Looking for survivor stories for recurrent De-differentiated retroperitoneal liposarcoma

liposarcomasurvivor

Hi there,

I’m 29 and had several liposarcoma masses removed earlier this year. They were de-differentiated (though some were well-differentiated), and were surgically removed before we knew it was cancer.

At my 6 month scan, I just found out I have a recurrence. I am heading towards chemo or radiation before another surgery.

Everything I have read on the internet signals that I have bad prognostic factors - recurrence, retroperitoneal primary site, de-differentiation, multi-focality. I feel like this can’t be good. But I’d still like to hear some stories of people who have lived full lives with this disease, so I can feel like I have something to fight for.

I just finished grad school, and have met my potential life partner. I don’t want to leave yet. I just need to hear some hope.