Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

Interested in speaking to people have had the prostectomy and post op Hormone therapy and radiation
I'm 54 years old. Diagnosed at 52. Had the prostectomy in July 2022. Only to find out ther was still cancer present. 0.22 PSA, followed up treatment with hormone therapy and radiation. Radiation ended in January 2023. My last hormone injection was February of 2024. Looking to connect with people have had the same path.
Radiation+Lupron: wicked one-two punch
PCa diagnosed 9/2015, LRRP performed 11/2015 at MD Anderson in Houston (the mothership). 50+ lymph nodes removed, with three having cancerous cells. Post-op PSA <.1. Incontinent for about 1 year but then bone dry. Sep 2019 PSA increased to .2. In Feb 2020 doctor referred me to Radiology, where I underwent one year of…
Appointment wait time
My name is Retha and i have a question. My husband recently had an MRI and was told he had 2 lesions with PI RADs of 4 on each and that they needed to be biopsied. That was on the 7th of October, its now the 1rst of November and we haven't heard from anyone about an appointment for the biopsies, is this normal .
Finished IMRT, now what?
I was diagnosed with stage 4a prostate cancer gleason 9 (4+5) a few months ago. Spread to a couple of pelvic lymph nodes. I went through HDR Brachytherapy in late July followed by 25 sessions of IMRT. I just finished my last session on Thursday. I am on orgovyx and zytiga for 2 years. My last PSA test was .10. So, as I…
Prostate Cancer Survivor, Regrets
So. I had it out in 2019. Nothing has been the same. I have had neuropathy quite bad right after the surgery for months (doctor rejected my claims of pain and weakness in the leg for whatever reason and said my cure from cancer outweighed whatever), zero sexual anything and serious problems peeing for five years. I have…
Never Ending Urine Tests
I've never seen this posted before and have a concern I can't figure out. I had a RALP six years ago. My PSA was very low, but I didn't care I just wanted the cancer out of me. The surgery went fine but I am probably incontinent for the rest of my time above ground. Every six months I go in for another urine sample and…
PSA Test with Covid
My PSA went up from 1.9 to 7.6 within 6 months. But that second test was a few days after having Covid. Has anyone had a PSA test with Covid? I'm worried I might have an aggressive cancer with such a fast rise (it runs in my family). Will make doctor appt next week. Thanks.
My experience with Akeega
Akeega is the only FDA-approved treatment with BRAC+ metatstatic castration-resistant prostate cancer. In other words, if you are one of the 1% of men with the BRAC gene the chemical castration drugs will not work against your Prostate cancer. Check with your doctor to find out if you have the BRAC gene. Don't assume that…
URETHRA
I'm not sure if this is a new question, but I had my operation 2 years ago and I still do not feel anything in my urethra when I urinate. Has this happen to anyone else? Thank you
My Story Consolidated
I have started several threads but thought I'd do a new one as a summation and then just keep this one to update going forward. A brief review: I'm 52 and diagnosed with prostate cancer last month. Family history is bad: father and maternal grandfather died of prostate cancer; mother and her sister died of breast cancer;…
Decipher testing
Is this considered standard of care when a biopsy is taken?
Nanoknife my journey
Hello everyone! I had my Nanoknife procedure performed on August 29, 2023 and I am reporting back my experience. To make it easy to follow I will use sequential numbers below. For detailed background check previous postings. On another note, using this site is not an easy task for me. Procedure time about one hour under…
Treatment Decision
Am 63 and have been dealing with a rising PSA that started at 5.5 over the last couple of years. In 22 I had a Biopsy done with no Cancer cells found. PSA continued to rise and hit 10.5 this year. Biopsy found Cancer cells in 20% of the right side samples. Gleason score came back as 4+4. Options are Surgery without Nerve…
8 months post radiation and Cyberknife and 3 months post 12 months firmagon
Husband just recently finished treatment for prostate cancer with me. Gleason score was 8. Starting PSA was 2.8 before treatment. 3 months past Cyber PSA was .044. 6 months past Cyber PSA is .064. Does this indicate a concerning rise? And is there a need to worry? Messaged urologist and he said to come back and test in 6…
increase in PSA post seeding
Had seeding done 8 years ago here in Atlanta (no radiation-PSA 3.75) Cancer confirmed with biopsy. Post seeding PSA was.5. Has gradually risen until last test 3 weeks ago showed 1.47 (Oct 2024) (Mar of 2024 was 1.14). I will be 87 in Dec-should I be concerned?
Fenbendazole
has anyone hears of this or tried it to fight cancer ,i have read it has helped many cancer patients
Very old man
My 93 year old uncle received this biopsy fractures of acinar adenomacancer, grade 7, gleason prognostic group 3, interesting 20 mm what (if possible) should be done
Biopsy Scheduling Wait Time?
57 y.o. male: My MRI showed a Pi-Rad Lesion 3 and my urologist scheduled me for a biopsy. It is not scheduled until Nov 1. My concern is how long the wait time. My PSA rose to 6.78 in early July, was referred to urologist and had MRI on 8/27. Now two months wait until biopsy on Nov. 1st. Is this normal? I tried to get…
Pads
Do pads get definitely noticeably wet in the beginning or could you be unsure if you are leaking much?
What proceedure did you choose or are considering
Like everyone else at my point in this journey, I'm trying to learn as much as I can about the various proceedures available to treat my prostate cancer. I want the "trifecta", and more. No incontinence, sexual capability intact, good stream and of course the cancer gone. I know this may be unrealistic but I'm pretty sure…
Incontinent 3 Weeks Post RARP Cath Removal
Hi Guys, Just turned 65 and had a RARP on Sept 25th. All went well, Final Pathology indicated negative margins and a total of 1-5% Gleason 3+4. (Despite an MRI guided Pirads 4, Gleason 4+3 in March) Anyway nerves were spared and outcome good. My question, of course, is the incontinence. Sitting and lying down are fine and…
Just had MRI NorthWestern
Hello: First post. July 2nd during physical GP detected abnormality during DRE. I have been taking finasteride for many years. PSA has always been low and stable (understand that it would be higher but for the rx). Free psa% 18.1. PHI 21+. MRI results below. Any thoughts would be appreciated. Biopsy scheduled for end…
DaVinci Recovery Question
I had a successful prostatectomy via the DaVinci robotic assisted method (7 hours) in July of this year. My first PSA test post surgery was a non-detect and I'll test again next week. The incontinence has all but disappeared with the exception of occasional spotting but I'm wearing a pad so there hasn't been any issues. My…
Incontinence
Hi Everyone, I hope all is well, or at least doing better. In 2 days I will be 4 weeks post-op, and all seems to be going good. In fact, the incontinence is less then what I believed it would be. My question is, for those that are 3, 6, 12+ months post-op, does it get less, stop, more, or is it a mixed bag (with/without…
Pain around penis, testicles, anus, like prostatitis pain after prostate surgery Is this normal?
I had prostate surgery around 2 years ago. So far my PSA is still undetectable. However I now have pain that comes and goes, like a burning sensation / spasms sometimes around my penis, testicles, anus. ……Like pain from prostatitis (but no prostate now so that's not possible) They did a test for an urinary tract infection…
skin irritation issues
Anybody else dealt with skin problems on penis and genital area due to constant use of pads? Creams, ointments?
Orgovyx and Erleada
I posted in 2018; time for an update; 13+ years and moving forward! I’ve noted there’s not much discussion in the forum about two medications, Orgovyx and Erleada. I thought I’d contribute my experiences to date. Basic information: I was diagnosed with prostate cancer in 2008 at age 51 with a PSA of 6.2. After biopsy, my…
I say they change breast cancer awareness month
To breast cancer/prostate cancer awareness month I mean, why not they have the most common one for women breats cancer we have the most common one for men and get nothing …why not join teams? I mean they have a whole month of October for breast cancer and nothing for prostate cancer I don’t know how to start a movement but…
Biopsy Now or Later
Today, I had a confusing conversation with my urologist. After receiving a PSA result of 10.1, I underwent an MRI and CT scan, which identified two contained lesions. Despite these findings, the urologist suggested waiting a few months before repeating the PSA test. When I did, my PSA level had dropped to 8.4. The…
Shrinking Balls Post Radiation Treatment?
I've noticed that my testicles seem to have shrinked in size following CK treatment 2 years ago. This hasn't affected my sexual performance (no ED) but there has been a reduction in ejaculate (which was anticipated). There are some articles on the Net that state that radiation can somehow cause shrinkage in penile length…

Prostate Cancer

Discussion List

Discussion Boards