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Ovarian Cancer

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Need Suggestions for Neuropathy Relief
I have had 14 rounds of taxol, 4 rounds of Taxotere and 18 rounds of Carbo over the last 8 years and I am finally feeling the effects of neuropathy. It is suttle and comes and goes. Mostly in my hands, but sometimes in my feet too. Cold weather definitely makes it worse. What are you taking to prevent the further effects…
Stage IV (4) Ovarian Carcinosarcoma - MMMT
Hi all, I'm brand new to this message board. I'm currently 44 and I've been fighting ovarian cancer since August of 2023. I had surgery to re move a ~20cm tumor, then immediately started paclitaxil/carboplatin (+bevacizumab starting cycle two) every 3 weeks for a total of 6 rounds. Continued the avastin for a few more…
Chest Pain with chemo
Yesterday, I recrived chemo and after carboplatin and paclitaxil, I started experiencing chest pain. BP went up to 155/85 (I am normally around 112/55). They took me to ER for chest x-ray, bloodwork, and evaluation. Was discharged. Has anyone else experienced chest pains with chemo? This is my second round of chemo (6…
Avastin and Avastin/Doxil Side Effects
Hi Everyone, I am contemplating either Avastin alone or Avastin/Doxil as my next step along this journey. The published side effect look awful. I am looking for first hand information from you ladies that you might be willing to share on how well tolerated these drugs are......thanks.
ovarian cancer - overwhelmed
hi, my wife is presumably to have ovarian cancer. big belly, bloating and loss of appetite started about one month ago. Went to primary doc, then did an Ultrasound about 3 weeks ago, it showed 3cm pancreatic tumor and ascites. Scheduled for a CT scan the following week. Then her bloating/cough got much worse so we checked…
Seeking help
my wife was diagnosed with an aggressive form of ovarian cancer on June 21st 2025. She had a 20 cm mass removed, full hysterectomy and bowel resection done on July 20th. Her first round of chemo was this past Wednesday and needless to say this weekend was awful. What I really need is caregiver support. I’m looking for an…
Surgery scheduled at MD Anderson… cancer suspected
5 years ago my local GYN found a 4cmx4cm tumor on ovary. I’ve already had Non Hodgkins and Breast cancer so she did CA 125 and ultrasounds every 6 months. Grew to 7.1cmx6.8cm. CA 125 raised but still normal. She refused to do surgery to remove. Went to MD Anderson and had tests The radiologist and the surgeon agrees,…
Seeking Help For My Sister
My sister was just diagnosed with Stage IV Metastatic Ovarian Cancer. They said they can add maybe a year longer to her life with immunotherapy. She had no symptoms and was seemingly completely healthy up until some abdominal discomfort 4 days ago. Is there anything else we can do to fight this and extend her life? Are…
New and scared
I was diagnosed with endometrial cancer stage one today. I am being referred to a specialist (my gyno doesn't treat cancer). It feels like standing on the edge of a high, high rooftop and looking down. Any suggestions on managing the anxiety and feelings of being overwhelmed? Thanks for reading
17 liters of yellow brownish ascites
Worried???
Hi I am new to this group, and would love inputs, my 32 year old daughter has a mass that is 15.9x15.6x16.9 with solid nodules along the margins…CA125 was 830 with large ascites can anyone give me their opinion she is seeing a oncologist Fri.
Chemo or No Chemo - Stage 1C1
Finding myself in the decision making stage for Chemo or No Chemo (Observance) for Stage 1C1. Single ovary cyst with recent surgery to remove cyst, ovaries, fallopian tubes. Spillage during surgery (due to cyst size, needed drainage prior to removal). Cyst results returned as Grade 1 mucinous carcinoma. All post-op CT…
To chemo or not to chemo? That is the question
I was recently diagnosed with endometrioid carcinoma, FIGO grade 1 stage 1C. My doctor is recommending chemo because the ovary that the cancer was in was split open when he went in to do surgery. There was a lot of fluid in my abdomen and chest from the rupture of the mass that was on that ovary. The doctor said there was…
NEED INFORMATION
HI BEAUTIFUL LIVES OUT THERE. ITS SO NICE THAT WE ALL ARE IN SUCH A GOOD HEALTH THAT WE GOT AN OPPORTUNITY TO BE HERE AND DISCUSS ALL THESE THINGS TOGETHER. FIRST OF ALL THUMS UP FOR THEM WHO ARE FIGHTING WITH THIS ILLNESS AND DOUBLE THUMSUP FOR THOSE WHO ARE GIVING CARE TO THEM. SO ITS THREE THUMSUP HERE. LETS ASSUME THAT…
Vitamin C IV Infusion
Hi All, Looking for informatin regarding the Vitamin C IV Infusion. I am currently on my 2nd chemo treatment for Stage 3C OVCA. I saw a post that Nancy had put up concerning the Vitamim C. Can someone supply me with more information. As you all know, we all want to try and beat this monster and I can use all the help I can…
HEATT
Just curious has anyone consideeed the heatt trial in california (verthermia)?
Keytruda - Recurrence during treatment
My mom initially diagnosed with high grade serous ovarian cancer in 2021 had recurrence to brain last year. After 18 cycles of Keytruda she got recurrence in abdominal lymph nodes and pelvic area now despite her scans six months ago were clean. Doctor suggested given her very weak condition and lack of progress to stop the…
Ketogenic Diet for cancer
Is there anyone that uses a ketogenic diet for cancer treatment along with chemotherapy to lessen the side effects? I'm 66, was diagnosed with stage III serous ovavian cancer. I surgery to remove the cysts, ovaries and fallopian tubes removed. I had already had a hysterectomy. I had a port for chemotherapy installed…
State Disability, Social Security, Social Security Disability
Just thought I would pass this info on to anyone who might find it helpful. I may have mentioned some of this before. My last day of work was 2/26/2010. I was ill but didn't know the horrible truth yet. After literally begging my doctor for more tests I was given the CT scan which forever changed my life. I applied for…
Brenner Tumor
Can anyone give me some information on a malignant Brenner Tumor? I would like to find someone who has been diagnosed with this type of tumor.
Apricot seeds
Have any of you ever taken apricot seeds? I am curious to hear your comments. I know of one young man at our church who had brain cancer stage III seven years or so ago and he said the seeds attributed to his health now. Then another lady I know just was told her dad was done with treatments so she is going to start him on…
Switching from Paclitaxel to Docetaxel
Anyone have any experience with Docetaxel? I had a bad allergic reaction to Paclitaxel so now going to try something different.
What is physiological FDG uptake on a PEt scan?
I am reading my mother's report and there is this Physiological FDG uptake in her brain and lungs. I'm thinking this is not very good. ANy thoughts?
Choosing NOT to treat
I decided decades ago, after watching several generations of women die of cancer, that I would not be treated when (not if) I developed cancer. That decision has never wavered; what I've seen since has made me more determined and content with my choice. So here I am. But it turns out that doctors don't particularly…
Keytruda side effects
My mom is in 10th cycle of keytruda for ovarian cancer recurrence. Last month her PET scan showed initial all lesions in brain and inguinal lymph nodes resolved. Doc said to continue treatment for six more cycles. However she is extremely fragile, lost 20 kilos, could take only fluids via tube and nervous all the time. Has…
Cravings?
Ok...so this weird and a bit light hearted, but we all need to think of something weird and wacky from time to time! I have found that since my diagnosis, I have experienced a range of cravings...have you experienced the same thing? Initially, after diagnosis, I really wanted wine and chocolate..lots and lots of wine and…
L-Glutamine for Neuropathy
Hello again ladies, Can anyone tell me how many milligrams to take of L-Glutamine and B-6 to help neuropathy?? I tried Lyrica, and it didn't help. Thank you; and God Bless all of you!! ~Susan xoxo
Avastin only for maintenance?
Hello, I posted this on the uterine board but only received one reply. I was hoping maybe someone here would be able to help. I'm on Avastin only for maintenance after going through chemo (carbo/taxol) 3x. I received my 11th infusion this week and have been doing well. My onc said my situation is a dilemma because the…
Ovarian and uterine cancers
I was just diagnosed. Total hysterectomy was done April 23 for endometriosis, pathology came back with stage 3 uterine and stage 1 ovarian diagnosis. I guess you could say that I'm lucky that the ovarian cancer was caught early. I can't get a straight answer from my surgeon about chemo and prognosis. Every cancer website…
zejula question
Hi everyone, This is my first post. I am on zejula for maintenance after Ovarian stage 2b diagnosis, surgery and 6 rounds of chemo.I began Zejula in fall 200 but was hospitalized for low platelets. Now and on 100mg and tolerating accept for sleep issues. I take it at 8 pm. Does anyone take their dose in the morning? I was…

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Ovarian Cancer

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