Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Uterine/Endometrial Cancer

Symptoms & Random questions (not diagnosed)
Hello. I'm 42 (premenopausal) and have had pelvic symptoms for about 5 years. Terrible pain, bloating, cramping, bleeding, and excessive discharge. I had irregular bleeding many times, but I made an emergency trip to the clinic for a pap test because of extremely heavy bleeding 14 days into my cycle. The blood was watery…
NED 5 YEARS-mmmt - JUST SPOTTED
Hi Guys, been reading all posts don't do much writing since I lost my daughter. I have had a total hyst in 2009 MMMT stage 1a grade 3. 6 rounds of chemo. Friday after a long day of stressful driving, went to the b/room and saw bright red blood on toilet paper, I almost fainted. I have moved from where my Doc is and at a…
Any Experience with DOXIL?
Hi. This is my first post. I was diagnosed in Jan 2014 with Stage IVB and had surgery, chemo, and vaginal brachytherapyy. I was NED in July 2014 but had a recurrence in December when they found some enlarged nodes in my pelvic area on a CT scan. That was followed by PET which confirmed cancer. So far no tumors, no spread…
I am back from surgery and it is good news!
I am back from surgery and it is good news. 1a. I have been thanking God daily and still praying for my "sisters". Still sore on the outside and inside but managing okay.... QUESTION???? Want to ask those who have had robotic, do you have those bumps around1-3 cms at your incision site? Feels like round nodules under the…
My promised update, from Moli.
Hi everyone, I have not forgotten you, I often read the posts but had no new news to relay. while I waited to have my follow up scans, Some of you may recall that I had total hysterectomy on April 2nd,2014 ,for stage 3 Serous Endometrial Cancer, then follow up scans on August 28th 2014 with great results, NED .I was…
Re: Passing of Arlene Romano
Dear Ladies: It is with very sad news that Arlene Romano, who had Stage 3 of UPSC passed away on Wednesday, January 7, 2015. I knew her from the Uterine Board and she lived not that far from me in Delaware County, PA. Her funeral services will be held this week. I met Arlene last year in March for lunch at a nearby…
Fundraiser for my Sister In Law
Hi All, I am new to the forum but wanted to know if anyone has had success with fundraising? My sister in law is 45 and was just diagnoses with stage 4 inoperable undifferentiated uterine sarcoma. I am trying to do everything I can to help them. I made a gofundme account <Content Removed by CSN Support Team> but I'm trying…
Anyone here who tested positive for Lynch Syndrome post uterine cancer?
Hi, I am here looking for anyone who may have tested positive for Lynch Syndrome and opted to have a total colectomy? I am a 6 year survivor of uterine papillary serious cancer. I tested positive for Lynch Syndrome. I have a stricture in my Sigmoid colon presumably due to radiation injury. I am facing yearly colonoscopiies…
Frustrated at lack of help
I have recently been diagnosed with endometrial cancer. I have been the one who's always helped out my elderly mom like driving to places since since she stopped driving, helping her get groceries, cleaning the house and doing all sorts of things that daughter only do. the thing is everyone's pretty much just treated me…
Study shows increased survival with aspirin and statin use
I found this research study to be interesting and thought I should share it with my sisters here. The study can be accessed by going to meetinglibrary.asco.org/content/113306-132. I just started taking a statin drug for high cholesterol so maybe it will be helpful for reducing my chance of a recurrence of uterine cancer. I…
The benefit of fruit and vegetables
Good Morning, ladies, I came across this article and thought it was interesting. I know that p53 has something to do with my UPSC diagnosis and this article helped me to understand it a little better. I hope and pray for you all to be healthy and I wish you the best during this holiday season! Cathy Re: p53--Cancer…
Still having fatique 2 1/2 months after they stopped chemo
I have MMMT uterine cancer. I was DX June 2014. I had a complete hysterectomy and 17 nodes were clear. I have grade 3 stage 2. I am still very fatiqued at times from 5 rounds of taxol and carbo 3 weeks apart. I also had 3 bracatherpy treatments.The last chemo was Oct 21st 2014 and the last rad was Oct 31st 2014. My legs…
Trigeminal Neuralgia
Has anyone heard of Trigeminal Neuralgia? My mom has Endometrial Papilarry Serous Cancer. She started as a stage 3b and they rediagnosed her to stage 1c. She had complete hysterectomy, 4 rounds of chemo. She had a catscan and was said to be cancer free. Yeah! She is now continuing with three month checkups. Well, my mom…
Rectal or Colon Spasms (very painful!!!)
It has been about one year since I finished treatment. I had taxol and carbo and radiation both external and brachytherapy internally. Last December shortly before my last chemo I had my first "attack" of what I would describe as having a rectal spasm or colon spasm. The pain starts out tolerable and then escalates to…
A little support please...
Hello Everyone, I hope you are having a wonderful New Year thus far! It is so heartwarming to read the wonderful posts on this forum. I oftentimes read, but rarely post. I guess I'm asking for a little support now. I recently had a CT scan and I have a small lesion on my liver. I had an MRI today to see if it's a met or…
New to site uterine cancer help hysterectomy on 12/31/14
New to site uterine cancer and hysterectomy scheduled 12/31/14 Hello all Diagnosed with uterine cancer and getting very nervous about my surgery. My endo biopsy showed endo adenocarcinoma suggestive of Figo grade 2. But it also showed high grade cytology atypica and significant p53 positivity which raises the concern for…
surgery next week question on lymph node removal
I have my surgery next week and my doctor was going to do a complete hysterectomy. The one thing he is not doing is removing all of the lymph nodes. Instead he is doing a sentinel lymph node biopsy. has anyone had that and is it accurate? or should I push for more lymph nodes to be removed? I read the sentinel lobe biopsy…
Happy new year
It's good to be here to see another one. My best to all.
Happy holidays to all
Hi, Ladies, To all of you I wish good health, good food, good cheer and good company during this holiday season! Thank you, also, for all the information you have shared with me in my many hours of need and for the emotional support. I wish the need for such a cancer support network was unnecessary due to a 100% cure rate…
Anyone out there dealing with a prolonged journey and managing their stress? I am finishing my seco
Hi ladies! My UPSC was found in Feb 2013 And I was immediately put on Megace. I had surgery, six rounds of carbo/taxol, 28 radiation, three brachytherapy. At my first three month check up five mets were found spread out through out from my heart to liver, diaphragm and two near my spine all are inoperable and irradiatable.…
Lyrica
Have any of you on this board taken Lyrica for Neuropathy. I tried Gabapentin and helped a little. My neurologist suggested we try lyrica. He started me with one a night, then one morning and night, etc until I started two a day on Friday. I feel like every nerve ending in my body is firing; I jerk and twitch, am sleepy…
Response to Lady Dev
Hi, Lady Dev, I saw your post dated 12/27/14 under an old thread titled "Uterine Cancer mets to the lungs" and wanted to respond. As that thread is so very long I thought it would be easier to start a new forum topic. My cancer has not spread to my lungs that I am aware of so I can't address your questions. I just wanted…
possible right lung nodule - ugh not a day to get the report
what a day to get the results of my chest xray/MRI. the dr's office just sent me a copy from Monday's test and on the X-Ray it says: there is a faint nodule with the right lung, seen on the frontal projection only. This is projected between the posterior interspace of the sixtha nd seventh ribs. The lungs appear otherwise…
Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
How to Raise Hemoglobin Levels
Have finished three rounds of taxol/carboplatin with nearly no side effects except occasional fatigue--and the news that my hemoglobin is too low. It is 9.1 instead of the 11.-14 considered normal for women. My cancer center didn't really elaborate on how to address the problem; the chemo nurse just muttered, "Maybe you…
Ms. Grouchy
Hi, I was diagnosed last week or so. For the first seven days I was Ms. Positive. Now the last three days I have been Ms. Grouchy and depressed. Is this normal? What can help with positive outlook and keeping up. I feel like I should get a pet to cheer me up.
I Just need to mostly vent
I was dx in June 2013 with UPSC grade 3c. Total hysterectomy, 18 carbon/taxol and four internal radiation treatments. I finished treatment in Feb and just had a good 3 month recheck. I get my port out in Jan. If all is well. Can hardly wait. One month before my dx my husband was dx with kidney cancer and had his right…
Recently Diagnosed
Hi Ladies, My name is Denise and I got recently diagnosed with endometrial cancer. My oncologist said it's in the early stage, however has not assigned a stage yet. As you all are aware I am extremely scared and concerned. I am 32 years old, I do not have any children. There are days that I say its fine I will be okay with…
A way to avoid losing hair with chemo
I talked to an old friend of mine last night, one who'd had breast cancer 19 years ago. She'd had chemo back then, and she expressed her desire not to lose her hair from it with the nurse at her first chemo appointment. The nurse suggested she try an ice cap during chemo. My friend had this cold, heavy ice cap placed on…
fluid draing into abdomen
Hello Ladies, I had a complete hysterectomy and 8 lymph nodes removed on 9/2/14 due to stage 1B uterine cancer. Two weeks after my surgery I started to have fluid drain into my abdomen. As of today I have had 7 Paracentesis drains and 1 Thoracentesis when the fluid soaked into my lungs. I spent 5 days in the hospital when…

Uterine/Endometrial Cancer

Discussion List

Discussion Boards