Esthesioneuroblastoma; Olfsctory Neuroblaatoma

VitorBr

Hello everyone. I saw that it has a long time that no one post about Esthesioneuroblastoma; Olfsctory Neuroblaatoma here.

Does anyone have more experience to share?

I was diagnosed in may 2024. Had endoscopic surgery (not clear about clear margins) + 30 RT sessions. Kadish B Hyamis 3 no metastasis. Waiting for 1st MRI next week.

wbcgaruss

VitorBr, Welcome to the CSN Head and Neck discussion forum.

I have not personally dealt with your type of cancer esthesioneuroblastoma, but can imagine the difficulty of treatment, that we all share.

Hello and sorry you had to go through this difficult time in your life.

You are now in the club no one wants to join but just sorta ended up there.

You are correct there doesn't seem to be much posting for Esthesioneuroblastoma.

I did find this one main thread on this site that is at least 9 pages long….

https://csn.cancer.org/discussion/155606/esthesioneuroblastoma

And here is a thread from the Mayo Clinic site that is at least 3 pages long…

https://connect.mayoclinic.org/discussion/head-and-neck-radiation-side-effects/

I hope you can find something helpful in either of these threads and I Wish You The Very Best.

Our motto here is "(NEGU) Never Ever Give Up"

Take Care, God Bless,

Russ

I highly recommend you check out the "Superthread" at the top of the Head and Neck page as it is loaded with links and info to help you.