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Help with mri report
Hi, I was diagnosed in January with Gleason 3+3 (no MRI prior to biopsy). PSA was 4.5 last week. I had an MRI today and just received the results below. Multiple prostate lesions as above. PI-Rads v2.1 score: Pirads 5 - Very high (clinically significant cancer is highly likely to be present) Narrative MRI of prostate with…
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4 weeks post RALP and total incontinence during the day
Ok, so I know we are lucky, my husband is back to light golfing (not using the driver until this week) active, and feels great except for the constant incontinence during the daytime hours. Unless he is lying down sleeping or lying on the couch he is leaking continuously all day going through maybe 10 pads. Is this…
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A newer phase in my Systemic treatment now with metastasis in bone
To all in this forum and particularly the old members that have help me along the years in understanding facts on PCa issues based to their experiences, or suggestions to my case. It has been 18 months since I dropped a post in the forum (July 2022). I felt that I have failed those that were used in receiving my prompt…
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Catheter removal
so anyway, I went to my general practitioner to have the catheter removed. He pulled out all the saline in the balloon, and then literally grabbed it and yanked it out. I have to admit it really hurt about the last inch at the tip of my penis and now it has been two weeks and the tip of my penis inside still hurts about an…
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EBRT after prostate removal
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Searching for Treatment Feedback / Supplements
Hello I am age 51 (in great shape aside from this) recently diagnosed PCA and biopsy showed combination of 3+4 and 4+3 Gleason so definitely intermediate risk. PET scan on 4/19/24 showed cancer is on left side of prostate only has not spread. No symptons aside from PSA level 4.3 and get up pee 1 or twice at night. I am…
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wondering about finasteride
Hi all! I'm new to the board as I have been recently diagnosed with a gleason score of 3+3=6. I feel very blessed that it is such a low grade, and at this point have decided on active surveillance. My doctor also put me on Finasteride. I didn't think much of it at the time, but after doing some research, I'm questioning if…
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Surgery or radiation therapy
I have listened to and read quite a bit. I am trying to decide between surgery and a radiation plan. My cancer is considered treatable by my Dr’s. Any opinions on this broad question between the two? Thank you.
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Pluvicto
I just finished first of six Pluvicto treatments. Out of isolation and haven't noticed any real bad side effects (yet). I recently finished a clinical study with Xtandi and a part inhibitor. PSA was 115 at beginning, went down ton3.2 then trended upwards. Doctor immediately got me on Pluvicto so we'll see how it goes. I…
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Upcoming robotic RP - Dr. Vipul Patel - need post op ideas on supplies
On May 5th I have an RP scheduled w Dr. Vipul Patel. Been watching it for 4 years after it hit 5 ng/ml. Hovered around 7, then rose to 15. 4KPSA 50.1 MRI guided biopsy 6/10 cores positive. I worked in a hospital lab for 25 years and used to batch run PSAs years ago and would get that result and think "that poor SOB" - and…
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PC health cost
so I just had Salvage surgery and PSMA scans and biopsies and the whole 9 yards.. surgery was one night in the hospital at UCLA the whole thing was $59,000. PS MA scan back in July $46,000 biopsy $17,000 MRI $12,000 every video visit I had with all the different doctors no more than twelve minutes six hundred to a thousand…
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On_A_Journey's journey
PART ONE Hello all, I joined this forum recently, asked some questions and made some comments, but until now I’ve only given a brief description of what brought me here. I will treat this thread as my own personal blog by telling my story and providing any updates as they happen. I am 59 and from Australia. I have a strong…
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Salvage surgery path report update
Things are going as planned I am leaking a bit, but not a big deal. Waited for The doctor to call me to go over the report. He told me the report was good margins were clear cancer was embedded in the prostate. But my curiosity got the better of me and I looked at the report. Was not happy that he only took out one lymph…
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January 2024 Check-up
I had my 3 month checkup today, and the good news is that my PSA is still undetectable, but my Testosterone has only risen to 26. But, by far, the most important test result is that my PSA is still undetectable. Life is good. My Related History and Data: Post-Robotic Prostate Removal Surgery Pathology Report A. Lymph…
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Lupron - living with the side effects
I am 76 and underwent 28 radiation treatments last summer - after starting on Lupron androgen deprivation therapy. I have had two (6 month) Lupron shots with the third (and last) scheduled for early April this year. My urologist and radiation oncologist both felt I was too old for surgery and that the radiation/ADT was the…
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psa 4 months after radiation and 6 months into Orgovyx
Had PSA last Thursday to see progress of treatment and appears to have went well. PSA <.006. I finish my 6 months of HT via Orgovyx on Friday and then wait and see if anything comes back. HT was not horrible . Some side effects but nothing life altering. Thanking God for my progress.
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ADT Side Effects & Different ADT Drugs
My brother-in-law has recurrent prostate cancer (he was originally diagnosed with stage 4a) and his oncologist wants him back on ADT drug he took for 2 years. Thing is the side effects were horrendous. From what I've read (NCI, ACS, etc.), side effects can vary some between the various ADT drugs. His oncologist said they…
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My story and looking for questions in preparation for surgeon consultation
My doctor has been monitoring my PSA for several years, thankfully. The last several years PSA readings have been relatively stable 3.096, 3.166, 4.231 , 3.826, … then 5.4. The reading of 3.86 was accompanied by a free PSA % of 13. And the free PSA % was the first alert that I need further examination. So off to the…
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Salvage update
well, they said surgery went extremely well a little under three hours. They actually were able to spare the nerves. Will go home tomorrow. I already did some walking and now dinner is coming. Thanks for all the support. I will be in touch.
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Psa test freq following RT
I just finished post-RP salvage RT in January. My first PSA was about 3 weeks ago at 0.13 vs. 0.20 when RT was started. Post RP pathology rated me at a 3+4 Gleason with a few mm of positive margin and some perineural invasion. They have me scheduled for next psa in 6 months on basis that post RT the PSA should move real…
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Stage 4 confusion about treatment/results
I am a little confused about treatment and what they can and can't do. Starting out it was made clear Stage 4 Prostate Cancer is not curable, but I could live for some number of years with it depending on how I respond to treatment. I accepted that but the more I learn the less I understand. My chemo if successful is…
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The Juice
I'm sure most or all of you have learned of OJ Simpson's passing yesterday. What you may not know is that the cancer that took him was PCa.
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Post-Radical Prostatectomy Pathology Results
I'm 4 weeks out from a radical prostatectomy and just received my post-surgery pathology report and it's indicating that cancer's a bit more advanced than pre-op biopsy/pathology/scans/etc. indicated. What I'm wondering is if anyone has experienced a similar situation and if further treatment was required. I'm having to…
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O.J.
All personal opinions about the man aside, do we know his PSA at diagnosis? Is there any other relevant information?
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Incontinence, Pads & Underwear
Hi, I had a radical prostatectomy about 3 weeks ago. I'm leaking some urine when I cough, sneeze and sometimes with standing up. Not major. I'm currently using Depend Incontinence Guards (diapers) with a pad. What I'm wondering is if anyone has suggestions for regular underwear that works well with pads. I've always worn…
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Cribriform Pattern 4
I've recently been diagnosed with Stage 2 Prostate cancer (Gleason 3+4= 7) with evidence of Cribriform pattern 4 (5% & 10%) in 5 areas of my prostate. I had twenty core samples taken in my biopsy and there is no evidence of intraductal carcinoma. My urologist strongly recommends radiation treatment and feels confident that…
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Looking for success stories
Unfortunately, like most discussion boards, I find the majority of posts here are about the problems we are all having and about looking for answers to resolve those problems. It's perfectly natural. We are all looking for answers, myself included. Once people feel their problems have been solved, they stop coming to the…
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Two year Hormone treatment
Do most high risk stage 3, Gleason 9 prostate cancer patients start long term hormone theropy right after radiation treatments?
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robotic surgery for prostate cancer
I had the robotic laparoscopic removal of my prostate in 2010 and it went fantastic. I was 58 years old and some doctors had recommended radiation but on a second opinion, they said I was too young for radiation when I was done everything worked. No ED no incontinence. No bowel problems 10 years later, it has come back a…
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Decision Process re: radiation Type
Having just received a diagnosis of prostate cancer, my urologist indicated that radiation is his recommended approach and I'm scheduled to meet with radiation oncologist shortly. I'm stage 2, with evidence of Cribriform pattern 4 so active surveillance is not an option. Recognizing that everyone is different and…