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Post Week Updates
post Week 1 completed For recap, during the weekend between treatment 34 & 35 I had some alcohol on Friday and ate baby back rib meal. I ate whatever my wife cooked for meals Saturday and Sunday I went back to my chicken and rice diet Monday morning 🚜😎🚜 I was fine Friday and Saturday. However, starting Sunday morning at…
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Dr. Onik's Immunotherapy
I have prostate cancer with extracapsular extension and am considering Dr. Onik's immunotherapy treatment. Does anyone have any experience with his immunotherapy?
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Treatment options - IRE / Nanoknife Experiences
Hello All, I was recently diagnosed with Prostate cancer. I'm 44 years old and otherwise in great shape. Gleason 3 + 4 in 8 of 32 cores. It's all located on one side of the gland. My urologist and Oncologist both recommend removal. Pretty standard of care and well documented. I'm not opposed to this treatment as a last…
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On_A_Journey's journey
PART ONE Hello all, I joined this forum recently, asked some questions and made some comments, but until now I’ve only given a brief description of what brought me here. I will treat this thread as my own personal blog by telling my story and providing any updates as they happen. I am 59 and from Australia. I have a strong…
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My Journey
I started by donating my lett Kisney to Kidney Cancer in 2002. Naturaly my Uro followed my Prostate each following year. MY psa TOOK A BIG JUMP FROM 2018 TO 2019 and a Biopsy was a Gleeson 8 (9 after surgery.) I saw Dr Patel in Orlando for my robotitic Prostectomy. I have 6 and 1/2 years undetectable PSA. 3 months later I…
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Biopsy Results
My biopsy test results came this morning and I'm undecided whether to open and read them before speaking with my urology office tomorrow morning. Waiting for the results these last few days caused me a lot an anxiety, and I don't know if taking a look might exacerbate my anxiety. Have others had this debate with themselves?
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How low a PSA? What is the new "normal"?
My PSA is 0.2 after having radiation treatment now just over 2 years ago. Interested also in this metric. Most of my usual body functions are fully changed from "normal" in one way or another after the 27 days of radiation. Almost everything. I am interested in chat with similar men and situations. I am 79. Any men that…
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ejaculation and semen flow
So concerned very much here. Have those here that have been treated by radiation for Prostate Cancer and had had any related conditions? ED in any way? How? What is your way of dealing? Please let me know. Thank you.
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Erectile dysfunction ED conditions after Prostate cancer radiation treatment
Are there many? Or a few? Is there a resource for improvement? I am dealing with so many situations and experiences. Radiation treatment related? What are yours? Thank you.
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Week 6 of 7 SRT complete
Week 6 and 7 I’m told they are concentrating on prostate bed. Only difference is about 3 hours after treatment, I run out of gas and need a 1-2 hour nap Still on same boring diet 😩. No diarrhea. Can’t wait for that first pizza a month from now 🎉🎉 hope everyone has a GREAT weekend I still have 3 more acres of grass to cut…
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PC treatment after age 70
I'm 73, White male, diagnosed Nov. '24 with lesions in the prostate (Gleason 7: 3+4 and 4+3) and PET scan indications of activity in right and left iliac nodes. I am in my fourth month of daily Orgovyx and yesterday completed my 32nd of 44 radiation treatments for prostate and pelvis. Urologist and radiation oncologist are…
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My one year post salvage surgery
most of you know my story but if you don’t 2018 Gleason 3+4 Cribiform found 7.8 PSA opted for radiation and Breakytherapy . I was good until 2023 around September. My PSA started to climb. I was fortunate enough to still have it contained to the prostate and I opted right away for salvage surgery ..today It’s been one year…
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TRUTH Can't hold a hard-on after Prostatectomy
So I'm 6 months out from having my Prostatectomy, and I can't get a hard-on even taking Cialis. I'm 66. The little fella won't rise to the occasion. At this age, I'm just happy to be cancer-free! Just sharing.
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Perineural invasion
Looking to see what others have been advised about the prognostic value of perineural invasion (PNI) seen on prostatectomy pathology. Some articles indicate that it portends metastases and higher risk of biochemical recurrence, while others (more recent) seem to say more research is needed because by itself, PNI doesn’t…
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Sbrt question about how low psa dropped
Finished up my 5 doses end of Dec. I was wondering how low did your psa drop to? I was psa 8.5 Gleason 4+3 initially. Went on orgovyx 6 weeks prior to radiation, 4 months total. At last treatment session, psa was 3.8. Next blood work beginning of May. Was hoping for some real life statistics. Thanks in advance guys.
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Concerning follow up PSA test. I'm worried this could be bad How concerning is this.
40 year old male. Last year and a little before I had some macro (a hand full of times over about a year) and micro hematuria. I haven't had any visible blood since. About 6 months ago I went and had an ultra sound, blood work, DRE, and a cystoscopy. My PSA was 3.2ng/ml and my prostate was slightly enlarged but otherwise…
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AUS 800
I am in my 13th year dealling with incontinence after prostate surgery. The last 2 years has been much worse (6-8 pads per day). I have considered the AMS 800 since the onset of incontence and recently had the procedure 5 days ago and am very concerned with the outcome. first I noticed a weak stream and trouble empting my…
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Biopsy without any bleeding
I'm not complaining, just curious. Had transrectal targeted biopsy (5 sites) with no blood in urine or semen. After all I've read about blood lasting for weeks, has anyone not experienced much bleeding? A pre-cancerous HG_PIN neoplasia was found. So cancer free for now!
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SRT after RALP - Centering CTscan execution
Good morning, I just had a centering CT scan because I have to undergo SRT (I had a robotic radical prostatectomy in 2019, and the PSA slowly rose to values around 0.200-0.250). The preparation for the centering CT scan included a full bladder and an empty rectum. Everything was OK for the rectum, but, probably having…
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I have questions... new member
I am 53 and might be dealing with prostate cancer. heres my story. I have had my large intestine removed in 2008 from ulceritive colitis. I kept having microscopic blood in my urine and still do to this day. Also in past had a growth on my kidney that they did a cryoablation on 8 years ago and followed up with MRI for 5…
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An update and a question on treatment plan
I first posted last month when I was initially diagnosed with prostate cancer. The comments from everyone were very helpful. I finally saw the oncologist this past Friday (3/21/2025). I wanted to give an update on where I stand and ask what you all think of my oncologist's proposed treatment plan (knowing that you are not…
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Transperineal Biopsy and ED
I'm a 55 year old male scheduled for a TPB next week for MRI findings of two PIRADS 4 lesions 7 mm each on the right side, but I also have a trip scheduled the week after with a new girlfriend. Anyone have any experiences with side effects after, specifically erectile dysfunction and how long it lasts? Thanks!
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Week 5 of SRT
Greetings all Radical robotic Prostectomy 12/8/23. Subsequent PSA’s went from 0 to .42 over next 12 months. Doubling every 3 months So, I just finished week 5 of my SRT treatment. No issues first week. Lots of bathroom visits end of 2nd week at one point I was positive that my anus had blown off and I would see it floating…
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New PSA level was only a 0.54 as of yesterday;
Greetings all; I was officially diagnosed with an enlarged prostate, and approximately 3 mths later, prostate cancer. My PSA level went up to over 400 points (yikes), but I absolutely felt 100% normal as if nothing was wrong. Immediately, I was enrolled in Cancer Treatment, with only meds, which was to follow up with chemo…
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Update on 2010 diagnosis and treatment
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years. Five years after…
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79 year old with Advanced PC to L-1 & Pelvic
Always have enjoyed the wonderful testimonials from Forums! I Went to ER with Urinary Retention on this past December, 2024. Inserted Cathether due to Very large Gland First Urologist visit confirmed PC, CT couple of weeks later confirmed APC Then PSA with a high Gleason of 4+5.. Had first HT Firmagon injections a month…
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When to consider yourself cancer-free post surgery
Some of you US guys may be familiar with Rick Steves, the travel guru. He has the most popular guidebooks for travel to Europe, as well as TV, radio, podcasts, and tours. He had surgery for prostate cancer last October. Recently, he made an online statement saying he is cancer-free, based on his most recent non-detect for…
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Decision Time RP or ADT/HDR/EBRT
After waiting 8 weeks for my MRI Fusion biopsy the results are in and not great mostly Gleason 9 (4+9) and one Gleason 9 (5+4). Have Bone Scan and CT Thursday and Friday of this week. Hoping it hasn't metastasized but concerned. I have appointments set up at Memorial Sloan Kettering with Medical Oncologis, Radiaiton…
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52yo Gleason score of 3+4 in San Diego
I have a follow up call from my doctor about treatment, surgery, radiation or continued surveillance. I'm a firefighter and in good health, workout almost every day. Anyone receive treatment in San Diego? I've read about other protocols; anyone try them during active surveillance? Thank you in advance for any response.…
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4+3 with possible Seminal Vesicle Involvement
Hi - 55you with Gleason 4+3 with a primary lesion on the left, and other positives on the right. MRI indicates abutting the capsule, but clear Seminal Vesicles. Pet CT shows "No other abnormal uptake to suggest tracer avid metastatic disease" BUT "Suggestion of bilateral foci of uptake in proximal seminal vesicles not well…