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Uterine/Endometrial Cancer

5 Year Survival with Stage IVb
Today is my fifth anniversary of survival after surgery for stage IVb UPSC. As far as I know, I'm still NED. I had a mass last year that hadn't grown after I had multiple CT scans and a PET scan to check on it, so my GYN/onc thought it was not a reocurrence. I have my final CT scan scheduled for May 18 of this year. I will…
Osteoporosis and "Natural" treatments vs Fosamax
I know there was a discussion about osteoporosis recently but I can't remember what topic it was posted under. I have a pubic bone insufficiency fracture. The orthopedist told me this is a pretty good indicator that I have osteoporosis, even though my dexa scan last year only showed osteopenia in my lumbar spine. He told…
White count going down, down, down 11 months after chemo and raditation treatments
Hi Everyone, I had very heavy doses of taxol and carboplaten plus 28 external and 2 internal radiations following a complete hysterectomy. I went to my primary who sees the trend, and I am now well below the window of normal WBC. I spoke with my oncologist, and he said he thinks it is probably just the effect of the…
Anyone had their gall bladder removed while undergoing treatment? And anyone get ureter stents inse
Not as part of your original surgery but later due to gallstones? How was the surgery performed and how long was the recover? On the stent side - same questions. I have gallstones and during the ultrasound and ct scans it was discovered that my kidney and a met on it are pushing on the uereter and against my back. So they…
Can not stay positive
Ladies, I can not stay positive. In front of my dauhgter yes, but when she is not around I only think when the cancer will beat me. Otherwise I feel good,I'll start chemo this week, I'm eating healthy, I'm walking a lot, I'm reading a lot. I want to believe that I'll live longer, but I can't. I have stage 4,grade…
How often do you get your port flushed after chemo treatments are finished?
I am 6 weeks past my last flush and the nurse said I can wait up to 8 weeks to have it flushed again. Does that sound right? I had made an appoitment to have the Oncolagy chemo nurse flush it today but when I got there she had already left early because the secretary forgot to tell her I was coming in at 3:00 pm. So they…
Last month has been miserable
I don't know where to begin. After I saw the lung doctor, I tapered off the prednisone which I had been on for about 4 months. I also tapered offf the gabapentin that I did not think was helping control the cough. That was not pleasant coming off the prednisone. The lung doctor thoght for sure the cough was caused by…
My sister thought she was having a heart attack. Could it be a reaction to Neupogen?
My sister, who is in her fourth year of treatment for UPSC IVB, checked into the ER last weekend because she thought she was having a heart attack. In the course of her 24 hour stay she was given many tests. She thinks that all of them tested within the normal range, but the report doesn't give any opinion, even according…
Achy discomfort after my first Brachytherapy. Normal?
I have this achy ness in my vaginal area since my first brachytherapy which was 4 days ago. It's not bad but very uncomfortable. I called the doctor. She said everyone is different, some feel nothing, some feel a little and some feel more. But she said you have to have these treatments. I wanted to know if with every…
PET scan denied by insurance, CT scan instead
Who had PET scan or CT scan before their hysterectomy? My DR ordered PET scan but my ins co denied it and would only approve CT scan with contrast and chest X-ray. I'm assuming many of you had the same experience? My surgery is scheduled a week from tomorrow. i think the DR wants to see if the CA spread to pelvic/abdomen…
Is CT Scan of the abdomen recommended prior to total hysterectomy
Does anyone know if a CT scan of the abdomen is routine prior to surgery? My surgeon didn't mention the need for it but I think I'm going to persist. A) I've always had tummy problems and B) I've read that in some cases, cancer was discovered in the abdomen after surgery. I'm also going to start a new post on the emotional…
Still NED at over 5 years with stage IVB UPSC
I just want to let you all know that I had an appt. with my gyn/onc's office today to do my final follow-up on the paracolic gutter mass that was found by CT scan and PET scan last year. He had seen me three times last year and I'd had a CT scan and labs each time, plus the PET scan early on. The mass hadn't grown as of…
Must read
If you don't already belong to Inspire- Ovarian Cancer National Alliance, sign up today and read Friday Corner: Constipation ( where's my birthing bar) by Rabbitgal. I promise you, it's worth it. Go. Now. Hurry.
Hi everyone!
First let me thank all of you for the kind words and for checking up on me! I appreciate it all so much! The heart surgery recovery is taking much longer than the other two times, but I am beginning to come back some. CA 125 was at 30, but no one seems to be to concerned, so I request another test in June or August. We'll…
Living alone during chemo
Hello everyone! I just joined you all today and have learned so much already--thank you! My mother is about to begin her first round of carboplatin & taxol and she lives alone. I'm trying to plan how much I should be with her in the coming weeks and months. Should I plan on spending the night for the first few nights after…
HI EVERYONE WHAT TO DO ABOUT 1975 GOATGIRL???????
Since her first post we have never gotten a response from her. I tried everything but no response. I don't want the newbies to continue posting to that topic without any responses. What do you think? Just saying...
Good news about my Mom and her UPSC battle
Hi Ladies, Wanted to share a bit of hope and inspiration. My dear Mom, staged as Grade 3a UPSC, had total hysterectomy, 8 rounds of carbo/taxol every 3 weeks, and went into remission for 1.5 yrs. CT scan this Spring showed a recurrence of 3 nodules in her peritoneal cavity and small amt of malignant ascites in pelvic…
Just an Update
Hi its Summerlady! I wanted to let everyone know that my biopsy results came back Negative! ! All is good!! So hapoy the surgery and the biopsy is Over!! My gynecologist believes that the irregular bleeding is Caused by the endometriosis. Feeling really good , had a little bit longer recovery than I thought but Finally…
Low Dose Naltrexone? PLEASE HELP??
Hello everyone, I wanted to reach out on here as I am new to this blog. Maybe some of you can help me out with some information or even some sweet messages could cheer me up..I'll give a little background on my story my Mom was diagnosed with Stage 4 Uterine cancer, a very aggressive cancer and they did find some cells in…
Osteoporosis
Is anyone taking medication for osteoporosis? If so, which one? Side effects? Effectiveness? I just came back from the doctor, and he did a bone density scan. I had one in 2011, right after I finished chemo. Of course I developed osteoporosis from chemo :( . The scan today shows something like -3.3 on my spinal. The doc…
Info on internal radiation please, side effects?
I'm going next week Tuesday for a meeting with the Radiologist. She will go over the plan on my internal radiation treatments. I'm still recovering from the chemo treatments and I'm not looking forward to what the radiation treatments will bring. Do they hurt? What about side effects? Thank you for any info you can share…
Need some feedback
Hello Everyone, Let me say ahead of this post that I feel like a real Pansy compared to you women out there who have really had to find out they had this cancer and then had to fight and fight living in the unknown after each new step until NED and even after that to some extent. I will also apologize ahead of time if I…
Quilt of Hope
This is a quilt block that I stitched for a Quilt of Hope" for the cancer center. Patients who are treated at the cancer center are invited to make a quilt block to be sewed together with other blocks to make a "Quilt of Hope." They display the quilts in the cancer center. As they get more quilts they will rotate the…
HellieC thinking of you
Wondering how your results from you latest CAT scan or PET scan showed from your cyber Knife? I hope the tumor shrunk and you are still pain free. Have not heard from you for quite some time. I hope everything is okay. in peace and caring.
Post Hysterectomy and chemo issues
Hi everyone, please forgive me for dropping in to this board when I am a colon cancer survivor, but I have a topic question that I feel better posting in a place that is more for women. I was diagnosed with stage 3 colon cancer nearly 4 years ago and had a recurrence 18 months ago. When the surgeon went in to take the…
Booklet that defines CA 125
zenmama posted this link over on the ovarian board, and I thought you all might enjoy it as well. CA 125 is not just used in ovarian cancer but uterine/endometrial cancers as well. Susan P made the comment, which I think many of us agree with, that we want to know more about our disease and things like this are in a…
Lorraine
7 weeels of chemo in the books. CA-125 level was originally 8,000, currently at 1,124. Still a high number, but down a lot. Eating well and staying somewhat active. Eleven weeks of chemo to go! Just wanted to give an update. Hope all is well with everyone. Bob
Five years NED...I think?
Yes, I am still among the living! Been a rough four months. Had my third open heart sugrery March 31. Still recuperating and it is taking much longer this time. Had my fifth year check up April 24. I don't know if I am stilll NED or about to reacure. CA 125 had gone from 15 to 30, but the doctor was so freaked out about my…
Went to lung doctor today
He said the radiation pneumonitis has cleared up. and is not the reason for my cough. I have been on Steroids for almost two months continuously, as well as a month before that. It has given me heartburn especially in the evening and night. He feels the cough is from gastric reflux. I had a pulmonary function test also and…
Chemo isn't working
I haven't been here for about 2 months, and when I read about all that Ro is going through I feel like a cry-baby. I am a bit frightened by my situation. I did 3 rounds of taxol - carboplatin in less than 2 1/2 years before becoming platinium resistant. The next step was doxil and my CA 125 doubled after each of the 3…

Uterine/Endometrial Cancer

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