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New to Reluctant Brotherhood
Thanks to this great forum as I am learning lots about things I wish I never had to learn. 65-yr old living with my wife on Cape Cod. I am recently diagnosed with 7 of 15 cores malignant, (6 cores 3+3 and one 4+3 at target lesion found on MRI, plus two cores list “High-grade PIN”), in left mid core “Perineural invasion is…
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PSA now present first time 9 yrs after radical prostatectomy
Robotic prostatectomy in 2015; PSA 14, Gleason 4-3, no lymph or seminal vesicle involvement, clean PET scan. Serial blood tests every year no PSA detected. In 2023 PSA 0.1, this year 0.44. Haven't had urology consult yet. Looking for comments from others who had an uneventful course for years, then raising PSA. What…
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PSA after surgery interesting
From John Hopkins Study Explores AccuPSA Test During one study, Dr. Partin and his colleagues examined blood samples from 31 patients whose PSA level had been undetectable for at least five years after radical prostatectomy. All these patients had PSA levels less than 0.1 ng/ml after surgery. However, one third of them…
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Incontinence
prostatectomy Nov 21 2024 cath removed 1 week later. Doing kegels but incontinence is significantly worse now 4 weeks after cath removal. Is there anybody who can offer positive experience regarding this type of issue?
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smelly urine after prostate surgery
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AMS800 Recommendation
Long story short - RALP 6 years ago. Big time incontinent since. Six (typically) Depends a day. I actually think the incontinence is getting worse and am reconsidering my aversion to an AUS. But, I'm worried about who, locally, could perform the surgery. I don't want someone who does a few a month. My urologist, that did…
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Upcoming Prostatectomy
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Just found out I have stage three prostate cancer.
hello I am 56 and just diagnosed with prostate cancer and was told that I my stage is considered stage 3c so I have a pretty good size tumor on the end of one of my prostates about a half inch diameter and they think it might have encroached into the Seminole vessels. Was really hoping I was stage one , because I had no…
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Considering postponing my remaining prostate radiation treatments
Hello! This is my first post. I was diagnosed with prostate cancer and had a slight urinary problem ( not an infection) before I started my first treatment. My treatment plan calls for 44 days of radiation therapy. After only two treatments, I began to experience some pretty bad burning every time I urinate ( 8 on a scale…
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Prostate Cancer Diagnosis
Have had previous bladder cancer. Had surgery because of suspect areas of bladder — so worried about reoccurrence. During procedure, biopsies of prostate taken and cancer found. Gleason 3+3=6. Previous turp done. No Psa score yet. Waiting 2 more weeks. Still having frequent urination (3-4 times a night) ,blood and…
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radiation scar tissue in rectum
has any one had treatment to remove scar tissue from the rectum area due to radiation damage
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Orgovyx
After all testing was complete I had the choice of surgery or radiation, I chose radiation. My urologist started me on Orgovyx. I have been on the pill for about a week and now I am having strong hot flashes, does anyone any any tricks to cope ? It wakes me up for hours and I also have bone pain. If anyone has any info on…
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1 year out after radiation for re-occurence
Just got the ultra sensitive psa all undetectable. Happy New Year to all
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Lymphocele
Just got diagnosed with lymphocele today 3 months after surgery. Anyone else dealt with this? If so, please share your experience so I'll know what to expect. Thanks, David
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Some of my more recent numbers
Data table Date Value Normal Range Dec 12, 2024 0.53ng/mL 0 - 4 ng/mL Jul 18, 2024 0.51ng/mL 0 - 4 ng/mL Apr 22, 2024 0.5ng/mL 0 - 4 ng/mL Jan 2, 2024 0.6ng/mL 0 - 4 ng/mL Sep 12, 2023 0.4ng/mL 0 - 4 ng/mL Previous1 - 5 (of 10)Next I'm trying to figure out if this is good, bad or okay. Hitting a dead end with my…
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Cribriform Pattern 4
I've recently been diagnosed with Stage 2 Prostate cancer (Gleason 3+4= 7) with evidence of Cribriform pattern 4 (5% & 10%) in 5 areas of my prostate. I had twenty core samples taken in my biopsy and there is no evidence of intraductal carcinoma. My urologist strongly recommends radiation treatment and feels confident that…
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Questions about rise in PSA
I had chemo, radiation and hormone treatment for prostate cancer in 2019 and 2020. Until today my psa had been at 0.01. Today was the 6 month mark from the last time it was checked and it was at 0.24. Is the cause for alarm? Thanks for any input and/or suggestions
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Transrectal vs Transperineal Biopsy
Is it worth waiting 6 weeks for a TP biopsy in the hospital, if a TR can be done sooner, in the office? (MRI Pirads 4, PSA 3.3, 71 yo). Is Pirads 3 upgraded to 4 because of positive DCE the same risk as a regular Pirads 4?
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Pluvicto
Does anybody have experience to share about Pluvicto?
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post-prostatectomy impotence
I'm looking for a discussion group with frank, forthright focus on sexual function and capacity after prostatectomy. I've found info very hard to find on how to manage & improve impotence. Partner and I are frustrated with our ability to achieve orgasm but we find that the impotence itself is a drain, and that Viagra and…
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Eligard and cardiac side effects
farmhand Member Posts: 1 *7:18PM #20 I had my first 6 month injection in October and fortunately have had very few side effects so far. But I have been inordinately worried about the potential cardiac effects of Eligard. So much so that I have been contemplating not continuing on this treatment. I have been diagnosed with…
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ANYONE TAKING 4 MONTH ELIGARD INJECTION?
HELLO EVERYONE & THANKS FOR ADVICE I'm going on 2 years of FIRMAGON injections--pSA is down to 0.26. MY urologist (PA) wants me to start taking ELIGARD 4 month shots for the last year. I only have to take 3 shots vs. 12 more FIRMAGON. IF ANYONE IS TAKING THE 4 MONTH SHot of ELIGARD, I WOULD appreciate your input.---THANK…
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Will I need diapers post-prostatectomy?
Hi, I will be having the robotic prostatectomy just before Thanksgiving. I understand that I’ll have a Foley catheter in place until the one-week post-op appointment, but will I have zero bladder control immediately following catheter removal and need to be prepared to walk out of the urologist’s office in a diaper? Will I…
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In-bore MRI Biopsy vs Fusion Biopsy
I need a prostate biopsy for a Pi-Rads 4 lesion. UT Southwestern can schedule an in-bore MRI biopsy only in 2 months; a fusion biopsy can be done sooner. Is it worth waiting?
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Pain when urinating
I am 10 months post cyberknife treatment and continue to get what I think are side effects of the radiation treatment. The latest one is pain while urinating. It seems to be worse earlier in the day. I have restarted taking Flo max, which seems to help and Tylenol appears to take the edge off it. Does anyone else have this…
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Should an Endocrinologist be part of our team?
The Endocrine system is incredibly complex. ADT affects one, but that cascades to other hormone levels. If one's adrenaline or insulin were too high, we'd address it right away. And yet those hormone levels ARE affected by ADT and are responsible for many of our side effects. I'm not criticizing ADT. It has saved many…
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update ... RU newly diagnosed and confused
Just finished my SBRX MSK Precise (5 doses of radiation) yesterday. Been on orgovyx since Nov 1st, so far no side effects. Blood test for PSA, testosterone, etc done also, awaiting results. Next schedule visit and PSA test is May (three months after ADT is finished). A quick note … for anyone undergoing radiation and is…
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Question
Will a povidone iodine suppository used a hour or so before a transrectal biopsy, along with the antibiotics they require already, help with mitigating the risk of infection? Would it affect the tests? The radiation center doing the biopsy doesn't mention this option. I read about it somewhere. My GP thought it made sense.
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New and kind of wondering how worried I should be
Sat here trying to figure out how to start this. Figured I would just throw it all out there. It will probably be too long, I tend to give more details than necessary, just like this sentence. I am 58. Have my health care through the VA. Moved this past summer, out away from any large city, so now have a clinic for primary…
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Post-Radical Prostatectomy Pathology Results
I'm 4 weeks out from a radical prostatectomy and just received my post-surgery pathology report and it's indicating that cancer's a bit more advanced than pre-op biopsy/pathology/scans/etc. indicated. What I'm wondering is if anyone has experienced a similar situation and if further treatment was required. I'm having to…