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Update, no longer NED
Well, our results were no better than Sally's .... we went in exuberant as Layne has been feeling better than he has in ten years! Everyone has been just so amazed how well he has done! And we came out with news that he has mets to the liver and a new lymph gland. We're still in shock (obviously) but we want you to know we…
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9 years post-op
There is survival and life after cancer. Our oldest daughter called up a couple of weeks ago to wish me "Happy Birthday." I was opened up for my Ivor Lewis esophagectomy on April 9, 2001 - 9 years ago. I had almost forgotten about it! Will be celebrating 10 years since diagnosis this coming October. To those of you…
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allergy to red iodine dye
My daughter has had two bouts with getting very sick after red dye iv. One was to check for spread of cancer and this week to have a vena cava filter removed. The day after each iv her heart rate shot to 120 to 130 . Her pain in her left side and back is so intense she can hardly stand straight. Also became constipated…
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T3N1M0 to StageIVb in one hour!
Well, we got the horrible news yesterday during our follow up visit at MD Anderson. To recap, Jim had 8 weeks of Taxotere, Oaxaliplatin and 48 hours of 5FU pump every 2 weeks from November until Jan 2 weeks off with PET scan which showed 50% reduction in the tumor and only one small lymph node which he thought might be…
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PET Scan Results
My mom had her appointment yesterday and for the most part she got good news. The tumor is still there but it has shrunk considerably. There is no metastsis to other organs which is a huge blessing! The one doctor was unsure of whether there was still cancer in the trachea or not but it doesn't really matter. The overall…
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allergy to red iodine dye
My daughter has had two bouts with getting very sick after red dye iv. One was to check for spread of cancer and this week to have a vena cava filter removed. The day after each iv her heart rate shot to 120 to 130 . Her pain in her left side and back is so intense she can hardly stand straight. Also became constipated…
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Nutrition
Dale just can't tolerate any sort of solid foods at this time. He has severe lower abd cramping with any of them. We have tests ordered next wednesday to rule out a small bowel obstruction. He is drinking four 8 oz cans of ensure plus per day. At 350 calories per can we are getting about 1400 calories. Saw the surgeon on…
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listing from the paper
http://www.legacy.com/obituaries/postgazette/obituary.aspx?page=lifestory&pid=142089812 Photo FOCER SCOTT H. Age 56, on Tuesday, April 20, 2010 of Arlington. Beloved husband of 35 years to Jolene Focer; loving father of Melissa (James) Mullen and Christina (Jesse) Linton; Pap Pap to James, Makayla, Emma, Braydon, Ava and…
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Rough day at the hospital
Lyle went in for his procedure to remove the stent and place the feeding tube. The stent will stay in due to tissue beginning to grow around it. Not what we wanted to hear. The feeding tube was placed so hopefully we can keep this guy hydrated and nurished! During the procedure Lyle started throwing up green stuff (bile)…
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Update on pneumonia and drs visit??
It was not much of a drs visit, he was so backed up coming back from vacation, I never saw him we older patients were changed to a nurse practioner. The only thing she did was prescribe a codeine cough syrup told to finish Levaquin. Now I know the pneumonia will go away but what I wanted to speak to the dr about was the…
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Update on Caballero38 AKA- Luis Rodriguez
Hi all, I haven't posted in a while, but I thought I should give you an update on my status. Recap- I was diagnosed sometime in April of last year with Esophageal Cancer stage 3 n1 I beleive, I had surgery in October (esophagectomy). They told me I was cancer free and I was recovering well. Durring my recovery, I broke a…
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Food after surgery
Hi, I was wondering if anyone else has discovered food 'intolerance's' after their surgery? My husband gets sick to his stomach when he tries to eat ice cream. He throws it up. He also gets very sweaty and sick feeling. He takes med's to help calm his heart rate as well. Thanks, ~Shelly
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PGHMOMMA HAS LOST HER FATHER PLEASE PRAY FOR HER
I just wanted to let everyone know I just found out just a few minutes ago that Tina lost her dad this morning unfortunately it wasn't EC, he fought that and won, it was ARDS, I believe, Please keep her in your prayers, she was such a daddy's girl and he was only 56. I think he won EC battle but other complications set in…
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3 half yrs....clear
hi all, my name is mike, i had ec, 4yrs ago at age 45, it was detected by pure luck while checking out another matter, i was just on stage 2, so didnt really have many recognisable symptoms, i had lost weight but put it down to hard work, also i had always suffered from acid reflux, but who dosnt i though.i developed…
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Pain in the Back
Hi there! Has anyone with EC experienced pain in the back? God Bless you in advance, Yovana
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Scan Shows "New' Nodule in Lung
My husband is a Esophageal Cancer survivor after 2 years. He had radiation - chemo - and 'the' major surgery done, and has been doing great since then, with no follow up treatment. He will always have eating issues, but he is doing well. His cancer had not spread to other organs. All his check ups has been very good, up…
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PET Scan Results Tomorrow
Hello everyone, My mom decided to have a PET Scan done last week to see how the chemoradiation worked. She is still considered "terminal" because there isn't anything else they can try but she is a trooper and wants to keep an eye on this beast. Tomorrow she will get the results. Please pray that the cancer has not spread.…
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Update on my baby sister
Hi Folks Sorry for not responding to my post of 2 months ago. Unfortunately it will be hit and miss for another month for me. I am giving up the sunshine of Florida and moving back to my hometown to help care for my sister and the family. So busy packing and making arrangements. I posted about my baby sister ( Laura ) back…
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Last chemo
Hello everyone, I have an update on my hubby. He was supposed to have 3 rounds of chemo after surgery.He's gone through two and said that he was done. Of course, this made me very nervous and scared. Well, we were told good news today from his oncologist. His oncologist agreed and so my hubby doesn't need the last chemo…
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My father Dave- stage IV
Dear Jane, Sherri, Lori, and William, I started out by trying to reply to each of you individually but I got overwhelmed. I think I'm mostly overwhelmed by the care and support each of you has offered me. I am so very grateful. All of this is new territory for me and I am very appreciative of the information and your…
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REPORTS ARE GOOD, PORT COMING OUT FOR GOOD WE HOPE
Hello to all my CSN Friends Jeff went to the oncologist today, it was one year ago this month that we started visiting the oncologist, wow what a journey it has been, Jeff and I have been through so many BUMPS, AND HURDLES through this journey that it is so amazing how things have worked. I learned so much in our beginning…
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PET Scan Results Tomorrow
Hello everyone, My mom decided to have a PET Scan done last week to see how the chemoradiation worked. She is still considered "terminal" because there isn't anything else they can try but she is a trooper and wants to keep an eye on this beast. Tomorrow she will get the results. Please pray that the cancer has not spread.…
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I hate to post this but I have to get it out
So dad has been doing well, he remains sadated and stable, but critical. The dr spoke with us today and said the only thing in his favor right now is his heart. His kidneys already shut down and he is on dialiyias. His liver is a bit elevated. His plates are in the 60's. His mouth is bleeding and they are unsure if its…
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I lost my aunt last night
Hi All, I am here to ask for prayers to keep me strong!! My aunt passed away for breast/lung cancer last night. During the entire time that Al was sick I had been talking to her on a regular basis, NOT ONCE DID SHE INDICATE TO ME THAT SHE WAS ALSO VERY SICK AND THAT SHE WAS HAVING CHEMO AND RADIATION. SHE DIDN'T WANT ME TO…
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Might be going to the hospital...
Hi, my friends, Lyle is soooo skinny, in so much pain, and can't keep anything down. Just when I think something might stay down...up it comes. I don't think he has gotten much nurishment in this weekend. So...I have a call into the doctor and hopefully he can make arrangements to take out the stent and place a feeding…
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Jessica, there is hope
Jessica, I know you have read my post regarding my husband. I see William and Sherri have already sent you messages. I know when you have time you will update us with more info. The only advise I can give you at this point is you need to be aggressive in your treatment. If the dr's say "no hope,"......get another dr. There…
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Hope for Stage iv
Hello All, As most of you know, my husband Charlie has been battling stage iv EC since March 09. While I feel bad posting such good news for all of you who are dealing with all the "bumps in the road" we have all endured, I feel I must share this with you. We got the results of Charlie's PET today and the results are…
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UPDATE ON PGHMOMMA'S DADDY
Just wanted to let everyone know that her dad is still the same, they are taking baby steps, he will probably have to have a trach to survive for awhile, but she said when she squeezes his hand he knows who she is so that is good news and he has really came further than last week. I reminded her to keep HER BIG GIRL…
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HELP-need Stage 3 EC Cancer survivor stories
Hi all, \As most know, my dad has stage 3 EC had surgery 12/09 and doing well but needs to gain weight. But, My my uncle---my dad's little brother has also been diagnosed with EC -also stage 3. HE did go for 2nd opinion at Moffitt in Tampa. I do not not know all details of what was actually said but he was told to go back…
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BAILEY1459 , WE HAVE SOMEONE REACHING OUT FOR A STAGE 4 PLEASE HELP JESSICA
Sherri, Maybe you can help you are very knowledgeable on this. thanks Lori Hope things are well