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My conversation with my gynecologic oncologist
I saw my gyne oncologist and he seemed pleased that I am closing in on 1 and 1/2 years since my hysterectomy with no signs of a recurrence. I finished my chemo treatment 1 year ago. That was the end of my treatment . Yah!! But what he told me surprised me . He said that 90% of my treatment was my hysterectomy and…
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5 Years cancer free today
Just had my 5 year checkup for USPC and I am officially 5 years cancer free as of today. And my CA 125 which had stabilized after my surgery at 7 has now gone down to 5.1 The doctor said he doesn't often see it go lower after 5 years. So that is also good news. I had him look in one of my ears as dead skin (like you would…
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Low grade temperature that goes up and down for week. No other symptoms.
It started last week. The temp was 100.1 then after 1 Tylenol and a cool wash cloth on my head, it went down to 98.7. I had a runny nose that day but no aches and pains anywhere. I called the doctor. I talked with the nurse. She said she would call the doctor and give him the message and he or she will call me back. A 1/2…
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The quest for the cures
Has anyone seen this series? I watched it recently and found it very informative about cancer. I think it's a must for anyone fighting with this illness. It makes you think immune system and diet play a much bigger role than conventional medicine in eliminating cancer. Just wondering if you watched it, what your thoughts…
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Hormone pills, do they work?
most of the forums I have read, people with endometrial cancer that have mets have gone through chemo and radiotherapy treatments. Has anyone had hormone pills? Did they help? What stage were you when you used it? Did you need any additional treatment?
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Discouraged.....
Hi everybody. I saw my Oncologist on Friday and we officially decided to discontinue Doxil. After three cycles, and a dose reduction, the side effects were worse than they had ever seen. She wants me to take several weeks and just heal, which is OK with me. I am UPSC Stage IVb. In 2014 I went thru major debulking surgery,…
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HIP PAIN AND POSITIVE SCAN
I have had hip/groin pain for a month. It was so painful with sudden onset of pain that I could hardly stand the pain for the first two weeks, even with staying off it as much as possible, using crutches and taking Vicodin. Today I had an MRI and before I even got home they had called to tel me that they found something on…
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NED THE MOVIE
I am finally get to see NED the movie. It is 3:00 am and PBS has got it on in Dallas, Texas.
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UPSC...medical neglect
My sister had a hysterectomy and was diagnosed with stage IV B endometrial/UPSC cancer in the spring of 2011. For treatment purposes they used the same protocol as for ovarian cancer. The doctors involved were not very responsive (she's in Naples, FL, not some third world country) and she lacked confidence in them so she…
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My Dad is Upsetting Me!
So, since the last time I posted in here, things have been a little bit crazy for me emotionally. I'm up and down, moving from being scared and forgetting that I have been diagnosed with cancer. The wellwishes have stopped, and I've fallen out of most everyone's thoughts. Now Im just stuck here with this... situation. I…
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And so the journey continues; got my scan results
Hi ladies! Well, the news isn't great - I continue to progress now through my Avastin treatments. Two tumors have doubled in size, the one by my heart grew and the other two are stable. The good news is no new mets were seen and no direct organ involvement. My doctors are having me meet this Tuesday with a principal…
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lost
My wife was diagnosed with ovarian and uterine cancer Tuesday night. This was very unexpected and has crushed us. She's having surgey to remove both organs next month. We're worried about pulling through the surgery and the chemo treatments that follow. Dr says if all goes well, life expectancyis 1-4 years, that seems like…
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Re: Good news on cat scan for UPSC - NED - 4 years out from original diagnosis!
Hi Everyone: I just wanted to post my really Good news from my latest cat scan from yesterday as it shows I have No evidence of disease for UPSC for which I am extremely happy and very grateful so now I am 4 years out from my original diagnosis from February of 2011. I had Stage 1 of UPSC. So now, I only have one more year…
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Post complete hysterectomy endometrial cancer in my omentum
I would like to hear from others who have had this kind of cancer. After my hysterectomy my cat scan showed I was cancer free. Four months later I began having abdominal pains. Stage 1V endometrial cancer. I have completed my 6 infusion treatments and am now on Tamoxifen. I would like to hear from any patients with similar…
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The waiting
Hi I have been here looking at some of the posts just to get a feel for the forum but now I am posting. In early Febuary I got a diagnosis of adenocarcinoma. It showed up in a routine Pap smear so the location wasn't exactly known but now I have had a cone that came back clear...so on to the uterus. I had an ablation about…
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Doctor making some tweaks for my 2nd chemo treatment.
I saw my oncolgest this past Friday to tell him I couldn't go on with these bad side effects from my 1st chemo. I was on day 10 of extreme fatique and suffering with no appetite ,nausea that the sufran wasen't helping and bad travailing bone pain. I thought I would have been feeling at least a little bit better by day 10.…
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Grade 3 endometrial cancer mets to lungs
Hi all, My mum who is 58 years old was dx with stage 1b grade 3 endometrial cancer in late 2013. She had a full hysterectomy. Since then routine tests have been showing her cancer free. Until two weeks ago she went into emergency for a stomach pain. They scanned her and found spots in the lungs. After pet scan and biopsy…
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Alternative treatments
has anyone tried any alternative treatments that they found helpful? Keen to hear your experiences.
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Cancer: The emperor of all maladies
Did anyone else here in the U.S. see the three part PBS show "Cancer: The Emperor of All Maladies"? It was unbelieveable. How chemo, radiation, immunotherapy, and clinical trials run have come to be?? Fascinating. Like life, not everyone they highlight lives, but it did give hope. Back before radiation could start I was…
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Lymphedema Is Getting Some Recognition
Hi Everyone, Actor Kathy Bates has been speaking publicly about the lymphedema she recently acquired in both arms from a double mastectomy after a breast cancer diagnosis. It's sad that she too must suffer from this, but encouraging to me that we have such a fantastic advocate for lymphedema awareness and research. Kathy…
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MISSING----DEBRAJO, CULKA, TIGERS DO BOUNCE, NORMA2, BONNIEP, SARA ZIPORA, NANCIEB, TEAMKELLY, LIZ G
Hi guys, missing quite a few sisters. Any info. there are many more sisters that have stopped checking in, i don't remember all of them. I am only thinking of them and hoping they are all doing well. Please let me know if any one have info.
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19th chemo today Good day
i had my 19th round of chemo today (2nd Doxil) and everything went well. My CA125 was down after 1 round of Doxil from53-37 after progressivly raising on Taxol the last 4 times. Maybe we are headed down the right path again. Best news in a long time. My oncologisy added Deedron to the pre-med to see if it would help thye…
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Anxiety about my first "3 month" followup
i am new to the Board but I have been reading many of the comments from everyone and i see all the support. I am hoping for some advice. I was diagnosed with stage 1a grade 2 endometrial adenocarcinoma, endometrioid in late October. The treatment was total abdominal hysterectomy and bilateral salping-oophrorectomies with…
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My conversation with my gynecologic oncologist
I saw my gyne oncologist and he seemed pleased that I am closing in on 1 and 1/2 years since my hysterectomy with no signs of a recurrence. I finished my chemo treatment 1 year ago. That was the end of my treatment . Yah!! But what he told me surprised me . He said that 90% of my treatment was my hysterectomy and…
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Doctor in NYC to treat papillary serus uterine cancer
hello, my friend was just diagnosed with papillary serus high grade uterine cancer. This was yesterday (catscan and utrasound). She was told to find an obgyn oncologist. No grading has been done yet. I do not know if you are allowed to share the name of your doctor on this site but if so, can you share the name of your…
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Doxil side effects
I am fairly new to this. Since joining, I been reading other posts, which has been helpful, but have been a little shy about asking my own questions. I have stage 4 high grade papillary serous endometrial adenocarsinoma that has matastisised several times. Each time we get it beat down, it finds a new place to hide.…
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Metastatic endometrial cancer spread to my lungs
Last October I was diagnosed with endometrial cancer in my lungs. I had a hysterectomy five years ago and had check ups every three and later six months. Everything was great until a persistent cough sent me to my doctor who ordered xrays of my lungs. From there I ended up going to Moffit Cancer Institute to a gynacologica…
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TGIF..and on to other things!
An update! After 48 hours on prednizone (massive dose) the pain in my feet has subsided to where I can walk normally. Still can't get shoes on, but that will come. The chemo burn/rash is massive and going to take some time. Slightly better this morning, and didn't need pain pills last night so that's progressing too.…
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A good day!
Hello Sisters! I have been having a bad time this last week, and you have been there and I so appreciate it. I just wanted to share a couple of my little miracles with you and hopefully share a smile. Yesterday I had to go into the lab for tests and was DREADING it after the week I've had, can barely stand to be touched,…
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If you are seeking evidence of hope
Check out the other discussion board, specifically Long Term Survivors. emily1171 posted an incredible thread yesterday that I think we uterine cancer ladies and associated loved ones ought to read. I have been known to stray from the uterine board to read about other cancers . emily1171's story was incredible . It tells…