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Leg and arms tingling sensation
hello, my mother is currently on enhertu and she has been feeling a tingling sensation in her legs and arms to the point where she feels like her legs are heavy when she tries to walk . Is there anyone who has experienced that ? And how did they treat it? Because it has been very difficult for her.
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off Orgovyx
I took my last Orgovyx pill last Saturday the 20th. As of last night the 25th I am already feeling a little regaining of energy and some strength. I did 60 pushups in a row and 2 weeks ago barely did 30. I have not been doing them daily just as a test. Also, only 12 hot flashes since yesterday morning. It appears once you…
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Help with mri report
Hi, I was diagnosed in January with Gleason 3+3 (no MRI prior to biopsy). PSA was 4.5 last week. I had an MRI today and just received the results below. Multiple prostate lesions as above. PI-Rads v2.1 score: Pirads 5 - Very high (clinically significant cancer is highly likely to be present) Narrative MRI of prostate with…
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4 weeks post RALP and total incontinence during the day
Ok, so I know we are lucky, my husband is back to light golfing (not using the driver until this week) active, and feels great except for the constant incontinence during the daytime hours. Unless he is lying down sleeping or lying on the couch he is leaking continuously all day going through maybe 10 pads. Is this…
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Past members
Had some time last night so I looked at some old post that go back quite a few years. I came across a member I kinda forgot about. The name was cobra 666. He helped keep the forum going. Anybody know what happened to him. I had a glitch in my computer back then and then I noticed I did not see any more post from him. Also…
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Catheter removal
so anyway, I went to my general practitioner to have the catheter removed. He pulled out all the saline in the balloon, and then literally grabbed it and yanked it out. I have to admit it really hurt about the last inch at the tip of my penis and now it has been two weeks and the tip of my penis inside still hurts about an…
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EBRT after prostate removal
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skin itching after herceptin
is there someone who experienced or have skin itching after herceptin? my itching started around 10 months of receiving herceptin. i never thought about it because it was tolerable, but it has gotten worse that i have to take benadryl everyday,and because of that, my eyes are so dry that the over the counter eye drops…
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Searching for Treatment Feedback / Supplements
Hello I am age 51 (in great shape aside from this) recently diagnosed PCA and biopsy showed combination of 3+4 and 4+3 Gleason so definitely intermediate risk. PET scan on 4/19/24 showed cancer is on left side of prostate only has not spread. No symptons aside from PSA level 4.3 and get up pee 1 or twice at night. I am…
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wondering about finasteride
Hi all! I'm new to the board as I have been recently diagnosed with a gleason score of 3+3=6. I feel very blessed that it is such a low grade, and at this point have decided on active surveillance. My doctor also put me on Finasteride. I didn't think much of it at the time, but after doing some research, I'm questioning if…
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What should I be expecting for follow-up?
I am s/p ILC diagnosis, s/p SMX with immediate DIEP reconstruction 3/28/24. Early stage and no lymph involvement. Strongly ER+/PR+/HER2-. I met with med onc. last Wednesday and am given the impression that if Oncotype is done (pending insurance) and numbers favorable, she'll put me on an aromatase inhibitor and yearly…
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Ultrasound and CT not able to detect if it's a pedunculated fibroid or a mass.
I (post-menopausal 52 y/o) went in to urgent care about a month ago with stomach pains. Doctor thought it was a ruptured appendix, but sent me for a CT scan to verify. Turns out it was diverticulitis, but on the CT scan they noticed a a complex cyst on my left ovary, however they couldn't be sure if it was a pedunculated…
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Surgery or radiation therapy
I have listened to and read quite a bit. I am trying to decide between surgery and a radiation plan. My cancer is considered treatable by my Dr’s. Any opinions on this broad question between the two? Thank you.
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FNA best provider for most accurate results Portland, Oregon?
I live in Portland, OR. Need FNA of thyroid and want to go where test and results will be most accurate. Where should I go? OHSU Thyroid Center or an interventional radiologist at Providence or Legacy hospitals?
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Papillary cancer chest nodes and lung micro nodules
Hello all, I had a TT with neck dissection in Nov 23. I currently have medastinal level 3 nodes (2)that are enlarged. I had 200 RAI on 3-27-24.The previous chest C/T shows micro lung nodules. I was looking for anyone that had experiences with this? Treatments, etc. Thank you in advance.
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Pluvicto
I just finished first of six Pluvicto treatments. Out of isolation and haven't noticed any real bad side effects (yet). I recently finished a clinical study with Xtandi and a part inhibitor. PSA was 115 at beginning, went down ton3.2 then trended upwards. Doctor immediately got me on Pluvicto so we'll see how it goes. I…
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Radiation or surgery
Hi! My husband has stage 4 colon cancer. Had mets to lung and liver. He now has only 1 met to liver left and has the option of doing radiation or surgery to remove. From your experiences, what is better to do? Surgery or radiation. Radiation worked very well on his lung and his other liver met, but cancer has come back in…
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2 years post treatment - 52 yo - quitting flouride, embracing flossing
I had left tonsil excision as well as a lymphectomy plus 33 rounds of max 70Gy radiation treatments coupled with 6 rounds of chemo, half cisplatin until my hearing suffered and then half carboplatin and taxol. The cisplatin roasted the main veinous pathway in my right arm. I returned to competitive master swimming last…
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Recent Japan Data Released Increases In Mortality Rates of all Cancer & Head & Neck Cancer
Hello everyone, there is a new report out from Japan about increased cancer rates of all cancers and specifically some head & neck cancers, released on 4/8/24. Statistically significant increases in age-adjusted mortality rates of all cancer and some specific types of cancer, namely, ovarian cancer, leukemia, prostate,…
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New here, about to start chemo this week.
Hello all! I was diagnosed with breast cancer after doing my very first mammogram this year. This Tuesday I go have my port put in, which I am absolutely terrified about ! I know it will be better than them sticking me in the arms every 3 weeks, but I still am not looking forward to this ! I go for an Echo on Wednesday,…
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Lonsurf
My husband was diagnosed with stage stage 4 signet ring cell colon cancer January of 2018, he has had chemo folfox along with other chemo meds. His cancer has spread to the lymph nodes around his spine and his neck area. He started lonsurf a few days ago . He has done nothing but sleep and he has no appetite. The Dr said…
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Upcoming robotic RP - Dr. Vipul Patel - need post op ideas on supplies
On May 5th I have an RP scheduled w Dr. Vipul Patel. Been watching it for 4 years after it hit 5 ng/ml. Hovered around 7, then rose to 15. 4KPSA 50.1 MRI guided biopsy 6/10 cores positive. I worked in a hospital lab for 25 years and used to batch run PSAs years ago and would get that result and think "that poor SOB" - and…
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Lenvima dosage
Hello all! I've been on Lenvima 18mg since Oct. 2023 for stage 4 renal cancer. I've had 2 surgeries where I had to stop the medicine for approx. 3 weeks. Cancer grew during those times. Once back on Lenvima it knocked it back some. My question is, has anyone reduced their dosage (ex. 18mg to 14mg) and continued to have the…
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CNS Lymphoma Newly diagnosed need advice and where are doctors with this specialty - HELP
Hi, I asking for 25 yr old. it looks like he may have CNS Lynphoma. Can survivors tell me how you are doing, and where are the Lymphoma specialist. We are in the Philadelphia area but can travel. Can you tell us the questions we should be asking doctors ? There is some existing comprise to the ammune system. fluid on the…
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PC health cost
so I just had Salvage surgery and PSMA scans and biopsies and the whole 9 yards.. surgery was one night in the hospital at UCLA the whole thing was $59,000. PS MA scan back in July $46,000 biopsy $17,000 MRI $12,000 every video visit I had with all the different doctors no more than twelve minutes six hundred to a thousand…
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Financial Relief?
Hi all. In short, I was diagnosed with Multiple Myeloma in 2018. I am insured by Blue Cross Blue Shield of Michigan through my workplace. ($3,000 deductible and 6 to $7,000 max out-of-pocket. My biggest struggle is financial. Since my diagnosis (2018) I have incurred co-pays for treatment that reach Maximum out-of-pocket…
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Oasis of Hope in Mexico?
I guess I made the subjet line of my last post too long. I was wondering if anyone has had experiences with Cancer Treatment Centers of America or a coworker just told me today about a place in Mexico called Oasis of Hope? Thank you
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Salvage surgery path report update
Things are going as planned I am leaking a bit, but not a big deal. Waited for The doctor to call me to go over the report. He told me the report was good margins were clear cancer was embedded in the prostate. But my curiosity got the better of me and I looked at the report. Was not happy that he only took out one lymph…
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New Urine Test Spots Head-and-Neck Cancers Earlier
Interesting but still in testing stage . . . https://www.newsmax.com/health/health-news/at-home-urine-test-cancer-head-and-neck/2024/04/18/id/1161498/
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Colon rectal Cancer Stage 4
My husband at 39 years old was diagnosed with stage 4 colon rectal cancer in Oct 2023. He had Mets behind his aorta, left breast, and ilium. He was told these Mets would never go away and they’re just here to help him live a little longer. After colon resection Nov 1st, he then went on to start chemotherapy in Dec. During…