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Oncologist and Thoracic Surgeon Seem to Disagree
I was diagnosed with a cancerous nodule in my esophagus in January 2024. It was removed via EMR in April. The pathology report indicated that the cancer cells were moderately to poorly differentiated and there had been lymphatic vascular invasion. I met first with my thoracic surgeon who said given my condition, data…
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Post Op throat
I had my Esophagectomy on 12/19. They also did a small neck dissection and they had to do that gastro thing… forgot what it was called. I’m doing pretty well and have a great prognosis. My question is has anyone else experienced a raw throat feeling that kind of takes your breath away and makes ya cough quite a bit?
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Way Post Surgery
Hello, I am a 74 YO, seven year survivor of esophageal cancer. I had an esophagectomy in October of 2017. Now I am experiencing some serious lower back pain. My surgeon is suggesting a spinal cord stimulator. He wants to schedule an MRI but I am wary of lying flat for up to an hour. Further, if I decide to proceed, the…
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“Positive” Esoguard Test
After six months of swallowing becoming more difficult, I had an Esoguard test done January 31, 2024. On February 13, I got the call it came back positive for Barrett’s Disease and/or adenocarcinoma esophageal cancer. It doesn’t specify which one. My PCP gave me a referral to a GI doctor, but most are booked out until…
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New Guy
I was diagnosed with Esophageal Cancer last Monday. I'm a mess. Nightmare of care co-ordination with providers and insurance. How do I see the entire post of people who post? I see things like, "The most important thing you can do to survive is....." And then gets cut off. Tips, suggestions, advice welcome. Thank you.
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Concerned about possible esophageal cancer
Hi All, I'm concerned about esophageal cancer and I have an endoscopy scheduled for next month. My history: I've had GERD since I was 12 years old (I'm 30 now) and took PPI's from 12 yrs old up until a year ago when I switched to the max dose of famotidine because I was dx'd with osteopenia. I have gastroparesis which…
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Lonsurf
Hello there. My husband has been diagnosed with stage 4 esophageal cancer (with metastases near his pelvic bone and some spots on his lung as well). He had 10 chemo sessions since August 2023, unfortunately nothing seems to work at this point. His doctor had suggested for him to take Lonsurf as a "last resort", and they…
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Post Esophagectomy
My husband was diagnosed in February with early stage 1 esophageal cancer. He underwent a transhiatal esophagectomy on May 17th. Lymph nodes and tissue surrounding his esophagus were biopsied and all came back negative and he has been deemed cancer free. What I am dealing with now as his caregiver is his mental state. He…
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Squamous Cell Carcinoma of Esophagus
63 male former drunk and sober since July 23, 1998, since smoking went hand in hand with drinking I also smoke ciggs, you know the little warning that says it causes cancer? they ain't lying, says right there on the box. now I will say that life has been the experience of a life time, learned tons and will never stop…
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Lung issues 10 years after Ivor Lewis surgery
My husband is a 10 year survivor, with minimal negative quality of life issues. He had the Ivor Lewis full removal of his esophagus. However, apparently after intermittent reflux through the years, last year he developed a lung absess (infection) which made him very sick. (They thought it could be lung cancer at first view…
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17 year survivor
may 2024 be a better year for you all. It’s been a long time since I last checked out this site. I wanted to offer hope to any and all that visit. I am an unusual 17 year survivor and you might be too! Please feel free to reach out
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Proton Therapy Insurance challenges
Has anyone in the group faced challenges with insurnace denying proton therapy? I am with Unitsd Healthcare and they have denied stating its efficacy is not proven. How do I overcome this challenge - my doctor at MD Anderson is appealing second time
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Treatment options
am 53 years old and got diagnosed with Esophageal cancer in the lower esophagus Stage 3. Non-smoker and no family history. Would like to speak to someone who has had proton therapy I m discussing treatment options with MDA
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Post surgery late acid reflux
Hello to all, This board helped a lot early on in my husband's esophageal cancer journey. He is 6 years out from chemo, radiation and Ivor Lewis surgery at Mayo Clinic and has "graduated" out of the cancer department. The past year, he has started to get bad acid reflux in the middle of the night, even almost wake up…
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Option on Stent vs J Tube
Hi All, My dad has Esophegal Cancer which he was diagnosed with in 2021, to date he has had 2 rounds of chemo and 2 rounds of radiation, as a family we decided we did not want to go the surgery route. The second time was because there were signs that the cancer had moved into a small section of the liver. He finished last…
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Young Esophageal Cancer Patient
Hi everyone, my name is Emily, and I was diagnosed with Stage 3A Adenocarcinoma of the Esophagus at the age of 26. I wanted to share my story with those who might find it helpful, or just insightful in the journey of someone going through this cancer treatment at this age. In May of 2021, I ended up in the ER with upper…
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Esophageal Cancer Treatment/doctor recommendation
We are still waiting for the pathology results post-endoscopy, but the Dr. found a 5 cm tumor which he said is highly likely cancer. I understand that the best treatment depends on many factors (e.g., stage, type of tumor, etc. ). We live in North California (but we can move if needed). Do you have any recommendations for…
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Late term side effects of radiation
Long story short, I was diagnosed with squamous cell carcinoma of the glottic larynx. Went through radiation and chemo. About three months out. I was given the amazing news that I am in remission. However shorty after about three weeks I started having trouble breathing. It got worse and worse. I then went to the ER I was…
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protocel
are there any people that have undergone the protocel treatment for thier cancer?
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Herceptin and heart damage
Has anyone continued with herceptin after having a decrease in ventricular ejection fraction? I have been on docetaxel, carboplatin, and herceptin for stage one invasive ductile carcinoma which is her2 and estrogen receptor positive. The plan was to continue the herceptin for a year but my Echocardiogram is showing some…
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New Diagnosis Preliminary T3N2Mx
61 year old female. Endoscopy yesterday with a preliminary finding of T3N2Mx. Completely stressed out, as my father died from esophageal cancer in 1999. This was not really on radar as I have never smoked, seldom drink, and I am pretty healthy overall (My father had a smoking history although he had given it up many years…
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Need surgeon advice
Good evening, im sorry if this is on here already. I couldn’t find it when I searched. My husband was just diagnosed with T2N1 EC. I have worked I radiation therapy for 25 years so I’m no stranger to this disease but it’s very different when it hits home. Based on my experience, I feel he will have pre-op chemoradiation…
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Dad with esophageal cancer
Hi I am here to ask for some hope since my dad has 74 year got diagnosed with esophagus cancer on mid of june he will have the surgery in aboutvtwo weeks his cancer hasnt spread to any organ per last diagnosed have any of you had a surgery at that age my dad has never smoke or drink alcohol i am scared my soul in now in a…
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A positive message of hope
Hello all, My name is Marci and I come here ocassionally to tell you that there can be light at the end of the tunnel. I am a caregiver to my husband, who was diagnosed with esophageal cancer aged 66. He had adenocarcinoma at the junction to his stomach. He had the normal chemo and it did not touch his tumour which was…
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Agent Orange esophageal cancer
My husband had stage 4 esophageal cancer. He was a Vietnam veteran confirmed to be in agent orange spray zones. He also was VA disabled 70%. When he claimed the esophageal cancer he was turned down by the VA. I feel they let our Vietnam veterans down by denying this as an agent orange disability. He was physically sprayed…
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38 and diagnosed with stage 4 esophageal cancer
I am a 38 year old male from Minnesota. Non smoker my entire life and pretty much a social drinker until recently. Since essentially Christmas of 2016, all I can say is I have just felt "off". Not really depressed, just unmotivated, undriven, and lethargic. It has happened a few times in the past 2 years that I woke up…
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Refusing any Treatment for Esophagul Cancer
I'm early stages T1b, but don't fancy the Ivor Lewis treatment and what can come with it, so I know that my chances of survival are low. But how low, I don't know and how long before symptoms. The information out there is shockingly scant.
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I’m New Here And In Search Of Help
Hello, I am a almost 39 year old male who was diagnosed with Barrett’s Esophagus in on St. Patrick’s Day 2011 when I was 27 years old. When I was diagnosed I immediately tried to get ablation surgery but because my spots were some of the smallest another doctor had ever seen it was denied and I instead recommended to do…
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Still losing weight from Esophageal Cancer.
My husband age 74 was diagnosed with Adenocarcinoma Cancer in May, 2022 after choking on food while on vacation. His treatment was 23 sets of radiation, 5 chemotherapy followed by a 13 hour Esophagectomy with Thoracic Esophagogastrostomy Creation. He was told after the surgery that the radiation/chemotherapy had removed…
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Did anyone experience this as primary symptoms
Hello, My name is Rob. For over a month now I have experienced a mass amount of clear mucus production to the point of gagging. There was blood in some but since my nightly nosebleeds stopped so did the blood in the mucus. Now it's just clear mucus mainly in the A.M. or after I eat a big meal. Mild dysphagia with no chest…