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Debbie thinking of you
hoping your second round of chemo went better than the first one? Hope you were able to get enough fluids in. Hope the bone pain was not as bad for you. Wishing you a comfortable time until your third chemo. In peace and caring.
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Has anyone seen NED the Movie?
I heard about it from a Chemosabe and purchased it via Vimeo. Interesting and uplifting stories about six doctors who form a band and some of their patients. I was surprised at some of the statistics they shared about under the belt cancers. We need to get the word out.
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Are there symptoms before a recurrance of
Hi again. I was dx with MMMT uterine cancer in JUNE 2014 and go for my 2nd CT scan after surgery on Feb. 9th of 2015. I am grade 3 stage 2. I had taxol/carbo and internal radiation. Did anyone have any pain or funny feeling in the pelvic and stomach area before a recurrance. The waiting is terrible. I am positive but I…
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Officially NED! (after lung mets--"persistent" Stage IIIC2 endometrial cancer dx Jan 2011)
Yesterday I had my fifth CT scan. The second one, in September 2011, had the worst results: it showed several small lung nodules and several suspicious para-aortal lymph nodes. This was after six months of cisplatin and doxorubicin, and I was floored that the chemo hadn't worked. It was then that I started on Megace--and…
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Adencsarcoma with sarcomatous overgrowth of lsiomyosarcoma
This is what is written on my pathology report and it's scaring me. My oncologist said he feels and data shows I should of chemo and radiation because of this type of invasive cancer even though he said I'm early stage 1a. Plus the cancer spead a tiny bit into the muscle of my uterous. Every other test biopsies came out…
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Ureter Stents - My experience
Hello Everyone! Just thought I put a post out there because recently I have noticed that more and more of you are required or in need of a ureter stent so I thought I would share my experience with you. My experience with this started in February of 2014 when my CT Scan showed that I had moderate left-side hydronephrosis.…
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Please support me.God bless you
I m very upset.My mother had 1.5 cm nodule on right upper lobe.Doctor did operate her and her biposy came adencarcionma well diff.They were unable to find cancer orgin.she was digonsed 5 yrs uterus cancer and was in remission for 5 yrs. Doctors are not sure it is mets from uterus or new primary cancer.is anyone have same…
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Ascites on CT Scans after radical hysterectomy and 8 rounds of chemo for UPSC
Hello UPSC Aunts, I say "Aunts" b/c it is my Mom who was diagnosed with UPSC. It has been awhile since I have been on here but it is CT Scan time again and I am getting a bit anxious for her. Each scan says she has a small amount of possible malignant ascites in her pelvic region that is getting slightly larger. She cannot…
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Recovery Time
I am so new to all of this and appreiciate any input you can give me. I just finished my chemo for leiomyosarcoma uterine cancer. I was working a 40 hour week and now can barely make it a few hours before fatigue sets in. I know it must vary a lot, but can anyone share how long it took to get back to a regular work day?
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Did anyone present with pain like mild cramping several weeks after hysteroscopy biopsy? Have Endome
Hi everyone, Thank you for all of the help I've been given here. It's a comfort to hear other's experiences. I'm wondering if anyone had mild pain or cramping after hysteroscopy that lasted for a month. I have very mild cramping and a feeling of fullness or pressure like when you are getting ready to start a period that…
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CAt scan results 3 months after SBRT
i went to the patient portal and got my CAT scan report from 1/2/15. It said that the right paratracheal node measures 1.7 X 1.2 which previouslymeasured 3.4 X 2.7. My previous report said the node was 4.1 X 3.6. What great results from the SBRT. However it also said" in the right upper lobe with volume loss suggestive of…
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First MRI scan results post Cyberknife
Well, ladies, the first results are in! My oncologist rang me today and told me the tumour has shrunk (was 4.1 x 3.8 x 2.8 cms now is 3.6 x 3.7 x 2.0 cms). This is very good news. We weren't expecting huge shrinkage, as the tumour is mixed up with scar tissue which will never disappear, but any shrinkage is a good sign…
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Estradiol Pills
Hola, Last week, my gyno/oncologist sent me to a gynocologist. I have been having vaginal inections that are not, according to him, related to cancer. So I went, and the new doctor is a friend of my gyno/oncologist. The new dorctor recommended Vegifem, which is estradiol pills. He called my oncologist, and he said iit was…
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Stage1a tratment
Hello all i posted my doctor staged my cancer is one A he does not plan to follow up with chemotherapy or radiation is this the typical course I am worried about a recurrence thank you
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The Emperor of All Maladies
http://cancerfilms.org/ PBS has been making and will air this film March 30, 31, April 1. I read the book about 3 years ago and found it fascinating. Some of you may have read it also. It is indeed the biography of cancer - past, recent past, present, and future. I'm setting my recorder because I don't want to miss it.…
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Any one out there being tested for CA 19-9 in addition to CA 125? For people with mets/progression/
Due to rising protein and glucose levels I am now being monitored for this as part of the boards they test every three weeks prior to avastin. (For those who don't know I am living with advanced stage UPSC that has Mets and is considered progressive and am chemo resistant.). I think this is related to the Avastin potential…
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Thank you DoubleWhammy, Hybrid, Hopefull & Pinky
I got a call from my doctor's office for a recent polyp biopsy and they told me it is negative! I can't believe it. I want you to know how much I appreciate your advice. And I know that when you answer posts, you're not just helping me but so many others that are scared and looking for answers. I will pray for you all that…
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Pelvic floor therapy
Barb mentioned pelvic floor therapy on another post. Thought I'd give it its own topic since I'm being selfish as I've just started it. My gyn/oncologist referred me to a urogynecologist because I have stress incontinence since my hysterectomy. I so agree with Barb that the exam was uncomfortable and long, but I sort of…
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Info about Polyps
Yesterday morning I had a uterine polyp removed that I didn't know was there. The doc was trying to do a uterine biopsy when he spotted the polyp and immediately took it off. I had some spotting with brown blood throughout the day yessterday. Now, this evening, i'm bleeding bright red watery blood. Does anyone know the…
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Anyone with UPSC Stage 1A who chose not to have Chemo?
Hi! I was recently diagnosed with UPSC and am 4 weeks post radical hysterectomy. My pre-op CTs were negative as we're all the lymph nodes, and other biopsies done at surgery. I had had a D&C and polyp removal 1 month prior to hysterectomy which established the diagnosis. Originally my surgeon interpreted the research for…
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Darn Labs..it's MMMT
Hello All. I was just diagnosed with MMMT plus another stupid but less aggressive uterine cancer from my November 6th hysterectomy due to bleeding and other crappy stuff. My delightfully cute gynocological oncologist is setting up my chemo treatment as I type this and will find out what that is all about on my Dec 4th…
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Just got home from the Gyno...scared!!!
I just got back from the gyno after years of symptoms including abnormal heavy watery bleeding, cramps, excessive discharge, pain, etc. I had a negative pap in September and also HPV negative, but i had a "hemorrhage" I had a transvaginal US in mid-november which didn't show anything but a few small fibroids. My main…
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Updated:question about D&C using Hysteroscopy
Hi everyone i've updated my situation in last comment, pleaseeee reply if possible. I'm a member of kidney cancer board, not here. This Saturday I'm going to have a D&C using hysteroscopy to remove a polyp in the endometrial line. Here are my questions, how should I be prepared for it? Should I be fast? Does it hurt? Can…
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Bloating and a recurrance.
Can bloating be a sign of a recurrance. I had my complete surgery done in June 2014 and 5 rounds of chemo and internal rad. I am do for my 2nd ct scan since surgery on Feb. 9th. Should I just wait.My stage is 2 MMMT. I have Celiac and eat gluten free but something is going on. Maybe I am just eating to much. thanks
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Symptoms & Random questions (not diagnosed)
Hello. I'm 42 (premenopausal) and have had pelvic symptoms for about 5 years. Terrible pain, bloating, cramping, bleeding, and excessive discharge. I had irregular bleeding many times, but I made an emergency trip to the clinic for a pap test because of extremely heavy bleeding 14 days into my cycle. The blood was watery…
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NED 5 YEARS-mmmt - JUST SPOTTED
Hi Guys, been reading all posts don't do much writing since I lost my daughter. I have had a total hyst in 2009 MMMT stage 1a grade 3. 6 rounds of chemo. Friday after a long day of stressful driving, went to the b/room and saw bright red blood on toilet paper, I almost fainted. I have moved from where my Doc is and at a…
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Any Experience with DOXIL?
Hi. This is my first post. I was diagnosed in Jan 2014 with Stage IVB and had surgery, chemo, and vaginal brachytherapyy. I was NED in July 2014 but had a recurrence in December when they found some enlarged nodes in my pelvic area on a CT scan. That was followed by PET which confirmed cancer. So far no tumors, no spread…
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I am back from surgery and it is good news!
I am back from surgery and it is good news. 1a. I have been thanking God daily and still praying for my "sisters". Still sore on the outside and inside but managing okay.... QUESTION???? Want to ask those who have had robotic, do you have those bumps around1-3 cms at your incision site? Feels like round nodules under the…
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My promised update, from Moli.
Hi everyone, I have not forgotten you, I often read the posts but had no new news to relay. while I waited to have my follow up scans, Some of you may recall that I had total hysterectomy on April 2nd,2014 ,for stage 3 Serous Endometrial Cancer, then follow up scans on August 28th 2014 with great results, NED .I was…
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Re: Passing of Arlene Romano
Dear Ladies: It is with very sad news that Arlene Romano, who had Stage 3 of UPSC passed away on Wednesday, January 7, 2015. I knew her from the Uterine Board and she lived not that far from me in Delaware County, PA. Her funeral services will be held this week. I met Arlene last year in March for lunch at a nearby…