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Living alone during chemo
Hello everyone! I just joined you all today and have learned so much already--thank you! My mother is about to begin her first round of carboplatin & taxol and she lives alone. I'm trying to plan how much I should be with her in the coming weeks and months. Should I plan on spending the night for the first few nights after…
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HI EVERYONE WHAT TO DO ABOUT 1975 GOATGIRL???????
Since her first post we have never gotten a response from her. I tried everything but no response. I don't want the newbies to continue posting to that topic without any responses. What do you think? Just saying...
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Good news about my Mom and her UPSC battle
Hi Ladies, Wanted to share a bit of hope and inspiration. My dear Mom, staged as Grade 3a UPSC, had total hysterectomy, 8 rounds of carbo/taxol every 3 weeks, and went into remission for 1.5 yrs. CT scan this Spring showed a recurrence of 3 nodules in her peritoneal cavity and small amt of malignant ascites in pelvic…
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Just an Update
Hi its Summerlady! I wanted to let everyone know that my biopsy results came back Negative! ! All is good!! So hapoy the surgery and the biopsy is Over!! My gynecologist believes that the irregular bleeding is Caused by the endometriosis. Feeling really good , had a little bit longer recovery than I thought but Finally…
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Low Dose Naltrexone? PLEASE HELP??
Hello everyone, I wanted to reach out on here as I am new to this blog. Maybe some of you can help me out with some information or even some sweet messages could cheer me up..I'll give a little background on my story my Mom was diagnosed with Stage 4 Uterine cancer, a very aggressive cancer and they did find some cells in…
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Osteoporosis
Is anyone taking medication for osteoporosis? If so, which one? Side effects? Effectiveness? I just came back from the doctor, and he did a bone density scan. I had one in 2011, right after I finished chemo. Of course I developed osteoporosis from chemo :( . The scan today shows something like -3.3 on my spinal. The doc…
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Info on internal radiation please, side effects?
I'm going next week Tuesday for a meeting with the Radiologist. She will go over the plan on my internal radiation treatments. I'm still recovering from the chemo treatments and I'm not looking forward to what the radiation treatments will bring. Do they hurt? What about side effects? Thank you for any info you can share…
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Need some feedback
Hello Everyone, Let me say ahead of this post that I feel like a real Pansy compared to you women out there who have really had to find out they had this cancer and then had to fight and fight living in the unknown after each new step until NED and even after that to some extent. I will also apologize ahead of time if I…
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Quilt of Hope
This is a quilt block that I stitched for a Quilt of Hope" for the cancer center. Patients who are treated at the cancer center are invited to make a quilt block to be sewed together with other blocks to make a "Quilt of Hope." They display the quilts in the cancer center. As they get more quilts they will rotate the…
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HellieC thinking of you
Wondering how your results from you latest CAT scan or PET scan showed from your cyber Knife? I hope the tumor shrunk and you are still pain free. Have not heard from you for quite some time. I hope everything is okay. in peace and caring.
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Post Hysterectomy and chemo issues
Hi everyone, please forgive me for dropping in to this board when I am a colon cancer survivor, but I have a topic question that I feel better posting in a place that is more for women. I was diagnosed with stage 3 colon cancer nearly 4 years ago and had a recurrence 18 months ago. When the surgeon went in to take the…
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Booklet that defines CA 125
zenmama posted this link over on the ovarian board, and I thought you all might enjoy it as well. CA 125 is not just used in ovarian cancer but uterine/endometrial cancers as well. Susan P made the comment, which I think many of us agree with, that we want to know more about our disease and things like this are in a…
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Lorraine
7 weeels of chemo in the books. CA-125 level was originally 8,000, currently at 1,124. Still a high number, but down a lot. Eating well and staying somewhat active. Eleven weeks of chemo to go! Just wanted to give an update. Hope all is well with everyone. Bob
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Five years NED...I think?
Yes, I am still among the living! Been a rough four months. Had my third open heart sugrery March 31. Still recuperating and it is taking much longer this time. Had my fifth year check up April 24. I don't know if I am stilll NED or about to reacure. CA 125 had gone from 15 to 30, but the doctor was so freaked out about my…
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Went to lung doctor today
He said the radiation pneumonitis has cleared up. and is not the reason for my cough. I have been on Steroids for almost two months continuously, as well as a month before that. It has given me heartburn especially in the evening and night. He feels the cough is from gastric reflux. I had a pulmonary function test also and…
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Chemo isn't working
I haven't been here for about 2 months, and when I read about all that Ro is going through I feel like a cry-baby. I am a bit frightened by my situation. I did 3 rounds of taxol - carboplatin in less than 2 1/2 years before becoming platinium resistant. The next step was doxil and my CA 125 doubled after each of the 3…
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Clinical trials
Hi ladies, i'm seeking guidance and support and hope.. My mommy (60 years old), recently has been diagnosed with endometrial cancer T4N2, im sorry im not familiar with all medical terms. Basically she had uterus, ovarian cancer that grew fast, affected appendix.. they removed everything mentioned , plus 21 lymp nodes ,…
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trace pelvic ascites
Ladies, do you know what is it. It's from my CT scan results. The rest sounds good, but this is worrie me a lot.
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Latest lab results not what I hoped for
in the last three months my CA-125 went from 607 to 1526. It is quite a jump. But it still is not as high as it was before I had the radiation. It was 1586. My doctors always tell me the marker is just a number. It only becomes a concern if there are symptoms or changes in the CAT scan. I know that doubling is a concern,…
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Do I need a GYN now? Any thoughts...I know there isn't a clear answer but I would like to hear from
Hi Everyone, Even with clear post surgery pathology I know that they might still want to keep a closer check on me for something to show up but not with the same sense of urgency but after a hysterectomy do I still need a GYN? Also pre-surgery at 51 I was right on the edge of menopause...now of course my body has…
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what's your diet?
Do you follow any special diets? Any recomandation?
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I'm done! Yahooie!
I had my LAST appointment with the gynecologic oncologist this morning. He officially kicked me to the curb. I had my surgery July 1, 2010 and this is close enough to 5 years for me. I hope this is encouraging to those of you who have the "garden variety" (endometroid adenocarcinoma), early stage, low grade cancer that I…
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RA and UPSC
HI ladies it's been a long time since I posted here. My Mom was diagnosed with UPSC three years ago and I'm grateful to say she's been dancing with NED since! She has rheumatoid arthritis and has lots of difficulty with her 6 month exams. They are very painful for her. Her doctor said that insurance companies don't like…
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I got my diagnosis on April 15 and I need your help
Hi everyone! On April 15 I was diagnosed with Endometrial adenocarcinoma after D&C. Reading this forum is giving me hope. I want to thank you for sharing and helping and to wish you success in this fight. My few questions are: 1. Do I need another referral from my Gynecologist if I decide to go to another Oncologist? She…
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Serous papillary endometrial adenocarcinoma vs other uterine cancers
Even though I spend a lot of time researching this, I still can't get a good answer as to the differences between the differntent types. Some of you seem to have so much knowledge about this, hoping you good help me figure it out. My Cancer is the Serous Papillary Endometrial adenocarsinoma stage 4. High grade. Very…
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March 29th 60 Minutes broadcast
I did not watch this episode of 60 minutes, but learned about it from a coworker. She told me that Duke University has been doing research on the use of the polio virus to treat a terribly aggressive form of brain cancer. By injecting polio into the tumor, an immune system response is sparked that has led to the tumor…
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plevic and para-aortic lymph node removal after radiation and chemo
hello. My mom was diagnosed with Stage IV uterine cancer at age 62. she had complete hysterectomy done by general ob/gyn on emergent basis in 2012 with out lymph node disection. she had 7 cycle of chemo in 2013 and did really well. she also had 5 weeks of pelvic radiation in summer 2013. she did good until may 2014. She…
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Avastin and Naturopathy
Hey ladies...an update. After having a recurrence in my pelvic nodes, I was started on Doxil and had to quit after 3 cycles. I had the worst toxic reaction they had ever seen at Kaiser! Mouth sores all down my esophagus, skin burn that peeled off my body, rash all down my legs, and hand/foot that literally took me to my…
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HPV high risk problems
I was diagnosed with recurring cervical dysplasia & HPV over 5 years ago (in my early 40's). I had 3 cervical conings (where they freeze the surface cells.) After the 4th positive test result, I decided to take different action. I did a lot of on-line research,day and night, which lead me to try a new HPV treatment known…
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Waiting over hysterectomy done pathology back...A OK
Hi, Finally had the hysterectomy that I had been waiting for and I am thrilled that it is over. I am happy to say that they didn't find anything...so I am clear. It throws me off that I had a pap test that showed adenocarcinoma cells that lead to the surgery...that has shown nothing. It leaves me wondering what does that…