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Introduction: Getting Started with the Uterine Board - Updated 4/12/2022
You've found your way here because you or a loved one either has uterine cancer or there are initial indications that cancer might explain the symptoms now being experienced. This Board is a good place to learn more about what you can expect as there are initial appointments with doctors, tests, test results, and if…
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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Uterine Board Frequently Asked Questions (FAQ) and Other Information - Updated 4/12/2022
While any member can create a new forum topic or respond to an existing topic, this page was created to provide members with quick links to certain posts on topics that others have found useful or informative. It also includes links to outside references and help on using certain features of this site. Here are the main…
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Thick Lining
Almost 52 over 2 years post menopausal and have been bleeding very infrequently until about 5 months ago. It comes and goes . Sometimes clear discharge, brown, red, etc and usually light. sometimes when i urinate i do have some discharge (assuming some lining). The last 4-6 weeks i had period type cramps in lower…
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UPSC survivor 15 years NED
I had USPC in 2010 and remain cancer free after 15 years. I had 6 rounds of chemo and brachytherapy. Other than screwing up my vagina with the brachytherapy ( it is not a straight tunnel any more) I am doing well. Having sex at 74 is still great even if it involes lube and vibrator stimulation. There was another lady that…
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Cramps and Waiting for Biopsy
I am scheduled for a biopsy and SIS in about a week due to post menopausal bleeding. The doc prescribed Medoxyprogesterone to stop the bleeding. However, I started experiencing lower pelvic cramps a few days ago, that oddly starting late morning and going on until I go to sleep. When I was bleeding, it also tended to be…
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Looking for others who may be survivors of leiomyoscarcoma of the uterus.
Hi... I was diagnosed with leiomyoscarcoma of the uterus in Sept of 2010. I had a complete hysterectomy, then 28 treatments of radiation to the pelvis. I know it's aggressive and that the statistics for survival is not good. Looking for others in the same situations.
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First chemotherapy treatment today
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Lung Mets
Has anyone been diagnosed with lung metastases ? I am stage 3C serous. They only do scans once a year here for some reason. I had some bleeding that they shrugged off and then my next visit they tried to but I basically insisted on a scan. The scan in December showed no issues in abdominial region, but found a new 6mm…
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UPSC - Any survivors greater than 5years?
Hello Fellow UPSC sisters.. I would like to start a discussion on looking at recurrance rates and survival from the USPC group. This may sound depressing, but I think it would be positive to put light on this "Rare Agressive Cancer". I had surgery (TAH + BSO and pelvic node clearance Aug 2010). Surgical staging IIIC. (Node…
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Nine years later recurrance in lung
I had stage 1a grade 1 endometrial cancer 9 years ago. I had a full radical hysterectomy, and the Dr.s felt there was virtually no chance it would return. No chemo or radiation was suggested or offered. Nine years later I started to cough blood and after loads of tests, it has been determined that I have an endometrail…
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Has anyone heard from CMB?
I have not heard from CMB in a very long time. I hope she is okay.
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Emotionally struggling, looking for suggestions
Sorry, this is a long post… I just had a radical hysterectomy on 1/21/25 after having had a biopsy on 12/27/24 that showed some cells that suggested endometrial adenocarcinoma. The final pathology found the tumor provided a diagnosis of FIGO Stage 1A2. While I am 41yo, my logical brain is what said to do the radical…
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Endometrial SEROUS carcinoma
I was diagnosed with endometrial serous carcinoma 10/21. I had a total hysterectomy, chemotherapy, and brachytherapy ending 6/22. I had a CT and PET scan 7/23 which showed cancer recurring in the retroperitoneal lymph nodes. I have my last radiation treatment today (total of 28) and am wondering if there's anyone else on…
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Just diagnosed - Endometrial Adenocarcinoma Endometrioid - FIGO grade 1
Hi everyone, I was just diagnosed with Endometrial Adenocarcinoma - Endometrioid type - FIGO grade 1 P16 and P53 wild type stains) on 2/28. Have appointment with Oncologist on March 10th. Seems like years away after cancer diagnosis. I have had very heavy period since November 29th. Nobody should have to have a period this…
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Uterine papillary serous carcinoma
I was diagnosed with USPC in August 2024. Had total hysterectomy (stage 1b, no metastasis or lymph node involvement). I have had 3 rounds of taxol/carboplatin and should be starting external radiation after first of year. Other than neuropathy and some short term muscle pains, I handled the first three rounds of chemo ok.…
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Serous Endometrial Carcinoma ("high-grade"), now metastasized to lungs
Hello - Introducing myself here. The topic title summarizes it. I was diagnosed in December 2022 and January 2023, had to wait 6 weeks for a 'radical' hysterectomy while in pain and bleeding profusely (because of health insurance!), then spent 2023 in chemotherapy and radiation, and recovering from their side effects. Last…
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Metformin
I've seen Metformin mentioned here as an important tool to strengthening our bodies' fight against cancer. I looked up the studies, and the research is so promising, I'm surprised we haven't heard more about it! I am on the verge of getting lung biopsies for what appears to be metastasis of serous endometrial cancer. I…
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Do I have to take steroids after doxil
S teroids
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New here, stage 1a upsc
Hello to all of you amazing ladies, My mom at 63, was diagnosed with upsc stage 1a. She had post menopausal bleeding and with an ultrasound a polyp was found. After D&C and hysterectomy, she was surgically staged at 1a, no lymph node involvement, no myometrial involvement, just in the polyp and some in the top layer. She…
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dietary suggestions during pelvic radiation
Does anyone have suggestions for me related to good nutrition during pelvic radiation for uterine cancer, post hysterectomy.
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Curcumin and broccoli supplements
Has anyone been allowed to take curcumin or broccoli supplements during cancer treatment. I read that the broccoli sprout supplements can be effective at killing stem cells but am not sure if that is based on real science. I am healing from a hysterectomy for StageIV serous endometrial cancer and doing research to see if I…
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SURVIVOR....UTERINE CARCINOMA. STAGE 4-2b
Are we all a survivor of a very small percentage of people??? How long does a person stay in remission with a metastatic cancer??
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Joint pain
I’m receiving Keytruda infusions every 3 weeks. My knees and hips are hurting. I’ve read Keytruda can cause joint pain. I’m using cold / heat packs on my right knee which is swollen and difficult to bend. Any suggestions on how to reduce the joint pain?
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My mom has Serous endometrial carcinoma
My mom just got her biopsy results back for serous endometrial carcinoma. I'm looking for advice on where to take her for treatment and what I should look for in the treating facility. What should I ask during the consult? I'm on the East Coast. Does anyone have any good recommendations for gyno oncologists? I'm only in my…
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Postmenopausal for 8 years
Hello ladies. I Am 59 years old and started lightly bleeding in late January. I have been having a light colored discharge for months but I wondered if i wasn't leaking pee 🫣. My gyn got me in same day I called. I have been going to the same GYN since I was 25! He did pelvic exam and told me that I had a big polyp coming…
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Stage 2 BC Triple negative Tamoxifen 8 yrs Uterine lining 22 mm
Started with intermittent discharge in Sept, had a negative pap. Went to a Gyn in Jan , had an US and measured 22 mm. My oncologist took me off tamoxifen right away and asked for a CT scan to be done before the D&C is completed. Waiting on the CT Scan results and D&C is scheduled for next Tuesday.. Wondering what my…
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External radiation and brachytherapy for reoccurrence
I was diagnosed with Stage 1 grade 1a endometrial adenocarcinoma last year and had a total hysterectomy. Last month they discovered a recurrence and had a PETCT scan. Thankfully, they found nothing more but I learned today that the protocol is 5.5 weeks of external radiation (5 days/week) followed by 3 sessions of…
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Newly Diagnosed Stage 3C1 endometrial cancer grade 1... what to expect?
Hi There, Well just a short 3 1/2 yrs ago I was my husband's caregiver for his colon cancer which he did pass away early 1021. Now I find myself in the same situation dealing with cancer but now I am living alone. One would think cancer would jump over me since I already had to deal with it so long prior . Started spotting…
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PMB and Endometrium at 26mm
Hi Everyone, My mom, age 65, experienced PMB about 3 weeks ago. I immediately got her scheduled to see the gyno and her ultrasound came back showing her endometrium measuing 26mm! She is scheduled for a D&C in 2 weeks. She had a D&C done almost 6 years ago for PMB when they found a polyp in her uterus, removed it, and the…
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Ketogenic diet
Has anyone tried the ketogenic diet to help reduce/stop cancer growth during chemo treatments. I have read a few stories where women went into remission and credit part of it to their ketogenic diet. I think it might be worth a try but need to find a Doctor who believes in it to monitor my diet and health during chemo.
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I’m Terrified
I recently had a Pap smear which came back normal but there were endometrial cells present. I am 49 years old, no symptoms, perimenopausal, obese (31 bmi). My doctor wants to do an endometrial biopsy. Now I am scared to death that I have cancer. Any advice on how to handle? I am particularly freaked out because I have ocd.…
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Granulation tissue biopsy after surgery
I was diagnosed with Endometrial Adenocarcinoma Grade 1 in March, and I had a hysterectomy with da Vinci robot on April 17 (Stage Ia). I've felt fine since then and had no problems/symptoms. Yesterday I saw my oncologist for a follow-up. He said I have what appears to be "granulation tissue" at the top of the vaginal cuff.…