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Living on liquid
I manage to take in enough liquid nutrition to gain weight but never really feel full like I would after a normal meal. Am I the only one? I have managed to perfect the "rinse and spit" though. Had to have something in my mouth one day in order to save my sanity, and grabbed a spoon full of ice cream. Wow. It was heaven.…
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Caught cancer early
Hi -- First time here. Caught my cancer very early and had successful resection and doctor said I was cured. No chemo, radiation. In my second month of recovery but struggling with some depression and anxiety. At 75, I somehow think my life will never be as good. But why can't I be thankful and optimistic about all my good…
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Sleep help?
Hello, I had an esophagectomy a little over three years ago. I'm currently cancer free (YAY!!) Ever since, I've had a hell of a time sleeping. I tried sleeping in a recliner. It was not comfortable. Since I'm unable to lie flat, I alternate between using a wedge pillow or a pile of pillows, built into the same shape as the…
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44 and Undergoing EC Treatment
I was diagnosed with adenocarcinoma of the lower esophagus approximately 9 months ago. As I have progressed in treatment, I now know that I was at stage 4. My treatment plan began with about 3 weeks of radiation on my back where tumors were pushing against my spine and in my arm but not directly on my esophagus. Following…
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Esophageal Cancer Surgery
Mine was phase 1 that required surgery. I would be happy to put fears to rest and help explain my surgery to anyone it might help. To everyone, stay strong and positive and laugh when it hurts. God never leaves your side or misses a prayer, I am proof!
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Esophagus removal
I have been diagnosed with High Grade Dysphasia of the esophagus & Barrett’s. I have had 2 Halo ablation treatments. Last week Dr. Ertan, Houston Med Center, did biopsies. He called and wants me to see a surgeon before I see him again. Has anyone had this surgery, i.e. removal of part of the esophagus and the reattach the…
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It's getting difficult to swallow again.
Seems the esophogectomy scar tissue at the esopho-gastric junction continues to close. As of today it's 4 stretches in 3 months. My gi doc is suggesting a stent placement for about one month in the hope that the scar tissue will mold itself to the shape and remain open after the stent is removed. Since I am growing…
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Update on Mark and your help please
Hi all First just want to apologise for my somewhat erratic posting at the moment, I do follow all posts daily, sometimes twice daily and my heart breaks and rejoices with you all. As those of you who have followed my posts my husband is stg iv with mets to the lungs, he has finished all chemo and is now palliative care…
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About my mom's cancer (squamous)- looking for some guidance and help
I am not sure this is even allowed but I am need of some and all information anyone can give me. My mom was diagnosed with cancer last week. We are finding out that my mom's insurance is not covering the PET scan that is required to see if it has spread and it will not cover any chemo or radiation that the doctor says she…
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10 years NED
Hello Ladies and Gentlemen, I was diagnosed in early July 2011 and my cancer was located near my trachea (up by the collar bones). I went through the standard 6 weeks of radiation along with that infamous fanny pack of chemo. In the beginning of October of 2011 there was no evidence of disease. My oncologist worked with me…
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Mother was diagnosed with this cancer today, what should I expect?
Some backstory. My mother (53) is critically anorexic (15-20 years in the making), mixed with a handful of different psychological issues, and the doctor today is setting her up with TPN after a failed tube feed attempt (she is completely unable to eat or drink right now). Clearer diagnosis of the cancer and treatment will…
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2 year ct scan
Greetings... 9/10/21 had my annual ct scan. Afterwords doc said scan looked good, thus 2 years cancer free since my esophagectomy. Several hours later after doc more closely reading my ct scan contacted me and say they found a 1.9 x 1.8 cm nodular subpleural lesion in lung in the lingula. Now i gotta go in for a…
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Surgery vs Radiation Chemo Or?
I had neck cancer 8 years ago. Now I have a small spot (1 cm) on upper esophagus. My doctor thinks radiation chemo is possbile, maybe not full treatment dose, but not sure. The cancer has not spread. If I cannot have radiation they may cut out the cancer on the back of my esophagus, a 1 cm spot, and replace it with a flap…
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Trachea Tube Shower Cap Mucus Deflector
Hey everybody. I was diagnosed with cancer in my tongue in early 2017. In March of 2017, the surgeons removed 70% of my tongue including the "flap" and reconstructed everything with tissue donated from my left thigh area. As a result, I have a trachea tube that is more than likely permanent. As a result of that, I am…
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Second war with stage three S. C.
In January I had a successful PET Scan for stage III esophageal cancer. The report stated, 1) "No associated hypermetabolism." 2) "No lymphadenopathy." 3) "No worrisome hyper metabolism." When my oncologist presented my wife and I with this report we were, of course, filled with great relief and gratitude. My doctor,…
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Diaphragmatic hernia post ivorLewis surgery
Has someone dealt with Diaphragmatic hernia or hiatal hernia post ivorLewis surgery. My husband had this kind of hernia twice. And every time it was laproscopically repaired. He had follow up ct scan done after 5 months recently and again small one showing up. This is the third time. Did anyone here in forum come across…
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I may have Esophageal cancer
I am a survivor of tongue cancer that spread to both sides of my neck. I've been posting in that forum for years now. Went for scans this week for the first time in two years thanks to Covid. Doc said I need an endoscopy because my esophagus is lighting up. Now that I've been told of this situation, I'm realizing I may…
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throat cancer
I was diagnosed with stage 4 throat cancer and it has gone through my cartilage and into my neck muscles. I was wondering if I should do a full laryngectomy or try chemo and radiation and what is the quality of life for both.
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Recently Diagnosed with adenocarcinoma esophageal cancer
My Adenocarcinoma Esophageal Cancer Journey. In Feb 2021 I had a mild case of Covid. After about a week or 2 in my Dr sent me to ER on Feb 25th for heart monitoring, chest xrays etc just because of strange burning and pressure in chest. A common effect from Covid-19. My ekg was fine but a CT scan showed 2 to 3 nodules on…
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New here sharing my story Adenocarcinoma of Esophagus
Hello all, FIRST A PSA ANYONE with a diagnosis of ESOPHAGEAL cancer check on SS disability this cnacer qualifies as a compassionate allownace and can be approved in a couple weeks. I was getting an annual chest Xray as a precaution for being an ex smoker when they found an enlarged lymph node. It took months due to Covid…
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Need advice/input with radiation/chemo side effects.
I am in the end of the 5th week of a 6 week radiation/chemo protocal for vocal cord cancer and need some insight from someone who has had my side effects. I am on Cisplatin chemo and IMRT radiation to my neck and lympnodes. My cnacer is stage 2 but being treated as if stage 3. I was faring well until about the beginning of…
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Esophageal cancer diagnosed
About My dad: He is 78 and healthy as an ox. He has been taken care of my mom through her heart conditon the last two years and mom is on the mend. She had the TAVR procedure during Covid and recovered like a champ. She is a strong lady. She just got her eye surgery and is able to drive now. I remember after we got the…
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Second war with stage three.
In January I had a successful PET Scan for stage III esophageal cancer. The report stated, 1) "No associated hypermetabolism." 2) "No lymphadenopathy." 3) "No worrisome hyper metabolism." When my oncologist presented my wife and I with this report we were, of course, filled with great relief and gratitude. My doctor,…
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Anniversary
Today Mark's the 10 year anniversary of my MIE at Mayo Clinic, Rochester, Mn. Hasn't been easy at times but I'm still here looking forward.
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Feeding Tube Formula
We have just learned that our insurance company will not pay for the formula we are using for the J tube. And I just learned that we are being charged $315.00 per case of 24 – 250 ml cans of the stuff. Calculates to somewhere around $2000 a month and we’ve been told to expect to need it through at least mid Sept. The…
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Lower Ab pain after surgery
Hello, My father had an esophagectomy for Stage 1 cancer 1 1/2 years ago. Recently he has been getting a sharp pain in his lower right abdomen. It only last for a few seconds and comes and goes throughout the day. Of course he's worried cancer has returned and next scans aren't for 3 weeks. Has anyone else experienced…
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Esophegectomy
I was diagnosed with advanced stage III esophagus in June of 2020. Needless to say I was in shock. It all started when I had extreme difficulty swallowing anything, even water was painful. The tumor was very aggressive and growing. I was put on Chemo and Radiation for 5 week to shrink the tumor. After that surgery was…
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Twisted bowel 8 years after esophagectomy
My husband had Ivor Lewis esophagectomy 8 years ago. He has been doing fairly well but was just admitted through the ER with what they thought was a blocked bowel. After some tests, IV medication , NG Tube, fasting, he is being sent home. The doctor said they think it is a flipped or twisted bowel that was likely caused by…
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HELP - Continuous nausea/vomiting after Ivor Lewis method esophagogastrectomy
My father had an esophagogastrectomy 7 weeks ago and has suffered with 24/7 nausea and daily vomiting. We have tried many different medications, peppermint oil, reflexology and have an appointment for accupuncture this week. Has anyone else suffered the same outcome and if so, how have you coped? The cancer was…
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anyone have esophageal cancer after having Rny gastric bypass
I am facing surgery for an esophagectomy for stage 3 cancer Jan ,2021. I had RNY gastric bypass surgery 17 yrs ago to lose weight. Because of that it could be hard to be able for the surgeon to pull what little stomach I haave up. Has anyone else had this surgery after gastric bypass and how did it go? I am a 71 yr old…