The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Uterine/Endometrial Cancer

lost
My wife was diagnosed with ovarian and uterine cancer Tuesday night. This was very unexpected and has crushed us. She's having surgey to remove both organs next month. We're worried about pulling through the surgery and the chemo treatments that follow. Dr says if all goes well, life expectancyis 1-4 years, that seems like…
Re: Good news on cat scan for UPSC - NED - 4 years out from original diagnosis!
Hi Everyone: I just wanted to post my really Good news from my latest cat scan from yesterday as it shows I have No evidence of disease for UPSC for which I am extremely happy and very grateful so now I am 4 years out from my original diagnosis from February of 2011. I had Stage 1 of UPSC. So now, I only have one more year…
Post complete hysterectomy endometrial cancer in my omentum
I would like to hear from others who have had this kind of cancer. After my hysterectomy my cat scan showed I was cancer free. Four months later I began having abdominal pains. Stage 1V endometrial cancer. I have completed my 6 infusion treatments and am now on Tamoxifen. I would like to hear from any patients with similar…
The waiting
Hi I have been here looking at some of the posts just to get a feel for the forum but now I am posting. In early Febuary I got a diagnosis of adenocarcinoma. It showed up in a routine Pap smear so the location wasn't exactly known but now I have had a cone that came back clear...so on to the uterus. I had an ablation about…
Doctor making some tweaks for my 2nd chemo treatment.
I saw my oncolgest this past Friday to tell him I couldn't go on with these bad side effects from my 1st chemo. I was on day 10 of extreme fatique and suffering with no appetite ,nausea that the sufran wasen't helping and bad travailing bone pain. I thought I would have been feeling at least a little bit better by day 10.…
Grade 3 endometrial cancer mets to lungs
Hi all, My mum who is 58 years old was dx with stage 1b grade 3 endometrial cancer in late 2013. She had a full hysterectomy. Since then routine tests have been showing her cancer free. Until two weeks ago she went into emergency for a stomach pain. They scanned her and found spots in the lungs. After pet scan and biopsy…
Alternative treatments
has anyone tried any alternative treatments that they found helpful? Keen to hear your experiences.
Cancer: The emperor of all maladies
Did anyone else here in the U.S. see the three part PBS show "Cancer: The Emperor of All Maladies"? It was unbelieveable. How chemo, radiation, immunotherapy, and clinical trials run have come to be?? Fascinating. Like life, not everyone they highlight lives, but it did give hope. Back before radiation could start I was…
Lymphedema Is Getting Some Recognition
Hi Everyone, Actor Kathy Bates has been speaking publicly about the lymphedema she recently acquired in both arms from a double mastectomy after a breast cancer diagnosis. It's sad that she too must suffer from this, but encouraging to me that we have such a fantastic advocate for lymphedema awareness and research. Kathy…
MISSING----DEBRAJO, CULKA, TIGERS DO BOUNCE, NORMA2, BONNIEP, SARA ZIPORA, NANCIEB, TEAMKELLY, LIZ G
Hi guys, missing quite a few sisters. Any info. there are many more sisters that have stopped checking in, i don't remember all of them. I am only thinking of them and hoping they are all doing well. Please let me know if any one have info.
19th chemo today Good day
i had my 19th round of chemo today (2nd Doxil) and everything went well. My CA125 was down after 1 round of Doxil from53-37 after progressivly raising on Taxol the last 4 times. Maybe we are headed down the right path again. Best news in a long time. My oncologisy added Deedron to the pre-med to see if it would help thye…
Anxiety about my first "3 month" followup
i am new to the Board but I have been reading many of the comments from everyone and i see all the support. I am hoping for some advice. I was diagnosed with stage 1a grade 2 endometrial adenocarcinoma, endometrioid in late October. The treatment was total abdominal hysterectomy and bilateral salping-oophrorectomies with…
My conversation with my gynecologic oncologist
I saw my gyne oncologist and he seemed pleased that I am closing in on 1 and 1/2 years since my hysterectomy with no signs of a recurrence. I finished my chemo treatment 1 year ago. That was the end of my treatment . Yah!! But what he told me surprised me . He said that 90% of my treatment was my hysterectomy and…
Doctor in NYC to treat papillary serus uterine cancer
hello, my friend was just diagnosed with papillary serus high grade uterine cancer. This was yesterday (catscan and utrasound). She was told to find an obgyn oncologist. No grading has been done yet. I do not know if you are allowed to share the name of your doctor on this site but if so, can you share the name of your…
Doxil side effects
I am fairly new to this. Since joining, I been reading other posts, which has been helpful, but have been a little shy about asking my own questions. I have stage 4 high grade papillary serous endometrial adenocarsinoma that has matastisised several times. Each time we get it beat down, it finds a new place to hide.…
Metastatic endometrial cancer spread to my lungs
Last October I was diagnosed with endometrial cancer in my lungs. I had a hysterectomy five years ago and had check ups every three and later six months. Everything was great until a persistent cough sent me to my doctor who ordered xrays of my lungs. From there I ended up going to Moffit Cancer Institute to a gynacologica…
TGIF..and on to other things!
An update! After 48 hours on prednizone (massive dose) the pain in my feet has subsided to where I can walk normally. Still can't get shoes on, but that will come. The chemo burn/rash is massive and going to take some time. Slightly better this morning, and didn't need pain pills last night so that's progressing too.…
A good day!
Hello Sisters! I have been having a bad time this last week, and you have been there and I so appreciate it. I just wanted to share a couple of my little miracles with you and hopefully share a smile. Yesterday I had to go into the lab for tests and was DREADING it after the week I've had, can barely stand to be touched,…
If you are seeking evidence of hope
Check out the other discussion board, specifically Long Term Survivors. emily1171 posted an incredible thread yesterday that I think we uterine cancer ladies and associated loved ones ought to read. I have been known to stray from the uterine board to read about other cancers . emily1171's story was incredible . It tells…
Treatment working, but stopped!
On Monday I had a CT Scan at the 50% point in my Doxil treatment plan. It showed lymph nodes shrinking (only area of spread) and nothing else to worry about. Treatment working. BUT.....on Tuesday I went to Dermatology because the side effects have been so drastic (major hand/foot; chemo rash/burn from hell); They got on…
Need energy BAD
what do you guys take to wake up at all? Coffee-tea or something-thats ok with this meds that we take. They told me no green tea or this other tea I had bought-had rubbarb root in it says not to take because of the kidneys. Any answers will help!
Endometrial carcinoma reg.
Hi, I'm new here. I registered on this site as my mother aged 48 got utrinel cancer type Endometrial carcinoma . Her tumor size is 37.0*32.0*50.0 mm. Can anyone tell me in which stage of cancer is my mom now and how ricky is this. what treatment we should prefer. Please help.
Starting chemo on Tues. March 10th.
Any encouraging words would be appricatated:) This is the first time I have had to have chemo treatments. I'm suppose to get 4 rounds. Every 3 weeks. When I finish the chemo then internal radiation. I am going the talk more about all of this with the nurse on this Thursday. I was thinking of getting my hair cut pixie style…
Went to pulmonolgist (lung doctor)
He felt after looking at the CD of the CAT scan, I did have radiation pnuemonitis. Since I have had the cough so long he wanted to rule out anything else. He did a bronchoscopy today ( a test where they pass a scope to look into the lungs), and he again felt it was the pneumonitis. It does not show pneumonitis with the…
Major side effects
I was dx in jan 2014 with UPSC stage IVB. It had spread to the omentum area, but no organ involvement. Major reduction surgery, followed by 6 mo of chemo and vaginal brachytherapy. Got to NED in July 2014, but had a recurrence in several lymph nodes in Dec. 2014. Caught very early with CT/PET scan, no tumor, masses, or…
should I go to the ER
Reg doc perscribed cough med. but still not feeling well-drink water all day-alot of bottles but go to the bathroom every couple of hrs chest not hurting as bad with cough med but have headache and not feeling well. Think its the blood pressure or is this just from the chemo? Go for 2nd round on thurs-fri of next week.…
Chest pain and Coughing-when I lay down
I have had this chest pain when I try to sleep. last week I had a chemo treatment of Avastin. I got it 2 weeks after the other chemo drugs of Taxol-Cisplatin-zometa those were on day 1 and 2. It seems this last one the Avastin made me feel the sickest and it was the smallest bag. I had a chest cold for about 2 months now…
Anyone had anything similar? worrying times
Hi All, I have been worrying myself silly since my last transvaginal scan a month ago, Just to give you a description of my history. May 2013 I suddenly started to bleed very heavily, losing clots and my periods were lasting anything from 10days to 20 days. I went to my GP who put me on medication to ease the bleeding…
CT SCAN results--- similar to Kumar
hi guys, ct result is similar to Kumar. My dx 2009 1a mmmt grade 3. had the works Ned since. recently has a spotting. Pap smear normal. New Doc in Florida convinced me nothing to worry about. Internal exam had no findngs, but said I can do a Ct if it makes me feel better. Ct reads as follows: asymmetric soft tissue…
This struck a chord
I heard this the other day and the strong, resiliant people I have met on this board immediately came to mind "It's not what happens to you in life, it's how you deal with it" That is now on my fridge...along with "Ageing is inevitable. Maturing is optional" Just in case I forget to enjoy life!

Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Uterine/Endometrial Cancer

Discussion List

Discussion Boards