checking in
Hi all! I haven't been very active lately and for that I am truly sorry. Know there are days that I do just a quick scan to make sure everyone is okay. I have been in a bit of a funk, stress has been getting the better part of me I suppose. But today I woke feeling more like myself. I even went to the little hole in the…
Cleaning out!
So I cracked the whip today and made my husband work with me to clean out our walk in closet. What a job! There were things shoved to the back that we had not seen in 15 years! However, i have mixed emotions. On the one hand, it feels wonderful to purge away so much stuff! On the other hand, it feels awful to let some…
Lynch, a hysterectomy, and ovaries
I was diagnosed with Lynch after being diagnosed with Stage iv colon cancer last summer. I’m finally about to be done with chemo, so attention will soon turn to managing the Lynch. I’ve decided on a total colectomy and a hysterectomy. I’m MLH1 and will turn 34 this summer. What I don’t yet know is whether to remove my…
Update on husband
Richard finished up the 6 weeks of radiation/chemo treatments about 6 weeks ago. Last week we flew to MD Anderson for all the scans and appointment. Turns out the tumor is the same size as before the last treatments. We thought that was a little strange. So it looks like another surgery to remove the tumor. This is a…
Chemo sucks
It sucks in so many ways. Yesterday I was to have my 4th treatment and my WBC was 1.8 so I have to wait a week. It sucks because on the one hand, I'm happy to have a break. On the other hand, it makes my 12 treatments even longer. I've developed sores in the worse places... ugh. My fatigue is overwhelming some days.…
More surgery for me...
I just spent 3 days in NYC for appointments at Memorial Sloan Kettering. The conclusion is that now is the right time for surgery; we shouldn't wait. I don’t have the detailed reports yet, although my surgeon has them. My metastatic appendix tumor has grown, but still appears to be confined in scar tissue. However, it is…
Long But Good Day at MUSC-It's About To Get REAL
Just an update..I had the colonoscopy today at MUSC and the colon surgeon said he would do the surgery laproscopically at the same time as the liver resection. He was able to get the scope past the tumor and examine the colon since the tumor had shrunk. He aslo said the tumor was higher up and not rectal which was a good…
Oh my goodness!
Can't believe all that data was lost! How the hell did that happen? Sounds like everything was accidentally deleted. I don't think I had put anything of value here but some history is lost. Oh well, doesn't help to cry over spilt milk does it? I've had a full and actually nice day today! Drove downtown to a new hairdresser…
A reason to be grateful for Springtime sneezes?
From the "it is what it is" department, here is an interesting recent article (abstract only): https://www.ncbi.nlm.nih.gov/pubmed/30700443 Allergic conditions may prevent some cancers by promoting immune surveillance. We examined associations of allergic rhinitis, asthma, and eczema with cancer risk among elderly…
NED 7 years
Hi Everyone, Today marks 7 years NED. I am thrilled with this anniversay date each year. All my best, to all of you where ever you are in this journey. I never thought I would get here.
Since we're starting fresh, so to speak
I thought with the anniversaries noted I'd throw mine in as well. Because I keep nudging my appointments down the line, I'm now 5 months past regular check up times. I did my blood panel a few days ago and my ct scan yesterday, and with the CEA dropping from 2.8 to 2.1, unless something really lousy decides to show up [no…
Personal messages gone also
All of my personal messages are gone, as well. Now I wished I had saved them to a file. Tru
Made It To 5 Years!
I was diagnosed in May of 2013 with Stage 2-3 rectal cancer and went through of 9 months of radiation, chemo, surgery and more chemo treatment. I count my NED from the day they removed my cancer and that was in October 5 years ago. I rebounded pretty good even though I had to start my career over, divorced and was left…
Dealing with Chemo
I know that much has been said here. I've consolidated pointers from my experiences as well as others, as so many friends now have turned to me for advice for themselves or family members, so I thought I'd add it here. Please feel free to add suggestions or your own experiences. This is my own list, my own creation based…
Lost posts
CSN says all posts since October 29, 2018 have been lost. When I first scanned the announcement, I thougth it read January 29, so I did not think too much about it. But looking at the newest posts, sure enough, we have taken a time machine back to October, 2018. It looks like the profile photos and email addresses have…
Where am I in my journey?
Hello everyone! You may be puzzled by the title of this post but you couldn't possibly be more than am about my situation. No one knows the hour, day, month or year of when everything is going to fail and there is no turning back, I am not expecting to find this out. It's just strange to me that I have sort of felt this…
Can Someone Explain Staging & Why I Still Have No Clue?
The only staging I was hoping to ever have to concern myself with would be staging this house when we went to sell it but this pesky colon cancer has changed all that. So because I'm slow as molasses. Actually I'm even slower than molasses (literally if you held say, a downhill race and it was me and my opponent was a…
Microwave with Y90
Hi everyone! Mom is stage 4 colon cancer mets to liver. But the surgeons removed the main colon tumor and we're now tackling the liver tumors. We had Y90 radioactive spheres put in for the liver tumors a few months ago (with not much results) and now they want to try microwave on the tumors in the liver. I just have a…
Nuts, again
For those who are relatively new to the forum, there has been considerable evidence that eating tree nuts helps with colorectal cancer. Here is another study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6182034/ The study included 826 stage 3 colon cancer patients which reported their intake of nuts and other food groups…
This is a good article - it concerns death, so be warned
https://www.bbc.com/news/uk-45912254#_=_ I do believe there is a balance between the feelings of the patient, and the feelings of those around us, be it loved ones, or the general public. I think it is important for those of us who are patients, to understand how uncomfortable others around us can be, and allow that as…
Met With The Surgeon Yesterday, Off Into Hiding I go...
My complete lack of both time and sense of direction was in full swing yesterday. Up at 4 AM for a 10:45 appointment at Yale New Haven which I had somehow convinced myself was at least an hour away with traffic - so off we went with my bag of bottled water and note books full of questions and fears for our "Thelma &…
Health insurance anxiety
I hope I am not inundating the board too much, but one of the things keeping me up at night is health insurance. My husband is mostly retired and our insurance is through my employer. Should I lose my job due to this illness, I would probably be eligible for COBRA for 18 months, but I worry what would happen after that.…
Folfox with Avastin..First Treatment
Good morning to everyone here! I will have my first chemo treatment this Tuesday and I'd be a liar to say I wasn't scared. My nurse said I would get Emend with the IV pre-meds. I'm wondering how long that will last...just the day of infusion or for a few days after? I've read really good things about it working for a lot…
New to this, Curious about CEA levels
My father finally rlented and went to the Dr. after having bowel movements for about a year with blood. The blood work came back and while the red blood cell count, platelets, and white cell counts were elevated, it wasn't much. His PSA came back fine BUT his CEA level came back at 4,000. I can't find anything on a result…
Nutritional supplements/superfoods
hello, i was wondering if you guys could share your thoughts/intakes about nutritional supplements and super foods. our two oncologists said not to take, because you're trying to kill the cancer cells and they feed off the vitamins. so we are only taking iron. also, we are continuing taking turmeric pills, as it's…
stage 4-new spots/chemo long-term?
Six years ago, my dad had colon cancer (stage 3) and went through chemo for six months (12 treatments). While difficult at the time as it was new, I thought it was a chapter in my past. Over a month ago, a year from his 5 year year remission, he went in to his general doctor for a regular checkup and a routine blood test.…
Great PET Scan Results
Hi, All, This is my first post. I was diagnosed with Stage 4 colorectal cancer the end of this June. Had my second PET a couple of weeks ago. My chemo is working: Avastin and FOLFOX. Compared to my last PET, the tumor in my colon is significantly reduced and 8 of ten liver tumors show no hypermetabolic activity; two others…
Telling People I have Colon Cancer - The Aftermath
The title of this post should really have been "Telling my elderly parents I have colon cancer" Since my diagnosis last week I've been an open book sharing the news with those close to me and there's been some very kind and supportive responses. My cancer has even motivated me to do a little online shopping, as I sit here…
A Note Of Thanks To Every Member Here And.....
We're off to see the surgeon tomorrow and I wanted to say thank you to everyone for the incredibly kind support I've received here in this forum. I now have what I think is an excellent list of questions and without question a better idea of what to expect from the surgery to post operative care and so much more. Today…

Colorectal Cancer

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