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Thank you DoubleWhammy, Hybrid, Hopefull & Pinky
I got a call from my doctor's office for a recent polyp biopsy and they told me it is negative! I can't believe it. I want you to know how much I appreciate your advice. And I know that when you answer posts, you're not just helping me but so many others that are scared and looking for answers. I will pray for you all that…
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Pelvic floor therapy
Barb mentioned pelvic floor therapy on another post. Thought I'd give it its own topic since I'm being selfish as I've just started it. My gyn/oncologist referred me to a urogynecologist because I have stress incontinence since my hysterectomy. I so agree with Barb that the exam was uncomfortable and long, but I sort of…
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Info about Polyps
Yesterday morning I had a uterine polyp removed that I didn't know was there. The doc was trying to do a uterine biopsy when he spotted the polyp and immediately took it off. I had some spotting with brown blood throughout the day yessterday. Now, this evening, i'm bleeding bright red watery blood. Does anyone know the…
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Anyone with UPSC Stage 1A who chose not to have Chemo?
Hi! I was recently diagnosed with UPSC and am 4 weeks post radical hysterectomy. My pre-op CTs were negative as we're all the lymph nodes, and other biopsies done at surgery. I had had a D&C and polyp removal 1 month prior to hysterectomy which established the diagnosis. Originally my surgeon interpreted the research for…
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Darn Labs..it's MMMT
Hello All. I was just diagnosed with MMMT plus another stupid but less aggressive uterine cancer from my November 6th hysterectomy due to bleeding and other crappy stuff. My delightfully cute gynocological oncologist is setting up my chemo treatment as I type this and will find out what that is all about on my Dec 4th…
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Just got home from the Gyno...scared!!!
I just got back from the gyno after years of symptoms including abnormal heavy watery bleeding, cramps, excessive discharge, pain, etc. I had a negative pap in September and also HPV negative, but i had a "hemorrhage" I had a transvaginal US in mid-november which didn't show anything but a few small fibroids. My main…
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Updated:question about D&C using Hysteroscopy
Hi everyone i've updated my situation in last comment, pleaseeee reply if possible. I'm a member of kidney cancer board, not here. This Saturday I'm going to have a D&C using hysteroscopy to remove a polyp in the endometrial line. Here are my questions, how should I be prepared for it? Should I be fast? Does it hurt? Can…
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Bloating and a recurrance.
Can bloating be a sign of a recurrance. I had my complete surgery done in June 2014 and 5 rounds of chemo and internal rad. I am do for my 2nd ct scan since surgery on Feb. 9th. Should I just wait.My stage is 2 MMMT. I have Celiac and eat gluten free but something is going on. Maybe I am just eating to much. thanks
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Symptoms & Random questions (not diagnosed)
Hello. I'm 42 (premenopausal) and have had pelvic symptoms for about 5 years. Terrible pain, bloating, cramping, bleeding, and excessive discharge. I had irregular bleeding many times, but I made an emergency trip to the clinic for a pap test because of extremely heavy bleeding 14 days into my cycle. The blood was watery…
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NED 5 YEARS-mmmt - JUST SPOTTED
Hi Guys, been reading all posts don't do much writing since I lost my daughter. I have had a total hyst in 2009 MMMT stage 1a grade 3. 6 rounds of chemo. Friday after a long day of stressful driving, went to the b/room and saw bright red blood on toilet paper, I almost fainted. I have moved from where my Doc is and at a…
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Any Experience with DOXIL?
Hi. This is my first post. I was diagnosed in Jan 2014 with Stage IVB and had surgery, chemo, and vaginal brachytherapyy. I was NED in July 2014 but had a recurrence in December when they found some enlarged nodes in my pelvic area on a CT scan. That was followed by PET which confirmed cancer. So far no tumors, no spread…
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I am back from surgery and it is good news!
I am back from surgery and it is good news. 1a. I have been thanking God daily and still praying for my "sisters". Still sore on the outside and inside but managing okay.... QUESTION???? Want to ask those who have had robotic, do you have those bumps around1-3 cms at your incision site? Feels like round nodules under the…
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My promised update, from Moli.
Hi everyone, I have not forgotten you, I often read the posts but had no new news to relay. while I waited to have my follow up scans, Some of you may recall that I had total hysterectomy on April 2nd,2014 ,for stage 3 Serous Endometrial Cancer, then follow up scans on August 28th 2014 with great results, NED .I was…
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Re: Passing of Arlene Romano
Dear Ladies: It is with very sad news that Arlene Romano, who had Stage 3 of UPSC passed away on Wednesday, January 7, 2015. I knew her from the Uterine Board and she lived not that far from me in Delaware County, PA. Her funeral services will be held this week. I met Arlene last year in March for lunch at a nearby…
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Fundraiser for my Sister In Law
Hi All, I am new to the forum but wanted to know if anyone has had success with fundraising? My sister in law is 45 and was just diagnoses with stage 4 inoperable undifferentiated uterine sarcoma. I am trying to do everything I can to help them. I made a gofundme account <Content Removed by CSN Support Team> but I'm trying…
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Anyone here who tested positive for Lynch Syndrome post uterine cancer?
Hi, I am here looking for anyone who may have tested positive for Lynch Syndrome and opted to have a total colectomy? I am a 6 year survivor of uterine papillary serious cancer. I tested positive for Lynch Syndrome. I have a stricture in my Sigmoid colon presumably due to radiation injury. I am facing yearly colonoscopiies…
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Frustrated at lack of help
I have recently been diagnosed with endometrial cancer. I have been the one who's always helped out my elderly mom like driving to places since since she stopped driving, helping her get groceries, cleaning the house and doing all sorts of things that daughter only do. the thing is everyone's pretty much just treated me…
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Study shows increased survival with aspirin and statin use
I found this research study to be interesting and thought I should share it with my sisters here. The study can be accessed by going to meetinglibrary.asco.org/content/113306-132. I just started taking a statin drug for high cholesterol so maybe it will be helpful for reducing my chance of a recurrence of uterine cancer. I…
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The benefit of fruit and vegetables
Good Morning, ladies, I came across this article and thought it was interesting. I know that p53 has something to do with my UPSC diagnosis and this article helped me to understand it a little better. I hope and pray for you all to be healthy and I wish you the best during this holiday season! Cathy Re: p53--Cancer…
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Still having fatique 2 1/2 months after they stopped chemo
I have MMMT uterine cancer. I was DX June 2014. I had a complete hysterectomy and 17 nodes were clear. I have grade 3 stage 2. I am still very fatiqued at times from 5 rounds of taxol and carbo 3 weeks apart. I also had 3 bracatherpy treatments.The last chemo was Oct 21st 2014 and the last rad was Oct 31st 2014. My legs…
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Trigeminal Neuralgia
Has anyone heard of Trigeminal Neuralgia? My mom has Endometrial Papilarry Serous Cancer. She started as a stage 3b and they rediagnosed her to stage 1c. She had complete hysterectomy, 4 rounds of chemo. She had a catscan and was said to be cancer free. Yeah! She is now continuing with three month checkups. Well, my mom…
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Rectal or Colon Spasms (very painful!!!)
It has been about one year since I finished treatment. I had taxol and carbo and radiation both external and brachytherapy internally. Last December shortly before my last chemo I had my first "attack" of what I would describe as having a rectal spasm or colon spasm. The pain starts out tolerable and then escalates to…
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A little support please...
Hello Everyone, I hope you are having a wonderful New Year thus far! It is so heartwarming to read the wonderful posts on this forum. I oftentimes read, but rarely post. I guess I'm asking for a little support now. I recently had a CT scan and I have a small lesion on my liver. I had an MRI today to see if it's a met or…
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New to site uterine cancer help hysterectomy on 12/31/14
New to site uterine cancer and hysterectomy scheduled 12/31/14 Hello all Diagnosed with uterine cancer and getting very nervous about my surgery. My endo biopsy showed endo adenocarcinoma suggestive of Figo grade 2. But it also showed high grade cytology atypica and significant p53 positivity which raises the concern for…
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surgery next week question on lymph node removal
I have my surgery next week and my doctor was going to do a complete hysterectomy. The one thing he is not doing is removing all of the lymph nodes. Instead he is doing a sentinel lymph node biopsy. has anyone had that and is it accurate? or should I push for more lymph nodes to be removed? I read the sentinel lobe biopsy…
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Happy new year
It's good to be here to see another one. My best to all.
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Happy holidays to all
Hi, Ladies, To all of you I wish good health, good food, good cheer and good company during this holiday season! Thank you, also, for all the information you have shared with me in my many hours of need and for the emotional support. I wish the need for such a cancer support network was unnecessary due to a 100% cure rate…
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Anyone out there dealing with a prolonged journey and managing their stress? I am finishing my seco
Hi ladies! My UPSC was found in Feb 2013 And I was immediately put on Megace. I had surgery, six rounds of carbo/taxol, 28 radiation, three brachytherapy. At my first three month check up five mets were found spread out through out from my heart to liver, diaphragm and two near my spine all are inoperable and irradiatable.…
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Lyrica
Have any of you on this board taken Lyrica for Neuropathy. I tried Gabapentin and helped a little. My neurologist suggested we try lyrica. He started me with one a night, then one morning and night, etc until I started two a day on Friday. I feel like every nerve ending in my body is firing; I jerk and twitch, am sleepy…
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Response to Lady Dev
Hi, Lady Dev, I saw your post dated 12/27/14 under an old thread titled "Uterine Cancer mets to the lungs" and wanted to respond. As that thread is so very long I thought it would be easier to start a new forum topic. My cancer has not spread to my lungs that I am aware of so I can't address your questions. I just wanted…