Update on pneumonia and drs visit??

Donna70
Donna70 Member Posts: 852 Member
edited March 2014 in Esophageal Cancer #1
It was not much of a drs visit, he was so backed up coming back from vacation, I never saw him we older patients were changed to a nurse practioner. The only thing she did was prescribe a codeine cough syrup told to finish Levaquin. Now I know the pneumonia will go away but what I wanted to speak to the dr about was the atelectasis and bronchiectasis. They scare me. She said that the infection should clear and maybe my lung would reabsorb the fluid. You get bronchiectasis from walking around too long with atelectasis and it is damage to your bronchioles in your lungs. That is what did not get answered. Sherri, you mentioned Jim has it right now, have you been told he has either of those other two, bronchiectasis and/or atelectasis? She did not address the fact that I have spells when I get so out of breath I can't walk across a flat floor. My hubby told her I am going backwards, losing weight and vomiting and having no breath at times just is crazy. It is my 5th day on Levaquin and I still have a low grade fever and cough a lot. My disappointment in not speaking to this dr whom I trust more than any other is still hard to take. I don't go back for a month and they don't do a CT scan till 2 months. I am considering seeing a lung specialist if I do not feel better next week. Sorry to vent but I am still po'd about the inability to talk to the dr himself. take care, prayers for all,
Donna70

Comments

  • rnic22
    rnic22 Member Posts: 9
    #2
    Hi Donna,
    Listen to your
    Hi Donna,
    Listen to your body and I would not quit until I had some answers. Hope you get to feeling better soon.
    Rolinda
  • cjmac49
    cjmac49 Member Posts: 100
    #3
    Dr. Visit
    I would call the Drs. office back and insist that you see him. Sometime a little "gentle" pressure will get you in to see him. You are not the normal run-of-the-mill patient and should get a little extra care. I changed GPs because mine seemed rushed or distracted or not really listening or had stories about other patients. He just didn't seem to be there for me. Yours should be there for you and not pawn you off onto someone who didn't listen.

    I also found that an extra push or an extra tear works wonders when you want to get your way.

    Good luck and I hope this all goes away soon.
    Jim
  • Unknown
    Unknown
    #4
    This comment has been removed by the Moderator
  • Donna70
    Donna70 Member Posts: 852 Member
    #5
    unknown said:

    This comment has been removed by the Moderator

    I did assert myself
    Hi,
    William and Loretta I responded to Loretta's email. I did assert myself enough to get the manager called over to speak to me. They told me he was booked up for the next month!! He is wonderful, U of MD trained and the kindest dr I have but think many more people want to see him. I am going to talk to my surgeon's coordinators and ask what they suggest. Meanwhile my big girl panties are on all the time with a nice giant hole burned in them from the HCL acid from my j tube hole burning thru Desitin and torturing me, 5 wks after the tube was removed. So, I got issues!!!! LOL!!! If I got more short of breath or my fever gets higher, than I will take myself to the ER. Thanks for everyone's replies and advice. take care, prayers for all.
    Donna70
  • K_ann1015
    K_ann1015 Member Posts: 500
    #6
    Donna70 said:

    I did assert myself
    Hi,
    William and Loretta I responded to Loretta's email. I did assert myself enough to get the manager called over to speak to me. They told me he was booked up for the next month!! He is wonderful, U of MD trained and the kindest dr I have but think many more people want to see him. I am going to talk to my surgeon's coordinators and ask what they suggest. Meanwhile my big girl panties are on all the time with a nice giant hole burned in them from the HCL acid from my j tube hole burning thru Desitin and torturing me, 5 wks after the tube was removed. So, I got issues!!!! LOL!!! If I got more short of breath or my fever gets higher, than I will take myself to the ER. Thanks for everyone's replies and advice. take care, prayers for all.
    Donna70

    We love you Donna---hang in
    We love you Donna---hang in there and get better SOON---hope this weekend is a good one for some healing...you know---just and idea---but if you show up with a crazy hairdo--maybe they will remember you---and treat you more like a real person and not a "patient"

    say...mmm.... Periwinkle-- the color for EC or Pink for breast or all cancers---or make up your own like: "Oh, my _____ color hair??? that is just in honor of TAKE THE PATIENT SERIOUSLY DAY"

    get better soon! {{{Hugs}}}
    Kim
  • Tina Blondek
    Tina Blondek Member Posts: 1,500 Member
    #7
    Donna70 said:

    I did assert myself
    Hi,
    William and Loretta I responded to Loretta's email. I did assert myself enough to get the manager called over to speak to me. They told me he was booked up for the next month!! He is wonderful, U of MD trained and the kindest dr I have but think many more people want to see him. I am going to talk to my surgeon's coordinators and ask what they suggest. Meanwhile my big girl panties are on all the time with a nice giant hole burned in them from the HCL acid from my j tube hole burning thru Desitin and torturing me, 5 wks after the tube was removed. So, I got issues!!!! LOL!!! If I got more short of breath or my fever gets higher, than I will take myself to the ER. Thanks for everyone's replies and advice. take care, prayers for all.
    Donna70

    Hoping for you to feel better
    Hi Donna,
    Yes we sure do love you here. My gosh! I can not believe you are still having shortness of breath and coughing. I agree with you, do go to the lung specialist. Not even the ER, check into the lung specialists in your area. It is sad that a lot of the time these days we end up having to dx ourselves!
    Good luck to you and prayers are being said daily. Hugs.
    Tina
  • Unknown
    Unknown
    #8
    This comment has been removed by the Moderator
  • Unknown
    Unknown
    #9
    This comment has been removed by the Moderator
  • Tina Blondek
    Tina Blondek Member Posts: 1,500 Member
    #10
    unknown said:

    This comment has been removed by the Moderator

    Thanks Sherri
    Hi Sherri,
    I agree. You and Jim have been through all of this, you know what is going on. Hopefully Donna will come back on and take your advice. Thanks for being such a wonderful, caring, knowledgeable person! Hello to Jim, and hugs to both of you.
    Tina
  • Unknown
    Unknown
    #11
    Tina Blondek said:

    Thanks Sherri
    Hi Sherri,
    I agree. You and Jim have been through all of this, you know what is going on. Hopefully Donna will come back on and take your advice. Thanks for being such a wonderful, caring, knowledgeable person! Hello to Jim, and hugs to both of you.
    Tina

    This comment has been removed by the Moderator
  • Lylesmyprince
    Lylesmyprince Member Posts: 130
    #12
    unknown said:

    This comment has been removed by the Moderator

    Donna
    Please don't wait...go and get checked out, for sure!! Recovery is always harder when you wait until you are too weak to fight with all you've got!!

    Prayers and more prayers,
    Susie
  • Donna70
    Donna70 Member Posts: 852 Member
    #13
    K_ann1015 said:

    We love you Donna---hang in
    We love you Donna---hang in there and get better SOON---hope this weekend is a good one for some healing...you know---just and idea---but if you show up with a crazy hairdo--maybe they will remember you---and treat you more like a real person and not a "patient"

    say...mmm.... Periwinkle-- the color for EC or Pink for breast or all cancers---or make up your own like: "Oh, my _____ color hair??? that is just in honor of TAKE THE PATIENT SERIOUSLY DAY"

    get better soon! {{{Hugs}}}
    Kim

    liked that Kim
    thinking or neon orange but I was not the only one, everyone got around and they told me he had a conference to go to, turns out they got 2.9 million for their Cancer Institute guess all the drs had to be there. I am feeling better and my fever has gone down so just going to talk to a coordinator this week and get her opinion on what is going on. thanks for the support!! prayers always,
    Donna70
  • Donna70
    Donna70 Member Posts: 852 Member
    #14
    unknown said:

    This comment has been removed by the Moderator

    Sherri, thanks so much!! and everyone for their input
    I could not get on site this am, kept getting overloaded message. I want to thank you for sharing what Jim has gone thru. I am feeling better today, my fever went down and I seem to be breathing better than yesterday. What I keep wondering is how long have they seen the atelectasis and bronchiectasis and did not mention it to me. I have been complaining of SOB spells for months now but got worse after the vomiting started. I have a pulse ox sitting down of 99-100 which is great but my breathing issues happen when I walk and so far no one has bothered to test it while walking and moving. So I am asking my surgeon's coordinator if she thinks it would be good to go to a lung dr. I appreciate every one's concern and input, I worked in the medical field for years doing transcription and medical assisting and I don't believe any dr walks on water so I can be a questioning type of patient for me or anyone in my family. It made me wonder why my fever started after 2 days of Levaquin and persisted but feel better now so that is what counts. Thanks again, this board is great for everyone, you all understand. Hope Jim is feeling better and thanks again for the input.take care, prayers always,
    Donna70

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