diagnosed at 25

lostinthefog

Not sure where to start. I guess in the beginning..I found out on april 8th 2015 that I have uterine cancer. Im only 25 and still trying to process everything. The doctors are not sure what grade it is due to the fact that my labs came back at both grade 1 and grade 3. It has been ruff seeing as to how I have never had children and my husband and I have been married less then a year...i think the hardest thing im having to deal with is the chance I may never be able to have children of my own. I know there is adoption.  And that there is always a reason for everything..it just feels like when I try and talk to my family knowing that they mean well they dont seem to fully understand the feelings im having..I guess what im looking for is some helpful advice for someone to talk to that either is or has gone through my simalar situation.

yamster34

I can't say our siruation is

I can't say our siruation is similar but I can tell what thing have been helping me. I was diagnosed with stage 4 terminal ovarian cancer that spread to my liver and spleen. I am 44 years old. The doctor did not seem to think I had much time to live at all. After discussing the options with my husband, we decided that I would not get surgery, chemo, or radiation. I have been here for more than 7 months since being diagnosed. I have felt great overall. Hospice comes to see me once a week (which means that the doctor that diagnosed me thought I had 6 months or less left to live). There are 2 main problems I have had. First, I had a blood clot in my leg. I gave myself injections for 15 days instead of the 30 days the doctor wanted me too. Plus, while I used the injections, the blood clot moved to one lung. The injections were more painful than the blood clots. I have read that Vitamin E dissolves blood clots so I took (2) 400 IU tablets a day. My blood clot thankfully went away. The other problem has been fluid buildup in my stomach. Because I did not get it drained enough, the fluid went into my legs also. This made it hard to walk most of the time. At first, I had to go to the hospital to have fluid drained every time. I then found out about the PluerX catheter. I was awake during that surgery and the pain was horrible for the first 48-72 hours. Thankfully that pain was only that bad when I sat up (using my abdomen muscles). Since getting the PluerX, my husband and I drain the fluid at home. Now that we got it under control, there is no more fluid in my legs and the fluid in my stomach is kept to a minimum. I am feeling great now. I can walk up and down stairs again. Recently, my hospice nurse and several other people have mentioned that my healthy color is back. I see my mom usually once a week and she said I look better every time she sees me. One thing that really seemed to helped in my healing was eating a vegan diet for several months. I had to go back to eating meat and poultry because I could not get enough protein otherwise. I hope some of this information helps in your decision making. Getting things removed is permant, where as making changes to your diet is not. A couple of things that I realized were that only God knows how long any of us will live and if He wants to take us Home, He will whether we get treatment or surgery or not. We will be praying for you.

 

NoTimeForCancer

lostinthefog, I am so sorry

lostinthefog, I am so sorry you have found yourself having to find our group.  While you are sorting this all out in your head, and I believe it is a journey that takes awhile - there is no specific time anyone can give you, I hope you are seeing a gynecological oncologist. You really do want this type of doctor who specializes in 'below the belt' cancers.

I can't imagine what you are going through and I do know there are some young women, like yourself, who  have found this page and I hope they reach out to you.  This is a true loss for you and would suggest you find someone to talk to.  So much handed to you and your husband right now, so please know that you are both in my prayers and thoughts. 

It is overwhelming right now, so I would recommend taking a breath and take it one day at a time.  Make a list of questions for your doctor and if you can, have someone with you to take notes of everything that is said to you.  This way you will have notes to go back to and a place to list the questions you think of in the days between. 

Please don't look at statistics or things like that, you are a statistic of one.

 

DrienneB

Diagnosed at 25

Lostinthefog,

I am sorry. I did not have to let go of the cherished dream of natural motherhood as early as you might be doing, but can only say that due to cancer and other health problems and circumstances, I can relate to the extreme disappointment of life serving up something entirely different, unexpected and all-around traumatic.

I'm hoping that your husband is able to be a loving and supportive soulmate at this difficult time, and that you let yourself grieve. Everything NoTimeForCancer has suggested is wonderful advice.

 

 

sweetest_jewels

my situation is similar...

I recently just turned 26 and I feel as if to connect would mean that I also need to give a little back history. So... over the last 6 months I have been going to doctors. I have been losing blood and they don't know exaclty where is has been going. Well, my last doctors appointment didn't go so well at all. They realized that some of the missing blood had been pooling in my uterus for a while. I got married last year in August. My husband has two wonderful girls but I have none of my own. I want nothing more than to be a mother. Well, back in January I had what they thought was a miscarriage. I was shocked because I never once even realized that I was even pregnant. I felt like the world was taken from me then. When I went to see my doctor in March about my results of the blood work my doctor told me that he didn't think it was a true miscarriage. What my doctor referred to it as was a "natural abortion" (if he had to make his best guess because the results weren't clear) the difference in this and a miscarriage is this... a miscarriage usually results in a defect in the baby and the body rids it. A "natural abortion" is when there is something wrong with the mothers body and she is not going to be able to carry it. This is when the questions started coming... Why wasn't my body able to carry a baby? Why was my blood work messed up? With all this being said, what I thought was just a regular check-up turned into more. My white blood cell count is extremely high and has been for the last few months. The doctors are worried about it. A little back history of me would show that I have other medical issues as well. I have Poly-Cystis Ovarian Syndrome and a Liver Disease. My doctos said that mixed with me having PCOS, being overweight, having abnormal periods, a high white blood cell count, and a bleeding problem, all signs are pointing to pre-uterine cancer. I haven't been officially diagnosed with this yet but without any changes happening he has told me that I more than likely will develop it.

I know our situations are similar in some ways.. I am young and recently married. My husband didn't sign up for not having kids with me. My mom tries to help but she is always talking about how nice it would be if I could just have at least one kid. No one really understands the pain of knowing that you may never be able to hold a child that is your own. I literally cry at the fact it may never happen. I often ask why it had to happen to me. I see friends with their kids and I try to isolate myself from them because it hurts too bad to see others happy. I try not to be that way but it is just easier sometimes. 

NoTimeForCancer

sweetest_jewels said:

my situation is similar...

I recently just turned 26 and I feel as if to connect would mean that I also need to give a little back history. So... over the last 6 months I have been going to doctors. I have been losing blood and they don't know exaclty where is has been going. Well, my last doctors appointment didn't go so well at all. They realized that some of the missing blood had been pooling in my uterus for a while. I got married last year in August. My husband has two wonderful girls but I have none of my own. I want nothing more than to be a mother. Well, back in January I had what they thought was a miscarriage. I was shocked because I never once even realized that I was even pregnant. I felt like the world was taken from me then. When I went to see my doctor in March about my results of the blood work my doctor told me that he didn't think it was a true miscarriage. What my doctor referred to it as was a "natural abortion" (if he had to make his best guess because the results weren't clear) the difference in this and a miscarriage is this... a miscarriage usually results in a defect in the baby and the body rids it. A "natural abortion" is when there is something wrong with the mothers body and she is not going to be able to carry it. This is when the questions started coming... Why wasn't my body able to carry a baby? Why was my blood work messed up? With all this being said, what I thought was just a regular check-up turned into more. My white blood cell count is extremely high and has been for the last few months. The doctors are worried about it. A little back history of me would show that I have other medical issues as well. I have Poly-Cystis Ovarian Syndrome and a Liver Disease. My doctos said that mixed with me having PCOS, being overweight, having abnormal periods, a high white blood cell count, and a bleeding problem, all signs are pointing to pre-uterine cancer. I haven't been officially diagnosed with this yet but without any changes happening he has told me that I more than likely will develop it.

I know our situations are similar in some ways.. I am young and recently married. My husband didn't sign up for not having kids with me. My mom tries to help but she is always talking about how nice it would be if I could just have at least one kid. No one really understands the pain of knowing that you may never be able to hold a child that is your own. I literally cry at the fact it may never happen. I often ask why it had to happen to me. I see friends with their kids and I try to isolate myself from them because it hurts too bad to see others happy. I try not to be that way but it is just easier sometimes. 

sweetest, I am so sorry to

sweetest, I am so sorry to hear your story.  I am glad to hear your doctors are concerned with a high white blood count and hope they can help you with getting that under control in the near future.  It does sound like you have some good doctors in your corner, and that is such a plus.

I also hope you can find someone to talk to to work things out - a neutral party who can listen to you and help you find your way.  In the meantime, maybe you can gently remind your mother that being healthy is your goal first. 

Hugs.  Please be kind to yourself.

 

I_believe

Keep strong

lostinthefog, 

this is so hard to read, my heart goes to you, prayers and hope..., but my mom's situation taught us to be strong and beleive and not give up. My mom just had her fist chemo, yesterday, and she is so strong, she always has been a strong woman.

 On a side note, dont give up, never give up. Doctors dont know everything and whenever they assign something/diagnose , as scary as last stage, there is always a chance. 

 

Couple of years ago, my friend ( at the age of 29 or) was diagnosed with cervical cancer ( stage one , i think), of course that was scary, shocking, life changing. She went for paps , because they finally decided to have kids and...instead got cancer diagnosed. It was very hard .. she had a surgery, but didnt allow them to remove everything, they wanted kids. There is always a bigger chance for cancer to come back, maybe not right away, but she didnt have chemo, nothing. She became vegan and did a lot of natural meredy things. Anyways, they never gave up, very hard road, and today their baby boy is 8 months already.. 

Its very hard, and its ok to be scared and lost, all of us on this page went through and still going through this. Read about it, learn, know as much as you can, talk to people, and live everyday to the fullest.

 

 

I_believe

sweetest_jewels said:

my situation is similar...

I recently just turned 26 and I feel as if to connect would mean that I also need to give a little back history. So... over the last 6 months I have been going to doctors. I have been losing blood and they don't know exaclty where is has been going. Well, my last doctors appointment didn't go so well at all. They realized that some of the missing blood had been pooling in my uterus for a while. I got married last year in August. My husband has two wonderful girls but I have none of my own. I want nothing more than to be a mother. Well, back in January I had what they thought was a miscarriage. I was shocked because I never once even realized that I was even pregnant. I felt like the world was taken from me then. When I went to see my doctor in March about my results of the blood work my doctor told me that he didn't think it was a true miscarriage. What my doctor referred to it as was a "natural abortion" (if he had to make his best guess because the results weren't clear) the difference in this and a miscarriage is this... a miscarriage usually results in a defect in the baby and the body rids it. A "natural abortion" is when there is something wrong with the mothers body and she is not going to be able to carry it. This is when the questions started coming... Why wasn't my body able to carry a baby? Why was my blood work messed up? With all this being said, what I thought was just a regular check-up turned into more. My white blood cell count is extremely high and has been for the last few months. The doctors are worried about it. A little back history of me would show that I have other medical issues as well. I have Poly-Cystis Ovarian Syndrome and a Liver Disease. My doctos said that mixed with me having PCOS, being overweight, having abnormal periods, a high white blood cell count, and a bleeding problem, all signs are pointing to pre-uterine cancer. I haven't been officially diagnosed with this yet but without any changes happening he has told me that I more than likely will develop it.

I know our situations are similar in some ways.. I am young and recently married. My husband didn't sign up for not having kids with me. My mom tries to help but she is always talking about how nice it would be if I could just have at least one kid. No one really understands the pain of knowing that you may never be able to hold a child that is your own. I literally cry at the fact it may never happen. I often ask why it had to happen to me. I see friends with their kids and I try to isolate myself from them because it hurts too bad to see others happy. I try not to be that way but it is just easier sometimes. 

Be healthy

sweetest_jewels

 

and yet another heart breaking story, but i agree with above suggestion, keep healthy. Having your own kids is great, but your number one goal is to be healthy and i feel like you have so much love to give. And yes there are kids out there that need to be loved. If you dont stop dwelling on the idea of never becoming a mom, eventually it will hurt you even more on other levels...

 

be thankful for what is now, until you have full diagnoses dont try to imagine things, that doesnt help much. I cried a lot when i found out about my mom cancer, plus recently we saw a genetic counsler and it might be even hereditary, very scary, going to do tests myself and my moms tumor is being tested out for dna ... Anyways, find support, lots of it, the only thing that helps in those crazy situations...

lostinthefog

sweetest_jewels said:

my situation is similar...

I recently just turned 26 and I feel as if to connect would mean that I also need to give a little back history. So... over the last 6 months I have been going to doctors. I have been losing blood and they don't know exaclty where is has been going. Well, my last doctors appointment didn't go so well at all. They realized that some of the missing blood had been pooling in my uterus for a while. I got married last year in August. My husband has two wonderful girls but I have none of my own. I want nothing more than to be a mother. Well, back in January I had what they thought was a miscarriage. I was shocked because I never once even realized that I was even pregnant. I felt like the world was taken from me then. When I went to see my doctor in March about my results of the blood work my doctor told me that he didn't think it was a true miscarriage. What my doctor referred to it as was a "natural abortion" (if he had to make his best guess because the results weren't clear) the difference in this and a miscarriage is this... a miscarriage usually results in a defect in the baby and the body rids it. A "natural abortion" is when there is something wrong with the mothers body and she is not going to be able to carry it. This is when the questions started coming... Why wasn't my body able to carry a baby? Why was my blood work messed up? With all this being said, what I thought was just a regular check-up turned into more. My white blood cell count is extremely high and has been for the last few months. The doctors are worried about it. A little back history of me would show that I have other medical issues as well. I have Poly-Cystis Ovarian Syndrome and a Liver Disease. My doctos said that mixed with me having PCOS, being overweight, having abnormal periods, a high white blood cell count, and a bleeding problem, all signs are pointing to pre-uterine cancer. I haven't been officially diagnosed with this yet but without any changes happening he has told me that I more than likely will develop it.

I know our situations are similar in some ways.. I am young and recently married. My husband didn't sign up for not having kids with me. My mom tries to help but she is always talking about how nice it would be if I could just have at least one kid. No one really understands the pain of knowing that you may never be able to hold a child that is your own. I literally cry at the fact it may never happen. I often ask why it had to happen to me. I see friends with their kids and I try to isolate myself from them because it hurts too bad to see others happy. I try not to be that way but it is just easier sometimes. 

Sweetest,Thank you for

Sweetest,

Thank you for reaching out. I can fully understand everything you are going through. Since my last post I have spent a lot of time dealing with doctors and feeling like a walking pin cushion. I also was losing large amounts of blood to the point that i ended up needing a transfusion. My gyn was the first to give me this life changing news and along with this I to have pCoS. On May 4th I had a d&c to remove the three other masses that during an ultra sound had been found. On May 14th I was given the results that confirmed house of my first pathology that I have grade two uterine cancer. My husband and myself were also just married in Aug last year and this has sent our lives for a whirlwind. Since getting the final results of the last test my oncologist has inserted a iud and put me on a hormone treatment to try and get my estrogen levels down. I also have been informed that I have to lose a drastic amount of weight in order for my Dr to preform surgery. Also I face the chance of have chemo or radiation or even both. I can fully understand facing the fact that never being able to have a child of your own is heartbreaking. It's the dream that most women want. It feels as though for me at times that my life is falling apart. I'm stuck in constant pain and am always tired. There are so many times I ask why me what did I ever do to deserve this. Having the strength to wake up everyday and take a breath and try and tell myself I'm gonna make today a great day gets hard. There are days that I put a smile on my face when all I want to do is cry. I sometimes will forget about my diagnosis and then all of a sudden it will come flooding back to me in a wave. I will never in my life forget the feeling I had when that first doctor told me that there was a chance of it being cancer. I try to remind myself daily that it wasn't the end but only the beginning of my fight.

myn1

newly diagnosed in april as well 41 y.o

Hello lost in the fog

You are the first one ive read is younger than I. How are you doing? I think you may have odds on your side for recovery. Your a young girl. I must say i was quite surprised at my diagnoses as well. I was stage 3 and have had total hysterectomy with tubes and ovaries removed in may. Three of thirty lymph nodes came back positive (in my pelvis, not distant) and no metastasis. Im in day 3 post my first chemo treatment. I must say less scary than ive read or heard it can be. 

lostinthefog

myn1 said:

newly diagnosed in april as well 41 y.o

Hello lost in the fog

You are the first one ive read is younger than I. How are you doing? I think you may have odds on your side for recovery. Your a young girl. I must say i was quite surprised at my diagnoses as well. I was stage 3 and have had total hysterectomy with tubes and ovaries removed in may. Three of thirty lymph nodes came back positive (in my pelvis, not distant) and no metastasis. Im in day 3 post my first chemo treatment. I must say less scary than ive read or heard it can be. 

myn1

i as well have not found anyone close to my age that is going through this as well, all of my doctors are pretty surprised at how young i am and to be diagnosed. my dr at first had plans of doing surgery but he feels im to much of a risk. my last test results showed grade 2. ive had many unexplained symptoms that everyone keeps saying i shouldnt be having but yet i am. my treatment thus far is just hormones to try ad get my estrogin levels down seeing as to how they are two active. im glad to know chemo hasnt been that bad for you and my thoughts are with you during your battle.

mamamoody

too young

Lostinthefog,   I'm so sorry. I can't relate to being so young, but I know there are many on this site that know exactly what you are going through.  May God bless you and give you a wonderful future.

lostinthefog

mamamoody said:

too young

Lostinthefog,   I'm so sorry. I can't relate to being so young, but I know there are many on this site that know exactly what you are going through.  May God bless you and give you a wonderful future.

mamamoody

thank you for your good thoughts, it does help to speak to other women who can relate, i know every situation is different but to have some sort of common ground has been very helpful. thank you again