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Update, good news
Today, my husband (age 72) had another clean CT scan. Last December 6, 2017, endoscopy showed a "fumigating bleeding 5 cm mass of malignant appearance in the GE junction. He was staged T3,N0,M0 (Stage IIb). Today, 18 months after diagnosis, my husband appears to be free of cancer. He didn't undergo "curative" surgery.…
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Tear Duct Pain
The start of this mop-up chemo really hit me emotionally. I have never been one to cry much but the tears just kept coming after this first session. My eyes really hurt when I cried and all I could do was laugh at how ironic that was...can't even have a good cry without the chemo coming into the mix of tears, lol.…
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Update & Farewell from Loretta Marshall~It's time to "WALK AWAY"
February 23, 2019 Update &Farewell letter to all my friends here on the CSN site Hello to all dear friends dealing with a cancer diagnosis- As you can see by the date on the bottom of this article by MAYO Clinic – February 20, 2006, I have kept this on file since then. And rightly so, since my husband, William Marshall,…
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Blood Sugar issues
I had surgery for my Esophageal Cancer in October of 2017. Like others, I have had issues with gaining weight. I have also had blood sugar issues. I have spells of dizziness and other symptoms. I did not have these issues before surgery. Has anyone else experienced this?
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Paul, Protonix
Paul, I've been on Protonix for about 8 1/2 years, and now I here the side effects aren't that good. My pharmacist told me of a natural medicine to take its place. Do you know if any other members has had a problem with protonix?
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EC - T4 N1
Hello everyone, I am new to this group and I'm not the one with EC, it's my 65 year old brother. He was diagnosed in September, 2018. His diagnosis stated "A mass was found in the lower third of the esophagus.Two paraesophageal lymph nodes were visualized proximal to the mass. This was staged as at least T4 N1, cannot rule…
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Update
So, I had another appointment with my oncologist this week. It was a bit of a letdown as we mostly rehashed information I got at my appointment in February. The nice thing was when my wife asked her, "So then, he's doing good?" the answer was, "No, he's doing great." So she's happy with the results of the surgery and my…
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Excessive Saliva and TWO stents left in stomach
Hi Folks, This is my first post and first experience with any kind of online support network, thank you for being here. My father has EC, and had a stent inserted to help him take food orally. This 'migrated' down into the stomach in a few days; docs said ok, no problem, it will be ok in the stomach, and they inserted…
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what do elevated levels of ggt nt-bnp and cea together indicate
I recently took a blood test that showed elevated levels of ggt nt-bnp and cea. I took the cea test again and it went from 12 to 19. I have not retested the others. What do the three of them together indicate? Does anyone know? I am having an endscopy and colonoscopy this Monday.
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Ayurvedic Cure- ray of hope
Hi, I am mishti and I am from India. My dad has been diagnosed with stage 4 mid range esophagus Cancer in Feb 2011. I got in touched with one of individual who was suffering from brain cancer. After getting range of treatment from chemo to radiation, he went in for ayurvedic treatment in Varansi , India and find remarkable…
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An Unusual Case of Small Cell Esophageal Cancer
An Unusual Case of Small Cell Esophageal Cancer My mother was feeling unwell, and we were forced to have her admitted to hospital because her sodium level was at 120, while a normal level is between 135 and 145. After a number of tests and days spent monitoring and regulating her sodium levels, she was diagnosed with…
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I hate this cancer
Hello there. I am usually on the kidney cancer discussion board since having a tumor removed back in January. Cancer has effected my life so much. My Mom passed away from small cell esophageal cancer. She had acid reflux and swollowing problems for awhile and it took awhile for the doctor to take her seriously and do and…
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has anyone seen dr. peter enzinger from dana farber in boston, ma???
We are about to make an appt to see him. wondering if anyone else have seen him and what they think. please let me know. thanks linda
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ED -aka DeathorGlory - Today is the day!
Well, Ed - My calendar says it's February 4th. Sure hope by now that you have had surgery and that surgeons have correctly identified the problem you are currently wrestling with. As always, especially we Stage IV cancer patients, are hoping that this is "something you can live with." You've been battling this since 2008.…
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FolFox Chemo Treat
My husband was just diagnosed with esophageal cancer. He has an 11 centimeter tumor at the base of his esophagus. Some lymh nodes are involved but no organs. Today we learned he should start FolFox chemo treatments next week - 2 days of chemo every other week. He may also have the Her2 protein which the oncologist…
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Anyone used Dr. Wei @ UAB for Ivor Lewis
Hello! My husband was diagnosed with EC on 12/10/2018. He is nearing the end of chemo and radiation next week. Has anyone used Dr. Wei at UAB for the Ivor Lewis procedure?
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Need Input
My husband had a PET scan yesterday as followup for the initial radiation/Zeloda regimen. Our onc told us there was "good response" on the primary tumor. However, there are now two Supraclavicular lymph nodes that look to be involved on the R side. It also showed sinusitis on the L side. He has had a miserable cold since…
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Uncle Mike~Stage IV Esophageal Cancer~helpful references & info 4U
Dear Uncle Mike You’ve obviously come to a good site to find out more about your cancer. You state that your diagnosis is Stage IV Esophageal Cancer. However, you are talking about having surgery! Usually Stage IV EC patients are treated palliatively, with chemo and/or radiation. So I’m wondering if you have had a SECOND…
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Has anyone NOT had an Esophagectomy after Chemo and radiation?
I had the cancer removed and have completed my radiation and chemo. I am scheduled for another PET scan next week. Every bit of internet research leads me to the Esophagectomy so I'm just wondering is this surgery the only option? I will see the surgeon again after the PET scan but I don't think there is a surgeon in the…
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New Diagnosis
My dear 70yo Mum has just been diagnosed with EC (adenocarcinoma) but we won’t get all the staging details till Wednesday. I was starting to only think the worse thanks to google, but thanks to your hopeful stories, I’m starting to breathe again. i thought because she had symptoms that it automatically was a dire…
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Newly diagnosed stage 4
Hello, I'm from the UK and my husband has recently been diagnosed as Stage 4 with a spread to the peritoneal lining. We are both devastated as our world has fallen apart. I've been reading the posts on here since his initial endoscopy as initially it looked so promising. He was diagnosed with Barrett's approximately 16…
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Help please
Can someone please tell me what all this means my dad has stage 3 esophageal cancer and is in the hospital now because of pain and his feeding tube fell out then he started checking and his o2 kept dropping he is on 4 liters of o2 now. EXAM: TWO-VIEW CHEST X-RAY, 10/01/2018 REASON FOR PROCEDURE: 63-year-old outpatient…
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Update
I am writing a quick update as I haven’t been on this site since Summer! It has been a heck of a ride! My husband was diagnosed with stage 3 adenocarcinoma of the Esophagus aprox a year ago! He had chemo, radiation and then open thoracic surgery! The docs thought they got it all with no post chemo to be given! His surgery…
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Released from Hospice Care
Need any info on where to go from here. My 81 year old mother was diagnosed with Stage 3 esophageal cancer 9/17. After 15 radiation treatments and 4 chemo treatments she decided December of 2017 to stop treatment. Her Ongologist suggested Home Hospice Care and my mom agreeed. we questioned should she have some sort of scan…
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Tumor in the esophagus
My cousin in India had trouble swallowing; his doctor recomended a CT scan. They found a 5 1/2 cm size tumor of the distal oesophagus. He is a non-smoker and a healthy young man of 45 years old. A father of two young kids and a loving husband. Right now he is at Tata Memorial Cancer Hospital in Mumbai going through all the…
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Carbo Taxol Chemo Response outcomes for EC
Hi - Am looking for some info on level of complete remission or shrinkage on Carbo-Taxol chemo ? There is lot of data available on FOLFOX but am not able to find lot of people who got Carbo-Taxol Chemo for EC ? If anyone had experiences ( for EC , not for other cancers ) , please kindly share . Thank you .
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elevated CA72-4 tumor marker
About a month ago, my wife had a panel of serum tumor markers tested in Europe. The reason why she did it is to serve as a "negative" control for her mother (who is currently a 3-year cancer survivor). However, we unexpectedly found that my wife's CA72-4 level was elevated to 24 and to 16U/ml (analysis done in different…
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info requested
my dad was just diagnosed with esophageal cancer (lower esophageal - closer to stomach) 3 weeks ago. stage 4 with spot on liver. dr said heart, chest, lungs and kidneys working properly. i dont completely understand all of the terms associated with this (all of the Ts, Ls, ect) needless to say, devastation set in quickly.…
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30 yr old female dx EC
My wife was dx few weeks ago with EC , she is 30 yr with no GRED , no smoking & no drinking history , not obesse , very athelitic & fitness girl . Started as swallowing problem , few months went through as acid reflux and when EGD was done it revealed 3 cm tumor in EJ . Awaiting for PET scan , MRI showed no mets to liver…
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albumin levels
I have a question my dads albumin level is only 2.5 it has dropped even after having his jtube put in in his jujumim he is feed 24/7 through that and eats by mouth but it still drops and so does his weight. My question is how low can it go before something bad happens and how do we get it to raise