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Prostate Cancer

Looking for Honest post-surgery ED expectations / feedback
Hi members- I'm new and this is my 1st post…I had DaVinci assist radical prostatectomy…I am 14 months out and still no firm erections even though I check off all the boxes on someone who should be up and running by now (healthy, not overweight, 57 at time of surgery, doc said both nerves were spared, non-smoker, not a big…
Erectile dysfunction ED conditions after Prostate cancer radiation treatment
Are there many? Or a few? Is there a resource for improvement? I am dealing with so many situations and experiences. Radiation treatment related? What are yours? Thank you.
Post Radiation Proctitis
I am hoping for some good feedback for those of you who had challenges recovering from RT. I had a very easy treatment with a Proton 28 fraction schedule. Typical improvement of limited symptoms until my second month, then I started to have some diarrhea once a week or so. Condition has not improved and maybe gotten a…
Finally I've gotten some good news
After an IRE ablation procedure last year, then a few months of ADT so far, and 40 sessions of IMRT of the prostate and pelvic region for lymph nodes, my most recent blood work indicates a PSA level of .04 ng/ml. Down from over 9 ng /ml about six months ago. If I understand correctly, this is considered undetectable. I'm…
Deciding to end treatment or not?
My husband has been through a lot over the last 5 years ( he is currently 63) but we are now at the point where we really need to decide if focusing only on comfort care is best. Since February things suddenly became very bad with spinal metastasis, which then turned into fractures one pressing on his spinal cord putting…
Post PSA numbers
My PSA number at 33 days after treatment was .02 (from .42) 🎉🎉🎉 Asked about my hormone shot. It was a 6 month shot (Feb-July). So, sweats and chills to continue 😩 Check PSA again in 90 day 🚜🚜🚜
Time of first PSA after treatment
I was under the impression they would wait 3 months to do a PSA. But, I just got a text from my urologist to get it done at 30 days That Sound right to everyone?? Have a Great day 🚜🐝🚜
Side effects of chemo
Stage 4/gleason 9/metastatic prostate cancer. Mets in 6 lymph nodes and 2 in bones. Due to genetic testing results my Oncologist went right to a triple blast of dartulimide/doxitaxel/carbitol for 7 treatments, along with Zuniga/Eliguard. I was 4 treatments in before the side effects got to me. Pretty bad nausea and the…
Muscle and ligament issues
So, this is a query for anyone who is post treatment I lost 20 lbs during my 7 weeks of treatment. Mostly from not eating anything but chicken and rice My question is - The ligaments above and below my hips give me issues unless I take 3 ibuprofen in the morning and my middle and lower back are weak and I’m always a bad…
Battling prostate cancer
I am 63 years old diagnosed with prostate cancer in October 2024 my psa went from 43.43 to 0.28 in 4 months on orgovyx with lymph node and a couple of ribs involvement my doctor just prescribed nubeqa and now I'm wondering what's next
PSA rising after SBRT
I am 65, Gleason 4+3, localized 2 tumors. PSA 6.7; Had SBRT (4 sessions, 9.5 gray each) in early August 2024. Minimal GI and GU side effects; took 4 month Orgovyx. In 11/24 I had first psa test, result was < .01, testosterones was 13. 2/25 test shown psa rose to 0.4 and testosterone level rose to 384; 5/25 psa rose to 0.8…
Overwhelmed with my proposed treatment plan
Hi everyone, I had an appointment yesterday with a radiation oncologist to go over the treatment plan for my prostate cancer. I’m very grateful my spouse was with me—it was a lot to take in. I have a Gleason 9 diagnosis, and while the cancer is still contained within the prostate, the recommended treatment is androgen…
Overactive bladder from ADT and IMRT
Just finished the last of 40 IMRT sessions last week and have been on Orgovyx and Zytiga for about 3 months. Feeling OK with the exception of an overactive bladder including urinary urgency and frequency. I need to pee about every 1-1/2 hours. Very annoying especially during the night. Not getting adequate sleep. I…
Thanks all
I want to thank those who tried to help me. I gave my best effort to try to deal with the side effects of treatment from this disease but learned today that ADT damaged my testicles and they are no longer working so I will never recover testosterone. I also learned ADT gave me osteoporosis and heart problems. This is not…
Pluvicto
I just finished first of six Pluvicto treatments. Out of isolation and haven't noticed any real bad side effects (yet). I recently finished a clinical study with Xtandi and a part inhibitor. PSA was 115 at beginning, went down ton3.2 then trended upwards. Doctor immediately got me on Pluvicto so we'll see how it goes. I…
My Update since HIFU treatment August 2024
Last year, I met with numerous specialists to explore all treatment options for my prostate cancer diagnosis. I consulted with experts in radical prostatectomy, radiation, TULSA, and HIFU, and I wanted to share a brief update on how I navigated these decisions and where I am today. 🧑‍⚕️ Consultation Highlights Dr.…
Searching for Treatment Feedback / Supplements
Hello I am age 51 (in great shape aside from this) recently diagnosed PCA and biopsy showed combination of 3+4 and 4+3 Gleason so definitely intermediate risk. PET scan on 4/19/24 showed cancer is on left side of prostate only has not spread. No symptons aside from PSA level 4.3 and get up pee 1 or twice at night. I am…
My case high PSA post prostatectomy
Hi I’m 48 years old. Diagnosed with prostate cancer in Oct 2024. Had surgery in Dec 2024. PSA score pre surgery (radical prostatectomy) was 19. Had lymph node involvement. Gleason 3+4. 10 out of 21 nodes that were removed were positive for cancer. Odd thing was the cancer seemed to be near the wall of the prostate and so…
Post AMS 800 recovery pain
I had the AMS 800 implanted on January 14 and it is now January 31. My perineum incision healed well but my incision across my lower stomach, though it looks good on the surface, gives me shooting pains if I do anything other than lay on my back all day long. Is this to be expected? My surgeon said I should walk but that…
Fatigue on hot days
ok. So, I’m 22 days post treatment and have been doing my normal farm chores for past week. Today it’s in the 80’s here and I’ve had to rest about half dozen times Eating normal without issues. Still at 205 lbs. Walked a mile in park yesterday with our min pin. Plan on starting back on the Bowflex next Monday just a heat…
Elligard- Hormone Therapy
I am 7 days post RT, but had an Elligard injection 5 say’s ago. Have been taking Elligard since December. Since start I have horrible painful itching. Narrowed it down to reaction to Elligard. Am thinking of stopping Elligard. I haven’t had the last visit to oncologist or urologist to discuss this yet. Anyone else with…
Weight Loss
So. I finished my treatments on 4/8/25. At that time I weighed 206 (from initial weight of 222). I’m 6’2” Since finishing the treatments and working my way back to my pre treatment meal schedule, I’ve lost another 5lbs. I’m at 201 today I still drink around 80 ozs of fluid per day I am out on our 9 acres working every day…
Questions about IMRT and Urinary Urgency
I'm currently into my 14th of 40 IMRTs today. In the last few days I've been struggling to hold my bladder while on the machine. Had two incidences of having to stop the treatment for me to get off and pee. I barely made it to the restroom both times. They're very understanding and after I drink some more water and wait a…
8 months post radiation and Cyberknife and 3 months post 12 months firmagon
Husband just recently finished treatment for prostate cancer with me. Gleason score was 8. Starting PSA was 2.8 before treatment. 3 months past Cyber PSA was .044. 6 months past Cyber PSA is .064. Does this indicate a concerning rise? And is there a need to worry? Messaged urologist and he said to come back and test in 6…
Latest Check-up Results
I had my 3 month checkup today, and the good news is that my PSA is still undetectable, but my Testosterone has only risen to 26. But, by far, the most important test result is that my PSA is still undetectable. Life is good. My Related History and Data: Post-Robotic Prostate Removal Surgery Pathology Report A. Lymph…
Options when adjunct or salvage radiation can't be used?
I am almost 5 months out from radical prostatectomy. 1st PSA at 3 months was 0.39 (quite high) and 0.40 at 4 months. This suggests a doubling time of about 27 months, although that can change over time. I was Gleason 3+4 (40% 4) with cribiform pattern. The margins were positive at both sides and the base. He only took out…
Milestones Reached
ok. I’m 11 days post last treatment (#35). I’ve reached a couple of milestones 1 - zero diarrhea. BM’s are solid (making timber😎) 2 - I can stand up and pee 🎉🎉🎉. That’s because I can now trust a fart 😜🤣😜 3 - I can eat “normal” food without my wife hearing my stomach growl in the next room 🤓 4 - Haven’t had to take a nap in…
Impending surgury
Ok this is the story. Diagnosed in Jan. after annual physical showed psa 28.1. 58 years old first psa, not sure why I just never asked and DR never requested. Biopsy first of Feb 5/14 cores all 3+3=6 all bottom left side. % of cores, 100,98,95,90,35. Psma pet end of feb. No metastases, DR wants to do sergery and remove…
Hope for erections after prostate surgery-3yrs 2mos later!!
Here's some good news! After 3yrs 2 months right out of nowhere in the middle of the night I was awakened by the first ever nighttime Erection since my surgery. Now , I have been getting okay erections for the last 2 years, but I haven't had a spontaneous erection in my sleep since my surgery. It actually amazed me and I…
Post week 2
just a note for anyone in or through treatment I’m on day 3 of 2nd post week. Feeling better every day. No nap yesterday. Just worked through the fatigue. Doing same today. Disappointed that I have to wait 90 days for first PSA. But, is what it is As I said before, 20 yrs in navy so I have no boundaries. Feel free to ask…

Prostate Cancer

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