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How is the Gleason score summed?
Hi everyone. I just received a diagnosis of prostate cancer and have a question about how the Gleason score is summed up. Is it the score of your worst biopsy core or the sum of ALL of your cancer-positive cores? For example, in my case I have 3 positive cores. 3 + 3 3 + 4 4 + 3 Would my overall Gleason score be 4 + 3 or 3…
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Primary Treatment Focal IRE Nanoknife Procedure completed
Well, I finally had it done yesterday at Fox Chase Cancer Center. It was stressful making this decision, 6 months of wavering on what to do first. I'm glad it is done. Anxiety level has lessened from having made the decision and to have gone forward. I am feeling a bit beat up today. My voice is weak I think mostly due to…
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Frequency of Biopsies
Two years ago, I had an MRI fusion biopsy which was positive for cancer, gleason of 7 (3+4) which was sent away for DNA testing which showed the cancer was slow growing. My PSA is 6.5. My doctor wants to do another biopsy. My question is: how often should I be getting an MRI fusion biopsy? When I had my first fusion…
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What do you think about my case? Better to remove the prostate now or wait?
52 years old man. MRI PiRads 4 (10x11 mm pseudonodular lesion with ill-defined margins in Peripherical zone) Lesion located in the posterolateral segment of the lower third of the left peripheral lobe. PSA 5.33 ng/ml. Systematic biopsy and targeted (total 14 samples). 5 samples targeted to lession index (3 positives & 2…
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Husband was misdiagnosed
My husband is 53, urologist diagnosed him in January with bph and borderline low testosterone. Started him on testosterone injections every two weeks until May when she said he needed to stop because he could have prostate cancer, and that the testosterone will fuel the cancer. she wanted to do a biopsy immediately. We…
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Cribriform Pattern 4
I've recently been diagnosed with Stage 2 Prostate cancer (Gleason 3+4= 7) with evidence of Cribriform pattern 4 (5% & 10%) in 5 areas of my prostate. I had twenty core samples taken in my biopsy and there is no evidence of intraductal carcinoma. My urologist strongly recommends radiation treatment and feels confident that…
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Post MRI report seems bad.
Had my first MRI after PSA jumped from 3.1 on April 2021 to 13.6 on Feb 2024 then a week later to 15.6. Was tested for possible infection but came back negative so the MRI was scheduled. The Report Impression: Highly suspicious lesion of the anterior right apex as above marked for possible fusion biopsy. The lesion…
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Biopsy results
My husband is 68 PSA 4 last January retest 90days 4.2 retest 90days 5.2 biopsy digital exams clear until last results firm i know the results are not good.. the urologist is scheduled to call us tomorrow I read that with the higher Gleason/grades the prostate quits putting out the PSA higher numbers.. I am thinking scans…
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Gleason 8 and Proton Therapy vs Surgery
Hi there. I was diagnosed with Prostate Cancer on the right side. This was following an MRI on 23 Feb and a Biopsy on 28 March. Had bone scan and PET PSMA scans on 18 and 24 April 2024. Met with a Urologist and two different Radiation Oncologists since then. Biopsy result was 6 of 13 samples were positive for…
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Orchiectomy vs. Hormonal Therapy
My father has advanced prostate cancer with a PSA of 160 with cancer spreading throughout his bones. He is currently on a lot of pain medication and weakening rapidly. His new urologist is recommending orchiectomy even though my father has been getting Lupron injections for 18 months. I asked my father's oncologist and he…
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Urine flow after prostate surgery
just have a question. A lot of you just had surgery with no prior radiation. I had surgery after radiation. Im about 8 weeks out My question is this I know a lot of men ,probably everyone had some degree of incontinence after surgery but when you did go on your own, was the stream normal regular flow ,that’s what I’m…
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11 anniversaries since diagnosis of stage 4 prostate cancer
Diagnosed at 63, I did not have the confidence at that time to believe I would live another 10 years. Yet, I just completed another follow-up visit in the past two weeks. My semiannual routine includes a blood draw for PSA and metabolic panel, followed by a visit to my oncologist's office. Given the many years of hormone…
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Decision time on Surgery & Radiation, all test done
Thanks again for all the help in these past few weeks, my PSMA Pet Scan Results have arrived. At this point (waiting on Decipher Test) I am done with testing. At this point I am leaning towards SBRT & Hormones for 6 months. I meet with my urologist tomorrow and then Radiologist, Oncologist on Thursday and Friday to hear…
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Radiation without Hormones?
In my previous posts I've spoken about only wanting surgery rather than radiation. I've been told by others (non-professionals) that it's possible to do radiation without hormones in my case given that I have favorable intermediate prostate cancer (3 + 4 with 5% involvement of 4 in only one core). Does anyone know if…
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groin pain
Hello all, new to the forum. 66 year old male. Currently awaiting fusion guided transperineal prostate biopsy (next month). History of elevated and increasing PSA (last 3.8) but relatively normal sized prostate (31 cc). Just had multiparametric mri (3t) and results indicate a single pi rads 4 lesion (12 mm) in right mid…
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What would you do?
83 year old in otherwise good health—sexually active March 2022—TURP procedure. Surgical pathology exam positive for prostate cancer with Gleeson score 3+4=7 Decided on active watching with PSA measurement and follow up with urologist at 6 month intervals. Nov 2022: 1.9 Jun 2023: 2.8 Dec 2023: 2.9 May 2024: 3.4 Urologist…
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Could radiation leave some cancer cell indolent
Hi, agonizing over surgery or radiation. I am 64, healthy. Diagnosed Gleason 4+3 (4 cores targeting the two tumors shown on MRI are Gleason 7, all 4+3) with a MRI fusion biopsy. psma scan shown tumors completely localized inside of the prostate. I was offered SBRT with 4 month ADT at UCSF. I am hesitating because I am…
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Diagnosis stage … (takes some time doesn’t it)
Hi, wish I wasn’t here , but I’m back .. I hand Hpv head and neck cancer 3 years cancer free . 62 y/o 6 weeks ago , having intense acute lower urinary track symptoms. Possible uti , went to urgent care test strip was positive but cultures all negative , was given some antibiotics and sent home . Few day later went to the…
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Confused after MRI
I know I am in the early stages of possible PCA diagnosis as my biopsy is scheduled on 4/23. But I am really blindsided by this. I am 52 years old. I have absolutely no symptoms other then noticing some possible ED over the past year. My doctor ordered PSA test in on 2/20 and it came back as 14.97 and another test was…
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Preparing for Surgery
I am currently scheduled for DaVinci XI assisted prostatectomy in July. I'm trying to prepare for surgery and try to set some expectations for post-surgery (eating, clothing, mobility, incontinence, etc.) If anyone is willing to share your experiences it would be greatly beneficial. We are traveling to California for the…
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RIP Famous basket ball announcer Bill Walton
passed today at 71 from a long battle of prostate cancer ….i hate seeing this ..it makes me think this is going to be me
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prostate sbrt
I had a prostate spacoar put in 2 weeks ago so I could start sbrt radiation today. When they did the cat scan prior to my radiation the Dr. said there was no sign of the spacoar inside me. Has anyone ever heard of this happening before?
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Prostate surgery or radiation with ADT
I have been approved for either treatment. 79 years old. In good health otherwise. would like life experiences with side effects from either of the treatments for the first 6 months of removal or radiation with ADT. Probably will base my decision on treatment based on the severity of the side effects as it appears that…
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Very rare and aggressive
My dad who is 75 and very healthy just retired and was diagnosed with aggressive and advance prostate cancer. His psa 13 months ago was 2.1 and a couple months ago was at an alarming 150. He has done several biopsies and tests with the latest being a pet scan. Pet scan showed no active cancer in prostate but it had spread…
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newbie question re genomic/biomarker testing
I had a recent MRI which showed two lesions, one with a PI-RAD score of 5, the other with score of 3. So, highly likely to be cancerous. I've been dealing with another, rare form of cancer (GIST) for two and a half years; it's incurable but treatable, for an unknown length of time. For that cancer, mutational/biomarker…
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Surgery vs Radiation: another question
I am 67, Gleason 7, unfavorable, and PSA 4.2. Both surgeon and oncologist say I am on the borderline age-wise and that either treatment would give good results. I am more concerned about long-term continence than longevity. I am changing my mind ten times a day. Any input appreciated.
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Newbie here and meeting Urologist tomorrow for next steps
Have had BPH issues for years and PSA fluctuating from 4-8. Had a few CT scans over the years and with PSA rising I talked Doc into MRI and have one lesion roughly 1cm x 1cm and PiRads 4. Meeting with my Urologist tomorrow to discuss next steps. Prostate is 130cc. Appreciate any advice or questions I should ask.
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After surgery diet
Everyone knows my story five weeks out of salvage surgery waiting anxiously for the first PSA test and hoping i will be NED. i’ve always been a doubting Thomas, but them saying i had cribform and the pathology report saying cribiform not seen , yes it all looked good except the perinual invasion part ..so that being said i…
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PSA velocity, what am I looking at here?
PSA last year was 2.0, and this past December was 5.78. The urologist ordered a 4k test: score 59, 10% free PSA, and my PSA was almost 12. That is a vast PSA increase in just 3 months. Going to Johns Hopkins now. MRI on 4/12 and biopsy to follow. I did have an abdominal/ pelvis CT done for possible diverticulitis a month…
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Missing items from RALP Discharge Summary
I thought I would offer these notes and tips that seemed to be missing from my discharge instructions, to those that come after me: + Days 1-3 + + Waking up in the recovery room ……. I awoke without fanfare, flashing lights or sirens. For this I thanked my lucky stars without complaint. Everything else, come what may. + +…