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Uterine/Endometrial Cancer

Pain in the Butock
Hi lovely people newbie here 😀 I have been 3 years out for Gynae cancer and last week suddenly started to get aching butt pain with tenderness in my pelvic area. The butt ache is the same side my tumour was on, GP thinks it’s Sciatica and I’m due to have bloods taken. My cancer nurse is aware and will come back to me once…
Searching this Site (with Examples)
The site redesign in December, 2021, included a number of welcome improvements in searching. You can now search for a combination of words such as "carboplatin and leg pain" and get results that include all three key words, unlike in the past when the system would only find items that matched the exact phrase. And you can…
Newly diagnosed with endometrial cancer….
Hello! So, here I am on the journey no one wants to take. I’ve recently been diagnosed at the end of February 2024 with Endometrial Cancer. I’m 57 and had some spotting and bleeding, which led to a biopsy and the cancer diagnosis. Saw my ONC/GYN at the beginning of April, and just had my radical hysterectomy robotically…
Tips for surgery and after?
Dear wonderful people on this discussion list, I so appreciate all the tips I have received so far! I am facing surgery this Friday--laparoscopic and robotic. I should go home the same day. I have every confidence in the surgical team and have been assured by a doctor friend that Kaiser here is the best for this kind of…
Wife's pathology for endometrial cancer
My wife recently had a D and C because of some post menopausal bleeding which we assumed was because of the diet drug she is talking. Yes, the drug can trick the body into acting younger and having a menstrual period. After the D and C the doc said they removed a polyp as well. We were told the pathology came back…
Just letting people know I am 5 years NED.
I don’t visit here much but I do appreciate the help and support when I was first diagnosed. I was 1A grade 3 with some clear cell. I owe my good outcome to my wonderful Dr and the great facility I went to and still go for my yearly checkup. I am very sorry that another person on here continues to give bad reviews on my…
Regular Scans for Watchful Maintenance - Patient Advocacy NEEDED!
Hello, I was recently made aware of the fact that many uterine cancer patients are not getting regular scans because "the research shows that they don't extend long-term survival." Those are generalized quotes that I heard from a couple of doctors. However, those same doctors tell me that liquid biopsies are not really up…
Ladies going through chemo - how are you doing? Or those just starting or curious
Hi ladies! I know Teddi Bear, Editgirl and I are in active treatment. I thought it would be good to check in, see how you all are doing, share ideas, information etc. i am in a clinical trial consisting of Aldoxorubicin and Gemzar infusion on day 1, gemzar on day 8, neulasta shot on day 9 and start all over again on Day 22…
From Stage 1A Grade 1 Endometrial Adenocarcinoma to 6 yrs NED to Metastatic Stage4B
Greetings everyone! Along with sharing my journey here and checking in to support others in theirs, I am wondering if anyone has had experience with Stage 1A Grade 1 Endometrial Adenocarcinoma recurring after 6+ years being NED at each 3 month, six month, exam. The first time I was diagnosed (at 58) it was removed (via a…
Atypical Glandular Cells Undifferentiated on Pap Smear
Hi all! Who started out with Atypical Glandular Cells Undifferentiated on Pap Smear? I'm trying to find literature about this and what this means!? My GYN did not explain.
Greeting to all brave souls here
I am new to this site. 57 year old. had last menstrual period at age of 55 and became menopausal at 56. 19 months after last period started having spotting. contacted my GYN dr and had TVU. It was found to have no fluid but 5.18 endometrial thickness. i am going to be scheduled to have hysteroscope with biopsy. I am scared…
My sidetrip to Colorectal Cancer and a Reminder
I'm now 3 weeks post-op from a right hemi-colectomy (resection of terminal ileum, cecum (with appendix) and ascending colon). At age 70, the surgery did knock me out, and fatigue is still an issue. The incisional pain is minor but I have thick scar tissue bisecting my navel (I think he must have ended up with an open…
Endometrial hyperplasia or cancer concerns
I'm 4 and a half years postmenopause. I had some light bleeding 9 months ago, light bleeding 7 months ago, and then a little heavier bleeding for almost a month in December 2023. I have never taken HRT for menopause. At first, I was uneducated about bleeding post menopause was something to be checked immediately. I didn't…
Surviving UPSC
In August of 2025, at 63, I was diagnosed with uterine cancer. On September 30, 2015, I had a complete hysterectomy and was diagnosed with Stage III, UPSC. I came to this board a little bit after that looking for answers. I only made it through three chemos of carboplatin and taxotere. In December of 2015, I had a stroke…
Anyone using Fulvestrant or another SERD?
Looks like I may be changing from anastrozole (an aromatase inhibitor) and Ibrance to fulvestrant or imulestrant and staying on Ibrance. I'm in remission after two recurrences, and it looks like I can stay on the lower dose of Ibrance, but all my research points to changing the ai to a serd. I would like to hear the…
NED UPSC for 10 years!
I joined this board in October 2013 shortly after receiving my diagnosis. In December 2013 I had surgery at Moffiitt Cancer Center in Tampa Fl followed by chemo and internal radiation therapy. I am one of the very few lucky survivors to have never had a recurrence and am still NED today. I don’t think I realized until…
Uterine carcinosarcoma treatment experience
my mom had a recurrence of uterine carcinosarcoma after first round. It is stage IV and has spread to distant organs. Can you share your experience with this cancer, treatments (names of meds) and any other info you may think would be helpful. Thank you!
Vaginal estrogen and its alternatives
Hello! This is my first post. I am in my 60's and had stage 1a, grade 1 endometriod adenocarcinoma, and am currently 8 weeks post op recovering from total hysterectomy. Nothing found in lymph nodes, so no further treatment. My doc told me that 95% of endometriod cancer has estrogen receptors, but unfortunately I don't know…
Going to SGO in San Diego tomorrow, will I see any of you?
Hi This is my first time going. I will go to anything that has endometrial or uterine cancer in the title. I will be wearing a pin that has four women in black swimsuits and white swim caps. Probably will be wearing a pink or black mask. Corby
CDK 4/6 inhibitors and either an aromatase inhibitor or fulvestrant & Metastatic Endometrial Cancer
Hi, Okay, I'm trying to reach out another way. I have metastatic endometrial cancer er+ pr+ her2-, mutations: pten, pik3ca, ctnnb1, SPOP, mss stable, and tmb low. I have been on Ibrance and anastrozole for 6 years. I know that there are possibly some doctors prescribing one of the other two CDK 4/6 inhibitors to…
Chemo-resistant cancer mutation
Hi folks, thanks for all the helpful info and support on this forum. I've been browsing occasionally since diagnosed with Stage IV endometrial cancer last year but this is my first time posting. I've been fortunate to have nothing observable since surgery, although it makes it weird fighting this invisible disease. Anyhow,…
Newbie stage 4 looking for support and guidance
Hi all - My name is Jill and this is my first post. I was just told I have stage 4 uterine CA (serous) with mets to the omentum and peritoneum. The biopsy of a retro abdominal mass came back came back as “poorly differentiated adenocarcinoma of muellerian origin”. Doc says surgery is not an option because the mets in my…
Ureter Stent Kidney To Bladder -anyone else?
So my story began last year about this time. I was diagnosed with uterine/endometrial cancer which was in my cervix so at first they weren't sure if it was cervical or what. I had external beam radiation and six rounds of low dose carbo. I switched to Sloan Kettering and it was the best decision I could have made. I had…
2 year update
It's been 2 years since my last radiation treatment for Endometrial Cancer stage IIIa. I highly recommend probiotics with many different strains to help get stools back to normal. I had severe diarrhea on and off for a little over 1 year before I did this. I'm totally back to normal and can eat normal food again without…
Looking for transportation
Hi I am new here. Looking for transportation to get to an oncology specialist 3 hours away. any ideas? Thanks!
Uterine papillary serous carcinoma (UPSC), Brain metastasis
Hello all, I'm new to this forum. Dx'd 2017 with UPSC stage 4B. Metastasized to lung, brain, adrenal gland over the course of 2019-2021. I've been NED since Sept 2021 (after adrenal gland removed). More details on my profile. I'm curious to know of others who had USPC metastasized to brain - symptoms, treatment, status…
My endometrial cancer surgery
As promised I am updating here on the next step. I have been called in to; to attend a Pre Admission Clinic ( PAC) on the 2nd of January The surgery is scheduled for the 8th of January. I was wondering what exactly happens at a pre-admission clinic? Do they do more tests and answer our questions? I have been given 4 hours…
Question on post D&C operative report
Hello all, 39, premenopausal. After more than a year with increasingly heavy (but regular) menstrual bleeding and anemia, in late 2023 I found an OBGYN clinic that could see me several months earlier than my regular OBGYN. On my first visit, I had a pelvic exam and PAP smear, which found a slightly enlarged uterus and good…
Unexpected D&C results for CAEH - Likelihood of cancer?
I am 48 and haven't had my period in a couple of years. I had unexpected bleeding in September 2023, finally got an appt in October 2023 with my gynecologist who used ultrasound to diagnose 1cm thickness of my endometrius and a polyp. I had my D&C on Jan 2, 2024 and thought it would be like a previous polyp. Benign and no…
Experience with Keytruda/Lenvima?
I am trying to decide which regimen, among three of four choices, to try. The first best would be another carbo/taxol, but I am unwilling to lose my hair again. The second best choice -- medically best, I mean -- would be Keytruda/Lenvima. It seems like most posts about that combination have been pretty dire in terms of…

Uterine/Endometrial Cancer

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