The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Surgery or continue with chemo with follow up radiation

Diagnosed with endometrial cancer, I had a full robotic hysterectomy with no positive lymph nodes. About four months later the cancer metastasized on my abdominal wall. I just finished six sessions of chemo and four with Keytruda (had to stop Keytruda due to my high levels of TSH)..

Recent PET SCAN results: Soft tissue masses in the abdomen and pelvis suspicious for metastatic disease have decreased in size. For reference, right ventral subcutaneous mass 22 x 8 mm, previously 33 x 10 mm (SUV max 1.7, previously 11.8); the mass in the right rectus abdominis muscles now subcentimeter in size still with some residual hypermetabolic activity although hypermetabolic activity may be misregistered from adjacent bowel loops, SUV max 7.8 (previously measuring 17 x 28 mm with SUV max 14.8); mass in the left rectus abdominous muscles now also subcentimeter in size with minimal residual hypermetabolic activity, SUV max 2.6 (previously measuring 23 x 18 mm with SUV max 14.7).

My Oncologist does not think I need surgery, and has given me three options, 1. Monitor, 2. 3 more sessions of chemo and follow-up with radiation.

My Radiologist agrees with my Oncologist but also suggested that I consider surgery. I know every case is unique but has anyone come across a similar situation. Worried about the risk of surgery.

Comments

  • Forherself
    Forherself CSN Member Posts: 1,052 Member

    Welcome Wonsuni. Sorry to hear you are dealing with this. My husband is a family doctor and he advised me to ask my gyne oncologist to ask "What would you do in my position". They can't really tell you what to do, but they can answer that question. My gyne oncologist said "I don't think I would have treatment." So I didn't. That was 7 years ago and I have not recurred so it was good advice. It is one of the frustrating things about this disease. Everyone is a little different so there is no cut and dried answer. I hope other people come on and give you their experience. This board is so quiet these days.