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KellyInBoulder~U were wise 2 have the MIE-Clinical trials say tri-modal treatment is best! Life's to
Dear "Kelly in Boulder" May I say welcome to our EC family. Your letter about your husband's successful MIE surgery brought so many thoughts to my mind, I thought I would answer them on a separate topic here. Your original letter can be found here: "https://csn.cancer.org/comment/1638511#comment-1638511 Aug 26, 2018 -…
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No surgery, so far, so good
My husband just turned 72 years old. And what a great birthday present. :) PET scan and endoscopy showed no evidence of cancer. On December 6, 2017, he had a 5 cm mass, Barrett's type adenocarcinoma at the GE junction. Endoscopic ultrasound showed no evidence of lymph node involvement (T3N0), Stage 2b. In January 2018, he…
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Stage 4 diagnosis how you know chemo is working
Hello my mother has been diagnosed with stage 4 esophageal cancer in June. She had difficulty in swallowing and it started in Jan she ignored and thought it's acidity she could eat sometimes and cudnt sometimes however we went to ent who misdiagnosed her n gave her allergy medicine , in Jan we had checked her blood n all…
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Cancer in the Upper portion of the Esophagus
Hi All. I am wondering if anyone has had Cancer in the upper (cerival portion) of the esophagus? My mom was recently diagnosed with Cervical Esophageal Cancer. She is T2 or T3, N0 or N1, M0. They are not sure about the lymph because they cannot biopsy it due to location. did not light up like normal cancer would on PET.…
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Full Esophogectomy or not??
Hi Everyone: I have been reading through the boards for the last few hours and am both hear broken and hopeful. My mom was diagnosed with stage 3A Esophogeal Cancer in June. The saddest part is that they took a scan in February when she was having problems swallowing and they overlooked the cancer on the scan and sent her…
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Book Suggestions?
My fiancé is diagnosed with advanced esophageal cancer. This was sudden. It seemed to have metastasized to one of his lung, but we don’t know yet. We were going to get married this fall. I’m hanging by a thread. My best friend stops by more often and my other friend is stepping up. I know I will need all the support I can…
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Has anyone gotten Barrett's after being in remission?
Hi folks, I'm seven years cacer free after chemo/radiation and surgery. I was just diagnosed with Barrett's Esophogus. Has anyone else had this happen? it's a little worrisome even though they think they can possibly remove all the precancerous cells.
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Final prognosis from MD Anderson
I received my final prognosis from MD Anderson (MDA) on Friday. Many of you know my story, former competitive powerlifter and bodybuilder struck down by the disease after being misdiagnosed by four doctors. I have been adamantly opposed to surgery from day one due to the life long side effects and no promise of living or…
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Severe Back Pain After Esophagectomy
Hi Everyone, My Mom had a successful Esophagectomy in October 2010. This was to remove a Stage 3B adenocarcinoma. The surgeons were thrilled with the results of the surgery and so far her first CT scan came back clear (fingers crossed that this continues). My Mom has started adjusting to her new dietary restrictions and…
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Ten Years on this Ride
It's been ten years (May 2008) since I was first diagnosed as stage III EC. I had chemo/radiation, an esophajectomy, and then bonus chemo (same stuff, but stronger than before). I still had a recurrence in 2011. The EC had come back in a lung (now stage IV) and I was given a particularly grim prognosis.. I'm typing this…
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36 and stage 4 esophageal cancer
Gday, Well to introduce myself,my name is dan,im 36 and from australia.Around august 2010 i was diagnosed with stage 4 esophageal cancer with it also detected in a distant lymph node in my neck.I Had 28 days of radiation to my esophagous and lymph node and two rounds of chemotherapy ,immediatley after my swollowing…
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Choosing not to have surgery - Am I crazy?
I have Junctional Adeno EC. It's stage T3N0. I'm 60 and healthy and active with no additional morbidity risks. I'm currently in week five of a 6 week chemo/beamo treatment path. I have indicated to my team that I am not opposed to surgery but will forgo it and be surveiled in the event that testing post this phase of…
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Depression after esophagectomy??
My husband is recovering from his recent esophagectomy, and so far recovery has been pretty good. He has had some nausea, but overall no major or unexpected issues. However he has been very anxious and now seems depressed despite how well he is doing. He hasn’t been able to sleep and was prescribed Valium, and he’s also…
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Is there hope if someone has stage 4 B Esophageal Cancer
Hi Everyone- I am posting here for the first time and would love some feedback about the course of this disease and if there hope for my beloved husband. My husband Paul was diagnosed with Stage 4 B Esophageal Cancer in early April. We were living in the Syracuse area of NY but moved to Massachuesetts where we are…
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General concerning radiologist and surgeon
I have upper esphogeal cancer, T2, N0, M0. The mass lies at my collar bone level and is about 3.7cm. We do not have a surgeon with this experience at the facility I am seeking help. My question: Shouldn't the radiation onocologist be having converstion with a surgeon? My doctor seems to have the vision that whatever is…
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My dad was diagnosed with EC stage 2 - need your opinion
Hello All, My name is Julia Mazurova. My dear dad Aleksandr Mazurov has recently been diagnosed with esophagus cancer stage 2 T2N1M0. He is 58 years old. He is in South Korea now and started on his treatment yesterday. He was prescribed 6 weeks of combo radiation and chemo. Radiation for 25 days and dosage is 45 grams, if…
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Veteran's Administration: Esophageal Cancer to Helicopter Door Gunners, Crew Chiefs, Vietnam 68-71.
My husband, Mark Forrest, was a door gunner/crew chief in Vietnam in 68-71. He was "in the stream" of Agent Orange as it was deployed from the helicopters. Many others were similarly situated and had the same upper respiratory/esophageal cancer diagnosis. He passed in 2015 and I am still trying to get my benefits. Who can…
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Escozine for Stage IV
Anyone heard of this? It is derived from Caribbean Blue Scorpion venom. Here is an exert from an email I received from a friend... keep in mind, that this isn't approved by the FDA... that was also in the email. Escozine, currently in pre-clinical trials at the University of California, San Diego, Moores Cancer Center.…
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35. Difficulty swallowing food and sometimes, liquid. Joint/bone pain. Occasional itching in chest.
Started getting sick last Oct. Caught bronchitis twice. A week or two later I had the worst head pain. Felt like I was hit in the back of the head with a hammer. I drive a truck and I was away from home. Called 911. No brain bleeds or other life threatening problems. I started having bouts of dizziness after that. In…
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My Immunotherapy Experience
It's been awhile since I last wrote. In my last postings, I was trying to determine which hospital to use and which treatment to get on. I had been using MD Anderson, but after they misdiagnosed my stage of cancer, I was hesitant to use them again. After meeting with several other doctors with different hospitals in the…
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Internal radiation
Has anyone received internal radiation as opposed to external? I am about to start chemo and radiation next week and still trying to get answers. I went to another hospital last week for a second opinion but that turned out to be a waste of time! I would think that here in Houston we would have excellent cancer treatment…
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Any ladies out there with EC?
Hello all, I was looking for posts from women who have personal experience with EC? It looks as if there is a higher % of men who have it. Wondering what your symptoms were that promted you to get it checked out? Thanks for any replies, judemo
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Post Surgery Vomiting
I'm in recovery from Esophogeal Cancer Surgery and have been out of the hospital for close to a year. Now that a section of my esophagus has been removed and my stomach has been stretched up, I'm having a lot of problems eating. I've lost over 100 lbs during the treatment process, and after stabilizing it a bit, I find…
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Life is full of unwanted choices
Hi all the friends I have made here. I have stage three mo no esophageal cancer as most know. I made the trip two months ago to Pittsburg and met with Dr Lukit h. My surgery was set for next month. Unfortunately I had to cancel today. On Thursday last week my wife has a stroke and is now completely paralyzed on one side…
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Need advice for dads treatment
Aloha everyone, i wanted to share my dads story, in hopes that people who has similar procedures done to their relatives or possibly even a medical expert who can answer any of my questions. So my Dad was diagnosed with stage 3 esophageal cancer in October 2017. He underwent 24/6 days a week of chemo and 6 days of…
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duration after ( CT+RT) and before esophagactomy
my father had completed CT + RT treatment for his esophagus cancer on 28th march.. we have undergone CT scan on 3rd May. and then PET scan on 12th may. report of PET scan seems good and doctors decided to go for esophagactomy surgery. but doctor who is going to perform surgery is on leave till 02 june due to some…
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Scared to death
I was diagnosed with throat cancer 3 months ago.. treatment was supposed to be 33 radiation treatment and chemotherapy. I had the mask made but due to my aniexty and claustrophobia which I didn't even know I had an issue with I freaked out once they put me on the radiation table..they not only locked my head in place but…
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Another bump in the road
It has been awhile since I've posted and just wanted to give alittle update! Some of you folks have been wonderful giving info and advice and I will never forget your kindness! My husband of 33 years was diagnosed last October 2017 with Stage 111 Esophageal cancer, Adenocarcinoma at the GE Junction! He went through chemo…
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Update, chemo/radiation, radiation pneumonitis, no surgery for now
December 2017, my husband was diagnosed with Barrett's type adenocarcinoma (T3N0M0). It was 5 cm long, at the gastro-esophageal junction. During Jan-Feb 2018, he had 6 chemo infusions (carbo/taxol) and 29 radiation treatments (IMRT). The last day of radiation was cancelled because my husband was hospitalized for symptoms…
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Bed Question
Curios to know what decision people have made regarding elevating the head of the bed. Did you buy an actual bed like a sleep number, use a wedge, build an incline, use blocks, or risers? Just wondering? Our doctor is insistent that we have something beyond a wedge to get a 30 degree angle. Thanks, Cora