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Uterine/Endometrial Cancer

upsc stage 1a recurrance
Hello ladies. It's been a while since I've posted anything, but I check in to see how you are all doing. Ro - I hope your cough is better!! I pray for you all often!! As a quick refresher, my mother was diagnosed with stage 1a in March 2013. We counted our blessings after her 14 biopsy results were negative. She chose…
chemo #22 finished
Chemo # 22 (5th Doxil) finished today. This was the day we were to see how the Doxil was working. Had a Ct Scan and Echocardiogram last weeek So we went over the results. The Echo was good, my heart was still pumping. The cardoligist did not mention the the metistatic evidence he mentioned last time , so the doctor was…
diagnosed at 25
Not sure where to start. I guess in the beginning..I found out on april 8th 2015 that I have uterine cancer. Im only 25 and still trying to process everything. The doctors are not sure what grade it is due to the fact that my labs came back at both grade 1 and grade 3. It has been ruff seeing as to how I have never had…
And so it begins
Got the results from my CT scan today and so far, so good. Nothing showed up. Big sigh and a few tears of relief. I meet with my surgeon on Wednesday and surgery is scheduled for July 10. I'm taking things one day at a time, and I know after surgery I'll know more, but today I feel positive and am trying to prepare my body…
I am much better this week
i have a lot more energy this week. My appetite is better, too. I still have a cough, but not as frequently as before. I still use the nebulizer a couple of times each day. I am sleeping much better, too. i am going to have the repeat bronchoscopy on Tuesday. It took 5 phone calls to get the appointment. Very frustrating.…
Feeling very low
today I am feeling very low. My mum has been on stage 4 treatment for 3 months. Her cough due to cancer in her lungs is getting worse. She is low on energy all the time. There is still 5 weeks before the next scan. Her white blood cells showed improvement though this week. But watching her suffer this is very painful. i…
I am much better this week
i have a lot more energy this week. My appetite is better, too. I still have a cough, but not as frequently as before. I still use the nebulizer a couple of times each day. I am sleeping much better, too. i am going to have the repeat bronchoscopy on Tuesday. I
thought you could all use some good news.
Today is March 25, 2014!!!! I’m alive and wonderfully well, living in California, six years after my diagnosis with UPSC. Don't be afraid to ask the hard questions. Question everything. Look things up on the web. Google is the best friend I had in my fight. There is a change in the wind on how doctors are looking at…
Anyone else diagnosed with stage 3B uterine cancer?
Mine was 93% through the uterine wall. I had spread to lower nodes, and I had positive washings. My radical hysterectonmy was 1-1/2 years ago followed by 6-1/2 months of treatment (carbo, taxol, and internal and external radiations) Anyone else in this boat?
question
So since i last posted it has been confirmed that i have grade 2, im 25 years old, recently married last aug. and have never had children. some things im concerned with is that my doctor is wanting to wait 6 months before even considering to do surgery. in this time i have been in survery pain in my pelvic area and keep…
? Re:recurrence surgery
Hey ladies! Thank you all so much for the wealth of information you have shared. my family has learned so much from you all! Just sad there is a need for a board like thi!!! My mom (originally stage 1a upsc ) recently learned she had a recurrence in her omentum. we went to gyn oncology chair at Cleveland clinic for a…
Is it just me??
I have had all the tests, seems like every test known to medical science, and the surgery. So far the physical part hasn't been too bad. I admit that I was pretty messed up for a while... couldn't eat or sleep, was hard to get moving again, and I kind of let things go for a time. But the part that is really giving me…
Rising CA-125
Hi, I have not been on this board for a while, I have been busy trying to forget cancer. I was diagnosed with UPSC in Feb. 2011 and finished treatment in Sept. 2011. I have been cancer free since then with a few little bumps in the road but no recurrences. My CA-125 has been rising in the last year. Nothing alarming until…
Kelly went home to Jesus
Hi everybody, I wanted to let you know that on Sunday night 24 May my sweet sister-in-law Kelly went home to be with God. She will be greatly missed but we know that she is in a better place where there is no suffering and no pain. For those of you who don't know Kelly was diagnosed with stage IIIC uterine carcinoma…
Thinking of stopping at 3 instead of 4 chemo treatments.
I am on day 7 of my 3rd treatment and my M.S. and M.G. is taking a big hit. Bladder, bowels, M.S. Hug that feels like I am being strangled at my diaphragm. Spasms so strong that I can't tolerate to stand, sit or lay down without extreme pain. And to think I may be in a flare that is permeant really is to much for me to…
Third day after first chemo
such a great pain in the bones between the knees and the ankles. Tylenol does not help at all. The rest of the side effects are minor. Do you know anything that could relieve me and how long it'll last that pain?
5 Year Survival with Stage IVb
Today is my fifth anniversary of survival after surgery for stage IVb UPSC. As far as I know, I'm still NED. I had a mass last year that hadn't grown after I had multiple CT scans and a PET scan to check on it, so my GYN/onc thought it was not a reocurrence. I have my final CT scan scheduled for May 18 of this year. I will…
Osteoporosis and "Natural" treatments vs Fosamax
I know there was a discussion about osteoporosis recently but I can't remember what topic it was posted under. I have a pubic bone insufficiency fracture. The orthopedist told me this is a pretty good indicator that I have osteoporosis, even though my dexa scan last year only showed osteopenia in my lumbar spine. He told…
White count going down, down, down 11 months after chemo and raditation treatments
Hi Everyone, I had very heavy doses of taxol and carboplaten plus 28 external and 2 internal radiations following a complete hysterectomy. I went to my primary who sees the trend, and I am now well below the window of normal WBC. I spoke with my oncologist, and he said he thinks it is probably just the effect of the…
Anyone had their gall bladder removed while undergoing treatment? And anyone get ureter stents inse
Not as part of your original surgery but later due to gallstones? How was the surgery performed and how long was the recover? On the stent side - same questions. I have gallstones and during the ultrasound and ct scans it was discovered that my kidney and a met on it are pushing on the uereter and against my back. So they…
Can not stay positive
Ladies, I can not stay positive. In front of my dauhgter yes, but when she is not around I only think when the cancer will beat me. Otherwise I feel good,I'll start chemo this week, I'm eating healthy, I'm walking a lot, I'm reading a lot. I want to believe that I'll live longer, but I can't. I have stage 4,grade…
How often do you get your port flushed after chemo treatments are finished?
I am 6 weeks past my last flush and the nurse said I can wait up to 8 weeks to have it flushed again. Does that sound right? I had made an appoitment to have the Oncolagy chemo nurse flush it today but when I got there she had already left early because the secretary forgot to tell her I was coming in at 3:00 pm. So they…
Last month has been miserable
I don't know where to begin. After I saw the lung doctor, I tapered off the prednisone which I had been on for about 4 months. I also tapered offf the gabapentin that I did not think was helping control the cough. That was not pleasant coming off the prednisone. The lung doctor thoght for sure the cough was caused by…
My sister thought she was having a heart attack. Could it be a reaction to Neupogen?
My sister, who is in her fourth year of treatment for UPSC IVB, checked into the ER last weekend because she thought she was having a heart attack. In the course of her 24 hour stay she was given many tests. She thinks that all of them tested within the normal range, but the report doesn't give any opinion, even according…
Achy discomfort after my first Brachytherapy. Normal?
I have this achy ness in my vaginal area since my first brachytherapy which was 4 days ago. It's not bad but very uncomfortable. I called the doctor. She said everyone is different, some feel nothing, some feel a little and some feel more. But she said you have to have these treatments. I wanted to know if with every…
PET scan denied by insurance, CT scan instead
Who had PET scan or CT scan before their hysterectomy? My DR ordered PET scan but my ins co denied it and would only approve CT scan with contrast and chest X-ray. I'm assuming many of you had the same experience? My surgery is scheduled a week from tomorrow. i think the DR wants to see if the CA spread to pelvic/abdomen…
Is CT Scan of the abdomen recommended prior to total hysterectomy
Does anyone know if a CT scan of the abdomen is routine prior to surgery? My surgeon didn't mention the need for it but I think I'm going to persist. A) I've always had tummy problems and B) I've read that in some cases, cancer was discovered in the abdomen after surgery. I'm also going to start a new post on the emotional…
Still NED at over 5 years with stage IVB UPSC
I just want to let you all know that I had an appt. with my gyn/onc's office today to do my final follow-up on the paracolic gutter mass that was found by CT scan and PET scan last year. He had seen me three times last year and I'd had a CT scan and labs each time, plus the PET scan early on. The mass hadn't grown as of…
Must read
If you don't already belong to Inspire- Ovarian Cancer National Alliance, sign up today and read Friday Corner: Constipation ( where's my birthing bar) by Rabbitgal. I promise you, it's worth it. Go. Now. Hurry.
Hi everyone!
First let me thank all of you for the kind words and for checking up on me! I appreciate it all so much! The heart surgery recovery is taking much longer than the other two times, but I am beginning to come back some. CA 125 was at 30, but no one seems to be to concerned, so I request another test in June or August. We'll…

Uterine/Endometrial Cancer

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