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Clinical trials
Hi ladies, i'm seeking guidance and support and hope.. My mommy (60 years old), recently has been diagnosed with endometrial cancer T4N2, im sorry im not familiar with all medical terms. Basically she had uterus, ovarian cancer that grew fast, affected appendix.. they removed everything mentioned , plus 21 lymp nodes ,…
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trace pelvic ascites
Ladies, do you know what is it. It's from my CT scan results. The rest sounds good, but this is worrie me a lot.
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Latest lab results not what I hoped for
in the last three months my CA-125 went from 607 to 1526. It is quite a jump. But it still is not as high as it was before I had the radiation. It was 1586. My doctors always tell me the marker is just a number. It only becomes a concern if there are symptoms or changes in the CAT scan. I know that doubling is a concern,…
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Do I need a GYN now? Any thoughts...I know there isn't a clear answer but I would like to hear from
Hi Everyone, Even with clear post surgery pathology I know that they might still want to keep a closer check on me for something to show up but not with the same sense of urgency but after a hysterectomy do I still need a GYN? Also pre-surgery at 51 I was right on the edge of menopause...now of course my body has…
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what's your diet?
Do you follow any special diets? Any recomandation?
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I'm done! Yahooie!
I had my LAST appointment with the gynecologic oncologist this morning. He officially kicked me to the curb. I had my surgery July 1, 2010 and this is close enough to 5 years for me. I hope this is encouraging to those of you who have the "garden variety" (endometroid adenocarcinoma), early stage, low grade cancer that I…
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RA and UPSC
HI ladies it's been a long time since I posted here. My Mom was diagnosed with UPSC three years ago and I'm grateful to say she's been dancing with NED since! She has rheumatoid arthritis and has lots of difficulty with her 6 month exams. They are very painful for her. Her doctor said that insurance companies don't like…
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I got my diagnosis on April 15 and I need your help
Hi everyone! On April 15 I was diagnosed with Endometrial adenocarcinoma after D&C. Reading this forum is giving me hope. I want to thank you for sharing and helping and to wish you success in this fight. My few questions are: 1. Do I need another referral from my Gynecologist if I decide to go to another Oncologist? She…
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Serous papillary endometrial adenocarcinoma vs other uterine cancers
Even though I spend a lot of time researching this, I still can't get a good answer as to the differences between the differntent types. Some of you seem to have so much knowledge about this, hoping you good help me figure it out. My Cancer is the Serous Papillary Endometrial adenocarsinoma stage 4. High grade. Very…
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March 29th 60 Minutes broadcast
I did not watch this episode of 60 minutes, but learned about it from a coworker. She told me that Duke University has been doing research on the use of the polio virus to treat a terribly aggressive form of brain cancer. By injecting polio into the tumor, an immune system response is sparked that has led to the tumor…
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plevic and para-aortic lymph node removal after radiation and chemo
hello. My mom was diagnosed with Stage IV uterine cancer at age 62. she had complete hysterectomy done by general ob/gyn on emergent basis in 2012 with out lymph node disection. she had 7 cycle of chemo in 2013 and did really well. she also had 5 weeks of pelvic radiation in summer 2013. she did good until may 2014. She…
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Avastin and Naturopathy
Hey ladies...an update. After having a recurrence in my pelvic nodes, I was started on Doxil and had to quit after 3 cycles. I had the worst toxic reaction they had ever seen at Kaiser! Mouth sores all down my esophagus, skin burn that peeled off my body, rash all down my legs, and hand/foot that literally took me to my…
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HPV high risk problems
I was diagnosed with recurring cervical dysplasia & HPV over 5 years ago (in my early 40's). I had 3 cervical conings (where they freeze the surface cells.) After the 4th positive test result, I decided to take different action. I did a lot of on-line research,day and night, which lead me to try a new HPV treatment known…
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Waiting over hysterectomy done pathology back...A OK
Hi, Finally had the hysterectomy that I had been waiting for and I am thrilled that it is over. I am happy to say that they didn't find anything...so I am clear. It throws me off that I had a pap test that showed adenocarcinoma cells that lead to the surgery...that has shown nothing. It leaves me wondering what does that…
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My conversation with my gynecologic oncologist
I saw my gyne oncologist and he seemed pleased that I am closing in on 1 and 1/2 years since my hysterectomy with no signs of a recurrence. I finished my chemo treatment 1 year ago. That was the end of my treatment . Yah!! But what he told me surprised me . He said that 90% of my treatment was my hysterectomy and…
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5 Years cancer free today
Just had my 5 year checkup for USPC and I am officially 5 years cancer free as of today. And my CA 125 which had stabilized after my surgery at 7 has now gone down to 5.1 The doctor said he doesn't often see it go lower after 5 years. So that is also good news. I had him look in one of my ears as dead skin (like you would…
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Low grade temperature that goes up and down for week. No other symptoms.
It started last week. The temp was 100.1 then after 1 Tylenol and a cool wash cloth on my head, it went down to 98.7. I had a runny nose that day but no aches and pains anywhere. I called the doctor. I talked with the nurse. She said she would call the doctor and give him the message and he or she will call me back. A 1/2…
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The quest for the cures
Has anyone seen this series? I watched it recently and found it very informative about cancer. I think it's a must for anyone fighting with this illness. It makes you think immune system and diet play a much bigger role than conventional medicine in eliminating cancer. Just wondering if you watched it, what your thoughts…
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Hormone pills, do they work?
most of the forums I have read, people with endometrial cancer that have mets have gone through chemo and radiotherapy treatments. Has anyone had hormone pills? Did they help? What stage were you when you used it? Did you need any additional treatment?
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Discouraged.....
Hi everybody. I saw my Oncologist on Friday and we officially decided to discontinue Doxil. After three cycles, and a dose reduction, the side effects were worse than they had ever seen. She wants me to take several weeks and just heal, which is OK with me. I am UPSC Stage IVb. In 2014 I went thru major debulking surgery,…
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HIP PAIN AND POSITIVE SCAN
I have had hip/groin pain for a month. It was so painful with sudden onset of pain that I could hardly stand the pain for the first two weeks, even with staying off it as much as possible, using crutches and taking Vicodin. Today I had an MRI and before I even got home they had called to tel me that they found something on…
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NED THE MOVIE
I am finally get to see NED the movie. It is 3:00 am and PBS has got it on in Dallas, Texas.
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UPSC...medical neglect
My sister had a hysterectomy and was diagnosed with stage IV B endometrial/UPSC cancer in the spring of 2011. For treatment purposes they used the same protocol as for ovarian cancer. The doctors involved were not very responsive (she's in Naples, FL, not some third world country) and she lacked confidence in them so she…
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My Dad is Upsetting Me!
So, since the last time I posted in here, things have been a little bit crazy for me emotionally. I'm up and down, moving from being scared and forgetting that I have been diagnosed with cancer. The wellwishes have stopped, and I've fallen out of most everyone's thoughts. Now Im just stuck here with this... situation. I…
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And so the journey continues; got my scan results
Hi ladies! Well, the news isn't great - I continue to progress now through my Avastin treatments. Two tumors have doubled in size, the one by my heart grew and the other two are stable. The good news is no new mets were seen and no direct organ involvement. My doctors are having me meet this Tuesday with a principal…
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lost
My wife was diagnosed with ovarian and uterine cancer Tuesday night. This was very unexpected and has crushed us. She's having surgey to remove both organs next month. We're worried about pulling through the surgery and the chemo treatments that follow. Dr says if all goes well, life expectancyis 1-4 years, that seems like…
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Re: Good news on cat scan for UPSC - NED - 4 years out from original diagnosis!
Hi Everyone: I just wanted to post my really Good news from my latest cat scan from yesterday as it shows I have No evidence of disease for UPSC for which I am extremely happy and very grateful so now I am 4 years out from my original diagnosis from February of 2011. I had Stage 1 of UPSC. So now, I only have one more year…
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Post complete hysterectomy endometrial cancer in my omentum
I would like to hear from others who have had this kind of cancer. After my hysterectomy my cat scan showed I was cancer free. Four months later I began having abdominal pains. Stage 1V endometrial cancer. I have completed my 6 infusion treatments and am now on Tamoxifen. I would like to hear from any patients with similar…
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The waiting
Hi I have been here looking at some of the posts just to get a feel for the forum but now I am posting. In early Febuary I got a diagnosis of adenocarcinoma. It showed up in a routine Pap smear so the location wasn't exactly known but now I have had a cone that came back clear...so on to the uterus. I had an ablation about…
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Doctor making some tweaks for my 2nd chemo treatment.
I saw my oncolgest this past Friday to tell him I couldn't go on with these bad side effects from my 1st chemo. I was on day 10 of extreme fatique and suffering with no appetite ,nausea that the sufran wasen't helping and bad travailing bone pain. I thought I would have been feeling at least a little bit better by day 10.…