Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

Questions about IMRT and Urinary Urgency
I'm currently into my 14th of 40 IMRTs today. In the last few days I've been struggling to hold my bladder while on the machine. Had two incidences of having to stop the treatment for me to get off and pee. I barely made it to the restroom both times. They're very understanding and after I drink some more water and wait a…
An update and a question on treatment plan
I first posted last month when I was initially diagnosed with prostate cancer. The comments from everyone were very helpful. I finally saw the oncologist this past Friday (3/21/2025). I wanted to give an update on where I stand and ask what you all think of my oncologist's proposed treatment plan (knowing that you are not…
Transperineal Biopsy and ED
I'm a 55 year old male scheduled for a TPB next week for MRI findings of two PIRADS 4 lesions 7 mm each on the right side, but I also have a trip scheduled the week after with a new girlfriend. Anyone have any experiences with side effects after, specifically erectile dysfunction and how long it lasts? Thanks!
Week 5 of SRT
Greetings all Radical robotic Prostectomy 12/8/23. Subsequent PSA’s went from 0 to .42 over next 12 months. Doubling every 3 months So, I just finished week 5 of my SRT treatment. No issues first week. Lots of bathroom visits end of 2nd week at one point I was positive that my anus had blown off and I would see it floating…
New PSA level was only a 0.54 as of yesterday;
Greetings all; I was officially diagnosed with an enlarged prostate, and approximately 3 mths later, prostate cancer. My PSA level went up to over 400 points (yikes), but I absolutely felt 100% normal as if nothing was wrong. Immediately, I was enrolled in Cancer Treatment, with only meds, which was to follow up with chemo…
Thanks all
I want to thank those who tried to help me. I gave my best effort to try to deal with the side effects of treatment from this disease but learned today that ADT damaged my testicles and they are no longer working so I will never recover testosterone. I also learned ADT gave me osteoporosis and heart problems. This is not…
Update on 2010 diagnosis and treatment
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years. Five years after…
79 year old with Advanced PC to L-1 & Pelvic
Always have enjoyed the wonderful testimonials from Forums! I Went to ER with Urinary Retention on this past December, 2024. Inserted Cathether due to Very large Gland First Urologist visit confirmed PC, CT couple of weeks later confirmed APC Then PSA with a high Gleason of 4+5.. Had first HT Firmagon injections a month…
When to consider yourself cancer-free post surgery
Some of you US guys may be familiar with Rick Steves, the travel guru. He has the most popular guidebooks for travel to Europe, as well as TV, radio, podcasts, and tours. He had surgery for prostate cancer last October. Recently, he made an online statement saying he is cancer-free, based on his most recent non-detect for…
Decision Time RP or ADT/HDR/EBRT
After waiting 8 weeks for my MRI Fusion biopsy the results are in and not great mostly Gleason 9 (4+9) and one Gleason 9 (5+4). Have Bone Scan and CT Thursday and Friday of this week. Hoping it hasn't metastasized but concerned. I have appointments set up at Memorial Sloan Kettering with Medical Oncologis, Radiaiton…
Options when adjunct or salvage radiation can't be used?
I am almost 5 months out from radical prostatectomy. 1st PSA at 3 months was 0.39 (quite high) and 0.40 at 4 months. This suggests a doubling time of about 27 months, although that can change over time. I was Gleason 3+4 (40% 4) with cribiform pattern. The margins were positive at both sides and the base. He only took out…
52yo Gleason score of 3+4 in San Diego
I have a follow up call from my doctor about treatment, surgery, radiation or continued surveillance. I'm a firefighter and in good health, workout almost every day. Anyone receive treatment in San Diego? I've read about other protocols; anyone try them during active surveillance? Thank you in advance for any response.…
4+3 with possible Seminal Vesicle Involvement
Hi - 55you with Gleason 4+3 with a primary lesion on the left, and other positives on the right. MRI indicates abutting the capsule, but clear Seminal Vesicles. Pet CT shows "No other abnormal uptake to suggest tracer avid metastatic disease" BUT "Suggestion of bilateral foci of uptake in proximal seminal vesicles not well…
Now what?!?
I had radiation for G7. Doctor wanted six months of ADT. He told me it would wear off. It's now six months past the last time I took Orgovyx and my T only went from 7 to 26. My doctor said I'm the first patient under 60 he had on Orgovyx who did not get their T back. I don't trust him. Now he wants to do a cardiac workup,…
Gleason 8 with PNI
Hi all. I have been diagnosed with Gleason 8 and PNI. I am scheduled for PMSA Petscan and Exactscan in two weeks to see if and where the cancer has spread. The cancer is too big for prostatectomy (unless it can be shrunk) and will get recommended treatment once the tests are done. Anyone had similar diagnosis and any tips…
Can’t decide course of treatment… help!
Hi everyone- I’m writing as support for my husband who was recently diagnosed with PC. So much info has been thrown at us yet at the same time it feels like this treatment decision is just up to us without much guidance. The “gray areas” are killing us. My hubby’s info: 68 years old, very fit and active (runner, physical…
BCR what to do? Prostate cancer feedback
Hi, I was diagnosed in Nov. 2002 with Grade 1 Gleason 6. Had RP Feb 2003. For 10 years my PSA was 0. In the 11th year my PSA went to 0.3 then dropped to 0 a year or two latter. Started going up again. The last 9 years it was stable at 0.3 ish up and down 0.34, 0.36,0.3 etc. In 2025 it went to 0.48 then down to 0.42. PSMA…
Very Slight increase in PSA
I had a RALP in 2018. No problems, PSA was low to begin with. I just wanted the cancer gone. PSA tests periodically since all virtually undetectable. First positive reading was in September of 2023, when it was, .04. Noted, but no big deal. September of 2024 .06, then today, February 2025 .09. Question. Do these numbers…
Advice needed
First off, I'm shocked to be here. My heart goes out to each and every one of you. I'm here for support to my husband and to gather information. A little history: My husband is 52. He had a physical a month ago that showed a PSA of 4.1. The doctor sent him to a local urologist. The only symptom I've noticed is going to the…
Prostate cancer and heart condition
I am currently taking Orgovyx which has lowered my PSA to 0.009. However, I found out I should also be taking an androgen receptor inhibitor (my urologist prescribed Xtandi) along with the Orgovyx, but things have become more complicated as I discovered I also I have a heart condition (my cardiologist told me I had a minor…
Prostrate Treatment effects
I had a Brachy Therapy in 2006 performed by a team at the Sunninghill Hospital in Sandton Johannesburg. In 2006. In 2020 my prostate specific antigen reading was 18.1. My GP found this on a routine examination. Sending straight to my Urologist. He said it was necessary to have an Eligard 45 injection to stop and cells…
testosterone supplementation after prostate cancer 83 year old in remission0 testoterone 10 yearslaf
radiation and degaralix
Orgovyx vs. Eligard
Been on Bicalutimide (Casodex) for almost a week now. Haven’t noticed any effects except some bouts of flatulence. Had an appointment with Fox Chase medical oncologist yesterday. Very professional, she’s offered me a choice for step 1 of Orgovyx pills or Eligard injections. She mentioned that Orgovyx can be cost…
IMRT Low Fiber Diets and Normal Bowel Movements
This coming Tuesday I'm beginning 8 weeks of IMRT radiation treatments. They want me to start eating a low fiber diet to minimize gas in the bowels. Evidently gas can cause the prostate and other organs to move around a bit which could affect the accuracy of the beam radiation. Also they want me to empty my bowels and have…
Taking a break from Lupron
just finished a 3 month Lupron shot and now PSA and testerone are virtually 0. This after prostrate removal, radiation and ADT over the past couple of years. When PSA started to rise Lupron was prescribed. It seems to have worked for now. My oncologist recommend continuing Lupron along with something additional. Is it…
Asking for info / Venting a bit before tomorrow's appointment
I first posted back in December when I was getting scheduled for a biopsy. Here is my story so far. I should probably just wait for tomorrow's appt with my urologist, but want to go into that appt with some knowledge of what to expect. My wife is the worrier. I am supposed to be the rock. Need to know a few things so I can…
biopsy results gleason 6
just got the news. im 69yrs old 6 out of 12 positive all on left side. PSA is 5.8 but have been taking Dut for bph, Psd is .19, gleason 6, T1c, grade 1 ,Dre was normal. im trying to get a quick education in this area. My urologist spent 10 minutes with me , asked me if i was still sexually active and made an appointment to…
reading bone scan results
Can anyone explain what it means when the bone scan result says there is rounded moderately intense abnormal uptake involving the left posterior mid cervical spine distribution? My husband has been diagnosed with prostate cancer, and I am just trying to understand his bone scan results. Thanks
Decision on moving forward
Hi! I am a 60yr old gentleman with Prostate Cancer and I have questions on how to move forward with my treatments. Initially I was diagnosed with prostate cancer PSA at 79.7 back in Jan 2024 and have done a biopsy as well as a petscan and they also found out that I had a kidney stone a size of 3mm, which has since been…
ADT/breast pain or breast enlargement
would some of the panel members please share with me their experiences with breast pain or breast englargement while taking lupron. i have talked to some men that only had a small increase of breast size while others have gone as far as surgicial reduction.

Prostate Cancer

Discussion List

Discussion Boards